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PNOC Foundation
United States
เข้าร่วมเมื่อ 3 ม.ค. 2018
PNOC Foundation is a California based nonprofit that supports urgent pediatric brain cancer research and clinical trials by leading fundraising efforts for The Pacific Pediatric Neuro-oncology Consortium (PNOC). Our vision is to lose no child to brain cancer, and to improve the quality of life for those fighting and surviving pediatric brain cancer.
The Pacific Pediatric Neuro-Oncology Consortium (PNOC) is an international consortium with centers within the United States, Europe, Asia and Australia. We are dedicated to bringing new therapies to children and young adults with brain tumors. Our goal is to improve outcomes by translating the latest findings in brain tumor biology into better treatments for these children.
Help us change the course of history for the deadliest childhood cancer by supporting PNOC's pediatric brain cancer research. 100% of donations to PNOC Foundation go directly to PNOC's research and clinical trials.
Make a donation today via pnocfoundation.org.
The Pacific Pediatric Neuro-Oncology Consortium (PNOC) is an international consortium with centers within the United States, Europe, Asia and Australia. We are dedicated to bringing new therapies to children and young adults with brain tumors. Our goal is to improve outcomes by translating the latest findings in brain tumor biology into better treatments for these children.
Help us change the course of history for the deadliest childhood cancer by supporting PNOC's pediatric brain cancer research. 100% of donations to PNOC Foundation go directly to PNOC's research and clinical trials.
Make a donation today via pnocfoundation.org.
PNOC High Grade Glioma Informational Webinar
Hear the latest pediatric high grade glioma research and clinical trial updates from PNOC's expert scientific panel.
Donate to support this vital work towards pediatric brain cancer cures: www.pnocfoundation.org
Learn more about PNOC's research groups and clinical trial:
pnoc.us
FEATURED SPEAKERS:
Dr. Sabine Mueller Pacific Pediatric Neuro-Oncology Consortium (PNOC) Co-founder and Project Lead; Professor of Neurology, Neurosurgery and Pediatrics at University of California, San Francisco (UCSF); Affiliated Professor at the University of Zurich, Switzerland. Dr. Mueller is a pediatric neuro-oncologist who specializes in the care of children with brain tumors. She leads the pediatric brain tumor program at UCSF and serves as one of the leads of the pediatric malignancy program of the UCSF Helen Diller Comprehensive Cancer Center.
Dr. Michael Prados Pacific Pediatric Neuro-Oncology Consortium (PNOC) Co-founder and Co-Project Leader; Charles B. Wilson, MD, Endowed Chair in Neurological Surgery, Professor Emeritus, Department of Neurological Surgery and Department of Pediatrics, UCSF. Dr. Prados has over 35 years' experience at UCSF in treating both adults and children who have brain tumors. His current research interest is translational and clinical research in pediatric neuro-oncology.
Dr. Andrea (Flynn) Franson is a Pediatric Oncologist in the Department of Pediatrics at the University of Michigan. She received her bachelor’s degree from Rensselaer Polytechnic Institute in Troy, New York and her medical degree from the University of Michigan Medical School. She completed her residency in Pediatrics and fellowship in Pediatric Hematology/Oncology at the Children’s Hospital of Philadelphia (CHOP). During fellowship, she earned a master’s degree in Pharmacology from Thomas Jefferson University in Philadelphia. Dr. Franson has focused her research efforts in translational science, working to transition the most promising compounds into the clinic for children with cancer.
Dr. Tom Belle Davidson is a pediatric neuro-oncologist who specializes in caring for children with brain and spine tumors. Her research is focused on developing novel clinical therapies. She is currently developing a clinical trial using immunotherapy to improve the outcomes of children with high-grade gliomas.
Dr. Jasper van der Lugt is a pediatric oncologist, with a focus on high grade pediatric brain tumors. He obtained his Medical Degree at the University of Utrecht and his PhD from the University of Amsterdam. Since 2018 he is appointed at the Princess Maxima Center as a treating physician and lead of the neuro-oncology subdivision of the Trial and Data Center within the Maxima. At this position he is responsible for implementation and development for early phase trials. His research focus is on clinical and translational (cellular) immune therapy for children with a CNS malignancy. He is a member of the independent ethics committee (IEC) of the University Medical Center of Utrecht.
