วีดีโอ

It's a horror disease that doesn't let me live anymore. I have no autophony and can't hear my breath, but it clicks, cracks and pops in my ears every time I swallow, like Velcro ripping open. Or the click of glass. I can no longer breathe properly, I can no longer sleep, I can't fall asleep, this sound from my inner ear. It hurts so much. My eardrums become misaligned when I yawn and I always have to breathe in to align them again. My eardrums are overstretched. The clicking hasn't gone away for 2 months now, I have 0 quality of life because my circulation is going crazy from fatigue and this damn Velcro in my ears. And the university can't measure it. They say I don't have PET and refuse treatment. 2 others say I have PET but won't treat, no-one will help me. The clicking in my ears doesn't let me live any longer. I can feel the swallowing pressure on my eardrums and my heart gets a lot of extrasystoles because I can never rest. Every single minute is full of clicking and there is no escape. My jaw now hurts and my heart is always beating fast. No more work, no more free time, just sleeping pills and the dependency that comes with them.

It's a terrible illness that doesn't let me live any longer. I have no autophony and can't hear my breath, but it clicks, cracks and pops in my ears every time I swallow, like Velcro ripping open. Or a click of glass. I can no longer breathe properly, I can no longer sleep, I can't fall asleep, this sound from my inner ear. It hurts so much. My eardrums become misaligned when I yawn and I always have to breathe in to realign them. My eardrums are overstretched. The clicking hasn't gone away for 2 months now, I have 0 quality of life because my circulation is going crazy from fatigue and this damn Velcro in my ears. And the university can't measure it. They say I don't have PET and refuse to treat me. 2 others say I have PET but don't want to treat me, nobody helps me. The clicking in my ears doesn't let me live anymore. I can feel the swallowing pressure on my eardrums and my heart gets a lot of extrasystoles because I can never rest. Every single minute is full of clicking and there is no escape. My jaw now hurts and my heart is always beating fast. No more work, no more free time, just sleeping pills and the dependency that comes with them. The clicking drives me mad, every time I swallow crick crick!!!! My eardrums flutter with every burp. And I'm not supposed to have a PET because they couldn't measure it by duck test at the time of the check-up? The patient questionnaire counts for nothing, only the hearing tests, and they are all good.

My ear started with being severally clogged then a loud continuous noise, then sounds echoing back then pulsitile tinnitus. And it just rotates. I just got over the autophony and I'm back to hearing my pulse in my ear. Its exhausting

Jones Christopher Perez Joseph White William

Moore Gary Rodriguez Susan Walker John

Walker Amy Rodriguez Susan Jones Donna

Yes heart failure has a voice do the researh faster dont make us wait .from my voi😅ce you can hear my heart. Listen.

Clark Michael Moore Mark Young Jose

Lee John Hall John Thompson Mary

Jackson Shirley Smith Eric Thomas Patricia

Jones Donna Clark Mary Wilson Sarah

It’s not just volume loss!

Lewis Jason Johnson Paul Wilson Larry

Harris Brenda Perez Susan Anderson Charles

Anderson George Martin Donald Garcia Frank

Taylor Robert Walker Dorothy Johnson Cynthia

Johnson Mary Williams Jason Garcia Brenda

Hernandez Richard Jackson Donald Moore Kevin

Anderson Laura Lopez Brenda Davis Steven

Don’t take any psychiatric medication! Learn how to live and deal with your problems. Don’t go to hospitals either. Invest in homeopathic remedies!

I hope you’re at 801 Welch Rd. on Thursday so I can straighten you out about/that ENS contains nerve and mucosa damage!

Moore Anna Lopez Sandra Williams Larry

Robinson Linda Johnson David Johnson Jessica

Walker Deborah Walker Ruth Harris Mark

I did this years ago and now 9 years later I have patulous in that same ear but not sure why it would’ve effect me 5 years later is that normal?

They just don't know, so many sufferers around the planet with that damn open tube. But there is no treatment. I still have a cracking/clicking/smacking sound with every empty swallow. I can't sleep anymore, death would be a gift, because life is no longer possible, sleep is no longer possible. Heart disease due to lack of sleep is now coming as a result. My tubes are extremely dilated. There is a new device from Korea, a standing CT, where you can see the open tube in the CT, you stand during the scan so that the anatomy is not changed. But the ENTs say, well, you shouldn't stand in line. But sleep is pointless because of the disgusting noise and the volume in the skull. And there is no one in Germany who can do it. The German universities are completely bankrupt, our whole country is falling apart and we no longer have any good junior doctors who can even diagnose it, and if we do, we are powerless to do anything about it afterwards. 2024 is not a good time for patients with open Eustachian tubes. Especially those with very open tubes. Really, death, would be peace. Translated with DeepL.com (free version)

Lewis Robert Johnson Ruth Clark Kimberly

Most of us don't know the power of herbs, let alone how they have a positive impact on health. That's why Drapalahealing on TH-cam will always remain in my heart for completely curing my herpes infection with his herbal medicine…….

Robinson Cynthia Jones Brenda Anderson Frank

Gonzalez Linda Martin Shirley Martinez Christopher

I have my appointment at Stanford University next Thursday. I hope you’ll be there.

Jones Barbara Hall Barbara Miller Ruth

Allen Eric Brown John Miller Lisa

Lee Ronald Thomas Barbara Harris Kenneth

Lewis Larry Harris Larry Martinez Linda

Thompson Patricia Moore Edward Clark Mark

where can you buy this

Pictures to show what the heck you talking about

Jackson Sharon White Frank Walker Christopher

Thompson Dorothy Clark Jeffrey Brown Michael

So this doctor has this PETD when exercising but does surgery for this so why not have this other doctor fix his ears ???

isnt it enough to just look at the ear drum and ask the patient to breathe and see if the ear drum is moving while he breathes?

Can you please explain the correlation between patulous ETD and Chronic Rhinitis? It seems a bit counterintuitive to me because patulous is the eustachian tube more or less always open vs rhinitis is nasal cavities inflammed and filled with mucus so eustachiant tube plugged instead of open . I dont understand :/

Clark Dorothy Brown Susan Clark Helen

Hello - when my mother does the hypertonic solution, it works, but it is so excruciatingly painful in her ear that she cries and this is hard to witness. We use 2 tsp of salt in 1 cup of water. She lays supine with head turned 45 degrees until the pain starts which is quickly - then she sits up and tries to wash the stuff out of throat because that burns also. Wondering if its necessary to get the hypertonic solution all the way to the ear drum because the pain (described as "a knife is piercing my ear) in the ear is very bad.

Great information. Thank you for sharing. I am in that rare group (lucky me).

Jones Shirley Allen Maria Harris Lisa

Rodriguez Shirley Gonzalez Kimberly Martinez Frank

Very informative.

Dr Poe, you mentioned spironolactone can cause ETD?