วีดีโอ

Forgot to state the Nov 2024 MRI showed I was stable.

Hi @adelinematusiak693, thank you so much for sharing your story...it’s truly inspiring! I’d love to feature your journey on our Warrior Page to encourage others. If you’re interested, please email me at miranda@seenamagowitzfoundation.org. Also, I’d love to invite you to join our Pancreatic Cancer SOS group. It’s a wonderful space for connecting and sharing with others on similar journeys. You can learn more at www.pancreaticcancersos.org. 💜

Thank you, @nairapinho! Thankfully, Elizabeth is doing well. 💜 Is someone you love affected by pancreatic cancer? We’re here to support in any way we can.

Thank you for sharing your father’s journey with us, @Anwar.AJ. My heart goes out to you and your family. Please know that you are not alone in this fight. If you’re seeking additional opinions or exploring surgical options, Dr. Douglas Evans from the Medical College of Wisconsin is renowned for taking on complex cases and offers second opinions to our community, which could be a great step without needing to travel. Additionally, we have a support group called Pancreatic Cancer SOS, (pancreaticcancersos.org/) where caregivers and families can connect with others facing similar challenges, gain support, and learn valuable coping strategies. If you’d like help connecting with Dr. Evans or joining our support group, please let me know. You and your father are in my thoughts and prayers. 💜Miranda with SMF (info@seenamagowitzfoundation.org)

💜 💜 💜

Hi Carollynn, You can read more on Marisa's story and her treatments here: seenamagowitzfoundation.org/diagnosed-in-1998-she-has-defied-the-odds-against-pancreatic-cancer/. If you or a loved one is dealing with pancreatic cancer, I'd also like to invite you to our support group. Marisa often joins our sessions: pancreaticcancersos.org/

I am so sorry to hear about your father. Sending you and your family strength and hope during this difficult time. We will keep your father in our thoughts and prayers. If you need support, please consider joining our Pancreatic Cancer SOS group where caregivers can share experiences and find comfort. Also, if you’re seeking additional medical opinions, we can help facilitate second opinions with top specialists. Please don’t hesitate to reach out. You are not alone. ❤️

pancreaticcancersos.org/

@@SeenaMagowitzFoundation off course second opinion regarding best treatment as I'm not satisfied with physian here 😭

@@SeenaMagowitzFoundation thank you so much I want to send him to foreign country for best treatment but I can't afford 😭 do pray for him he is so young 🙏

I’m so sorry to hear that you’re facing this. 💜 Please know that we’re keeping you and your father in our thoughts and prayers.

WOW 24 years! That’s absolutely incredible.. would you be open to an interview? I think your experience could inspire and give hope to so many others. Please email me at miranda@seenamagowitzfoundation.org. -Miranda, Patient Advocacy

I did reply to your question but in a separate comment...sorry

I'm so sorry to hear about your father's diagnosis. Please know you're not alone in this. If you’d like, our Pancreatic Cancer SOS group is a supportive community where caregivers and families share experiences and find strength together. You can learn more at www.pancreaticcancersos.org. Sending you both strength. 💜

@@SeenaMagowitzFoundation thank you so much

Thanks for sharing your thoughts, @MrIanalarcon. You're right...pancreatic cancer is incredibly tough, and it's still a challenge to diagnose and treat effectively. It’s okay to be cautious when it comes to optimism, and we understand where you're coming from. But sometimes, a little extra hope can make a huge difference for patients and their loved ones. The progress being made in research and treatment, while slow, gives us reasons to stay hopeful. It’s a tough fight, but we’re not giving up, and we’re standing with those who need that optimism the most.

Cynthia, we are so deeply sorry for your loss. In loving memory of Alan, we honor his legacy and the strength you’ve shown. Please know that our thoughts are with you, and we stand with you in remembrance of your husband. You're not alone in this journey, and his memory continues to inspire us to keep pushing for progress in the fight against pancreatic cancer. Sending you our love 🕊️💜

I'm so sorry to hear about your diagnosis and your husband's. Sending you strength and support during this challenging time. You're not alone, and there is hope. 💜

Absolutely agree! Mike’s resilience and his wife’s support are truly inspiring. Their story gives so much hope to others facing pancreatic cancer. 💖

Anaplastic thyroid cancer is incredibly aggressive, and you’re right-it deserves more conversation. Every cancer journey is unique and tough in its own way. 💜

Thank you for your kind words! It’s stories like these that remind us of the power of hope, strength, and community. 💜

I am so incredibly sorry for your loss. Losing a loved one to pancreatic cancer is an unimaginable heartache, and I can't begin to imagine the pain you're feeling right now. The love you shared with your sister, Yolanda, shines through your words, and it’s clear she meant the world to you. I know there are no words that can truly bring comfort, but please know that you are not alone in this. 💜