Dr. Elias Sayour is an Assistant Professor of Neurosurgery and Pediatrics and Principal Investigator of the RNA-Engineering Lab at the University of Florida. He functions as the newly appointed Director of the Pediatric Cancer Immunotherapy Initiative (PCI2) of the UF Health Cancer Center and Vice Chair of the UFHCC Scientific Review Monitoring Committee. As a board-certified pediatrician and oncologist, Dr. Sayour has extensive translational experience as PI/Co-I on several human trials. His translational efforts are also focused on new pipeline technologies including a novel lipid-nanoparticle (NP) formulation that he pioneered for the immunologic treatment of cancer currently being tested in canine (pet dog) patients with terminal brain cancer before translation into dedicated human studies.
Donate to support this vital work towards pediatric brain cancer cures: www.pnocfoundation.org
Learn more about PNOC's research groups and clinical trial:
pnoc.us
FEATURED SPEAKERS:
Dr. Sabine Mueller Pacific Pediatric Neuro-Oncology Consortium (PNOC) Co-founder and Project Lead; Professor of Neurology, Neurosurgery and Pediatrics at University of California, San Francisco (UCSF); Affiliated Professor at the University of Zurich, Switzerland. Dr. Mueller is a pediatric neuro-oncologist who specializes in the care of children with brain tumors. She leads the pediatric brain tumor program at UCSF and serves as one of the leads of the pediatric malignancy program of the UCSF Helen Diller Comprehensive Cancer Center.
Dr. Michael Prados Pacific Pediatric Neuro-Oncology Consortium (PNOC) Co-founder and Co-Project Leader; Charles B. Wilson, MD, Endowed Chair in Neurological Surgery, Professor Emeritus, Department of Neurological Surgery and Department of Pediatrics, UCSF. Dr. Prados has over 35 years' experience at UCSF in treating both adults and children who have brain tumors. His current research interest is translational and clinical research in pediatric neuro-oncology.
Dr. Andrea (Flynn) Franson is a Pediatric Oncologist in the Department of Pediatrics at the University of Michigan. She received her bachelor’s degree from Rensselaer Polytechnic Institute in Troy, New York and her medical degree from the University of Michigan Medical School. She completed her residency in Pediatrics and fellowship in Pediatric Hematology/Oncology at the Children’s Hospital of Philadelphia (CHOP). During fellowship, she earned a master’s degree in Pharmacology from Thomas Jefferson University in Philadelphia. Dr. Franson has focused her research efforts in translational science, working to transition the most promising compounds into the clinic for children with cancer.
Dr. Tom Belle Davidson is a pediatric neuro-oncologist who specializes in caring for children with brain and spine tumors. Her research is focused on developing novel clinical therapies. She is currently developing a clinical trial using immunotherapy to improve the outcomes of children with high-grade gliomas.
Dr. Jasper van der Lugt is a pediatric oncologist, with a focus on high grade pediatric brain tumors. He obtained his Medical Degree at the University of Utrecht and his PhD from the University of Amsterdam. Since 2018 he is appointed at the Princess Maxima Center as a treating physician and lead of the neuro-oncology subdivision of the Trial and Data Center within the Maxima. At this position he is responsible for implementation and development for early phase trials. His research focus is on clinical and translational (cellular) immune therapy for children with a CNS malignancy. He is a member of the independent ethics committee (IEC) of the University Medical Center of Utrecht.
Dr. Elias Sayour is an Assistant Professor of Neurosurgery and Pediatrics and Principal Investigator of the RNA-Engineering Lab at the University of Florida. He functions as the newly appointed Director of the Pediatric Cancer Immunotherapy Initiative (PCI2) of the UF Health Cancer Center and Vice Chair of the UFHCC Scientific Review Monitoring Committee. As a board-certified pediatrician and oncologist, Dr. Sayour has extensive translational experience as PI/Co-I on several human trials. His translational efforts are also focused on new pipeline technologies including a novel lipid-nanoparticle (NP) formulation that he pioneered for the immunologic treatment of cancer currently being tested in canine (pet dog) patients with terminal brain cancer before translation into dedicated human studies.
มุมมอง: 342
วีดีโอ
PNOC Consortium Spring 2024 Scientific Meeting Update
มุมมอง 1305 หลายเดือนก่อน
PNOC is comprised of 275 dedicated researchers from across the globe. The PNOC Spring scientific meeting, this year held at Dana Faber in Boston, is an important opportunity for PNOC's pediatric brain tumor experts to gather in person, discuss progress and advance concepts. Watch this webinar with PNOC Leadership for an exciting briefing session to hear the latest advancements and future direct...
Dr. Michael Prados discusses PNOC's role in the historic FDA approval of Tovorafenib (DAY101)
มุมมอง 3166 หลายเดือนก่อน
Today we are celebrating a landmark development for pediatric brain cancer research and treatment. Today's new treatment approval by the FDA is proof of what is possible when doctors, scientists, researchers, biopharma, and philanthropists truly collaborate and work together. This is a victory for kids and their families fighting pediatric low-grade gliomas. The FDA approval of Tovorafenib (DAY...
