Ashley Schow
Ashley Schow
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Winter Blues
Daniel and I spent the week of my 31st birthday escaping to the Caribbean waters of Grand Cayman. Easy access to coral reefs and abundant marine life made our warm weather wishes come true!
มุมมอง: 234

วีดีโอ

Yvonne Coombs Orr 90th Birthday Celebration!
มุมมอง 95ปีที่แล้ว
On June 11th, 2022, friends and family gathered in Fort Macleod, Alberta to celebrate the 90th birthday of Yvonne Coombs Orr. Organized by her children, quilts lined the walls, treasures and trinkets that represented Yvonne were on full display, and a delicious meal was shared by all. As Master of Ceremonies, long time friend and neighbor Dennis Tolley led the way with his tributes to Yvonne an...
Four Gutsy Grannies Conquer The West Coast Trail! (Happy 60th Wendy!)
มุมมอง 2862 ปีที่แล้ว
After delaying their start by three full days due to unprecedented thunderstorms with record rainfall that ripped across the southern tip of Vancouver Island, the four "Gutsy Grannies" began their West Coast Trail adventure on the northern trail head. Starting at Pachena Bay they hiked, scrambled and climbed their way past landmarks such as Sea Lion Rock, Tsusiat Falls, Nitinaht Narrows, the se...
#RootingforRhett - The Story of an Angel
มุมมอง 103K3 ปีที่แล้ว
#RootingforRhett #angelmansyndrome #angelman Bella and Ben Duce share the story of their incredible journey with baby Rhett and his Angelman Syndrome diagnosis. Word of mouth played a key role in helping them along their way. Please consider a like and a share to help Bella and Ben in their efforts to spread awareness of this rare genetic disorder. For more information on Angelman Syndrome visi...
For all the B'ys
มุมมอง 2243 ปีที่แล้ว
A highlight reel of our 4-day adventure aboard SV Porpoise with Captain John, exploring the coast of British Columbia, Canada.
Pura Vida!
มุมมอง 473 ปีที่แล้ว
Starting the new decade exploring the beautiful country of Costa Rica!
Coyote Flats
มุมมอง 1673 ปีที่แล้ว
August 30, 2020 marks ten years since my Grandpa Orr passed away. It was a pivotal moment in our family, and reminded us all that time is precious. This video is my humble attempt to capture my grandparents love of the land they farmed, the people they worked along side with in that endeavor, and the legacy they built.
Oceanic Gold
มุมมอง 1793 ปีที่แล้ว
I have never experienced chills listening to a song as much as I did when I heard "Gold" by Frida Sundemo for the first time. It hit me so hard I immediately added it to my daydreaming playlist. So, naturally I wanted to bring the daydreams that "Gold" evoked to life in the next trip we planned. This brought us to Vancouver Island and the small surf town of Tofino! Fun fact, the first item I ev...
TRAILER : #RootingforRhett - The Story of an Angel
มุมมอง 2.3K3 ปีที่แล้ว
WE JUST PREMIERED THE WHOLE STORY, YOU CAN WATCH IT HERE th-cam.com/video/8hxSYMY8oTs/w-d-xo.html

ความคิดเห็น

  • @NathalieBoynton3862
    @NathalieBoynton3862 หลายเดือนก่อน

    I used to care for an adult male with Angelmans. He was a happy person. Could walk, run, eat normally, go out with his housemates. He was no trouble at all. He was one of the lucky ones.

  • @francesgoforth7366
    @francesgoforth7366 2 หลายเดือนก่อน

    Colin Farrell.

  • @francesgoforth7366
    @francesgoforth7366 2 หลายเดือนก่อน

    Beautiful lil' boy, beautiful family💕 Were you aware of Colin Carroll's son has AS & he has a beautiful story on him. If you have not seen this, you should watch this. His son is 20 & is an amazing young man. God bless your son & all of his family!

  • @DaleHercules
    @DaleHercules 2 หลายเดือนก่อน

    God Bless this family.😢

  • @Erica-v4c
    @Erica-v4c 2 หลายเดือนก่อน

    My kids both have dup15q syndrome

    • @Erica-v4c
      @Erica-v4c 2 หลายเดือนก่อน

      My daughter was also allergic to milk protein had to be on nutramagen

  • @mandyholmberg5106
    @mandyholmberg5106 2 หลายเดือนก่อน

    I am sending out my thoughts and prayers and love to this whole family ❤

  • @catharinasimms4588
    @catharinasimms4588 2 หลายเดือนก่อน

    Such a beautiful family ❤ & gorgeous children ❤🇦🇺

  • @nonyorr6741
    @nonyorr6741 6 หลายเดือนก่อน

    Sooo good Shley!

  • @rachelleorr2881
    @rachelleorr2881 7 หลายเดือนก่อน

    Beautifully done Shley!

