From Denial to Empowerment: A Story of Hope and Autism | Nivedita | Autism Podcast
1. Early Signs of Autism (00:00-04:51)
- The mother noticed her daughter's speech regression and hyperactivity at around 1.5 to 2 years.
- Diagnosis was delayed due to lack of awareness and resources 28 years ago.
- Shifted focus from diagnosis to addressing symptoms after advice from a speech therapist.
2. Speech and Learning Journey (05:28-07:16)
- Speech therapy played a crucial role in the daughter learning to speak through reading.
- Functional vocabulary was developed, which later helped in communication and comprehension.
3. School Admissions and Education (10:29-12:29)
- Gaining school admission was challenging, with multiple rejections.
- She eventually completed her education, including Class 12 via NIOS, supported by a school willing to accommodate special needs.
4. Work and Independence (12:29-17:55)
- The daughter secured a job in a school library, learning to handle structured tasks efficiently.
- Parents adopted a detailed planning approach to make daily tasks engaging and enjoyable.
5. Social Development (17:55-19:45)
- The daughter improved in interacting with shopkeepers and navigating social spaces independently, although still requiring occasional support.
6. Parental Concerns and Shadow Support (21:02-22:49)
- The mother emphasized having a "shadow" for mental peace, ensuring her daughter’s safety without micromanagement.
- This arrangement allowed the mother to balance work and caregiving.
7. Raising a Second Child (22:49-27:03)
- Concerns about genetic risks of autism were mitigated, and the second child, much younger, displayed maturity in supporting his sister.
- The mother explained the unequal attention by comparing it to caring for an "injured leg."
8. Life Lessons for Parents (27:03-30:09)
- Acceptance is the first step to overcoming challenges with autism.
- The importance of focusing on progress, celebrating small milestones, and maintaining family balance was highlighted.
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