Fund the fight! Help us accelerate cures for pediatric brain cancer!
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Fund the fight! Help us accelerate cures for pediatric brain cancer!
PNOC Patient Family Story: The Ellis Family
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PNOC Patient Family Story: The Ellis Family
PNOC Ependymoma Webinar, October 23 2023
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DONATE to support PNOC's dedicated Ependymoma Working Group and their critically needed Ependymoma research and clinical trials: fundraising.pnocfoundation.org/Ependymoma The Pacific Pediatric Neuro-Oncology Consortium (PNOC) is an international consortium, led by Dr. Sabine Mueller and Dr. Michael Prados, with centers within the United States, Europe, Asia and Australia. PNOC are dedicated to ...
PNOC DIPG / DMG Patient Family Informational Webinar, Sept 27, 2023
มุมมอง 537ปีที่แล้ว
The Pacific Pediatric Neuro-Oncology Consortium (PNOC) is an international consortium with centers within the United States, Europe, Asia and Australia. We are dedicated to bringing new therapies to children and young adults with brain tumors. Our goal is to improve outcomes by translating the latest findings in brain tumor biology into better treatments for these children. Help change the cour...
PNOC Informational Webinar: AT/RT Registry Update June 29, 2023
มุมมอง 236ปีที่แล้ว
Help change the course of history for kids diagnosed with AT/RT! Donate to support the PNOC ATRT Registry - a critical step towards treatment breakthroughs - here: fundraising.pnocfoundation.org/campaign/at-rt-registry-and-clinical-trial-fund/c388332 Atypical teratoid rhabdoid tumor (AT/RT) is a rare, malignant tumor that occurs in the brain and spinal cord of young children. AT/RT can look lik...
PNOC Foundation's Bruce Campbell and Musician Anna Harrell interviewed by Kristen Sze on ABC7 News
มุมมอง 201ปีที่แล้ว
In honor of Brain Tumor Awareness Month Anna Harrell, a 17 year old rising star from Mill Valley, CA released an original song, “Nightlight”, to raise critical funds for the fight to lose no child to brain cancer. Visit nightlight-losenochild.bandcamp.com to hear the song and make a donation. All proceeds will benefit PNOC Foundation - a platinum rated non-profit dedicated to supporting the adv...
Dr. Sabine Mueller's best practices for newly diagnosed pediatric brain cancer patient families.
มุมมอง 628ปีที่แล้ว
When a family first hears that their child has a brain tumor, their whole world is changed. Fast, complex decisions must be made while they are still shocked by an unimaginable diagnosis. Sabine Mueller, MD, PhD, MAS, is a pediatric neuro-oncologist caring for children with brain tumors. She is a Professor of Neurology, Neurosurgery and Pediatrics at UCSF. In her research, Dr. Mueller studies t...
Pediatric brain cancer survivor George Campbell speaks at the 2022 PNOC Foundation Gratitude Gala
มุมมอง 1072 ปีที่แล้ว
The PNOC Foundation was founded to support the work of PNOC in 2013 by Bruce and Allyn Campbell. In 2010 their six year old son George started experiencing morning headaches and nausea. He was diagnosed with a brain tumor, an ependymoma, the size of a small orange, located on the right side of his brain. George underwent 10 hours of surgery and 31 sessions of subsequent radiation therapy. Seven...
PNOC ATRT Registry Update Webinar Nov 15, 2022
มุมมอง 2062 ปีที่แล้ว
Atypical teratoid rhabdoid tumor (AT/RT) is a rare, malignant tumor that occurs in the brain and spinal cord of young children. The condition usually appears by 3 years old. Occasionally, it occurs in older children. The PNOC AT/RT Working Group is a collaboration of physicians and scientists who have expertise in AT/RT. They are dedicated to furthering understanding of this disease and improvi...
The Grady Family share their journey to becoming PNOC supporters
มุมมอง 1572 ปีที่แล้ว
On May 27th 2021, the Grady's 22 month old daughter, Courtney was diagnosed with a large tumor in the back of her brain. On June 1st, 2021 Courtney had brain surgery to remove the tumor by the amazing Dr. Gupta and his team at UCSF Benioff Children's Hospital. Courtney is now home and doing great, showing no regrowth of the tumor. After learning to walk again, Courtney is now running, jumping, ...