@@SeenaMagowitzFoundation thank you for your kind words 🙏 💕

💜 💜 💜

I’m so sorry to hear about your mother-in-law’s diagnosis. There are some promising new treatments and clinical trials for pancreatic cancer. I’d recommend seeking a second opinion at an NCI-Designated Cancer Center or connecting with our partners who offers free virtual second opinions. If you need help facilitating this or learning more about novel therapies, please reach out. You can also join our Pancreatic Cancer SOS group for support from others who are on similar journeys. There is hope, and we’re here to help. 💜 pancreaticcancersos.org/

You raise an important point about early detection. While CA 19-9 and CMP tests can provide valuable information, they aren’t always reliable for detecting pancreatic cancer early because CA 19-9 levels can also rise due to other conditions, and not all pancreatic cancers produce elevated markers. That said, researchers are working hard to develop more accurate screening methods for earlier detection. You’re right, though-catching it earlier would save many lives, and we’re hopeful that advances in research will get us there. Every voice pushing for progress is crucial! 💜

I am stage 4 now since having recurrences in the lymphnode and lung.over the years

I’m so sorry to hear about your experience with your mum’s trial. It’s heartbreaking when things feel out of control or trust is broken in such a challenging time. If you’re looking for support from others who’ve gone through similar experiences, our Pancreatic Cancer SOS group could be a great resource. It’s a compassionate community where caregivers and survivors share their experiences and support one another through this journey. You don’t have to go through this alone-there is support and hope. 💜 pancreaticcancersos.org/

I'm so sorry to hear about your grandma. Is it pancreatic cancer? We're here to provide support and resources if you need them. Sending strength to you and your family. 💜

@@SeenaMagowitzFoundation the first cancer she got was breast cancer then pancreatic cancer. the third one we have to check in the hospital. i will let you know what cancer it is.

Thank you for sharing your journey with us. Sending you strength and hope as you head into your next round of chemo. If you're interested, we have a supportive group through Pancreatic Cancer SOS for patients and caregivers. We're here for you! 💜 pancreaticcancersos.org/

Can you send us an email? info@seenamagowitzfoundation.org

We'd love to have you join our SOS group! pancreaticcancersos.org/

I have just learned I have a mass at the head of pancreas that has spread to my liver with several tumors and lesions as well I go on the 9th to have a biopsy done but starting to think I should be going the hour drive to James Graham Brown Cancer Center as this would have probably been done sooner it's been almost 3 weeks since finding out

@tammywilson6444 Congratulations, Tammy! 14 years is an incredible milestone, and your story is an inspiration to so many. We would love to hear more about your journey-would you be open to an interview? Your experiences could bring hope and strength to others facing pancreatic cancer. There is hope, Miranda info@seenamagowitzfoundation.org The Seena Magowitz Foundation Our mission is to unite patients, survivors, and caregivers with medical rockstars at world-class institutions so they can continue to survive and thrive. Our vision is a world where pancreatic cancer is considered a chronic, treatable disease.

My 84 yr old mom has this. Im passing on this info. thanks!

@lboyer001 Thank you so much for sharing your incredible journey and the valuable insights, @lboyer001. Your story is truly inspiring and offers hope to many. We would love to invite you to join our Pancreatic Cancer SOS - Support fOr Survivorship group. Your experiences and knowledge could provide immense support and inspiration to others navigating similar challenges. Additionally, we'd be honored if you could share your story on our Warrior Page. Your journey and the success you've found through immunotherapy and other treatments are powerful testimonies that can offer hope and guidance to many. Please let us know if you're interested, and we can provide more details on how to get started. Thank you again for being a beacon of hope and information. There is hope, Miranda info@seenamagowitzfoundation.org The Seena Magowitz Foundation Our mission is to unite patients, survivors, and caregivers with medical rockstars at world-class institutions so they can continue to survive and thrive. Our vision is a world where pancreatic cancer is considered a chronic, treatable disease.

@ChicagoAreaNews We would love to invite your mom to join our Pancreatic Cancer SOS - Support fOr Survivorship group. This supportive community can provide invaluable connections, resources, and encouragement for both patients and caregivers. Additionally, if your mom is seeking a second opinion, we can assist with that as well. We have strong relationships with top pancreatic cancer specialists and can facilitate introductions to ensure she gets the best possible care. Please let us know if you're interested, and we can provide more details on how to get started. We are here to support you and your mom every step of the way. There is hope, Miranda info@seenamagowitzfoundation.org The Seena Magowitz Foundation

How old were you when diagnosed with pancreatic cancer?

