GlobalSkin
GlobalSkin
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Webinar: GlobalSkin Advocacy Initiatives — Calls to Action for 2024
On February 15, 2024, GlobalSkin organized a webinar titled "GlobalSkin Advocacy Initiatives - Call to Action for 2024" for Members around the globe.
The purpose of the webinar was to inform attendees about two key advocacy priorities for GlobalSkin in 2024: the drive towards a WHO All Skin Resolution and support for a global awareness campaign led by the World Skin Health Coalition.
Special guests Dr. José-Antonio Ruiz-Postigo from the World Health Organization and Marc Yale, GlobalSkin Board President, provided valuable insights. Dr. Ruiz-Postigo explained the significance of a WHO Resolution for patient organizations and their communities, while Marc Yale outlined the goals of the World Skin Health Coalition, highlighting the upcoming campaign.
GlobalSkin CEO Jennifer Austin, who was also one of the speakers at the event, provided an overview of the resolution being planned for the World Health Assembly 2025. GlobalSkin Public Affairs Director Visnja Zaborski Breton elaborated on the details of the World Skin Health Coalition global awareness campaign #NotJustMySkin, which is scheduled to run from March 11 to April 5, 2024.
The Webinar allowed participants to learn about actionable steps their organizations could take to contribute to these initiatives and increase healthcare prioritization of skin conditions. It also emphasized the importance of collective action, highlighting that together, we are stronger.
#GlobalSkinWebinar #AdvocacyInitiatives2024 #CallsToAction #WHO #WHA #SkinResolution #SkinHealthPrioritization #WorldSkinHealthCoalition #AwarenessCampaign #NotJustMySkin #HealthcareAdvocacy #GlobalSkinImpact #CommunityStrength
มุมมอง: 129