PNOC Immunotherapy Webinar June 2, 2022
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Learn about the about promising developments of immunotherapy in clinical trials for children with high grade tumors including DMG / DIPG, medulloblastoma, ATRT, ependymoma and other tumor types.Dr. Sabine Mueller Pacific Pediatric Neuro-Oncology Consortium (PNOC) Project Leader; Professor, Neurology, UCSF Weill Institute for Neurosciences. Dr. Jessica Foster Pediatric Neuro-oncologist, Childre...
PNOC DMG / DIPG Informational Webinar May 24, 2022
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Over 1000 children die every year following being diagnosed with a specific brain cancer called Diffuse Intrinsic Pontine Glioma (DIPG)/Diffuse Midline Glioma (DMG). These tumors arise in the midline structures of the brain such as the thalamus, pons as well as spinal cord. Over the last 50 years, outcomes have not improved for children diagnosed with DMGs including DIPG. The mean overall survi...
Help fund the PNOC AT/RT Registry: The first step towards breakthroughs
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PNOC 2021 Scientific Update With Dr. Sabine Mueller
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PNOC 2021 Scientific Update With Dr. Sabine Mueller
Dr. Sabine Mueller: You have helped us bring new treatments to more children in 2021
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Miles On A Mission: Help Support PNOC's Pediatric Brain Cancer Research
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PNOC Medulloblastoma Informational Webinar Oct 22, 2021
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PNOC Medulloblastoma Informational Webinar Oct 22, 2021
PNOC Craniopharyngioma Webinar June 10, 2021
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PNOC Craniopharyngioma Webinar June 10, 2021
PNOC Ependymoma Informational Webinar May 21, 2021
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PNOC Ependymoma Informational Webinar May 21, 2021
PNOC ATRT (Atypical Teratoid Rhabdoid Tumor) Webinar May 15th, 2021
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PNOC: Bringing promising new treatments to children with brain cancer around the world
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PNOC Foundation: Dr. Michael Prados speaks about finding safe pediatric brain cancer treatments
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PNOC Foundation: Dr. Michael Prados speaks about finding safe pediatric brain cancer treatments
PNOC Foundation: DIPG Patient Advocate Jace Ward speaks about PNOC
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PNOC Foundation: DIPG Patient Advocate Jace Ward speaks about PNOC
PNOC Foundation: Dr. Michael Prados speaks on pediatric brain cancer and progress
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PNOC Foundation: Jace Ward speaks about his mom navigating finding a treatment path for his #DIPG
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PNOC Foundation: Jace Ward speaks about his mom navigating finding a treatment path for his #DIPG
Fund The Fight! DIPG Patient Advocates Jace Ward & Lisa Ward, PNOC Founder Dr. Michael Prados
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PNOC Foundation: Lisa Ward on Jace Ward, DIPG Patient advocate (Interview Excerpt #3)
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PNOC Foundation: Lisa Ward on Jace Ward, DIPG Patient advocate (Interview Excerpt #3)
The same impunity to speak honestly that only (stupidly?) old people have.
I am a 56 year old adult recently diagnosed with a Grade 3 Anaplastic Ependymoma. I am very anxious about my survival and my future. I begin my first of 30 radiation treatments. I will have to have chemo after. I have been told that it has not spread to my spinal cord. Do you have any advice for my current situation.
🔥Visit in Face book MAKING DIPG HISTORY CHILE
We need those mice with “normal” immune systems. Can we get a solid answer on the cost increase? Can PNOC have someone look into this? It seemed like a big hint from Vitanza.
Hello. Could you please share the passcode to watch the webinar of 25th of April in Zoom..
🎉 Best news ever!
Thank you for putting these webinars together.
Thank you Jace!
💥 "Promosm"
TEZZA. ATRT. ANYOL
Praying for Jace. I saw the story about Your life in Poland. I cant stop thinking about You. I hope You are an angel in heaven 🙏♥️
🎉 Ｐ𝐫Ｏ𝕞Ｏ𝓢ｍ
A beautiful young man ❤️ so unfair. This filthy rotten disease must be eliminated now😡👎I hate seeing this 😢😢😢😢
Hi
I love you you very nice
Ok...janio..pik..nice..
Bella signora, con tutti i suoi kili.. Ma sempre una bella signora.
My daughters ATRT has relapsed into her spinal fluid. Brain initially was cured for 12 months. We’re in the UK and trials are limited. How do we get onto your trials?
Dear Kenny, I'm so sorry to hear about your daughter's relapse. For all enquires about PNOC clinical trials please contact info@pnoc.us.
My daughters AT/RT has returned to her spinal fluid following brain tumour removal. She is 11 years old. Yet we are in the UK and have been told there aren’t many hopeful options for her here. Is there any hope of us getting help from anywhere in the US? Please help !!
