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I'm benefitting from using a healthywave PEMF mat several times a day at various frequencies. Plus a keto-carnivore diet. I'm 6 months into healing and having more good days than bad days. It's been a long journey to realizing what I've been dealing with this past decade. I'm so sorry you've lost your vison.

My rib muscles are spasming now… has that happened to you? What did you do to break it? I had to stretch and rub each one out. Peace & Love

Yoga gently done helps me the best. I’m so sorry about you loosing your site. Xoxo friends SPS sister

Would you be willing to discuss an interview about your condition? I am presently approaching diagnosis and i am truly staggered by the similarities in our symptomology. Id like to arrange a series of interviews with people to provide a well versed recourse from the boots on the ground... Because it's often the case that the folks on the other side of the desk don't get it as much as they try.

Try turning your wrist to the right when you use your cane, as this will help you conserve energy.

Hello my name is Jared and I am 32 years old, until a few years ago I was much more phsically active (Welder/Fabricator) anyway I started having muscle spasms mainly in my trunk and head. I saw a video of a woman having an SPS episode and listened to some of your videos and am thinking it might be what I have (especially because I have seen a few Dr's and one neurologist as well as had a few tests all say I am fine but anyone who looks at me can tell I am not. Oh yeah and I don't do drugs or drink if that matters. Do you have any advice on getting a medical confirmation? Probably help if a Dr would agree.

with Celine Dion having it there will be a worldwide awareness about this disease and I'm sure CD will give a big donation for research .

How this started?

Thinking and watching this, sending and HOPING PRAYING you and your family are doing better🫂🫂❤️‍🩹❤️‍🩹🫶 heart wrenching....yes, the recumbent bike is what I am doing, ....hang in there,🩰🩰🩰❤❤

Have you tried cannabis oil (RSO)? It helps release my spasms when my feet get in the locked position

Is loss of words part of SPS? Im starting this journey and trying to figure out what is wrong with me. Its way more than just loss of words but watching you reminds me of what i go through. Thank you for sharing your journey

You are brave and such an encouragement! Wow! Youre wonderful

Awesome video! You said you have a mobility trainer. Do you mean a physical therapist, or is mobility trainer the proper name?

Hey friend I use your technique on some parts of my route going to the store on the weekend

Cool socks

Hello, my name is Diego and I am from Colombia. I really liked the video about the techniques in handling the white cane, because that helps me a lot. I am a visually impaired person

I bet I have over 30 pair of glasses and clip ons. I’ve been seeing an occupational therapist and she said that I needed several different tints depending on lighting conditions. I have dark amber light amber or pink for fluorescent lights, the OT also recommended yellow for nighttime but I like them when it’s cloudy or even inside with fluorescent lights. My problem is that most of my glasses look like granny glasses and I don’t want students making comments. I really like the last pair of glasses and was curious what brand? I also like your wraparound glasses it really helps with the light. Thank you.

Thank you for your openness. It does help and is appreciated. What is your Facebook page? It’s helpful to learn from others who have been doing this longer than me. 💜

Thanks for sharing and all the best to you going forward. XOXOX

I was diagnosed in '97. Very good luck with your journey,

Oh yeah my friend give yourself time to learn this stuff it’s ok to get frustrated I do get that way too so don’t be hard on yourself ok hang in there ok❤️

Good morning friend it’s Jon I’m sorry I hope you feel better soon. Yes it is hard do all these things as a blind or visually impaired person hang in there we are with you and know that we are all together.

Hey friend it’s Jon I use your idea when I walk to the store because some parts of the street doesn’t have sidewalk so I use your method and it works great thanks for the idea

Your welcome my friend. You have a neat way you slide your cane technique my friend. It’s interesting how each of us use our canes

Hello friend your doing awesome today. I hope you have a good day today.

You are a positive person 😮😮 under difficult conditions blessings 😊😊

It’s so misdiagnosed there’s likely many more. I have several that are the sane situation, dubbed rare but I’m learning not so rare in reality. Hide your team of drs and you can find a treatment whether through natural medicine or traditional or even a combination. So many strange diseases and auto immune in recent years.. I wonder what’s causing these issues❤ stand strong

😊

Blind and sps! That must be tough! So sorry!

I pray God’s spirit of healing upon your body in Jesus name.

You're a beautiful person

Happy Birthday!!!!!!!!! 🎂🎂🎂💝🎁 Thank you for sharing your life , thank you all you do for helping people!!!❤️❤️❤️❤️ Love from FL!!!

I have also just been diagnosed with SPS as well, it took so long to even get someone to listen. I started to have symptoms around 2019, I feel the most horrific part of it all was just little everyone around seemed to care, to the point my own "family" accused me of faking. It's been the worst years of life, up until I finally was able to see a Neuro who immediately understood. I don't know what else to say; besides I relate to it all

I just realized I didn't subscribe. Foggy brain. I was so excited to see someone talk About their journey. I was diagnosed in 2019. I seem to be stable. I will follow your site and pray for your care and your family. Thank you for posting.

Prayers for you 🙏

stay strong, greetings from the UK

Oh, honey! i thought i was the only one that used my body as a furniture finder! 😍

Quit that "wasting too much of your time" schtick! Never a waste when learning new things!

Thank you for sharing your story. I can’t begin to imagine your struggles. I can hear the frustration and fear in your voice. I will pray for you and your family. You have a wonderful daughter who is helping you… great blessing! Btw… my name is Monja! ❤️🙏

THANK YOU! 😊 Very useful information.📱

And interesting it was, thank you.

Thanks for sharing your personal struggle. Your very brave. I have been diagnosed with sps since 2019 and I am struggling and it is really difficult to go about my day with constant muscle spasms. It's good you have extended family and friends who are helping. Writing this is just so emotionally challenging. Thanks again, wishing you the very best.

💔

Great to see you back, my dear! Keep on going! 😍

What's was the issue with the blindness any report on scans?

I have SPS im 62 wish i could talk to you ?

Are you still going through stiffness?

Im 62 i have SPS i know how you feel im on a walker i live alone i cant Drive no more . God bless

I wish your sound was better.

Thank you! You've helped me out so much! More than you know!