วีดีโอ

FND = Conversion Disorder and yes talking about your stresses clearly does help you. Good luck.

I have a question. I’m 21 years old and i’m experiencing hell and it seems like my doctor is not really that interested to keep investigating what is wrong with me because of my age. I’ve been contemplating and researching a lot and my future doesn’t seem so bright and i can only cross my fingers and hope i don’t have a neurodegenerating disease despite all the indications. But my question is, can FND cause speech and working memory/thinking problems because it seems like i’ve got some major issues with how i’m able to form sentences in my head and physically delivering them. I’ve been particularly scared sh*tless of this one disease, Huntingtons disease. I’ve taken an MRI but i didn’t get any results back so i imagine they haven’t found anything abnormal, but not everything shows up on an MRI. I’m desperate for some hope that i’m not alone in this and figuring out what’s wrong with me.

I feel like ive got nothing left , because of the pain, the spasms the burning the stinging in my heart and lungs , hot and cold prickling pain, swallowing problems, , losing my hearing, my bladders dosent work sometimes and its week 13 of walking and eating again, my body is effectively effected by so many symptoms, getting worse and worse , ive made a appointment to see a private neurologist

I can't get anyone to believe me , ive been really unwell for just over a year and im on the nhs waiting list with a 50 + week wait, ive not had the help from my family, my partner left me , my family cant cope and everything is wrong because because no one understands why im so unwell, i am currently in a nursing home and ive got so many awful symptoms, , the gp of the care home home dosent hrlp me or even see me , ive lost everything i couldn't eat or walk for nearly 9 months, , im had 40 really frightening symptoms that rea cure on a daily basis, my social worker dosent believe im unwell

Im almost 40 and i have battled this for 6 years bedridden for 2 years im just not sure i can keep going pain leg spine i am losing everone

My Neurologist has been trying to figure out what is wrong with me, since March. At first they thought it was MS,Then they thought it was Dystonia. Now I have seen a Dystonia Neurologist and he thinks I have FND. Do you get episodes where your head shakes up and down,Side to side? Do your teeth chatter 24/7? Do your eyes blink on their own and you feel pins and needles in your hands? Also, I have fallen 5 times since 2022, the last time was a few weeks ago, I wanted to step over something to avoid slipping in water, my one leg would not lift up and I fell hitting my whole are on a solid wooden table. I have Psoriatic Arthritis, aneamia,asthma,vit D deficiency,anxiety,depression,social anxiety, chronic pain and now this neurological stuff. I am 38 and some days I feel like I am 90.

Have you ever had any Hallucinations with your FND?

Donuave hypomobility ive had cfs fybromyalgia elements nfnd

Hhc and cbd help for the body jerks. Only recently diagnosed but this puts the myoclonic seizures from a 9/10 to maybe a 1/10 sometimes gets rid of them for hours. Pro tip : hhc gets you a bit stoned, its legal im some countries. If you take it at night you can sleep through yhe stone but you get the benifits olthe next day till usually the evening for me. Like 20hrs of relief for me

Diagnosed today .I was already sick from something else ,so not to much of a lifestyle change .Except for the cruel symptoms . Rough ride ,but not dead yet .😊❤,get better .

How I overcame FND: 1) I accepted good morals as truth: (Better morals than I was behaving) 2) I felt remorse for things I previously felt no remorse for 3) *In my head* I began to meow when stressed Nearly no symptoms now!

Thanks for sharing your experience and it’s very inspiring and down to earth with getting a grip on expectations. Thank you❤

Thank you for sharing. I airway closes with weather to changes especially in high humidity. I have coded twice. I also have the struggles with sensory stimulation causing the pain and muscle cramping.

How can you work with every day attacks?

Our condition is so hard to explain the what's and why's to anyone. I have just lost my job on medical grounds, and it's so destructive in all aspects of our lives. I am not bitter towards my employer, they have been so supportive and I am lucky they are financially supportive for the rest of my life. It's a daily fight we have and we have to accept fnd with unconditional terms. The symptoms are so variable and mentally destroy us. We need to bounce off one another, so we can get a better understanding of our condition. John McBride

Thank you for sharing! But I do have a question for you. It seems you have it for such a long time, and I had mine since October 2018. So my question is did you manage to go back to work? What ever work that you use to do before you got sick! As for me I do feel stuck some days are better than others but still battling to leave my wheelchair! Thanks again you will be in my prayers.

Hi i have fnd diagnosed about year ago there not a lot of help but trying to find help its the fatigue to much have sizures and carnt walk my life has totaly changed but trying to live life as much as i can people saying you will get better i didnt no you could have this for years send lots of lv ❤❤❤

I am glad you can move, for me a litlle Activity can Knock me down.. All the best

I have had this for 4 years now, so when I go back and forward or just keep moving my head, and realize I'm zoned out, are these seizures? I have also passed out and come to with cuts on my body ringing in my ears and a euphoric feeling I don't know I also get twitches in the muscles in my face or neck, I have so many symptoms that have changed over the last 4 years, my doctor has just started calling it FND after 4 visits to specialists, I just want to die now I pray to the universe to die every morning I am in bed 99% of the time because the pain is so bad, my memory is so bad I forget whole days and hours of time and I don't have a clue even when I see I have done something in a game that took me hours to do I'ts like someone else did it, I don't want sympathy I just need some answers to what is going on, cheers, Don 53yo from Australia.

