RealTalkMS
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Episode 384: Behavioral & Lifestyle Risk Factors for MS with Dr. Jared Bruce and Dr. Amanda Bruce
There are genetic risks associated with MS, there are demographic risks of experiencing a more severe disease course, and there are also behavioral and lifestyle risks that will increase the chance that someone will be diagnosed with MS. Joining me today to discuss behavioral and lifestyle MS risk factors and how they can be mitigated are Doctor Jared Bruce and Dr. Amanda Bruce.
Dr. Jared Bruce is a neuropsychologist and the director of psychiatric research at the University of Missouri-Kansas City School of Medicine. Dr. Amanda Bruce is a clinical psychologist and an assistant professor in the Department of Behavioral Pediatrics at the University of Kansas Medical Center.
We're also reviewing the details of the Inflation Reduction Act, which means, beginning in 2025, significantly lower out-of-pocket costs for prescription medications for the quarter-million people with MS who are on Medicare.
We'll tell you about study results for a novel drug that was effective in remyelination and restoring lost function to mice with the mouse model of MS.
We'll share the details of a study that shows how specific comorbidities affect specific MS outcomes.
We'll review results of a study that shows men with MS who start a high-efficacy disease-modifying therapy experience fewer relapses.
And we'll tell you how an artificial intelligence chatbot soundly beat human experts in predicting the results of neuroscience studies.
We have a lot to talk about! Are you ready for RealTalk MS??!
มุมมอง: 42

