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I’ve been newly diagnosed and it’s been 6 months with the symptoms and it’s very difficult to live with. I used to be very active 3-4 days in the gym, running 10k quite easily now I can barely walk 15 minutes. I do the best I can but the symptoms are quite severe, chronic headaches on my right side, eye twitching, balance issues, leg weakness, severe back pain. The list goes on. I’m at a point where I don’t know what to do. I really want some quality of life but it’s so hard.

I was diagnosed 4 years ago. Discovered stress is a major trigger. I moved away from the city to a quiet country town and remote for callcentre, but last week, after a year and a half I had a severe attack with epileptic fits and weakness on the right side this time which is normally on the left. I have to hand my notice in as I have had many days off, multiple episodes of brain fog and speech silence, or short fuse due to frustration at no fault of the customer. Fatigue, heavy weighted head, my brain ignores my foot, causing me to fall 🤭 and well, the list is long but talking to others about it helps immensely. Thank you ❤🙏🎉

I am in the process of being seen for FND. My movement disorder neurologist referred me to a FND specialist. Thanks for the video.

I've been a fan of Sheenaza's song for many years, but I'd never come across yours before. I really like your version of it. Thanks for uploading. I hope you're doing well.

I for that this existed, but the algorithm delivers!

Great song for the piano. It's so fun to play.

With understanding of the illness it is very possible for the patient to recover from the symptoms of illness although some patients will not believe this is so.

Glad we could get you to 10k views. Kai would've been proud.

Well. Countless Sci-Fi series, books and games later Lexx, this is still the BEST battle chant there is.

Thank you for this video!!!

Just found you tonight and this is something I would have never thought of doing, but I love it! Thank you for this tonight. I hope you are coping well.

It's misleading to emphasise seizures above other manifestations of it

Thank you for sharing. I have epilepsy and will be having surgery to *hopefully* end that in two weeks. I can't wait to see if these non-epileptic seizures that Ive been diagnosed with end with it as well.

I think i finally found what I was looking for.

This simply means that your doctors don’t know what is going on. They need to do better so you can get better.

Thank you for your explanation and struggle I have been in Queen Sq neurological and neurosurgery hospital after being thought to have a stroke after Ct and MRI a wonderful dr spoke to me for 40 minutes explaining FND and it answers so many of my questions over the last 3-5 months 20:48

Thankyou for taking time out to make this video I got diagnosed last week with fnd the information was very helpful

Thank you. Just diagnosed. 😊 you explained me.. now I can just share this to everyone l know. 😊 you've helped me ❤

Thank you for the information

CORRECTION:: The graphic in the top right contains an error. This track is by "Chillboy Beats", not "White Bat Audio". Both are awesome folks - I just missed this in editing due to some health issues distracting me. I apologise for my error.

CORRECTION:: The graphic in the top right contains an error. This track is by "Chillboy Beats", not "White Bat Audio". Both are awesome folks - I just missed this in editing due to some health issues distracting me. I apologise for my error.

Steve strikes me as the cool, good friend you would've been lucky to have growing up.

Thank you so much for making this video! I had a diagnosis yesterday after almost 2 years of varying symptoms causing me such anxiety, frustration & hopelessness! I can now show this video to loved ones to enable them to understand this condition more. I hope you are doing well. Thank you again.

Before anyone asks, yes I'm aware I mispronounced "cadence" XD

Just diagnosed this week by the neurologist following an accident last september at work, banged my head and spine so some spinal issues as well atm which they are dealing with. I can relate to pretty much everything you said. Thankyou

Хорош

Don't mind the sunglasses indoors - I'm dealing with major migraines, and it helps me not feel like shit XD

I have been told that I have fnd and can't get my head around it sometimes I feel that it is not me but someone who has it but not me because it is just one thing after another it gets me so down and can not do anything about it and it takes everything from me and a whole lot more and people do not understand what is going on I feel helpless at times I wish I had never had this sometime I get so sad and I depressed and my mental illness stuffers like. bad things seize and a mini stoke no feeling down one side and stick hitting my head all the time.

I was diagnosed with fnd. Thanks for this video

Unethical diagnosis.

Спасибо за Боевую песню!

I was diagnosed with FND a month ago. It is very scary condition because even when you get better, you don't know when it gets worse again.. I wish there was a medication that would help to avoid the worse so we had at least something that would help us to leave a normal life. I'm trying to stay optimistic and positive but it is difficult sometimes. I have 2 small children and for them I have to keep on fighting...God bless all with this condition, you're not alone.

Thank you for this really useful video I am really grateful to you. I was diagnosed in Aug 2022 with FND after trying to get a correct diagnosis for six years. As a sporty active person it has been hard losing use of my legs and general function. I have refused all medications and therapies as I don't feel well enough to go through with trials and experiments. Instead I attend my old karate class and do a fraction of what I can manage in terms of self physio. I also find the samaritans an amazing support weekly to call instead of a prearranged set times of psychotherapy. This is much less invasive and gentle and supportive at times I really the emotional support to help me process events I find upsetting or challenging like adapting to being disabled after being able bodied all my life. I'll be fifty soon. getting the diagnosis has helped me understand what I am going through and adjust my life to be kinder to self and have more confidence to say no to people. God bless you and I wish you the best in being the strong lovely person you are.

Did the Brunnen G proud. Yo-A-O.

If u can send me an email I will be glad to share my recovery story

Oh shit, a wild Steve appeared!

