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Chordoma Katie
เข้าร่วมเมื่อ 9 ต.ค. 2011
From Dancer to Cancer. Follow my journey from a shock diagnosis of a rare form of cancer called chordoma, as I inform, choose and share my experience with you as I live with cancer
Chordoma & Me | Shining Star Awards 2024
It has been a hot minute since I have posted here on TH-cam, and its because, quite simply, life got in the way and I've been so busy that creating these videos has had to take a back seat. However, here's to a fresh beginning to round put 2024 and kick off 2025.
On November 26th we travelled to London and mum and myself attended Sarcoma UK's Shining Star Awards 2024, along with members of my Clinical Team, at Mansion House. Dad and I also visited the Formula 1 Exhibition and enjoyed seeing the festive lights and decorations of Oxford Street.
Follow me:
Tiktok- @_katiemariemartin
Instagram- @chordoma.katie
Please Like, Comment and Subscribe but most of all enjoy the video!
On November 26th we travelled to London and mum and myself attended Sarcoma UK's Shining Star Awards 2024, along with members of my Clinical Team, at Mansion House. Dad and I also visited the Formula 1 Exhibition and enjoyed seeing the festive lights and decorations of Oxford Street.
Follow me:
Tiktok- @_katiemariemartin
Instagram- @chordoma.katie
Please Like, Comment and Subscribe but most of all enjoy the video!
มุมมอง: 66
วีดีโอ
Clinical Updates | Chordoma & Me
มุมมอง 2427 หลายเดือนก่อน
Hey Everyone! It's been a while since my last post and for that I can only apologise. My mental has not been its best over the last few months so a break was well and truly needed to get my motivation and creative spark back, but now here I am. Starting my return with sharing with you all some clinical updates, and seeing how Timmy Tumour is getting on. I can't wait to share some more videos wi...
Chordoma & Me | Turn the Page 2024
มุมมอง 138ปีที่แล้ว
We're still in the longest month of the year but I thought I'd share with you the challenge that I'm taking part in, this February! Turn the Page is a 29 - day reading challenge where I have to read every day, I'm setting my self of reading a minimum of a chapter per day. There are a few ways you can support/get involved with this challenge, which I have shared in the video. Find me on other so...
Chordoma & Me | Fertility & My Future
มุมมอง 146ปีที่แล้ว
Happy New Year everyone, here we are in 2024! In this week's video I share with you the most recent update about my fertility. Just before Christmas I had a review with London where they laid out the situation and my future prospects with my fertility. Due to the topics touched on, I have put in place a Trigger Warning as some viewers may find some to the content emotionally taxing. Thank you f...
Chordoma & Me | Shining Star Awards
มุมมอง 130ปีที่แล้ว
Happy New Year Everyone! This video is up much later than intended due to illness, Christmas and life being busy, but it is finally here! In this video I share with you what I got up to on one of the busiest weeks of my life, including getting back on the microphone for a community Christmas Event, taking part in Elf! The Musical and of course my time at the Sarcoma UK Shining Star Awards. Over...
Chordoma & Me | Medical Update & Results
มุมมอง 335ปีที่แล้ว
Hey Everyone, boy its been a while. Apologies for my lack of content the last month or so, life's been busy and I've not been well, but I'm back and hoping to resume the regular bi-weekly content. But for now, I'm gonna share with you a medical update and some shocking results. Don't forget to follow me on other social media platforms: Instagram: @chordoma.katie TikTok: @_katiemariemartin Pleas...
Chordoma & Me | Disney Cruise
มุมมอง 209ปีที่แล้ว
The long awaited Disney Cruise video. On September 10th my Auntie Kelly and I stepped aboard the Disney Dream for our 7 Night British Isles Cruise. I have absolutely fallen in love with cruising. My last holiday before being given my cancer diagnosis was with some friends to Disneyland Paris, so it seems only fitting that my first major holiday, post-treatment, was Disney-esque. Being able to i...
Chordoma & Me | My Summer
มุมมอง 265ปีที่แล้ว
WARNING *Strobe Effect/Flashing Lights* Wow, what a busy summer, but hoping to return to normality after next week. This week's video is not so much a clinic update but more of a recap of what I've recently been up to, including attending my very first Festival!!! To follow 3 Year Old Archie's journey after having a spinal mass (Glioma) removed, follow this link: profile.php?id=615...
Chordoma & Me | Sarcoma UK Nomination
มุมมอง 812ปีที่แล้ว
What an exciting few weeks I've got coming up and I can't wait to share it with you all, but to this week's video. I was so humbled to find out I've been nominated alongside some amazing people for Sarcoma UK's new 'Shining Star Awards'. Please Like, Comment and Subscribe but most of all enjoy the video, and check out my other social media accounts to see more! Instagram: @chordoma.katie TikTok...