วีดีโอ

Episode 383: Revisiting ECTRIMS 2024 with Dr. Bruce Bebo and Kristine Werner Ozug
มุมมอง 50วันที่ผ่านมา
One of the most important MS research events of the year is the annual European Committee for Treatment and Research in MS Scientific Congress, usually referred to by its acronym, ECTRIMS. You've made our podcast episode that followed ECTRIMS the most downloaded episode of 2024. So, this week, I'm revisiting the two conversations that I had immediately after the ECTRIMS conference ended. In wha...
Episode 382 audiogram: Revisiting Women's Health Issues & MS with Dr. Rhonda Voskuhl & Dr. Anna Shah
มุมมอง 3114 วันที่ผ่านมา
The holiday season provides me with an opportunity to indulge in what's become a RealTalk MS tradition. I reserve the last two episodes of the year to revisit the most compelling and important conversations that I've had over the past year. This week, I'm revisiting two conversations I had with two experts on MS and women's health issues. MS affects women almost 3 times more frequently than it ...
Episode 381: Measuring Your MS Disease Status? There's an App for That! with Dr. Charisse Lichtman
มุมมอง 10921 วันที่ผ่านมา
There's an alarming shortage of neurologists in the United States. That shortage makes it hard to be seen by a neurologist and, in some regions of the U.S., you may not even find an MS specialist without having to travel hundreds of miles. The good news is now there's an app for that! Joining me to talk about how an app called BeCare is already changing the game when it comes to MS care is the ...
RealTalk MS ECTRIMS Extra: Tolebrutinib and RRMS
มุมมอง 10821 วันที่ผ่านมา
Principal Investigator Dr. Jiwon Oh shares the results of the Phase 3 clinical trial for Tolebrutinib and relapsing multiple sclerosis.
RealTalk MS ECTRIMS Extra: Tolebrutinib and SPMS
มุมมอง 6321 วันที่ผ่านมา
Principal Investigator Dr. Robert Fox shares the results of the Phase 3 clinical trial for Tolebrutinib and non-relapsing secondary progressive multiple sclerosis
RealTalk MS ECTRIMS Extra: New Diagnostic Criteria
มุมมอง 8521 วันที่ผ่านมา
Dr. Peter Calabresi discusses the updates to the way multiple sclerosis is diagnosed.
RealTalk MS ECTRIMS Extra - New Course Descriptors for MS
มุมมอง 5221 วันที่ผ่านมา
Dr. Fred Lublin discusses his ECTRIMS presentation on the need to update the way we think about and talk about multiple sclerosis by, once again, updating the clinical course descriptors.
MS in the UAE with Professor Bassem Yamout
มุมมอง 1921 วันที่ผ่านมา
Professor Bassem Yamout discusses multiple sclerosis in the United Arab Emirates.
RealTalk MS ECTRIMS Extra: A Patient's Perspective of ECTRIMS 2024 with Kristine Werner Ozug
มุมมอง 3921 วันที่ผ่านมา
Kristine Werner Ozug shares her thoughts on attending the largest MS research conference in the world for the first time.
RealTalk MS ECTRIMS Extra with Dr. Shiv Saidha: The Visual System and MS
มุมมอง 1821 วันที่ผ่านมา
Dr. Shiv Saidha explains the important relationship between our visual system and multiple sclerosis.
Episode 380: Thriving in Cold Weather with MS with Dr. Lisa Doggett
มุมมอง 78หลายเดือนก่อน
f you're living with MS, you've probably already learned that hot weather, hot baths, or anything that causes your body temperature to increase can quickly cause your symptoms to worsen. But winter can also be a challenging time. Less daylight, frigid temperatures, ice, and snow can all have an impact on MS. Dr. Lisa Doggett returns to the podcast with tips and strategies for enjoying winter wh...
Episode 379: The Pros & Cons of Participating in MS Research with Dr. Kathy Zackowski and Mimi Brown
มุมมอง 50หลายเดือนก่อน
More effective treatments and even cures for MS can only happen as a result of clinical research. And clinical research can only happen when people living with MS choose to become research participants. But what are the pros and cons that you should consider when you're thinking about participating in MS research? The National MS Society's Associate Vice President of Research, Dr. Kathy Zackows...
Episode 378: An MS Care Partners Roundtable with Barbara, Marina, Maiya, and Matt
มุมมอง 51หลายเดือนก่อน
Too often, care partners remain invisible as they deal with the emotional, physical, and even financial burdens that go along with supporting a loved one who's living with multiple sclerosis. November is National Family Caregivers Month, and I'm devoting this entire episode to a roundtable discussion with four remarkable care partners as they share their insights, experiences, and lessons learn...
Episode 377: The Art of Hope with Lydia Emily
มุมมอง 34หลายเดือนก่อน
There are some people who, once you meet them, it's impossible to forget them. They seem to leave an indelible impression. Lydia Emily is one of those people. Whether it's through her art that occasionally escapes the canvas to be expressed as massive urban murals proclaiming End MS, or through her outspoken MS advocacy. Lydia Emily is a force. Now, along with co-author Lenlee Keep, Lydia Emily...
Episode 376: Adding Dance, Music & Art Therapy to Your MS Treatment Plan with Dr. Francois Bethoux
มุมมอง 53หลายเดือนก่อน
Episode 376: Adding Dance, Music & Art Therapy to Your MS Treatment Plan with Dr. Francois Bethoux
Episode 375: Managing Teenage MS with Dr. Ann Yeh
มุมมอง 302 หลายเดือนก่อน
Episode 375: Managing Teenage MS with Dr. Ann Yeh
Episode 374: Grieving When You're Living With MS with Dr. Holly Hendin
มุมมอง 962 หลายเดือนก่อน
Episode 374: Grieving When You're Living With MS with Dr. Holly Hendin
Episode 373: ECTRIMS Research Roundup Part 2 with Dr. Bruce Bebo
มุมมอง 522 หลายเดือนก่อน
Episode 373: ECTRIMS Research Roundup Part 2 with Dr. Bruce Bebo
Episode 372: Medicare Changes That Will Affect You in 2025 with Sarah Anderson
มุมมอง 852 หลายเดือนก่อน
Episode 372: Medicare Changes That Will Affect You in 2025 with Sarah Anderson
Episode 371: A Difference-Making Mobility Device with Dee Ecklund and BE Alink
มุมมอง 643 หลายเดือนก่อน
Episode 371: A Difference-Making Mobility Device with Dee Ecklund and BE Alink
Episode 370 The Updated Pathways to Cures Research Roadmap with Dr. Bruce Bebo & Shawna Golden
มุมมอง 813 หลายเดือนก่อน
Episode 370 The Updated Pathways to Cures Research Roadmap with Dr. Bruce Bebo & Shawna Golden
Episode 369: ECTRIMS 2024 with Kristine Werner Ozug and Dr. Bruce Bebo
มุมมอง 1533 หลายเดือนก่อน
Episode 369: ECTRIMS 2024 with Kristine Werner Ozug and Dr. Bruce Bebo
Episode 368: Living a More Purposeful Life with MS with Dr. Evan Smith
มุมมอง 1253 หลายเดือนก่อน
Episode 368: Living a More Purposeful Life with MS with Dr. Evan Smith
Episode 367: Budgeting for Living with MS with Bruce McClary
มุมมอง 644 หลายเดือนก่อน
Episode 367: Budgeting for Living with MS with Bruce McClary
Episode 366: Medicare and MS: Getting Your Ducks in a Row with Laquel Thomas
มุมมอง 634 หลายเดือนก่อน
Episode 366: Medicare and MS: Getting Your Ducks in a Row with Laquel Thomas
Episode 365: The Episode Where I'm Interviewed with Jon Strum
มุมมอง 554 หลายเดือนก่อน
Episode 365: The Episode Where I'm Interviewed with Jon Strum
Wise Up! Words and Why They Matter: Caring for a Partner with Alex (Sponsored by Sanofi)
มุมมอง 1784 หลายเดือนก่อน
Wise Up! Words and Why They Matter: Caring for a Partner with Alex (Sponsored by Sanofi)
Episode 364: Understanding the Signs and Symptoms of MS with Dr. Leorah Freeman
มุมมอง 1914 หลายเดือนก่อน
Episode 364: Understanding the Signs and Symptoms of MS with Dr. Leorah Freeman
Wise Up: Words and Why They Matter -- A Day In My Life with Progressive MS (Sponsored by Sanofi)
มุมมอง 2444 หลายเดือนก่อน
Wise Up: Words and Why They Matter A Day In My Life with Progressive MS (Sponsored by Sanofi)