วีดีโอ

GlobalSkin CEO Jennifer Austin Expresses Her Thoughts on Rare Disease Day 2024
มุมมอง 738 หลายเดือนก่อน
GlobalSkin CEO Jennifer Austin has recorded a video message in the lead up to the Rare Disease Day, taking place on February 29, 2024. In her video, Jennifer highlights GlobalSkin's mission as a leading advocate for individuals with rare skin diseases, representing 124 Patient Organizations in 42 Countries and over 29 Rare Dermatological Diseases. She sheds light on the challenges faced by thos...
Webinar: European Policy Roundtable Event hosted by GlobalSkin & ESDR on February 6, 2024
มุมมอง 1478 หลายเดือนก่อน
On February 6, 2024, GlobalSkin and the European Society for Dermatological Research jointly hosted an online roundtable event titled "High-burden but Under-Researched: Policy Responses to Address Under-Prioritized Skin Diseases". The event aimed to respond to the European Union's 2023 Discussion Paper, "Scoping study on evidence to tackle high-burden under-researched medical conditions." The r...
GlobalSkin CEO Jennifer Austin reflects on the organization's accomplishments in 2023
มุมมอง 11510 หลายเดือนก่อน
Reviewing GlobalSkin's achievements in 2023, CEO Jennifer Austin highlights the organization's significant impact across its three strategic priority areas: "Elevating" the patient organizations, "Championing" the dermatology patients' voice, and "Uniting" the broader dermatology community.
Webinar: A New Approach to Rare Skin Disease Drug Discovery
มุมมอง 14011 หลายเดือนก่อน
On October 18, 2023, GlobalSkin hosted a webinar titled "A New Approach to Rare Skin Disease Drug Discovery". Development of treatments in dermatology is rarely considered a high priority by medical professionals and researchers, particularly rare skin diseases. Patient organizations looking to increase research and find treatments for rare skin diseases face the challenges of scale, scarce dat...
GlobalSkin Conference 2023 - Elevate (Belgium)
มุมมอง 31ปีที่แล้ว
Highlights of GlobalSkin's 2023 Conference in Belgium, ELEVATE. Learn more here: globalskin.org/conference #GlobalSkin #skindiseases #skindisease #dermatology #dermatologist
Atopic Eczema Documentary: Skin Our Barrier to the World (With Spanish Translation)
มุมมอง 166ปีที่แล้ว
A GlobalSkin estrena un impactante documental, "Skin: Our Barrier to the World", que ofrece una visión íntima de las vidas de las personas que viven con eczema atópico en todo el mundo. Escuche historias de personas en los Estados Unidos, Nueva Zelanda, Colombia, Eslovenia, Kenia y la RAE de Hong Kong, China, mientras comparten las cargas que el eczema atópico presenta en sus vidas diarias. Mír...
Atopic Eczema Documentary: Skin Our Barrier to the World (With Slovenian Translation)
มุมมอง 70ปีที่แล้ว
A GlobalSkin premierno predstavlja osupljiv dokumentarec "Koža: naša ovira za svet", ki daje intimen vpogled v življenja ljudi, ki živijo z atopijskim ekcemom po vsem svetu. Poslušajte zgodbe ljudi iz Združenih držav, Nove Zelandije, Kolumbije, Slovenije, Kenije in Hongkonga, Kitajske, ko si delijo bremena, ki jih atopijski ekcem predstavlja v njihovem vsakdanjem življenju. Oglejte si ga zdaj g...
Atopic Eczema Documentary: Skin Our Barrier to the World (With Mandarin Translation)
มุมมอง 42ปีที่แล้ว
GlobalSkin 首映了一部颇具影响力的纪录片《皮肤:我们通往世界的屏障》,该片让我们深入了解全球特应性湿疹患者的生活。 听听美国、新西兰、哥伦比亚、斯洛文尼亚、肯尼亚和中国香港特别行政区人们的故事,讲述他们在日常生活中所承受的特应性湿疹带来的负担。 立即观看 globalskin.org/atopiceczema 在您的社交网络上分享! www.GlobalSkin.org Instagram:(@globalskin_iadpo) globalskin_... Facebook:(@IADPOforGlobalSkin) IADPOforGlob... 推特:(@IADPO) IADPO 领英:www.linkedin.com/company/globalskin
The GRIDD Study
มุมมอง 324Kปีที่แล้ว
Who is running the GRIDD Study? The International Alliance of Dermatology Patient Organizations (also known as GlobalSkin) is working with researchers at Cardiff University (UK) and University Medical Centre Hamburg-Eppendorf (Germany) on the Global Research on the Impact of Dermatological Diseases (GRIDD) project. What is the GRIDD Study About? The GRIDD Study aims to collect global data on th...
Digital Advocacy Webinar
มุมมอง 178ปีที่แล้ว
