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I am so happy to see Sarah after the last 40 plus years when we were in residency training. (I was a former pathologist who decided to go into family practice at age 50.) Now in my 90's I continue to follow theses issues and enjoy Dr. Bohn's (Sara as I knew her} comments. As we used to say "You go girl". That is all a 91 yr old former pathologist & Family practitioner has to add. My apologies if I have made this comment before my old brain is not what it used to be. Dave Zoller

The language surrounding terminal illness can significantly impact the patient’s and their family’s sense of ownership of the situation. It’s amazing how what we say can shape how a patient conceptualizes their illness for the course of their disease -AK, ms4

Thank you so much for sharing your own personal experience with your parents. It’s so important for the patient to have someone who will advocate for them if they can’t speak for themselves -AK, ms4

I appreciate the holistic approach you take towards patient care and the emphasis you placed on validating the patient’s experience -AK, ms4

Wonderful information as always. I love watching and listening to you and writing down questions to ask my parents' doctors. Thank you!!

Thank you for such a comprehensive video. More information on the complications of liver disease, especially that of alcohol related sclerosis would be most .welcome.

2018 cryptogenic cirrhosis due to Prednisone.

I am so thankful for your channel. I have shared your channel with multiple people, as they are beginning the process of caring for their parents. Thank you!!

Thank you for such a clear, concise,informative video

I have ehlersdanlos,raynauds sjogrens, parathyroid disease,hiatal hernia reflux ibs degenerative disc disease and I tested positive for lupus anticoagulant and I have anemia. Life is very rough right now

Very helpful video! I only wish there were "Death and Dying" consultants that one could sit down with. So many legal things need to be done, like wills, trusts, etc. and there are so many questions to ask and nobody to help pull it all together.

Wonderful information , as always. We are so appreciative of your channel.

My special-needs 23-year old son was diagnosed recently with benign tumors in his liver and the MRI stated these were Focal Nodule Hyperplasia. My son is non-,verbal and we have no communication with him. I would love to know what to expect for him as I'm very concerned.

Thank you!

you are awesome! i was disgnosed with systemic lupus erythematosus three weeks ago. started medication. understanding it takes time to work (i dont understand why…) so am educating myself on this new journey.

Thank you. Disseminated lyme is insidious. It’s criminal how uninformed many doctors are.

Thank you for this video. There is a very important and common illness, one of the most horrific connective tissue diseases there is, called Chronic Lyme Disease. So horrific are the infections, co-infections, worms, and parasites, that medical students are taught the disease does not exist, Mayo doctors write in their clinical notes why diagnose this patient when their disease may be difficult to treat before abusing us, the blood test for Lyme was proven by investigation to be designed to be seronegative regardless of the patient’s condition, and no conventional doctor or clinic will help these patients unless we present with Palsy and then they must. The public doesn’t know about chronic Lyme disease and how awful it is. Getting a diagnosis can take ten years, and we are just dead people walking until we die. My Lyme disease caused severe, runaway concomitant fibromyalgia which doctors don’t even believe in. Please help educate the public and help save lives by including chronic Lyme disease in your discussions of connective tissue disease. Thank you so much.

We pray you all are safe and well. Thank you so much for all the information.

Great video , thank you 🙏

Thanks! Interesting subject. Great book review!

I have had a diagnosis of Raynauds Dx, Fibromyalgia, Mixed Connective Tissue Disease with a Kidney transplant due to IgG, and IgM chronic kidney disease. Ive had a Stroke with TpA given, and I returned to work as the only Case Manager in a busy 40 bed Neuro/Cardiac/Medical ICU. I continued to work FT for 3 years after my transplant. Then I developed GCA for 2 years and went onto LTD at 60 years of age. I moved back to my home: British Columbia, Canada and I cannot find a knowledgeable Rheumatologist. My last one fired me and the only one who would take me on is 26 years old. Oh I Also have a DVT with 2 small PE's, they are permanent as they were not caught in time for TpA so I'm on permanent blood thinners.

very nice review.

My mom just had to go into assisted living. They asked me almost right away when we got there if she was All code or DNR. I said all code because she’s only 68 but would have been nice for them to provide more explanation

Standing ovation for all of the information you shared! I have PM-SCL and have watched many videos and your video is thorough and informative. Thank you!

Wonderful information as always. Thank you SO much!!

And inflammation of bowel macrocycosis enlarged red blood cells my breathing is bad my blood pressure drops so bad I nearly fainted bladder incontinence 😢

I have sjogrens fibromyalgia nerothopy RA eds n mixed connective tissue disease pituitary tumor slipped disks and 13 bulging discs 😢

Thank you “ you are so knowledgeable and l appreciate it very much, God bless you for your hard work 🙏🇺🇸❤️🙏💜🦋

Thank you for sharing.

You are Wonderful ❤

“Having a severe medical issue is like having a part time job that you don’t really like.” You hit the nail on the head! Thank you for your informative videos.

Very informative.. thank you

Thanks again for sharing such important information.

Thank you for all your knowledge l wish you could 🙏❤️teach all doctors especially the rheumatologist about these issues 🙏🦋🙏

Thank you for all your knowledge l wish you could 🙏❤️teach all doctors especially the rheumatologist about these

Thank you so much for these videos!

My specialist told me the first day I wasn’t eligible for a transplant due to age and health.

Sorry, but this chaplain does not seem to grasp the fears of the dying pt. Otherwords , why have a chaplain when they don't provide religious comfort.

❤I had cataracts removed from both eyes two weeks apart. I paid to have the special lenses so I don't have to wear glasses. Love waking up in the morning and being able to see right away. Glad you had a good experience too.

So glad you are doing well. Thanks so much for the update.

Congratulations!! So glad you’re so happy with the results! 😎

Thank you.

❤hope you heal quickly and without setbacks. Thanks for sharing.

Praying for a very successful surgery and comfortable and easy recovery! Would be interested to hear how it goes. I am 45 and have the beginnings of cataracts in both eyes due to steroid eye drops used to control chronic inflammatory flare ups . Question for when you’re recovered - Do you have any experience with Ehlers Danlos patients? When I saw a geneticist a few years ago, he told me EDS won’t be the cause of my “un-a living”, but my physical condition will continue to decline. He even drew a picture of a stair case with big arrows down. Fun image to have seared into my memory forever 😂

This is great information!! My mom's dementia has progressed rapidly. We all continue to learn, and your channel is a great resource . Thank you. Glad your hand is getting better.

I am not only happy am alive but also glad that "DrMadida" was able treat and cure me with his herbal medication of my parosmia, Meniere disease and Parkinson disease(PD) with their herbal treatment. My smile is so bright because I am happy .”

Can zopliclone cause liver problems?

We are just starting hospice and it is very hard to navigate what is to come and what to do. Thank you this was helpful.

Such helpful info !!

Thanks for these tips Sara. It’s a real comfort in knowing that my family and friends know my final wishes. I feel like it’s a comfort for them as well.💕