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Raremark Foundation
Uganda
เข้าร่วมเมื่อ 1 ก.ย. 2020
A safe space platform creating awareness, educating and breaking boundaries for #sicklecellwarriors and their loved ones. Some of our programs include S for Sickle cell, an awareness branch of our foundation.
Sick Conversations: Season #2, Part 6: Denial; How It Hurts, How To Cope, And How to Outgrow.
At some point in life, everyone experiences denial, a natural response when you're unable or unwilling to face or accept the reality of some situations.
In this more than personal recollection of her defining life events, Diana joins us on set to share her experience as a Warrior and how she has learned to outgrow her fears and challenges that come with being a Warrior.
In this more than personal recollection of her defining life events, Diana joins us on set to share her experience as a Warrior and how she has learned to outgrow her fears and challenges that come with being a Warrior.
มุมมอง: 216
วีดีโอ
Sick Conversations: Season #2, Part 5: Life Beyond Discovering Your Genotype.
มุมมอง 21928 วันที่ผ่านมา
In this enlightening episode of the #SickConversations, we welcome Alma and Ivan, who share their personal stories of discovering they have the sickle cell trait. Their experiences shed light on the often-overlooked aspects of discovering you have a trait and living with it and how it has profoundly changed their understanding of sickle cell disease.
HOPE FOR WARRIOR'S FUND
มุมมอง 57หลายเดือนก่อน
During the #ShiningStarGala, we announced and launched an initiative that we hope will help Warriors and their caregivers meet expenses related to managing Sickle Cell complications. These are some of the testimonies we want to turn around and give more hope.
#KnowYourType: Sickle Cell Screening Camp At MUJHU Research Collaboration Kampala.
มุมมอง 2502 หลายเดือนก่อน
During our engagement, we had the opportunity to share with their staff about sickle cell disease, its various types, and its impact on individuals. The enthusiasm and curiosity displayed by the staff were truly inspiring as they sought to understand more about the disease, its complications, and the importance of knowing their genotype. #KnowYourType #RareButAble
Sick Conversations: Season #2, Part 4: Warrior at Work; A Legacy of Josephine
มุมมอง 4302 หลายเดือนก่อน
In this episode, we welcome Maria, co-founder of Digimark Communications, as she shares her journey with her close friend and co-founder, Josephine Esisa (RIP). Watch as she reflects on the challenges and triumphs of building a company with Josephine, who bravely battled sickle cell complications. With September marking Sickle Cell Awareness Month, this special tribute honours Josephine's legac...
Know Your Type: Screening camp at Nakawa Business Park
มุมมอง 362 หลายเดือนก่อน
Recently we concluded our fourth Sickle Cell screening camp hosted by Sun King, and we couldn't be more delighted! These initiatives are not just about testing; they're empowering individuals with vital knowledge about hashtag#SickleCell disease. We extend our heartfelt appreciation to our incredible hosts, Sun Kin, and our esteemed partners Digimark Communications, Tackle Sickle Cell Africa (T...
Sick Conversations: Season #2, Part 3: A Caregiver's Experience.
มุมมอง 5614 หลายเดือนก่อน
In this special edition of #SickConversations, we sit down with Jerry Lee, a Caregiver and mother to a brave Warrior. Join us as Jerry shares her personal journey, the challenges she faces, and the incredible strength it takes to navigate the complexities of care-giving. What to Expect: - Insightful stories from Jerry's experiences as a caregiver. - Tips and strategies for managing the emotiona...
#SickConversations: Season #2, Part 2: Advocating for Sickle Cell Warriors In The Different Spaces.
มุมมอง 2005 หลายเดือนก่อน
In this episode of our #SickConversations series, we sat down with Prince Erimu to discuss what it means to be a sickle cell disease advocate. As a Warrior, Prince shares his personal experiences and insights on the importance of raising awareness, encouraging testing, and supporting the sickle cell community. Dive in to hear Prince's powerful story and learn more about how you can get involved...
#SickConversations Season #2, Part 1: A chat with Papa Okurut
มุมมอง 4976 หลายเดือนก่อน
Okurut Anthony has been living with Sickle Cell Disease for 60 years. He has four children and a wife and works as an Engineer. He shares about living with Sickle Cell, his family history and how he manages the pain.
#SickConversations Part 12: Don's Hospital Experience
มุมมอง 4.9Kปีที่แล้ว
In the world of a warrior, you leave in the constant fear of falling ill at any time. In some cases it's mild, while in other cases, it's very serious and gets you hospitalized for a long time, as was the case with Don. Dig in and hear about his experience.
#SickConversations Part 11: Your Questions Answered
มุมมอง 938ปีที่แล้ว
In this episode of #SickConversations, Josephine and Don address the most pressing questions about sickle cell disease that our viewers have been asking. They cover everything from the basics of the disease to the latest research, treatment options, and how to manage the condition on a daily basis. Don't miss out on this informative and engaging discussion about sickle cell disease.