ความคิดเห็น

  • @lauracarlson9260
    @lauracarlson9260 5 วันที่ผ่านมา

    Thanks for posting these ;-) very helpful in answering peoples questions and answering some of my own

  • @ajizulhakimOfficial
    @ajizulhakimOfficial 21 วันที่ผ่านมา

    Nice Video

  • @UpcyclewithAndrea
    @UpcyclewithAndrea 22 วันที่ผ่านมา

    That Cliff guy knows a lot 😁

  • @suzan_diary
    @suzan_diary หลายเดือนก่อน

    very interesting and useful to get different insights

  • @MsTubbytube
    @MsTubbytube หลายเดือนก่อน

    I appreciate your careful enunciation, and not being distracted by extra generic images and music

  • @josephvered3991
    @josephvered3991 3 หลายเดือนก่อน

    Hi from Israel interesting video thanks

  • @brendahall2865
    @brendahall2865 3 หลายเดือนก่อน

    Congratulations Jon, on 7 years of Real Talk MS! 👋👋👋 That's a huge accomplishment! I greatly appreciate all the information that you make available to us!

  • @susancleveland5687
    @susancleveland5687 4 หลายเดือนก่อน

    I am on Medicare and tricare.

  • @joesiders7388
    @joesiders7388 4 หลายเดือนก่อน

    As always was a great episode. And, as always I shared with my Face Book family of over 13k MS'ers. Thank you for all you do

    • @RealTalkMS
      @RealTalkMS 4 หลายเดือนก่อน

      @@joesiders7388 Thanks, Joe!

  • @corajackson9399
    @corajackson9399 4 หลายเดือนก่อน

    So glad you had something for us progressives MS types l hope to see more .

  • @grifter_alert
    @grifter_alert 5 หลายเดือนก่อน

    6:55: to many level of corruption going on: FDA, Big Pharma to name a few…. We patient are living on false hopes only!!

  • @grifter_alert
    @grifter_alert 6 หลายเดือนก่อน

    Let’s not kid ourselves, 78yrs of history and exactly what did they achieve? mission statement: “pathways to cures” is a joke

    • @RealTalkMS
      @RealTalkMS 5 หลายเดือนก่อน

      You're certainly entitled to your opinion. I guess I see things a bit differently. Considering that, until the 1990s, there was no treatment for MS that would slow progression and help maintain a better quality of life, yes, I think we've come a long way. Until just 30 years ago, it was 'diagnose and adios.' Today's high-efficacy DMTs enable hundreds of thousands of people to manage their disease effectively. To me, that's progress.

  • @serenamaldonado8901
    @serenamaldonado8901 7 หลายเดือนก่อน

    Thank you for this information. I was diagnosed 2023 and it has been a challenging quest to educate myself on this disease but with podcasts like these I am happy to. Know I am not alone. Thank you.

  • @lauracarlson9260
    @lauracarlson9260 7 หลายเดือนก่อน

    I can report a symptom that went away- bladder urgency and control! It is such a common symptom that when it worsened I even tried prescriptions. I had already done pelvic floor therapy and their tricks were no longer enough. I finally had a good time to have an abscessed tooth pulled. I didn't even know it was an issue until I had a CT scan after a cleaning where I reported it felt "kind of odd". As soon as it was pulled- within a day- I no longer needed my Tolterodin and did feel the same urgency or loss of control. Amazing. A little infection like that was kicking off a pseudo attack that lasted for almost a year!