My name is John McBride, and I have been living with fnd since 27th Feb 2021. I struggle so much with trying to understand this condition, and it always reminds every single day day in so many different ways it's soul destroying.

Thanks that's was a big helpful iv had it for 2years stay safe mat❤❤

It's a crap illness. I had head injury in 2013. Many diagnosis but given FND in May 2019. I find it a difficult journey. I agree keep moving. The cold also affects me badly. Winds are not good either. Keep in there

I have FND and I don’t think I have triggers mine can happen at anytime. Seizures , leg, arm and hand weakness. Pain is very extreme. My legs sometimes feel like I got lead weights in them I get Paralysis especially if I’ve been asleep. Trouble swallowing etc I was 12.5 stone when I was forced to leave work because of this condition. I am now 6.10oz

So while living in the UK up until March last year, My neurologist thought I had FND after getting covid in March 2020. So today, my new neurologist confirmed this diagnosis. What a lonely journey ai. As soon as you mention you have FND people look at you funny, like ohhhh she is a nutter making stuff up for attention ai. But, that is not the case though is it? 3 years with it now and I no longer work. It such joy going from being marathon runner to almost non existent runs. So, high five to everyone coping and living as well as you can.

I have FND3.5 yrs since onset. Mine started with a weird twitch in the shoulder . My wife was like wtf was that . At that time i thought it was nerves because i had an injury to that shoulder. It quickly progressed. Today i have myoclonic jerks like every 20 to 30 seconds . I have verbal tics and scream aloud as if I'm getting got, quite embarrassing in public. My gait is compromised .I walk all drunk looking. I have no triggers meaning anything that makes it go away but stress and anger makes it worse. Cold also bothers me. I have brain fog badly . i get lost in blank stares , brain fog concentration, emotions out of control . I do keep moving i have chickens ,ducks ,turkey ,geese lots of property 5 dogs but dam is it hard so hard thanks for sharing! we are warriors!

I was just diagnosed with this today. I feel like I need to learn more. I also feel like with the other videos I’ve watched it seems so much more severe than mine is. Is it something that gets worse over time? Currently I am pregnant with my 3rd and so my symptoms lessen drastically. I can still walk though and only sometimes my leg will not cooperate but I never thought anything of it before.

I’ve just been diagnosed with FND and I can’t stop twitching all the time and I’m struggling to walk xx

I got diagnosed in February 2022, I am struggling so much with trying to understand fnd. I spent 4 1/2 months in hospital, and I am continuing to get physio and psychology, as well as care everyday. Some days are not to bad, and I think at that time it's gone. Then the next day I am all over the place. I feel like people are thinking it's all a fantasy. I understand them thinking that way, because I don't get it still. I would love to speak to someone who is, or has fnd. Please help.

I was diagnosed last week after 8 months since having Serotonin Syndrome. I'm still very much in early stages where I have tons of leg tremors, all day, headaches, drop attacks, bladder problems, vision issues, lots of involuntary spasms and GI issues from it. It's so so difficult to know what's about to happen.

I have fnd and every day is different -

Hi Rupert, who did you get help from? I’m desperate.

Are you able to work. I’m waiting on a diagnosis. I’m having some improvements but I am not working and don’t know when I will be able to if at all. Any kind of stress makes my symptoms so much worse.

Thank you for sharing! I also have FND. My symptoms vary from day to day. Definitely getting more used to it, acceptance wise. Had it around 3 years. Sorry you have FND! I hope you keep learning to work with FND or accept it in a positive frame of mind even when it gets tough. Looking forward to hearing more of your FND story. I shared some of my FND experience on my TH-cam too

Thanku for sharing give people like me hope x

I was diagnosed 2019 with FND living in Australia not a lot of information like you guys get in the UK . The one good thing I have great doctor that helps me so much getting information on FND . With FND no days are the same which is very hard to get used too. Your rightI I have noticed my pain worse in winter time . It gets down to 15°/20° in Sydney. Warmer weather helps my pain a lot . You take care keep safe

Last year I felt lost with it now I’m trying to manage day by day

Absolutely

It’s very unpredictable from hour to hour I found it challenging definitely try to walk once a day thank you for sharing your personal journey kindness suzy

I got diagnosed with FND last year

Does lifting weights help or just plain walking, what is your exercise regime. I have fnd 3 years now

Thank you so much for sharing your journey!

I also have FND. I have a separate channel about my experiences and explaining FND: m.th-cam.com/video/OVJmcg4HL0g/w-d-xo.html

Thank you. I've been told to research FND by my rheumatologist. I'm undiagnosed but so much resonates with me. This really helped and I will do my best at "keep moving"

Get well soon. I hope you are okay now.

Hope you are doing ok 👌🏻

Rupert! It was terrible watching you struggling for breath but I stayed with you to the end to honour your effort. I wish you a speedy recovery!

Oh My dear friend Rupert. I hope you recover my love. 😢🙏❤️💋

Rupert get well soon mate!