Raremark Foundation
Raremark Foundation
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Sick Conversations: Season #2, Part 6: Denial; How It Hurts, How To Cope, And How to Outgrow.
At some point in life, everyone experiences denial, a natural response when you're unable or unwilling to face or accept the reality of some situations.
In this more than personal recollection of her defining life events, Diana joins us on set to share her experience as a Warrior and how she has learned to outgrow her fears and challenges that come with being a Warrior.
มุมมอง: 216

วีดีโอ

Sick Conversations: Season #2, Part 5: Life Beyond Discovering Your Genotype.
มุมมอง 21928 วันที่ผ่านมา
In this enlightening episode of the #SickConversations, we welcome Alma and Ivan, who share their personal stories of discovering they have the sickle cell trait. Their experiences shed light on the often-overlooked aspects of discovering you have a trait and living with it and how it has profoundly changed their understanding of sickle cell disease.
HOPE FOR WARRIOR'S FUND
มุมมอง 57หลายเดือนก่อน
During the #ShiningStarGala, we announced and launched an initiative that we hope will help Warriors and their caregivers meet expenses related to managing Sickle Cell complications. These are some of the testimonies we want to turn around and give more hope.
#KnowYourType: Sickle Cell Screening Camp At MUJHU Research Collaboration Kampala.
มุมมอง 2502 หลายเดือนก่อน
During our engagement, we had the opportunity to share with their staff about sickle cell disease, its various types, and its impact on individuals. The enthusiasm and curiosity displayed by the staff were truly inspiring as they sought to understand more about the disease, its complications, and the importance of knowing their genotype. #KnowYourType #RareButAble
Sick Conversations: Season #2, Part 4: Warrior at Work; A Legacy of Josephine
มุมมอง 4302 หลายเดือนก่อน
In this episode, we welcome Maria, co-founder of Digimark Communications, as she shares her journey with her close friend and co-founder, Josephine Esisa (RIP). Watch as she reflects on the challenges and triumphs of building a company with Josephine, who bravely battled sickle cell complications. With September marking Sickle Cell Awareness Month, this special tribute honours Josephine's legac...
Know Your Type: Screening camp at Nakawa Business Park
มุมมอง 362 หลายเดือนก่อน
Recently we concluded our fourth Sickle Cell screening camp hosted by Sun King, and we couldn't be more delighted! These initiatives are not just about testing; they're empowering individuals with vital knowledge about hashtag#SickleCell disease. We extend our heartfelt appreciation to our incredible hosts, Sun Kin, and our esteemed partners Digimark Communications, Tackle Sickle Cell Africa (T...
Sick Conversations: Season #2, Part 3: A Caregiver's Experience.
มุมมอง 5614 หลายเดือนก่อน
In this special edition of #SickConversations, we sit down with Jerry Lee, a Caregiver and mother to a brave Warrior. Join us as Jerry shares her personal journey, the challenges she faces, and the incredible strength it takes to navigate the complexities of care-giving. What to Expect: - Insightful stories from Jerry's experiences as a caregiver. - Tips and strategies for managing the emotiona...