  • @Polly0202
    @Polly0202 8 หลายเดือนก่อน

    Hi 😊 What if I am getting worse on high efficiency DMT? But no new spots on MR? Thank you so much for your channel 😊

  • @MyLizzie22
    @MyLizzie22 8 หลายเดือนก่อน

    So good thank you

  • @MsTubbytube
    @MsTubbytube 8 หลายเดือนก่อน

    excellent interview. Relevant to many conditions other than MS

  • @josephvered3991
    @josephvered3991 8 หลายเดือนก่อน

    Hi from Israel thanks for the interesting data this is the first time I listen to your talk waiting to Your next talk

  • @mary-vy3mo
    @mary-vy3mo 8 หลายเดือนก่อน

    this is a lie,..people progress on DMT to SPMS....see "onset of secondary progressive ms despite long term Rituximab therapy "

  • @dougtagg9162
    @dougtagg9162 8 หลายเดือนก่อน

    Thank you for this video. Being a member of the over sixty crowd I appreciate all the information offered by Dr. Boster.

  • @estherbarnslater7613
    @estherbarnslater7613 8 หลายเดือนก่อน

    Thank you, this was awesome because I’m one of the black women

  • @estherbarnslater7613
    @estherbarnslater7613 9 หลายเดือนก่อน

    Thank you

  • @rowenashields9038
    @rowenashields9038 9 หลายเดือนก่อน

    Thanks so much, this was incredibly helpful!❤🙏

  • @reku16
    @reku16 9 หลายเดือนก่อน

    Thanks for sharing this info, it's difficult to find focus on progressive MS!

  • @MrCharlesdick
    @MrCharlesdick 9 หลายเดือนก่อน

    I would love to see more attention drawn to the developments in therapeutic vaccinations. Any treatment that can generate immune tolerance to autoantigens is likely to create a better future for anyone with an inflammatory autoimmune disease.

  • @MrCharlesdick
    @MrCharlesdick 9 หลายเดือนก่อน

    Regarding the anti-CD20 therapies, I vaguely recall from the research many years ago that CD20 had been identified on the surface of some T cells. The specific type of T cell had not been identified, if I remember correctly, but the point is that the effect on B cells may not actually be how those therapies work. Or I could be wrong about this. It was many years ago that I read about this, and my memory is not what it used to be.

  • @MrCharlesdick
    @MrCharlesdick 9 หลายเดือนก่อน

    From what I have seen of the research, the things most encouraging to me are therapeutic vaccines to generate tolerance to myelin antigens. I expect that tolerogenic vaccines are going to be huge for autoimmune diseases in general.

  • @lisaaamoun3520
    @lisaaamoun3520 9 หลายเดือนก่อน

    I found this so helpful. I have brain lesions but haven’t been diagnosed yet. I’m 62.my primary symptom is bladder disfunction and tremors. I’m also a nurse. I retired and got somewhat depressed because I missed my work family and my purpose to serve others. I love Dr Booster. He is very balanced in his approach and so relatable. Thanks for the support.

    • @susancleveland5687
      @susancleveland5687 6 หลายเดือนก่อน

      I am a retired ICU nurse. My neurologist isn't up with anything regarding MS. Now I had covid last October, and the horrible headache never went away. He insisted on botox every 3 months. Had the first round without relief. I am guessing he gets more money for this as I no longer get neuro. Checks. His nurse practioner is an idiot.

  • @grinch4567
    @grinch4567 9 หลายเดือนก่อน

    Thank you all ever so much for this!! I’m new to Real Talk MS and was delighted to find this gem 🙂 Cognitive difficulties are the most difficult part of MS for me. Also, have you done - or would you please - do a Real Talk on Brain Mapping Therapy and MS [mentioned in Norman Doidge’s book] please? 👍🙂

  • @DrMattiLabbratt
    @DrMattiLabbratt 10 หลายเดือนก่อน

    I’m 30 years dx this year. I was diagnosed at age 17. This is Such an important topic! I think that ,like everything with this darn disease, we just have to work harder, try harder, be more pro-active, creative and resilient than anyone else! We need to be on point with our diet, exercise, mental health management, social group maintenance, optimism, curiosity about the world and lifelong learning.. I’ve just started studying a degree in Cybersecurity - distance learning to challenge my mind. NEVER GIVE UP ON YOU!! Much love Xxxx