GlobalSkin recognizes that in an increasingly digital world, online advocacy tools can be useful when trying to raise awareness when campaigning for dermatology patient issues. To support patient leaders in this realm, we will be hosted a workshop on, "Learning About Digital Advocacy" which was facilitated by Zach Zimmel, co-founder and Strategy Director of Principles, which is an award-winning...
Why Youth Engagement Matters
มุมมอง 150ปีที่แล้ว
Our first workshop of 2023 is, "Organizational Sustainability: Why Youth Engagement Matters" The expert patient leaders speaking at this webinar: Charlie Bouchard (Founder, Eczema Quebec) Cornelia Pauna (Vice President, EPF Youth Group) The one-hour workshop covers the following topics: - Foundations of youth engagement for patient organizations - Personal experiences of being a young patient -...
Living with Ichthyosis: Amanda's Story
มุมมอง 337ปีที่แล้ว
This year for #RareDiseaseDay, the GlobalSkin team is featuring stories from Members on their life experiences with a rare skin condition. This is Amanda's story - she lives with Ichthyosis. globalskin.org/RDD2023 #rarediseases #rarediseaseday #raredisease #rarediseaseawareness #ichthyosis
Living with Albinism: Peter's Story
มุมมอง 298ปีที่แล้ว
This year for #RareDiseaseDay, the GlobalSkin team is featuring stories from Members on their life experiences with a rare skin condition. This is Peter's story - he lives with Albinism, in Uganda - a region that still suffers from stigma around the condition. globalskin.org/RDD2023 #rarediseases #rarediseaseday #raredisease #rarediseaseawareness #albinism
Living with ichthyosis: Mandy's Story
มุมมอง 453ปีที่แล้ว
This year for #RareDiseaseDay, the GlobalSkin team is featuring stories from Members on their life experiences with a rare skin condition. This is Mandy's story - she lives with Ichthyosis. globalskin.org/RDD2023 #rarediseases #rarediseaseday #raredisease #rarediseaseawareness #ichthyosis
Living with CMTC: Katie's Story
มุมมอง 319ปีที่แล้ว
Living with CMTC: Katie's Story
GlobalSkin Year in Review 2022
มุมมอง 201ปีที่แล้ว
GlobalSkin Year in Review 2022
GlobalSkin Documentary Premiere Event - Full Recording
มุมมอง 4742 ปีที่แล้ว
GlobalSkin Documentary Premiere Event - Full Recording
Atopic Eczema Documentary: Skin Our Barrier to the World
มุมมอง 11K2 ปีที่แล้ว
Atopic Eczema Documentary: Skin Our Barrier to the World
Sneak Preview - "Skin: Our Barrier to the World"
มุมมอง 1192 ปีที่แล้ว
Sneak Preview - "Skin: Our Barrier to the World"
Sneak Preview - Skin: Our Barrier to the World
มุมมอง 9K2 ปีที่แล้ว
Sneak Preview - Skin: Our Barrier to the World
Sneak Preview - Skin: Our Barrier to the World
มุมมอง 942 ปีที่แล้ว
Sneak Preview - Skin: Our Barrier to the World
The effects of Sunlight on the Skin, and Public Education on Sun Protection
มุมมอง 2022 ปีที่แล้ว
The effects of Sunlight on the Skin, and Public Education on Sun Protection
Improving Health Outcomes for People Living with Dermatological Diseases Worldwide
มุมมอง 1992 ปีที่แล้ว
Improving Health Outcomes for People Living with Dermatological Diseases Worldwide
Development of the PRIDD measure a concept elicitation study web
มุมมอง 562 ปีที่แล้ว
Development of the PRIDD measure a concept elicitation study web
WHY GRIDD MATTERS
มุมมอง 2002 ปีที่แล้ว
WHY GRIDD MATTERS
Changing the Way the World Sees Dermatology Through the GRIDD Project
มุมมอง 1903 ปีที่แล้ว
Changing the Way the World Sees Dermatology Through the GRIDD Project
GRIDD 101 - 2021 - Global Research on the Impact of Dermatological Diseases
มุมมอง 1563 ปีที่แล้ว
GRIDD 101 - 2021 - Global Research on the Impact of Dermatological Diseases
Demonstrating the Impact of Skin Disease through Data GRIDD
มุมมอง 843 ปีที่แล้ว
Demonstrating the Impact of Skin Disease through Data GRIDD
GlobalSkin Member Impact Story - Genespoir
มุมมอง 203 ปีที่แล้ว
GlobalSkin Member Impact Story - Genespoir

ความคิดเห็น

  • @chrisbundy2900
    @chrisbundy2900 3 ปีที่แล้ว

    Christine, has been a visionary and an amazing role model for patients, patient leaders, researchers, clinicians and most of all women in leadership roles. She combines drive and passion with being respectful, kind, patient and great fun! I will miss her hugely. Good luck with your next fabulous chapter Christine!

  • @amicusfundacja
    @amicusfundacja 3 ปีที่แล้ว

    Christine, thank you for your work and commitment. We wish you much success and happiness on your new path! Warm greetings from Poland!