#SickConversations: Season #2, Part 2: Advocating for Sickle Cell Warriors In The Different Spaces.
มุมมอง 2005 หลายเดือนก่อน
In this episode of our #SickConversations series, we sat down with Prince Erimu to discuss what it means to be a sickle cell disease advocate. As a Warrior, Prince shares his personal experiences and insights on the importance of raising awareness, encouraging testing, and supporting the sickle cell community. Dive in to hear Prince's powerful story and learn more about how you can get involved...
#SickConversations Season #2, Part 1: A chat with Papa Okurut
มุมมอง 4976 หลายเดือนก่อน
Okurut Anthony has been living with Sickle Cell Disease for 60 years. He has four children and a wife and works as an Engineer. He shares about living with Sickle Cell, his family history and how he manages the pain.
#SickConversations Part 12: Don's Hospital Experience
มุมมอง 4.9Kปีที่แล้ว
In the world of a warrior, you leave in the constant fear of falling ill at any time. In some cases it's mild, while in other cases, it's very serious and gets you hospitalized for a long time, as was the case with Don. Dig in and hear about his experience.
#SickConversations Part 11: Your Questions Answered
มุมมอง 938ปีที่แล้ว
In this episode of #SickConversations, Josephine and Don address the most pressing questions about sickle cell disease that our viewers have been asking. They cover everything from the basics of the disease to the latest research, treatment options, and how to manage the condition on a daily basis. Don't miss out on this informative and engaging discussion about sickle cell disease.
#SickConversations Part 10: The Future of Healthcare: Homebased Care.
มุมมอง 1Kปีที่แล้ว
#SickConversations Part 10: The Future of Healthcare: Homebased Care.
#SickConversations: Part #9: Angel's Story: Living with Sickle Cell Disease and Cancer
มุมมอง 650ปีที่แล้ว
#SickConversations: Part #9: Angel's Story: Living with Sickle Cell Disease and Cancer
#SickConversations: Part 8; Career Edition
มุมมอง 546ปีที่แล้ว
#SickConversations: Part 8; Career Edition
The unthoughtful comments from HBOMax's Velma series on Sickle cell
มุมมอง 317ปีที่แล้ว
The unthoughtful comments from HBOMax's Velma series on Sickle cell
A 2022 Review
มุมมอง 817ปีที่แล้ว
A 2022 Review
#SickConversations: Part 7
มุมมอง 1.3Kปีที่แล้ว
#SickConversations: Part 7
#SickConversations: Part 6
มุมมอง 5032 ปีที่แล้ว
#SickConversations: Part 6
Raremark Foundation: #30in30 Campaign
มุมมอง 3032 ปีที่แล้ว
Raremark Foundation: #30in30 Campaign
#SickConversations: Part 5
มุมมอง 1.6K2 ปีที่แล้ว
#SickConversations: Part 5
Raremark Foundation: #30in30 Campaign Launch
มุมมอง 3.4K2 ปีที่แล้ว
Raremark Foundation: #30in30 Campaign Launch
#SickConversations: Part 4
มุมมอง 1.1K2 ปีที่แล้ว
#SickConversations: Part 4
Sick Conversations: Part 3
มุมมอง 1.7K2 ปีที่แล้ว
Sick Conversations: Part 3
Sick Conversations: Part Two
มุมมอง 1.2K2 ปีที่แล้ว
Sick Conversations: Part Two
Sick Conversations: Part One
มุมมอง 1K2 ปีที่แล้ว
Sick Conversations: Part One
Warrior Stories | Ashley
มุมมอง 3183 ปีที่แล้ว
Warrior Stories | Ashley
Warrior Stories | Nova
มุมมอง 3673 ปีที่แล้ว
Warrior Stories | Nova
Save Elijah
มุมมอง 1593 ปีที่แล้ว
Save Elijah
Warrior Stories | Winnie
มุมมอง 2314 ปีที่แล้ว
Warrior Stories | Winnie
Warrior Talk | Dr Ruth Senyonyi
มุมมอง 3034 ปีที่แล้ว
Warrior Talk | Dr Ruth Senyonyi