Chordoma & Me | Fertility!
มุมมอง 220ปีที่แล้ว
Last week, mum and I travelled up to London for the day to attend my Fertility Follow-Up appointment with Miss Ephia Yasmin, my fertility consultant at UCLH. Please Like, Comment and Subscribe but most of all enjoy the video! Instagram: @chordoma.katie TikTok: @_katiemariemartin
Chordoma & Me | Outcome & Courage
มุมมอง 139ปีที่แล้ว
Hey everyone. It's been a hot minute, but I'm back. I would rather wait to post a video than post a lack lustre one, so hence the wait, but here we are. In this week's video I share my thoughts on my outcome and my feelings. Also, this week I was honoured to be the recipient on Torpoint's Person of Courage Award 2023, watch the video to see that moment. Please Like, Comment and Subscribe but mo...
Chordoma & Me | Dad & Daughter Trip
มุมมอง 105ปีที่แล้ว
Last week, my dad and I went on our father daughter trip which was 18 months in the making. Harry Potter Studio Tour, Harry Potter and The Cursed Child, Red Bull Racing Factory and Silverstone Hotel and Interactive Museum. It was nice to get away somewhere different, and to be in London but not for medical reasons. I am all recovered, or just about, after a fun packed time! Music: Hometown | No...
Chordoma & Me | Life Catch Up
มุมมอง 846ปีที่แล้ว
Only a short video this week giving you updates from different aspects of my life, including a possible new career choice?? Please Like, Comment and Subscribe but most of all enjoy the video! Instagram: @chordoma.katie TikTok: @_katiemariemartin
Chordoma & Me | Mental Health
มุมมอง 430ปีที่แล้ว
Mental Health isn't something I tend to share with anyone, I normally keep it to myself, however, through working with my counsellor, I am slowly expanding my comfort zone and letting people in. I've decided to share with you my struggles with mental health and emotional wellbeing as part of this year's Mental Health Awareness Week, and to break down the walls and stigma that still surround men...
Chordoma & Me | Priscilla
มุมมอง 181ปีที่แล้ว
For 10 weeks I had been rehearsing to take part in Plymouth Theatre Company's Production of Priscilla Queen of the Desert, and last week was show week. It was exhausting but I loved every minute of it. The cast, crew, creative team, band, front oh house and the audiences made this a show to remember. Here is some behind the scenes photos and videos of show week. Please Like, Comment and Subscri...
Chordoma & Me | Iron Infusion & Another Show?
มุมมอง 4762 ปีที่แล้ว
Chordoma & Me | Iron Infusion & Another Show?
Chordoma & Me | 3 Month Follow Up Results
มุมมอง 5262 ปีที่แล้ว
Chordoma & Me | 3 Month Follow Up Results
Chordoma & Me | Recovery & The End of Chapter 2
มุมมอง 4362 ปีที่แล้ว
Chordoma & Me | Recovery & The End of Chapter 2
Hi Katie and Julie, this has been very interesting, up and personal and has made me laugh out loud and feel very humble. Thank you for sharing as it helps us understand how things are for you all. See you soon!
What stage was your cancer Katie?
So everytime you sat down you had a pain in your back or was it in the Tailbone. I hope you feel better Katie and you will get better I swear.
What kind of medications are you taking?
Thank you for making these. It helps a lot of people.
Is chomo20 a blood test that is taken for this cancer? I can’t find any information on this test on my blood draw form.
Hi Katie. Good to hear from you again and it's good news your tumour has shrunk a bit. In my case it's a good news/bad news situation as my tumour has also shrunk a bit, however, I have a fracture in my sacrum which is very painful.
My father is going through same is it incurable I am freaking out
❤❤❤❤ this, your doing amazing. Keep fighting mate your so brave and have all my love and support ❤❤❤❤ I’m having a few issues as I’m losing feeling in my legs so need to find out what’s happening but we’re stronger than we know and always here for you following your progress and look forward to seeing your future videos ❤ Always free for a coffee and catch up mate ❤ Keep fighting fellow fighter ❤❤❤❤
Hope you are doing well ❤
Vour looking a lot brighter Katie.. So good to see comming out the other side.. I love turn the page 2024. I will follow you on SM with the challenge.. Please update about information about donation. Best of luck katie
God bless you katie
I wish you well and all the best.. Take care of your good self.. I think your right.. you can't understand until you go through and you are faced with this dilemma.. I'm sure you'll make the right decision,the decision that's right for you.. Katie thankyou for sharing this part of your journey with us ❤
I'm sure you'll make the right decision Katie. Take care of yourself. All the best. Eddie.
Your inspiring❤❤
Fantastic news Timmy is shrinking.. 2024 more optimism..
