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Pelvic Pain Matters - Beating pelvic pain together
United Kingdom
เข้าร่วมเมื่อ 24 ก.ย. 2020
Pelvic Pain Matters - The go to resource for male pelvic pain conditions - Chronic Pelvic Pain Syndrome & Chronic Prostatitis
Helping men beat pelvic pain for good & supporting healthcare professionals working with or interested in working with male pelvic pain
About us
If you’re living with the misery of CPPS / prostatitis, you’ve come to the right
place
Our world-leading experts post proven self-help tips and takeaways, Q&As,
‘survivor’ interviews, practical guides and more.
Subscribe now to learn how you too can end the misery of CPPS
Pelvic Pain Matters was set up by Karl Monahan - the owner of The Pelvic Pain Clinic, educator and former sufferer, David Lowe - a former pelvic pain sufferer, Tim Beames - a specialist pain physio and international educator and Jo Taylor - business development and communication manager
#prostatitis
#chronicpelvicpainsyndrome
#chronicprostatitis
#prostate
#menshealth
#malepelvicpain
#urology
#urologist
#menshealthphysiotherapy
#pelvichealth
Helping men beat pelvic pain for good & supporting healthcare professionals working with or interested in working with male pelvic pain
About us
If you’re living with the misery of CPPS / prostatitis, you’ve come to the right
place
Our world-leading experts post proven self-help tips and takeaways, Q&As,
‘survivor’ interviews, practical guides and more.
Subscribe now to learn how you too can end the misery of CPPS
Pelvic Pain Matters was set up by Karl Monahan - the owner of The Pelvic Pain Clinic, educator and former sufferer, David Lowe - a former pelvic pain sufferer, Tim Beames - a specialist pain physio and international educator and Jo Taylor - business development and communication manager
#prostatitis
#chronicpelvicpainsyndrome
#chronicprostatitis
#prostate
#menshealth
#malepelvicpain
#urology
#urologist
#menshealthphysiotherapy
#pelvichealth
Pelvic pain natters podcast. Ep 49. Flare ups and Burn Out!
In this bonus podcast Karl Monahan continues to dive a little deeper into flare ups. Karl reflects on the comparison between flare ups and burn out. He looks at the presentation of burn out. He looks at the causes of burn out and why the comparison may help unpack the causes of a flare up.
These hints and tips are to help steer your recovery in pelvic pain. They are insights to help you understand what you are experiencing and why.
This exciting new podcast is dedicated solely to male pelvic pain conditions - Chronic Pelvic Pain Syndrome and Chronic Prostatitis
Pelvic Pain Matters website - www.pelvicpainmatters.com/
The Pelvic Pain Clinic website - www.thepelvicpainclinic.co.uk/
Email Pelvic Pain Matters - pelvicpainmatters@gmail.com
Email clinic - info@thepelvicpainclinic.co.uk
#prostatitis
#chronicpelvicpainsyndrome
#chronicprostatitis
#prostate
#menshealth
#malepelvicpain
#recovery
#support
#urology
#urologist
#menshealthphysiotherapy
#pelvichealth
These hints and tips are to help steer your recovery in pelvic pain. They are insights to help you understand what you are experiencing and why.
This exciting new podcast is dedicated solely to male pelvic pain conditions - Chronic Pelvic Pain Syndrome and Chronic Prostatitis
Pelvic Pain Matters website - www.pelvicpainmatters.com/
The Pelvic Pain Clinic website - www.thepelvicpainclinic.co.uk/
Email Pelvic Pain Matters - pelvicpainmatters@gmail.com
Email clinic - info@thepelvicpainclinic.co.uk
#prostatitis
#chronicpelvicpainsyndrome
#chronicprostatitis
#prostate
#menshealth
#malepelvicpain
#recovery
#support
#urology
#urologist
#menshealthphysiotherapy
#pelvichealth
มุมมอง: 37
วีดีโอ
Pelvic pain natters podcast. Ep 48. I hear you, I see you.
มุมมอง 15514 วันที่ผ่านมา
In this bonus podcast Karl Monahan touches on the hidden illness that is male pelvic pain conditions like Prostatitis and Chronic Pelvic Pain Syndrome. He explores the difficulty of being seen and heard, by the world, health professionals and others. These hints and tips are to help steer your recovery in pelvic pain. They are insights to help you understand what your re experiencing and why. H...
Pelvic pain natters podcast. Ep 47. Flare ups, why has the pain not gone immediately???
มุมมอง 15021 วันที่ผ่านมา
In this bonus podcast Karl Monahan continues to dive a little deeper into flare ups. Karl looks at why flare ups don't pass straight away. He unpacks the "express elevator" approach to overcoming flare ups. He touches on the role of catastrophisation and its contributions to flare ups. These hints and tips are to help steer your recovery in pelvic pain. They are insights to help you understand ...