ความคิดเห็น

  • @geoffreymadewo4341
    @geoffreymadewo4341 6 วันที่ผ่านมา

    Strong ladies. There is life after a sickle cell diagnosis. Keep spreading the message

  • @Raremark.Foundation
    @Raremark.Foundation 8 วันที่ผ่านมา

    Thank you all for the wonderful comments. Keep them coming ❤

  • @nabatanzicynthia5379
    @nabatanzicynthia5379 8 วันที่ผ่านมา

    I’m so proud of you Dee🎉 You are loved❤

  • @terencekalule
    @terencekalule 8 วันที่ผ่านมา

    Sooo proud of you Wilmer … this is great 🔥🔥 Thank you and your team for bringing this information close to us from the warriors themselves… very illuminating and inspiring ✨

  • @anyangogloria6290
    @anyangogloria6290 8 วันที่ผ่านมา

    I would have been Diana's bad friend 😅coz me i used to play in rain and wait for the late night attacks ,praying God not to punish me for having fun 😂😂😂😂

  • @DonMagezi
    @DonMagezi 9 วันที่ผ่านมา

    10k from Diana and Wilmer for each time you said sickler lol

    • @mcgorgeouslinz8148
      @mcgorgeouslinz8148 8 วันที่ผ่านมา

      Relax😂

    • @Wilmer-PL
      @Wilmer-PL 8 วันที่ผ่านมา

      Meet us behind the tent 😂

  • @tacklesickle
    @tacklesickle 9 วันที่ผ่านมา

    Always waiting for the next one. Thanks Wilmer

  • @anitamatildanekesa6161
    @anitamatildanekesa6161 9 วันที่ผ่านมา

    I am super proud of you, Wilmer. You are loved and appreciated. Nothing beats the fact that you are human. You are more than the cickle cell. ❤

  • @joyz_style
    @joyz_style 9 วันที่ผ่านมา

    Deeeee🎉🎉🎉🎉🎉

  • @martye.n2943
    @martye.n2943 9 วันที่ผ่านมา

    Dee ❤🤎

  • @atwijukireelijah2920
    @atwijukireelijah2920 9 วันที่ผ่านมา

    I love Diana’s mentality , Well in Wilmer nice one really .😊

    • @Raremark.Foundation
      @Raremark.Foundation 9 วันที่ผ่านมา

      They totally out did themselves on this one ❤

  • @successinnocent4938
    @successinnocent4938 23 วันที่ผ่านมา

    ❤❤❤

  • @mugenialbert38
    @mugenialbert38 27 วันที่ผ่านมา

    Thabk you for the great work done of making people aware about their health conditions, it makes the next generation stronger and curbs the spread of genetic diseases❤

  • @thelifetalk.6020
    @thelifetalk.6020 27 วันที่ผ่านมา

    Sending the two of you so much love ❤️❤️

  • @tacklesickle
    @tacklesickle 27 วันที่ผ่านมา

    Always waiting for more. Well done friends

  • @verydark..1988
    @verydark..1988 28 วันที่ผ่านมา

    Y'all are beautiful 😍 ❤

  • @OurNook
    @OurNook 28 วันที่ผ่านมา

    Such a beautiful conversation 👏🏾👏🏾

  • @verydark..1988
    @verydark..1988 28 วันที่ผ่านมา

    Alma:❤❤

  • @NamirembeProssyTusaba
    @NamirembeProssyTusaba หลายเดือนก่อน

    Hmm.... Since 2013 up to now am still battling with AVN that vascular Necrosis condition life is meaningless...

    • @Raremark.Foundation
      @Raremark.Foundation หลายเดือนก่อน

      Hello Prossy, sorry about what you're experiencing. We surely hope to help more Warriors through this initiative.

  • @sandranandutu1304
    @sandranandutu1304 หลายเดือนก่อน

    May your soul rest in eternal peace Josie

  • @SuzanSsesanga
    @SuzanSsesanga หลายเดือนก่อน

    Well done

  • @emmanuelmayanja9296
    @emmanuelmayanja9296 หลายเดือนก่อน

    it was an educative session

  • @mirembemargie2862
    @mirembemargie2862 2 หลายเดือนก่อน

    Great thnx to you all I love rearmark foundation God bless you all

  • @tacklesickle
    @tacklesickle 2 หลายเดือนก่อน

    ❤❤

  • @successinnocent4938
    @successinnocent4938 2 หลายเดือนก่อน

    Weldone

  • @mutableparameter4598
    @mutableparameter4598 2 หลายเดือนก่อน

    Great initiative Don!