@@lind6117 54

@Rachel-sn1rv: Thank you for sharing your mother's incredible and inspiring story, @Rachel-sn1rv. It’s remarkable to hear about her journey through so many surgeries and her resilience over the years. By my calculation, she would be a 35-year survivor since her Whipple procedure in 1989, which is incredible! We would be honored to share her story on our Warrior Page. If she is willing, we can arrange a quick phone interview to capture her journey and share it with others to provide hope and motivation. Please let us know if this is something she would be interested in. Thank you again for sharing, and we look forward to hearing from you. There is hope, Miranda info@seenamagowitzfoundation.org The Seena Magowitz Foundation Our mission is to unite patients, survivors, and caregivers with medical rockstars at world-class institutions so they can continue to survive and thrive. Our vision is a world where pancreatic cancer is considered a chronic, treatable disease.

My husband was diagnosed with pancreatic cancer a month ago and they removed his spleen and pancreas.A year ago,a third of his lungs was removed. He's gonna start a 12 session of chemotherapy this Friday. Your mom's story give us hope and inspire us to live with him longer🙏🙏🙏You mean your mom is almost on the 35th year since her diagnosis?

@@teresitafernandez6502 I’m so sorry to hear about your husband’s diagnosis... Yes, there are remarkable stories of long-term survivors, and advancements in treatment continue to bring hope for more years together. If you ever need support or want to connect with others going through similar journeys, our Pancreatic Cancer SOS group is here for you. Wishing you and your husband strength as he begins his chemotherapy-there is always hope. 💜 pancreaticcancersos.org/

I had the whipple done then partual lung removed 2 years ago 7 years and just living my life

@pennyheckerman4437: Thank you for sharing your incredible journey, @pennyheckerman4437. Being a 7-year survivor with such a positive outlook is truly inspiring. Your story brings hope to many and is a testament to the power of faith and resilience. We would love to invite you to join our Pancreatic Cancer SOS - Support fOr Survivorship group. Your experiences and positivity could provide immense support and encouragement to others navigating similar challenges. Additionally, we would be honored to share your story on our Warrior Page. If you are willing, we can arrange a quick phone interview to capture your journey and share it with our community. Please let us know if this is something you would be interested in. Thank you again for sharing, and we look forward to hearing from you. There is hope, Miranda info@seenamagowitzfoundation.org The Seena Magowitz Foundation

Are ya talking chemotherapy??

@aravindraj-h5w: I am deeply sorry to hear about the loss of your mother, @aravindraj-h5w. Our thoughts and prayers are with you and your family. Miranda info@seenamagowitzfoundation.org The Seena Magowitz Foundation

@DonnaDavis-j3m: Thank you so much for sharing your incredible journey, @DonnaDavis-j3m. Being a 25-year survivor is truly remarkable and inspiring. Your story of resilience and faith brings immense hope to the pancreatic cancer community. We would be honored to share your story on our Warrior Page. If you are willing, we can arrange a quick phone interview to capture your journey and share it with others to provide hope and encouragement. Your experience and positive outlook are powerful testimonies that can inspire many. Please let us know if this is something you would be interested in. Thank you again for sharing, and we look forward to hearing from you. There is hope, Miranda info@seenamagowitzfoundation.org The Seena Magowitz Foundation Our mission is to unite patients, survivors, and caregivers with medical rockstars at world-class institutions so they can continue to survive and thrive. Our vision is a world where pancreatic cancer is considered a chronic, treatable disease.

what was your treatment protocol would you like to tell me please 🥺🙏

You can find more details on her story here: seenamagowitzfoundation.org/survivor-kay-kays/

I’m so sorry to hear about your father’s struggles. It sounds like he’s been through so much. Don’t lose hope- Sending strength to you and your family. 💜

Hi Arpan, Thank you for reaching out. I'm sorry to hear about your father's diagnosis and the financial burden you're facing with his chemotherapy. While we are primarily based in the United States and some of our resources may not be directly applicable internationally, we encourage you to join our Pancreatic Cancer SOS - Support fOr Survivorship group (facebook.com/groups/pancreaticcancersos) on Facebook. This community offers a supportive environment where you can connect with other caregivers and patients, share experiences, and learn from each other. Regarding financial aid, we have compiled a list of resources that might be helpful. Although some of these may be U.S.-based, they could still provide useful information or direct you to other potential sources of support: seenamagowitzfoundation.org/financial-aid-assistance-pancreatic-cancer-and-other-patients/ Additionally, the Patient Advocate Foundation offers financial aid funds, and it might be worth checking if they have any programs that could assist internationally: patientadvocate.org/connect-with-services/financial-aid-funds/ I hope these resources can offer some assistance. Please do not hesitate to reach out if you have any more questions or need further support. We are here to help you in any way we can. There is hope, Miranda info@seenamagowitzfoundation.org The Seena Magowitz Foundation

Thank you for sharing your story. I'm so sorry to hear about your sister's diagnosis and passing. If you ever need support or want to connect with others who understand, we are here for you. We will keep fighting for a cure!