Hello this channel is maintained by PNOC Foundation and not the PNOC Consortium doctors directly so apologies I am not able to answer your question in detail. I suggest enquiring about any forthcoming clinical trials via: pnoc.us/contact-us/. We plan to host an updated webinar in May 2022. If you would like to receive notification about this webinar when we confirm a date please sign up here: forms.gle/r2jqNoi9HG9cZeGV8
My daughter who is 3 years old battling with AT/RT.please direct me any new information specific to this cancer
Hello this webinar from Oct 2021 is the most current we have available, we plan to do an updated webinar in May 2022. If you would like to receive notification about this webinar please sign up here: forms.gle/r2jqNoi9HG9cZeGV8 If you are interested in enquiring about the latest clinical trials I suggest reaching out via: pnoc.us/contact-us/
I love YOU ♥️♥️💋💋
Hellloo
Thank you all for your expertise. My two year old granddaughter was just diagnosed with ATRT last week. If you know of any new information you can direct me to, it would be appreciated.
We are sorry to read of your granddaughter's diagnosis. We hope to do an annual webinar with each PNOC research group so that newly diagnosed families have current information. Any new PNOC clinical trials when open are listed here: pnoc.us/clinical-trials/. The ATRT research group page is also listed here: pnoc.us/research-group/atrt/
We plan to host an updated webinar in AT/RT Webinar in May 2022. If you would like to receive notification about this webinar when we confirm a date please sign up here: forms.gle/r2jqNoi9HG9cZeGV8
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That young man is amazing and i pray he lives a long life
Jace passed away.
😔
Rest in Heaven sweet Jace
RIP Jace Ward ❤️
Johnson and Johnson , Baby Gap ,Burts Bees , Asprin, Tylenoyl, why are these and many more not helping funding
this young man represents such ''gift of the human spirit'' i wish that he was still with his family. DIPG needs funding. And yet i do know that not enough people even know what it is.i found this by accident, like i did '' Cannonballs for Kayne'' another story of a beautiful life taken away to soon. Jace i send your family my prayers and i know you are in heaven hopefully surfing with Kayne. Why is it that the exceptional people in life die to young.?
Bless you on your journey 🙏🙏🙏
this brave young man is gone and it is very very sad.
🙏🙏🙏
RIP Jace. I cant believe its been 3 weeks already. You were a true legend. Miss you man
so brave so wonderful truly. prayers that they find a cure for this.
He passed away sadly
@@Reiko9 i am so sorry i did not know. This was an exceptional young man.Cannonballs for Kayne is an organization to raise funds and awareness.Kayne was very brave just like Jace. My prayers are with you.
I am so sorry, this came up and i did not know RIP SWEET ANGEL
I HOPE YOUR BEATING IT !! PRAYING FOR YOU and God bless your MOM
Thank you so much for organising this. I hold out so much hope for a cure. 🙏
Stephen Hawking lived for 50 years with ALS, and Jace, you are going to be the longest survivor of DIPG. Your attitude makes it possible. Such an inspiration.
No there is a kid named Dylan Cook he has had it for 12 years
@@dubidubes For real? That’s insane.
@@biasedjedi4353 and jace passed away
@@dubidubes He did? Source, please
@@biasedjedi4353 search up Jace Ward on google
Why are there only 35 thumbs up on this ??? --- Best of luck to Jace and all people fighting this horrible disease .
perhaps this needs more exposure? there are 97 now
Is any1 elsw seeing a pattern here ? All these kids play sports or some sort. Well not the babies obviously but the older ones
It's a genetic defect. It has nothing to do with exercise.
Please pray for Londyn Buss she was diagnosed last week she is at Omaha children hospital. She is 12..
how old is jace and what are the symptoms?
Praying for Jace. He is such a warrior. 🙏❤️
Hey I have been follow your story on FB!! You are such an inspiration
GO JACE! PRAYING FOR YOU (and all DIPG warriors) TO MAKE IT
Unfortunately Jace just passed away
Valentina Marie Hernandez only got six months to make a lifetime of memories before her passing. She was 6 years old. Her DIPG tumor tissue was donated to Dr.Michelle Monje's lab at Stanford in the hopes that other children may one day stand a chance and live a full life. Thank you for your work and your dedication. xoxo Noel Vuoso, grandmother of Valentina
Noel, thank you so much for sharing this with us.
Grab your wine the program is about to start!
Welcome to everyone join us! Where is everyone tuning in from?
If you have a question for Dr. Gupta or winemaker Dan Fishman drop it here in the comments, we will do our best to have them answer them! We want to hear where you are tuning in from!