#SickConversations Part 10: The Future of Healthcare: Homebased Care.
มุมมอง 1Kปีที่แล้ว
#SickConversations Part 10: The Future of Healthcare: Homebased Care.
#SickConversations: Part #9: Angel's Story: Living with Sickle Cell Disease and Cancer
มุมมอง 650ปีที่แล้ว
#SickConversations: Part #9: Angel's Story: Living with Sickle Cell Disease and Cancer
#SickConversations: Part 8; Career Edition
มุมมอง 546ปีที่แล้ว
#SickConversations: Part 8; Career Edition
The unthoughtful comments from HBOMax's Velma series on Sickle cell
มุมมอง 317ปีที่แล้ว
The unthoughtful comments from HBOMax's Velma series on Sickle cell
Raremark Foundation: #30in30 Campaign Launch
มุมมอง 3.4K2 ปีที่แล้ว
Raremark Foundation: #30in30 Campaign Launch
Strong ladies. There is life after a sickle cell diagnosis. Keep spreading the message
Thank you all for the wonderful comments. Keep them coming ❤
I’m so proud of you Dee🎉 You are loved❤
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Sooo proud of you Wilmer … this is great 🔥🔥 Thank you and your team for bringing this information close to us from the warriors themselves… very illuminating and inspiring ✨
I would have been Diana's bad friend 😅coz me i used to play in rain and wait for the late night attacks ,praying God not to punish me for having fun 😂😂😂😂
10k from Diana and Wilmer for each time you said sickler lol
Relax😂
Meet us behind the tent 😂
Always waiting for the next one. Thanks Wilmer
I am super proud of you, Wilmer. You are loved and appreciated. Nothing beats the fact that you are human. You are more than the cickle cell. ❤
Deeeee🎉🎉🎉🎉🎉
🎉🎉🎉🎉
Dee ❤🤎
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I love Diana’s mentality , Well in Wilmer nice one really .😊
They totally out did themselves on this one ❤
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Thabk you for the great work done of making people aware about their health conditions, it makes the next generation stronger and curbs the spread of genetic diseases❤
Sending the two of you so much love ❤️❤️
Always waiting for more. Well done friends
Y'all are beautiful 😍 ❤
Such a beautiful conversation 👏🏾👏🏾
Alma:❤❤
Hmm.... Since 2013 up to now am still battling with AVN that vascular Necrosis condition life is meaningless...
Hello Prossy, sorry about what you're experiencing. We surely hope to help more Warriors through this initiative.
May your soul rest in eternal peace Josie
Well done
it was an educative session
Great thnx to you all I love rearmark foundation God bless you all
❤❤
Weldone
Great initiative Don!
@Don "Alcohol being a trigger for some, maybe." Dead😂😂
Steven why are you hiding from the camera
Beautiful work, RareMark
My mo has sickle cell as well and it’s hard
Thank you Jerry
So proud of you Jerry, you are amazing, thank you for sharing ❤️
Hello .. am a care giver and I would like to join the support groups.. kindly let me know how I can .. thanks I will be grateful
Hello Brenda. Kindly reach out on 0789364486.
Good to see you Jerry
Wilmer, you're welcome to sick conversation. There's a lot we can learn from caregivers. I call them warriors too. Thanks RareMark for this episode.
I'm proud of Wilmer
No truer words have been said. thank you for watching this episode, we hope it was insightful.
But biblically there's no verse that is against blood transfusions,so it is acceptable
But u don't look so bad,as in u seem so healthy compared to those have seen❤❤❤❤
But l would like to ask u guys,u look so healthy than those have come across .For us it's the opposite,very deformed, lameness, chronic ulcers not so sure of tomorrow .....what itches me most is that for long time since 2013 have been battling painful hip joints and a wound that heals and reoccurs without anything triggering it... normally l get medication from lubaga hospital but it's like a yoke that can never break.......
Yeah...dats true,u get a crisis , Every one blames u why u got sick but l came understand it's because they see u as someone that suffocates their finances
You a very articulate and intelligent young man,May God bless you and protect you always.
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Loving every minute of this sick conversation. RIP Jose. Well done Don, well done Rare Mark Foundation
Emotional and really happy that you’ve carried this on.
This is an eye opener about all the myths that sicklers can't live above 30 years, you living beyond these barriers even through sickness with such a low 1.4 hb, Jehovah loves His children.
A leaf to take from this: family, please learn about the importance of support and the role it plays in helping the warriors cope.
Very educational 🤝💪my takeout is teach the children and explain to them the condition so that they can understand better
"Live your life to the fullest "❤❤
We've really lost many beautiful souls this year