ACC Connections
ACC Connections
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2024 ACC Connections Virtual Conference
The 2024 ACC Patient Conference in full!
#acc
#accconnections
#adrenalcorticalcarcinoma
#mitotane
#rarecancer
#oneinmillion
#cancer
#cancersurvivor
มุมมอง: 381

วีดีโอ

Shannon Fritch's Stage 3 Adrenal Cancer Story
มุมมอง 1.4Kปีที่แล้ว
Shannon Fritch was diagnosed with stage 3 adrenal cortical carcinoma in 2016. Her tumor was 20 centimeters and required 2 surgeons to lift the tumor out of her body. After researching, and seeking opinions of multiple experts she relied on her faith and gut instinct on her treatment plan. She has remained NED for almost 7 years now. #adrenalcancer #acc #neuroendocrinecancer #columbiauniversity ...
Hope Law, Stage 2 Adrenal Cancer Story
มุมมอง 2.5Kปีที่แล้ว
Hope Law was diagnosed with adrenal cortical carcinoma on October 12, 2022. In the 5 short months since diagnosis she has had surgery, started oral chemotherapy and has dove in head first to "slay this dragon." I witnessed this beautiful, courageous young woman's fear turn into power. Hope has started a campaign to raise funds for adrenal cancer research. Her mission, to raise $1 MILLION DOLLAR...
Velvet's Stage 4 Adrenal Cancer Story
มุมมอง 3.2Kปีที่แล้ว
Velvet Lamb was diagnosed in 2015 with stage 4 adrenal cortical carcinoma. A one in a million diagnosis with a poor prognosis, listen to Velvet's story of hope. #adrenalcancer #acc #neuroendocrinecancer #columbiauniversity #medicalconference #nih #neuroendocrinecancer #neuroendocrinetumor #cancersurvivor #moffittcancercenter #universityofcolorado
2023 ACC Patient Conference (Full Video)
มุมมอง 520ปีที่แล้ว
The 2023 ACC Patient Conference in full! Presented by ACC Connections linktr.ee/ACCcommunity Please like and subscribe! Participating Speakers: Dr. Julie Hallanger Johnson - Moffit Cancer Center Dr. Katja Kiseljak-Vassiliades - Anschutz Medical Campus, Univeristy of Colorado Ms. Kelly Price - Head of Rare Disease, HRA Pharma USA Dr. Venkatesh Krishnasamy - NewYork-Presbyterian / Columbia Univer...
ACC Patient Conference Patient Stories
มุมมอง 483ปีที่แล้ว
ACC survivors and caregivers tell their personal stories for the ACC Patient Conference on January 28, 2023. #adrenalcancer #acc #neuroendocrinecancer #columbiauniversity #medicalconference #nih #neuroendocrinecancer #neuroendocrinetumor #cancersurvivor #moffittcancercenter #universityofcolorado
ACC Patient Conference Promo
มุมมอง 85ปีที่แล้ว
Join us January 28, 2023 for a patient centered medical conference discussing adrenal cortical cancer. Doctors and patients unite to educate and empower others about this one in a million diagnosis. We have collaborated with experts in their respective fields to provide the most current information on ACC. SAVE THE DATE Watch live on FB, You Tube @ the ACC Connections page and here streamyard.c...
March 2022 Interview with Dr Del Rivero
มุมมอง 852 ปีที่แล้ว
Hey everyone! This is the recording of the live interview of Dr. del Rivero done in March of 2022. Find more about her here: ccr.cancer.gov/staff-directory/jaydira-del-rivero You can contact Dr. del Rivero at: jaydira.delrivero@nih.gov Please like and subscribe to help others find this information! Thank you!
ACC Question and Answer with Dr. del Rivero and Dr. Hernandez
มุมมอง 2022 ปีที่แล้ว
The first interview for ACC Connections! Dr. del Rivero and Dr. Hernandez of NIH discussing adrenocortical carcinoma treatment. Check out linktr.ee/ACCcommunity for more information and to support my channel.

ความคิดเห็น

  • @southjerseyrn9208
    @southjerseyrn9208 18 วันที่ผ่านมา

    Thank you for this valuable learning opportunity.