  • @ernestreid9296
    @ernestreid9296 10 หลายเดือนก่อน

    I just found REAL TALK MS GREAT. It was my Aunt Ethel's REHAB. She died in 1974 at the age of 60 from MS complications. Her daughter died 20 years later of the same thing. I only knew my aunt in a wheelchair, she could only move her head. She had to be changed and fed. She did as much as she could on her own for as long as she could. I was diagnosed in 2000. I am now a 68 year old man with secondary protrusive MS . My aunt inspired me to always be aware of what available on the market place to help me do better. I get teary eyed when I think of we have and what my aunt didn't. BEING AWARE of what is available makes me less scared of the future.

  • @andrewreisinger6860
    @andrewreisinger6860 10 หลายเดือนก่อน

    Social isolation is such an important topic in MS.

  • @Courtneyhorvath-i3n
    @Courtneyhorvath-i3n 10 หลายเดือนก่อน

    Courtney

  • @Courtneyhorvath-i3n
    @Courtneyhorvath-i3n 10 หลายเดือนก่อน

    Good morning boster ❤❤❤😂😂😂😢😢😮😮😮😅😅😅

    • @ellie698
      @ellie698 9 หลายเดือนก่อน

      I love Aaron Boster. He's awesome

  • @joesiders7388
    @joesiders7388 10 หลายเดือนก่อน

    So happy to hear Dr. BOSTER on your show. Thank you for posting

  • @joesiders7388
    @joesiders7388 ปีที่แล้ว

    I share with my MS group 13k+ every Tuesday. I would like to hear more from Dr. Aaron Boster

  • @mballer
    @mballer ปีที่แล้ว

    Does A&W sell fish? If they want to help MS they should start serving health promoting food.

  • @mballer
    @mballer ปีที่แล้ว

    30:00 Exercise helps brain function with EVERYBODY, not just people with MS, this is nothing special.

  • @mballer
    @mballer ปีที่แล้ว

    Canada has high MS levels? Coincidentally Canada has low UV light from the Sun and low levels of vitamin d. Hmmmm.... Lots of Tim Hortons and McDonald's burgers eaten and not so much fish, eh? Omega 3 levels must be low too, eh? Exercise is good but over stressing the body with exercise may not be the best thing to do.

  • @RB-go6ky
    @RB-go6ky ปีที่แล้ว

    Dr. Burt saved my life. I had progressive Systemic scleroderma, the Transplant stopped the progression of the disease. He has a great book out, Everyday Miracles. He is great doctor.

  • @joesiders7388
    @joesiders7388 ปีที่แล้ว

    So glad you had her on !!

  • @kolton8834
    @kolton8834 ปีที่แล้ว

    Promo'SM 🙂

  • @aliciamiller5367
    @aliciamiller5367 ปีที่แล้ว

    Thanks for this episode. These doctors are at my clinic.

  • @eprohoda
    @eprohoda ปีที่แล้ว

    Realtalk. you shared beautiful !so long~:))

  • @arneywillett4198
    @arneywillett4198 ปีที่แล้ว

    I was waiting for something like this! Your content deserves a service like S M Z E U S.

  • @MsTubbytube
    @MsTubbytube ปีที่แล้ว

    We will want to hear about your voyage Jon.😃

  • @josephinej2826
    @josephinej2826 ปีที่แล้ว

    I can relate to you 100% , faith -- I was diagnosed when I was 14 (so 13 years ago) and about 6 years ago, I also needed a plasmapheresis (I'm jealous of the location that you got that I'm, mine was in my chest lol) (but I think that my 4 back to back attacks might have been caused by my unstable relationship with my family.... Like I just escaped running away from my exhub, Mr Ms....... Getting kicked out of their house really took a toll on me...... But I've rebuilt my relationship with them and I'm finally doing allot better) ♥️♥️ your resilience is so motivating and we're so much stronger than our MS 🧡🧡🧡

  • @barbaratate423
    @barbaratate423 ปีที่แล้ว

    AMAZING YOUNG GIRL. I'M 74 AND LIVE ALONE BUT INSPIRED TO TRY HARDER!

  • @DrBrandonBeaber
    @DrBrandonBeaber ปีที่แล้ว

    Nice interview

  • @barbaratate423
    @barbaratate423 2 ปีที่แล้ว

    What a wonderful and inspiring story! She is a wonderful and giving young lady! Thank you both for sharing!