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Epilepsy Alliance America
United States
เข้าร่วมเมื่อ 1 ก.ค. 2021
Epilepsy Alliance America is a nation-wide network of community-based epilepsy organizations dedicated to confronting the spectrum of challenges created by seizures through the promotion of independence and quality of life for people with epilepsy and their families. Epilepsy Alliance America was founded in 2018 by eight leading grassroots epilepsy organizations who are unified in their mission to provide direct support to people with epilepsy, and the people who care for them. Epilepsy Alliance America is actively seeking new, like-minded, epilepsy organizatoins to join the network.
Members of Epilepsy Alliance America have been collectively supporting people with epilepsy for decades through support services, information, education, advocacy, and public awareness. As a result, the Alliance provides real epilepsy help to approximately 1 million Americans living with Epilepsy. Learn more at epilepsyallianceamerica.org
Members of Epilepsy Alliance America have been collectively supporting people with epilepsy for decades through support services, information, education, advocacy, and public awareness. As a result, the Alliance provides real epilepsy help to approximately 1 million Americans living with Epilepsy. Learn more at epilepsyallianceamerica.org
New Year, New Board Chair
A message from Epilepsy Alliance America's new board chair, Liza Gundell.
มุมมอง: 2
วีดีโอ
Message from Epilepsy Alliance America Board Chair, Liza Gundell
มุมมอง 14 ชั่วโมงที่ผ่านมา
A message from our board chair, Liza Gundell.
Epilepsy Alliance America Seizure Recognition & Response Training (Spanish): November 6, 2024
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Dr. Giancarlo Lugo, pediatric neurologist at Valley Children's Healthcare, presents our Seizure Recognition and Response Training in Spanish. This training covers general epilepsy information, different types of seizures, rescue medications, seizure first aid, and more. Please visit epilepsyallianceamerica.org for more information and resources!
Epilepsy Alliance America Seizure Recognition & Response Training (English): November 4, 2024
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Kelly Conner, PhD, PA-C, Assistant Professor of PA Studies at the Wake Forest School of Medicine and Epilepsy Alliance America National Professional Advisory Committee member, leads a virtual live Seizure Recognition and Response Training. This training covers general epilepsy information, different types of seizures, rescue medications, seizure first aid, and more. Please visit epilepsyallianc...
Off to College Tips - RA Training
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Watch Dr. Nicole Hartmann’s advice on preparing your RA for seizure emergencies.
Off to College Tips - Parties
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Dr. Nicole Hartmann discusses how to enjoy the social aspects of college while effectively managing your epilepsy.
Off to College Tips - Remembering to Take Medication
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Dr. Nicole Hartmann shares tips and strategies for staying on track with your medication schedule, even when life gets hectic.
Off to College Tips - Seizure Detection Devices
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Dr. Nicole Hartmann provides guidance on whether to bring your seizure-detection device to college.
Off to College Tips - Caffeine Intake
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Check out Dr. Nicole Hartmann’s suggestions for staying energized without relying on caffeine.
Off to College Tips - When To Call For Help
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Watch Dr. Nicole Hartmann explain how to communicate with your roommate about when to seek help during a seizure.
Off to College Tips - Looking For Signs of a Seizure
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Alyssa wonders: How do you go about not frightening your roommate when telling them to look for signs of a seizure? Dr. Nicole Hartmann offers thoughtful advice on how to discuss your epilepsy with your roommate without causing alarm.
Off to College Tips - Medication Isn't Working
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Dr. Nicole Hartmann shares tips on managing your lifestyle when your medications aren't fully effective.
Off to College Tips - Asking For Help
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Dr. Nicole Hartmann explains how to tell someone you feel a seizure coming on and need help.
Back to School From A Student's Perspective
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Braelyn Brown, a young man with epilepsy, shares his experience as a student with epilepsy and how learning plans and developing self advocacy skills have helped him have a successful school experience.
Information For Students With Epilepsy
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Dr. Yash Shah, pediatric neurologist, discusses important topics for students with epilepsy and those who care for them, including rescue medications and the risks associated with prolonged seizures.