I think I have FND, I'm not diagnosed but I've been getting what I call Psychological paralysis in response to strong negative emotions for as long as I can remember. I googled psychological paralysis and FND was the first result. I'm at peace with getting it because, well why shouldn't I be? It only gets in the way of overall functioning in life when it's happening a lot due to some other mental issues I'm having, and It's been happening forever, so I'm kind of used to it. The attacks are horrible, especially when you are out in public. I feel really awkward and embarrassed when I'm having them, so if you think you feel awkward and helpless when trying to intervene, I feel even more awkward and helpless. I don't think a diagnosis would help me directly, but it would help those around me to understand that these symptoms are real, not put on and give them a condition they can learn about and understand. I don't want treatment for my condition because I feel I can manage well enough as it is when my mental health problems are in check. It is only an issue when they are not.

Чётко!!!

Shoot, just noticed this is the same instrumental I’ve been trying find it again! Crazy xD

Hi folks. I recorded this way back in 2018, but never got round to uploading it. So I'm sharing it some 4 years later. Hopefully people like it.

Hey guys. I originally recorded this in 2019 for my Dad, a proper Geordie and the hardest working man I know. I never got round to uploading it, which I didn't realise until today when I was doing some reorganisation of my computer documents and files. So hope you guys enjoy.

😱😉✍️health anxiety?yes.hearing the list.☝️right about there.pause video.& they say?"there is nothing wrong with you.it's all in your head."? 🤨well duh! Isn't that what I said?you're supposed to be the professionals?😤🙄🤨✍️& this is where they pass the buck=(💰) to their pals.😉the shrinkydinks.🤫😉inserting a sarcastic funny!😉cause hey! gotta keep a sense of humor?😂hahaha!🤨🤔So its now my job to?to support the inept psychiatric non professionals to?🤫??????????😉😎

😂🤭pause video."just in their head?"☝️✍️write this down.sometimes it actually is.& physically.😉However! For all the education& brains?of medical professionals?They can't or couldn't?😉say ? (Sorry.We don't know.We're just practicing medicine.😉) 😎continue video.

I have just been diagnosed with FND I am wheelchair bound and have a number of other symptoms that you spoke about thank you for the video it was very informative .

It started with me when my mother got cancer. I developed anxiety and depression. The doctors put me on tranquilizers and antidepressants. Ended up in and out of the mental hospital. Eventually had ECT. I have had multiple spinal and thoracic surgeries and have all kinds of plates screws, to cut a long story short. Wires etc. Even had my scapula fixed to my ribs. Ended up hooked onoxycont[in, Because of the dystonia, I have had many botox injections while I was put on methadone and clonazepam in the USA. This worked great for many years until the pandemic. Now I am worse than ever. The GP took me off methadone ( because the surgery was uncomfortable prescribing it. They even reduced the clonazepam. Now the stress is unbearable. I wake up in a panic with my heart racing every morning (the famous oxy horrors). Constant pulsative tinnitus in my muscles and head. This is no life.

Finally! Finally! I found what is wrong with me. I have Complex PTSD and disassociative identity disorder. I also have severe childhood amnesia. But memories of abuse began to return after a nervous breakdown at work when I was in my late 40s. I have a psychiatrist and I'm in therapy. I also take sertraline. I diagnosed myself with FND (convergence disorder) when I related to my therapist about an episode of hysterical blindness that happened when I was 14. I also "disappear" with missing time, but my most troubling symptom of FND is visual disturbances that range from blurry vision, derealization, to tunnel vision and finally blackout. I've had one situation where I couldn't understand what was being said to me. My vision can fade out like a dimmer switch or I can completely disappear in an instant like a light switch. I can also be talking and fade out consciously while I continue to talk nonstop. This can happen for an hour before I slowing return to consciousness to a much disconcerted person who gave up trying to interject long ago. Stress can trigger this, but like he said, sometimes it just happens with no trigger. They say this isn't brain damage, but for me, it is brain damage. Imagine rewiring your car and saying there's no problem with the car. My problems stem from childhood trauma that was ongoing and severe. I hope my sharing of symptoms will help others. From what I understand, new to this, the limbic system that reglations emotions becomes overloaded and turns off the frontal cortex that converts sensory input, therefor sensory input is not being processed. I described to my therapist like having only about 20 percent of sensory perception making thru. I hope to join a trial study and have functional MRI. But, wouldn't you know it, my psychiatrist just retired and they haven't replaced him. Good luck to those with FND.

This is the best video I’ve ever seen about FND….even better than ones put out by professionals. I don’t think people can ever understand unless they live with it which is why I feel this video is awesome since unfortunately you suffer as well. I’ve had basically ever system of my body affected except seizures. I’ve passed out though. It’s so humiliating when you are standing there filling out papers and the person is staring at you because you don’t know what the year is. Or worse … not even recognizing people. I have huge movement issues … very weak, legs just give out, tremors, jerking….. I fail neurological tests such as walking one foot in front Of another. I could go on and on because it has taken 17 years for me to get a diagnosis. I can’t work, have zero support… it’s just my daughter and I. It’s extremely isolating which people think…., just go out of the house. First …I feel like I’ve ran 1000 miles the second I get out of bed. Simple things such as a shower wear me out. I get what I call flareups where problems are even worse. I have no friends and live in an isolated area to begin with. I had to go almost 4 hours away to a movement clinic which I had never heard of. It’s part of a teaching hospital. I highly doubt anyone had even heard the word FND here.

Make more amazing videos!!! This channel needs to look into P R O M O S M!

What is your status now? I have had US neuro now say after 2 abnormal muscle biopsies, tons of labs and abnormal emgs, fall with fracture, difficulty breathing and way worse in sleep that it must be FND. The fact that over 11 mos on Mestinon have regained a good amount of ability with determined walking help from dog, vision is no longer blurred with eye jitter and documented changes in sleep is immaterial. Clearly I dispute this. I do know that strong emotions make me so weak is hard to get out of chair and face feels heavy but that gets better with a small dose of Mestinon in 30 min.

Love it 😍 // Pepperonicas