  • @bonnymeister10
    @bonnymeister10 2 หลายเดือนก่อน

    @Don "Alcohol being a trigger for some, maybe." Dead😂😂

  • @elizabeth.t2474
    @elizabeth.t2474 2 หลายเดือนก่อน

    Steven why are you hiding from the camera

  • @tacklesickle
    @tacklesickle 2 หลายเดือนก่อน

    Beautiful work, RareMark

  • @afk571
    @afk571 4 หลายเดือนก่อน

    My mo has sickle cell as well and it’s hard

  • @graceokou1365
    @graceokou1365 4 หลายเดือนก่อน

    Thank you Jerry

  • @achansusan4202
    @achansusan4202 4 หลายเดือนก่อน

    So proud of you Jerry, you are amazing, thank you for sharing ❤️

  • @nampolabrendah2346
    @nampolabrendah2346 4 หลายเดือนก่อน

    Hello .. am a care giver and I would like to join the support groups.. kindly let me know how I can .. thanks I will be grateful

    • @Raremark.Foundation
      @Raremark.Foundation 4 หลายเดือนก่อน

      Hello Brenda. Kindly reach out on 0789364486.

  • @estherkyohirwe6708
    @estherkyohirwe6708 4 หลายเดือนก่อน

    Good to see you Jerry

  • @tacklesickle
    @tacklesickle 4 หลายเดือนก่อน

    Wilmer, you're welcome to sick conversation. There's a lot we can learn from caregivers. I call them warriors too. Thanks RareMark for this episode.

  • @gertrinenabwire2933
    @gertrinenabwire2933 4 หลายเดือนก่อน

    I'm proud of Wilmer

    • @Raremark.Foundation
      @Raremark.Foundation 4 หลายเดือนก่อน

      No truer words have been said. thank you for watching this episode, we hope it was insightful.

  • @NamirembeProssyTusaba
    @NamirembeProssyTusaba 4 หลายเดือนก่อน

    But biblically there's no verse that is against blood transfusions,so it is acceptable

  • @NamirembeProssyTusaba
    @NamirembeProssyTusaba 4 หลายเดือนก่อน

    But u don't look so bad,as in u seem so healthy compared to those have seen❤❤❤❤

  • @NamirembeProssyTusaba
    @NamirembeProssyTusaba 4 หลายเดือนก่อน

    But l would like to ask u guys,u look so healthy than those have come across .For us it's the opposite,very deformed, lameness, chronic ulcers not so sure of tomorrow .....what itches me most is that for long time since 2013 have been battling painful hip joints and a wound that heals and reoccurs without anything triggering it... normally l get medication from lubaga hospital but it's like a yoke that can never break.......

  • @NamirembeProssyTusaba
    @NamirembeProssyTusaba 4 หลายเดือนก่อน

    Yeah...dats true,u get a crisis , Every one blames u why u got sick but l came understand it's because they see u as someone that suffocates their finances

  • @FredBrianKyobe
    @FredBrianKyobe 4 หลายเดือนก่อน

    You a very articulate and intelligent young man,May God bless you and protect you always.

  • @tiwongekumwenda3128
    @tiwongekumwenda3128 5 หลายเดือนก่อน

    🫡🤗

  • @tacklesickle
    @tacklesickle 5 หลายเดือนก่อน

  • @tacklesickle
    @tacklesickle 5 หลายเดือนก่อน

    Loving every minute of this sick conversation. RIP Jose. Well done Don, well done Rare Mark Foundation

  • @I.am.human26
    @I.am.human26 6 หลายเดือนก่อน

    Emotional and really happy that you’ve carried this on.

  • @mugenialbert38
    @mugenialbert38 6 หลายเดือนก่อน

    This is an eye opener about all the myths that sicklers can't live above 30 years, you living beyond these barriers even through sickness with such a low 1.4 hb, Jehovah loves His children.

  • @elizabeth.t2474
    @elizabeth.t2474 6 หลายเดือนก่อน

    A leaf to take from this: family, please learn about the importance of support and the role it plays in helping the warriors cope.

  • @harrietnyampinga6076
    @harrietnyampinga6076 6 หลายเดือนก่อน

    Very educational 🤝💪my takeout is teach the children and explain to them the condition so that they can understand better

  • @tacklesickle
    @tacklesickle 9 หลายเดือนก่อน

    "Live your life to the fullest "❤❤

  • @phionaphiz5692
    @phionaphiz5692 11 หลายเดือนก่อน

    We've really lost many beautiful souls this year