The Importance of Seizure Action Plans
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The Importance of Seizure Action Plans
Transition of Care Webinar: Presented by Epilepsy Alliance America and Epilepsy Advocacy Network
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Transition of Care Webinar: Presented by Epilepsy Alliance America and Epilepsy Advocacy Network
Resources to Consider: Guardianship of Your Adult Child
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Resources to Consider: Guardianship of Your Adult Child
Lifelong Caregivers Share Personal Testimonies
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Lifelong Caregivers Share Personal Testimonies
Resources to Consider - Government and Other Benefits to Explore
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Resources to Consider - Government and Other Benefits to Explore
Medical Transition from Pediatric to Adult Care
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Medical Transition from Pediatric to Adult Care
Jamison Family at Epilepsy Awareness Day and Education Expo at Disneyland Resort - November 2023
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Jamison Family at Epilepsy Awareness Day and Education Expo at Disneyland Resort - November 2023
Epilepsy Alliance America Seizure Action Plan - DeJah
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Epilepsy Alliance America Seizure Action Plan - DeJah
Epilepsy Alliance America Seizure Action Plan - Danielle
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Epilepsy Alliance America Seizure Action Plan - Danielle
CARE for Caregivers: A Dialogue with Marc Palmieri, epilepsy dad
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CARE for Caregivers: A Dialogue with Marc Palmieri, epilepsy dad
Seizure Response and First Aid - Generalized Tonic Clonic Seizures - English
มุมมอง 5K11 หลายเดือนก่อน
Seizure Response and First Aid - Generalized Tonic Clonic Seizures - English
Im epileptic and with the epilepsy foundation as a volunteer. In many instances and if u know the person, the paramedics don't need to be called. Dont make it sound like they do, instead u should lengthen the video and specwhen they need to be called and when they dont. Especially since turning blue a bit is apart of the seizure and they are usually fine
Very good!!
GNS magnet theraphy
869 Corwin Common
Thanks!
very good video, well done
Love this video! Thank you
Puedo ver este video en Ingles?
All the challenges of having epilepsy inspired me to write my book Jo's hidden secrets which raises money for charities close to my heart and my eldest daughter wrote her book epilepsy book for kids which raises money for epilepsy charities. We fundraise and make them into epilepsy information packs for schools and charities to raise epilepsy awareness and hidden disabilities awareness and money for epilepsy charities at the same time. We donate them to families who need them and libraries too as so many people dont understand the challenges epilepsy brings. Thats why i fundraise for epilepsy charities and all charities that help my family too. Im really looking forward to epilepsy day as ive met so many people who dont understand epilepsy and make me feel like a failure. It will be lovely to meet people who understand the challenges epilepsy brings. You are such an amazing person.
You are amazing and inspiring and i hope to meet you on epilepsy awareness day as ive had epilepsy since i was 7 and lost 2 friends to epilepsy, 3 jobs and my driving licence 3 times, been accused of being drunk when really i was having a seizure and stopped breathing 3 times during seizure too. You are amazing and making such a positive difference
Hello , greetings from Turkey, my wife has epilepsy and uses 4 different medications, but there is still no full recovery. Will this vagus nerve stimulation device work on my wife?
Thank you 🙏🏻
Very informative! One question I have is do you have to lay the person down first? I watch an epileptic kid on the school bus and he has the magnet and I wasn’t sure. Thanks so much!
I have absence seizures my nameis lachelle😂❤❤❤❤❤❤❤❤❤❤❤❤
Excelente explicación, gracias
Que Baliosa información gracias
Great job of sharing why being a part of Epilepsy Alliance America is so important to members!
Had so much fun at this expo last year!
Can't wait to see you again this year.
Thank you ! 😊
I'm so proud of you. God bless and keep with your hard work of helping others.
Thank you for watching.
Its a big thanks to Dr oba herbal medication on TH-cam who got me me cured completely from epilepsy virus😘
Its a big thanks to Dr oba herbal medication on TH-cam who got me me cured completely from epilepsy virus😘
Very nicely explained in simple language. Lot of useful information
Glad you liked it