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Hey awesome my photo is in this video

I enjoyed this very much Bink!

Bink you are awesome!

Thanks. Keep us informed.

Thank you so much! In education working with a student with WSS and the profile matches 10000%. Very helpful for keeping him supported.

I have the wss syndrome ❤

"I don't want to get to the end of my life and find that I lived just the length of it. I want to have lived the width of it as well." Thanks for the video *Diane Ackerman

"Courage is resistance to fear, mastery of fear--not absence of fear." Thanks for the video --Mark Twain

Thank you very much for your work. We are very much looking forward to the update.

Hi Dr. Hans I have so many questions I Am Allison I am 35 live with WSS diagnosis

We have a WSS child (warrior) Laura 20 years old. Your study is spot-on We are now looking into the ADHD area, there is so many symptoms that point in that direction. We are thinking, is it possible to help Laura getting a more "quiet head" she have so many thoughts, all in one time. I will contact you by mail. Thank you for your work.

I have WSS I always have some type of Anxiety daily

Please help my child is WSS

Incredible geneticist!!

Where can I find a copy of this PowerPoint please?

I’m Alissa I’m 23 years old turning 24 April 6th I have WSS. ❤

how do you detect mosaicism in the parent?

It is interesting how our kids have similar traits yet it's still a spectrum . Thank you for this video!

My son has it we live in ILLINOIS

Hi my name is Alissa I am 23 years old from New York . I wish I could make the confrence but unfortunately I can’t this time maybe hopefully you guys have a closer one to New York

My son Aubrey Hunter was diagnosed with WSS last year and also found out it's from my side of the family

gostaria de ver em português/Brasil

Looking at it again I’m really interested that severe speech disorders aren’t mentioned my little boy was diagnosed with verbal dyspraxia and we were told he might never ever talk. He does and he’s done well considering although his speech is still very obviously disordered. I’m interested as this doesn’t come under a list of symptoms of WSS? Also is it given that you should have your child scanned for any heart defect once diagnosed?

I am a 50yr old female with WSS and passed the gene on to my 20yr old daughter....I wonder if i am the oldest person with this diagnose..

Thanks for sharing this. I think we may have met in Manchester before my daughter was diagnosed with WSS.

I haven found this so helpful with a newly diagnosed little boy!

Fantastic

I love this!!!

Thankyou so much Dr. Wendy

Yes have the lymphedema and pain issues as well as spine fusion issue as well as dental issues especially my Jaw TMJ ,

I still have severe stomach issues slow digestion , food allergies and my low muscle tone still is there , and heavy menses and get sick often !!! Immune issues eye issues etc my Hair get hair ingrown hairs quite painful

Hello

Hi my name is Alissa I’m 22 years old and I have wss

Thank you! This is helpful to share with people in our child's life, too. Are Drs Harris and Ng seeking additional participants for their studies?

Thank you for this. There is a lot of very useful information here.

Thankyou team the ultimate Avengers scientific advisory board and researchers I love you guys

2022

Hi Dr. zubari I’m Allison an adult with the syndrome

Thankyou so much

Hi advisory board

7 years ago

I got diagnosed at Nationwide children’s

Hi Dr. Bjornssen

Hi everyone hi hi hi hi

I did a triathlon for raising money for the WSS foundation

I just got diagnosed with wss I’m 17 all my life I knew I had to have something and last week I finally got the diagnosis from my doctors

Hi there! My name is Kali, and I am the cousin of Lillian reeves! I live in mn, and I submitted a request to president biden to make a nation wss day on sep 15!

Hello 👋 my name is Alissa I’m 21 from New York and I have wss I have met some amazing friends allison , Jessica , lara

Thank you for sharing this

I feel this. I have a little cousin who has it