This is amazing news the tumor shrunk again soo happy for you Katie ❤ 😊
Full support me 🙏
Well done Katie.
Helo you gíang sinh an lành you🎉like like you
Hey there I appreciate you to your TH-cam Journey. the videos you uplod need to be SEO properlly, throgh which your video will reach more audienc. And if u want i can help u to grow your chanel,🚀🚀
Hi Katie. The fact that the tumour has shrunk is good news. My tumour was about 13cm and my last Proton Beam Therapy was on 04/10/2023 and I'll be getting scans in December. Best wishes for the future.
Hi Katie, my symptoms were pain/numbness in buttocks and back of thighs, incontinence, and now I'm peeing into a bag and wearing a nappie! Life goes on though!
Hi Katie, I hope you are well. I've just finished Proton Beam Therapy at the Christie hospital in Manchester. I was diagnosed with Chordoma earlier in the year. I'm a bit older than you at 68! I hope everything goes well for you.
I found us on your video. We were in the chocolate and liquor tasting. It was such a great cruise.😀
Wow looks amazing hope you had an incredible time katie 🥰❤😍 xx
So how long did your symptoms last for? Did your symptoms last for 1 week or 1 month and was it everyday?
My symptoms were constant and affected me every day from the end of November 2021, after my MRI in February 2022 I was put on medication which made the pain more manageable but the nerve damage and fatigue and weakness was and remains on-going
I'm glad your doing better hope you get better soon!
I hope your doing good and you feel great after recovery! So, how long did those symptoms last for? 1 week or 1 month until you went to the doctor? Also, was the pain constant/every and was it sharp down your legs.
Hey Katie hope you're doing great!!! I just wanted to know how bad was the pain that you had in your lower body? Where you not able to dance and move anymore?
Hi, the pain and discomfort of my lower got so bad to the point I could barley stand for longer than 5 minutes and couldn't sit normally either.
So how long did those symptoms last for? 1 week or 1 month until you went to the doctor?
Hey hope you stay strong! And do you have the mri images of how your sacral cancer looks like?
I do, I have shared them in some of my other videos. "I Have Cancer" and "Results"
Please suggest the diagnosis process??
Where did you get the mri scan at? Was it your back/cervical spinal cord?
We got my Lumbar Spine (lower back/sacrum) scanned as recommended by my physiotherapist 🙂
Thanks for the respond!
What is the diagnosis ??
@@odindiankeptsecret3243 I have a Sacral Chordoma
@@chordomakatie4985 please suggest which is best type of diagnosis
The dad dancing is amazing. Where did he learn that. So natural. I give it a 9
I have no idea 😂❤️
It's all sounding really positive, I'm so pleased for you. ❤
Great news about your fertility prospects. Staying hopeful for you. Sending peace & love ☮️💜🙏
Well done Katie 😊 youre amazing xx
That was so emotional to watch!! Well deserved gorgeous girl xx
Hello . The ones you shared are great. It would be nice if we could work together!♥🔔
Send me a DM on Instagram, you'll find me at chordoma.katie
How is it going?~ Chordoma~insane masterpiece~ 🙌
Ur defo an inspiration to us all bless you
Sweetheart you are amazing!!! Mental health is a big issue that affects so many people- you are such a strong young lady to share your journey with us all. Love you loads and particularly love the very end of this video!!!!❤❤❤
Took me 2 minutes to work out how to say it 😂😂
♥️♥️♥️
youre doing amazing katie stay strong 🥰❤
Hi Katie! I’m so pleased for you! I check in on your channel every now and then after seeing you pop up on the Chordoma support group. Amazing that it’s shrunk and from what I’ve learnt about them through the group that is indeed a pleasant surprise, I bet you couldn’t believe your ears! Fingers crossed for the follow up on the MRI 🤞🏻 my husband has osteosarcoma and has just had carbon ion beam treatment in Austria, another type of bone cancer, lovely to watch your updates, you’re a lovely young lady and your family must be so proud of you x
Awh thank you that's so kind of you Kate! Honestly I think time froze when they told us. I hope your husband is doing okay, treatment can be so hard with side effects on top of symptoms, but I will keep my fingers crossed for your husband and hope you get good outcomes from it ❤
looks so much fun 😀💕
It was an amazing week both for the cast/crew, and also getting to watch it from Front of house each night - you must be enjoying a well deserved rest!!!
Aww I'm already feeling the nostalgia watching this despite it not being that long ago 😭 what a nice reminder of a fab experience
❤❤❤❤❤❤
My suggestion is olive ❤
Got to call it Doris!
Thanks you two- you have made me giggle and have tears too!!! You both are so incredibly strong and brave!!! Always here for either or both of you- love you lots ❤