  • @Passs0011
    @Passs0011 27 วันที่ผ่านมา

    Hi everybody, I am sending the following message for anybody that is struggling with cancer. I hope it helps you. I live in South Africa. The sun is always shining here and there is always the risk of developing skin cancer if you have a light skin. I developed a growth on the lower eye lid of my right eye. I do not know if it is cancer or just a benign growth but I went on a high nutrition diet for about two months and the growth have shrunk noticeably. I would like to share the diet with you. The soup Ingredients: - two handfuls of Chopped broccoli, one chopped onion (purple), two bags of green tea, two pinches of mixed herbs, two sticks of cut celery, Two handfuls of frozen and crushed spinach or kale, half a table spoon of crushed garlic, Three shakes of black pepper, seven shakes of turmeric, two tablespoons full of apple cider vinegar (with the mother), one bag of white onion powder soup for flavour, a hand full of cooked red speckled beans and a handful of cooked mince meat. Just add all the ingredients in a pot, add boiling water and switch the stove on high till the water boils. Then lower the heat until the water simmer, Let the soup simmer for an hour. The soup is now ready. I would only drink water in the morning. At 12h00 I would start eating the soup. There will be about two helpings that you can eat in the 12h00 to 18h00 time frame. I also ate a fruit salad every day in the 12h00 to 18h00 time frame. (Note: Apparently turmeric reduces the effect of some chemotherapy drugs and thus should not be taken during chemotherapy.) During the rest of the week I would also eat food that contains vitamin D like avocado’s, mushrooms, liver and eggs in the 12h00 to 18h00 time frame. It seems to be working for me, maybe it will also work for you. I pray to God the Father in the name of Jesus Christ that you will be healed. Amen. I would also like to share the following six videos with you about salvation and two videos about evolution: Evolution vs. God th-cam.com/video/uc_W9VtzJ0A/w-d-xo.html DESTROYING Evolution In Under 3 Minutes th-cam.com/video/sWecPwrQv2c/w-d-xo.html Watch the Holy Spirit Work in Her Heart (Very Moving) th-cam.com/video/iBEoI2u6kII/w-d-xo.html Fearing The Lord, God’s Discipline & Sharing The Gospel th-cam.com/video/dES5WW66Mro/w-d-xo.html A Clear Gospel Presentation by Pastor Steven Anderson - How to go to Heaven th-cam.com/video/IXEeMWCxyrQ/w-d-xo.html The Plan of Salvation th-cam.com/video/PmkhRMPvt_0/w-d-xo.html How to Get Saved th-cam.com/video/ajWdkuvrT6s/w-d-xo.html The Truth About Hell (Selected Scriptures) th-cam.com/video/AVzbh_dLq3s/w-d-xo.html Best regards Chris “For God so loved the world, that He gave His only begotten Son, that whosoever believeth in Him should not perish, but have everlasting life”. John 3:16 (King James Version Bible) Jesus Christ is the only begotten Son Of God the Father.

  • @SoSoPhie37
    @SoSoPhie37 3 หลายเดือนก่อน

    Thank you so much! Amazingly helpful! I’m in the UK and due to how rare ACC is, I’m so grateful for any info I can fine. Thank you everyone!!! Feel very empowered in some decisions now :) ❤

  • @nancymcclaughry6347
    @nancymcclaughry6347 3 หลายเดือนก่อน

    Reoccurrence with Mets after surgery here. Still fighting good fight

  • @nancymcclaughry6347
    @nancymcclaughry6347 3 หลายเดือนก่อน

    Who is this dr.whose name comes up

    • @shannonfritch8313
      @shannonfritch8313 2 หลายเดือนก่อน

      I saw Dr Hammer at U of M and consulted with Dr Fojo at Columbia. My local surgeon was Dr Regan at IU Health and my local oncologist is Dr Estabrook.

  • @gailmarion8126
    @gailmarion8126 4 หลายเดือนก่อน

    I too feel unworthy to qualify as a ACC warrior as i had the tumor removed and it was not involving any other organs and no mets. 2.5 ors in.

  • @Christinesobsevations
    @Christinesobsevations 4 หลายเดือนก่อน

    Thank you so much ❤❤ I think I have an adrenal issue undiagnosed.

  • @lauranemetz3333
    @lauranemetz3333 ปีที่แล้ว

    No sound

  • @rubydyck1411
    @rubydyck1411 2 ปีที่แล้ว

    Not able to connect with today's interview. Am getting the one from Feb.5/22.