  • @dallinorr6929
    @dallinorr6929 7 หลายเดือนก่อน

    First

  • @joanmckinnon2368
    @joanmckinnon2368 ปีที่แล้ว

    What a beautiful little boy God bless your family

  • @darlenesheldon2246
    @darlenesheldon2246 ปีที่แล้ว

    Bless your family. I worked as a aide to care for a set of twin boys with Angelmens. They were 20 years old. One of them had come home from the hospital after a seizure episode. This young man never spoke.. BUT this day I spent the day with him rubbing his head and talking to him and just being there with him. He looked up at me and said "Love you!!!" I couldn't believe it. They are happy young men..

  • @chrishough692
    @chrishough692 ปีที่แล้ว

    God bless your family! Prayers for Rhett, you as his parents, and his baby brother, who hopefully doesn’t have the same diagnosis. Rhett is well loved and happy, and that’s a huge blessing! ❤️

  • @barbvillarreal7440
    @barbvillarreal7440 ปีที่แล้ว

    Your beautiful Angel Rhett and his darling little brother are precious little gifts from God in Heaven 💙 💙 🙏

  • @jakobiepatrick9069
    @jakobiepatrick9069 ปีที่แล้ว

    When I got Asperger's too, I stayed at altapointe for 2 weeks and every night I got throwed up in my 🛁🚿 bathroom and since that I got no symptoms inside 💠 my stomach. and "everytime that you see is food" like my mom Mekita Ann said if she said that in that dictionary she will lose me before surgery back in 2022 right before the holidays and the new year as well and back in January of 2023 my old LG Stylo 6 was mess up and not work and couldn't charge well, you may now this, that's a lot of money, but thanks to Kelvin this weekend he got my money and Uncle Steve got me a new phone from Cricket® Wireless, it's called the Cricket® Ovation 2 and back this weekend in April I got a new phone charger the same charger as my new phone, Cricket® Ovation 2.

  • @jacquehoosier6597
    @jacquehoosier6597 ปีที่แล้ว

    ❤❤❤

  • @chupaflor6331
    @chupaflor6331 ปีที่แล้ว

    They should take equal turns talking back and forth. Husband just sits there for long stretches. And yes , the guitar is distracting

  • @wandareed3061
    @wandareed3061 ปีที่แล้ว

    What a story!!!!

  • @nancycurtis488
    @nancycurtis488 ปีที่แล้ว

    What a bright, beautiful smile…..so precious. You are doing a fantastic job, Mommy and Daddy!

  • @rebeccamiller3012
    @rebeccamiller3012 ปีที่แล้ว

    Sending prayers for strength and comfort and healing on his lil body. May God help, lead and direct in decisions tonbe made in his lil life.❤❤

  • @MarcyEaton-h7x
    @MarcyEaton-h7x ปีที่แล้ว

    Such a sweet little boy.god truly gave you a angel.stay strong

  • @pervisgavin1730
    @pervisgavin1730 ปีที่แล้ว

    lol

  • @raebro8893
    @raebro8893 ปีที่แล้ว

    I have had the privilege of teaching three angels with angelman syndrome in Calgary .. beautiful young people. Rhett is lucky to have parents like you!! ❤❤❤

  • @sallyire1
    @sallyire1 ปีที่แล้ว

    Such a beautiful family. My heart broke hearing the mom talking. As a speech therapist I've had only one child who was diagnosed with Angelman's Syndrome. She was a girl of three with a single mom. I'll never forget the mom because she was completely exhausted. This poor child would rarely sleep. The little girl was mobile and had a crib. The mom said she never stopped moving, going in continuous circles in the crib as though she were doing laps. I think about that mom even now (20 years later) and wonder how they're doing.

  • @icturner23
    @icturner23 ปีที่แล้ว

    Anyone who feeds themselves or a child cows’ milk or any other animal product is highly irresponsible.

    • @nancycurtis488
      @nancycurtis488 ปีที่แล้ว

      Why would you say such a thing? I have seven children…the first two were bottle fed a cow milk formula and did great. I learned about breastfeeding and all 5 of my daughters were breastfed for between 2 and 4 years but also had cow milk from a Curt starting at age 2…. no problems what so ever…..ever. None of them have ANY food allergies…..milk and food allergies DO NOT RUN in our families so you really need to walk in other parent’s shoes before you make snotty comments when you are first of all not medically trained and second don’t know everyone’s story. In other words…..quit being a know it all meanie! Geeze.

    • @nancycurtis488
      @nancycurtis488 ปีที่แล้ว

      From a “cup”…lol…not a Curt.

  • @TammyBrown-f7v
    @TammyBrown-f7v ปีที่แล้ว

    Thank you for sharing! You can see and feel the love you have for each other and your boys! Praying for your little ones and also for you and your continued strength. God bless your family!

    • @pervisgavin1730
      @pervisgavin1730 ปีที่แล้ว

      Did you know that every time you fart, it's a little piece of your soul escaping your body? Have fun in stinky hell :)

  • @karenherring8883
    @karenherring8883 ปีที่แล้ว

    Worked for Disability Services QUEENSLAND and supported 3 individuals with Angelina's.

  • @kathgraham9209
    @kathgraham9209 ปีที่แล้ว

    ...........😪

  • @TonyWeigand-o1c
    @TonyWeigand-o1c ปีที่แล้ว

    God gave this Precious little boy to you very special parents. He is in the best hands possible. May God bless you and your family today and always! 💕

  • @connieverbeck1110
    @connieverbeck1110 ปีที่แล้ว

    God bless you!

  • @lindacastillo4429
    @lindacastillo4429 ปีที่แล้ว

    May God wrap his loving arms around this family.

  • @SEJ3333
    @SEJ3333 ปีที่แล้ว

    Lovely people and I wish them so well. P.S. She looks so much like Taylir Swift!

  • @sandralarson-gonzales3797
    @sandralarson-gonzales3797 ปีที่แล้ว

    God bless you all

  • @DianeCiccaroni
    @DianeCiccaroni ปีที่แล้ว

    He is absolutely adorable and LOVABLE 🙂👍🙂✨🧡🌄🌠✨🌛

  • @purpleandred7
    @purpleandred7 ปีที่แล้ว

    You have a beautiful family. God bless you all. I'm Rooting For Rhett 💜🙏

  • @GS-no5qz
    @GS-no5qz ปีที่แล้ว

    Blessings

  • @mastergardener2000
    @mastergardener2000 ปีที่แล้ว

    Have anyone ever thought marijuana therapy for the seizures? I did hear that there was some research about this. My prayers are with you❤

  • @AngelBluff
    @AngelBluff ปีที่แล้ว

    I'm without words. SO many things i saw is this couple and their attitude i will never forget. Lessons taught in such a deep profound way. God bless precious Rhett and his story. What and amazing story of hope and love.

  • @dennisriley4907
    @dennisriley4907 ปีที่แล้ว

    Bless you.

  • @AmFMv1968
    @AmFMv1968 ปีที่แล้ว

    Brought tears and smiles to me, sending you all love and prayers. Kia Kaha! 💜💜

  • @DianeDixey
    @DianeDixey ปีที่แล้ว

    You two are so brave... and so loving.

  • @phyllispeart175
    @phyllispeart175 ปีที่แล้ว

    God bless Rhett you and husband.

  • @lindacarruthers3423
    @lindacarruthers3423 ปีที่แล้ว

    I have enormous respect for this couple and to use a commonly used phrase “ my heart goes out to them” it truly does . I felt it as I continued the video . As a parent whose child was frequently hospitalized my husband and I saw the many single mothers with sick children whose fathers were unable to cope with it all and left . There are so many aspects involved. Grief for the perilous future of the child you love with all your being , fear of dying before they do ,sorrow and sympathy for the pain and hardship you can do nothing to alleviate and so on . Then there’s your spousal relationship , changed forever to accommodate the little one’s needs . Becoming partners in advocacy for your child, sharing care and fears and still managing to love each other. Out sweet good girl achieved 26 years and devastated us by dying one night with no warning . Fortunately we believe she is better off now in a place of love in which she can flourish as she was not able to in this life .I will say a prayer for you all , and tell you that you are magnificent even if you don’t necessarily feel it , YOU ARE ! ❤❤❤.

  • @debbiegeorge5718
    @debbiegeorge5718 ปีที่แล้ว

    Incredible story. As a young couple and having your first child ill is devastating. My daughter was ill alot but we were fortunate that she eventually outgrew the illness. But I remember crying holding her we loved her so much . We didn't know anything about babies as she was our first so everything we did likec all first time parents it was a guess and hope that it was right. I feel your pain but your an incredible couple I believe the love you have for each other will and has benefited your Beautiful baby boy. Many couples can't handle the stress and break up. As long as you continue to hold the love and respect for each other he will grow up happy and isn't that all we really want. Good luck to you both. I dont have a doubt in my mind that God gave you this child for a reason and this little angle may have an illness but he's perfect for you both. 😊

  • @annj7466
    @annj7466 ปีที่แล้ว

    I love your beautiful family. ❤ I am so proud of you. Thank you for sharing your story.

  • @shannonrn7609
    @shannonrn7609 ปีที่แล้ว

    Oh my gosh, I just saw this, and it was so touching. I'm sure you have heard a lot of inspiring comments and have helped other mommy's and daddy's throughout your journey. I just wanted to say thank you. I've been a nurse for thirty years and have not had knowledge of or experience with this disease. God bless your family through this journey, and remember we don't know His plan or reason's but he made sure this young one had the best parents for the job. Prayers for strength, endurance, and faith. God bless you all🥲❤️‍🩹🙏

  • @terrilewis172
    @terrilewis172 ปีที่แล้ว

    This was such a kind way to share with others by these wonderful parents that they may help other children.

  • @hazelsignstrimble3064
    @hazelsignstrimble3064 ปีที่แล้ว

    God bless you all for your precious little boy

  • @inmaculadahidalgoflores1257
    @inmaculadahidalgoflores1257 ปีที่แล้ว

    He is an angel,and they are special,god bless that beautiful family

  • @laurapeltier1913
    @laurapeltier1913 ปีที่แล้ว

    This young man was so beautiful and smiley and I loved it that he was interacting with other kids in the junior high. It was the right thing to do for this young man.