Pelvic pain natters podcast. Ep 46. Flare ups, this is a process
มุมมอง 20328 วันที่ผ่านมา
In this bonus podcast Karl Monahan dives a little deeper into flare ups. Karl looks at our reaction to flare ups. What he see's in clinic and how best to navigate these difficult times. These hints and tips are to help steer your recovery in pelvic pain. They are insights to help you understand what your re experiencing and why. Here is the link to the flare up guide. Scroll down the page to th...
Pelvic Pain Natters Podcast: Ep 45 Flare ups - The hope that kills you
มุมมอง 128หลายเดือนก่อน
In this bonus podcast Karl Monahan dives a little deeper into flare ups. Karl looks at our reaction to flare ups. What he see's in clinic and how best to navigate these difficult times. These hints and tips are to help steer your recovery in pelvic pain. They are insights to help you understand what your re experiencing and why. Here is the link to the flare up guide. Scroll down the page to th...
Pelvic Pain Natters Podcast Ep 44, flare ups pt 1 - What percentage of flare ups have you overcome?
มุมมอง 95หลายเดือนก่อน
In this bonus podcast Karl Monahan dives a little deeper into flare ups. What they are and what features we are likely to see in them. He offers a really important reflection that can help you see flare ups in a different light. We explores flare up cessation and why this is very important to bear in mind! Here is the link to the flare up guide. Scroll down the page to the bottom - www.pelvicpa...
Pelvic Pain Natters Podcast Ep. 43: My favourite type of prostatitis!
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In this bonus podcast Karl Monahan continues his exploration of pelvic pain beyond the pelvic floor and beyond pelvic floor dysfunction. In this episode he examines type IV prostatitis, a relatively unknown case of prostatitis that is one of the more common types. Why does no one know about it, because it is asymptomatic! Yep, inflammation of the prostate that elicits NO symptoms. Why is this i...
Pelvic Pain Natters Podcast Ep 42 Pelvic Floor Dysfunction and Urination
มุมมอง 1192 หลายเดือนก่อน
In this bonus podcast Karl Monahan reflects on pelvic floor dysfunction and urination. He looks at why we need to explore beyond the pelvic floor alone when considering urinary symptoms. Karl explores posture, anticipation, pain and habits formed around standing, clenching and bracing. He gives assessment guidelines for the patient and the clinician to help unpack urinary symptoms associated wi...
Pelvic Pain Natters Ep 41 Pelvic Floor Dysfunction and Trigger Points
มุมมอง 2042 หลายเดือนก่อน
In this bonus podcast Karl Monahan reflects on pelvic floor dysfunction. He explores the treatment of trigger points. Why this can be helpful if applied correctly in the treatment of male pelvic pain conditions. What to be wary of when you have been told that trigger points cause your pelvic floor dysfunction. Here is the very detailed article on TP therapy - www.painscience.com/tutorials/trigg...
Pelvic Pain Natters Podcast: Ep 40 MORNING WOOD!
มุมมอง 1302 หลายเดือนก่อน
In this bonus podcast Karl Monahan continues his exploration of pelvic pain beyond the pelvic floor and beyond pelvic floor dysfunction. In this episode he examines sexual dysfunction. He reflects on some research around sexual dysfunction in CPPS/CP. He explores his own journey with sexual dysfunction and opens up on what else might be happening with patients with erectile dysfunction and low ...
Pelvic Pain Natters Podcast. Ep 39, What a load...
มุมมอง 802 หลายเดือนก่อน
In this bonus podcast Karl Monahan reflects on a book called Unstressable by Mo Gawdat. He talks about the principles of load and the onset of symptoms. He gives some examples of load in his life recently and applies the 3 L's from Mo's book. Link to the next support group - www.eventbrite.co.uk/e/pelvic.... This exciting new podcast is dedicated solely to male pelvic pain conditions - Chronic ...
Ep 38 Pelvic Pain Natters Podcast: Pelvic floor dysfunction - number 2
มุมมอง 1113 หลายเดือนก่อน
In this bonus podcast Karl Monahan explores the pelvic floor in more detail. Looking into the nerves we see the muscles of the pelvic floor are not working in isolation. We consider what happens when we integrate the muscles into an orchestra model and why being aware of the nerves is essential for unpacking pelvic floor dysfunction. Link to the next support group - www.eventbrite.co.uk/e/pelvi...
Pelvic Pain Support Group for Men
มุมมอง 2123 หลายเดือนก่อน
This is a short, introductory video on our Pelvic Pain Support Groups for men. These monthly online meetings will take place every 4 weeks or so. They are a chance for men to connect and meet others in an online meeting. CPPS/CP can be an incredibly isolating condition with many men feeling alone, poorly understood and anxious or depressed. These groups provide connection, common ground, suppor...
Ep 37. Friday take away - Why pelvic floor dysfunction is like lab meat!
มุมมอง 2933 หลายเดือนก่อน
In this bonus podcast Karl Monahan reflects on what pelvic floor dysfunction is. This is the first of a series of podcasts exploring the phenomenon that is PFD. Karl starts to look at what structures are involved in pelvic floor dysfunction and why the model is incomplete. Karl starts to explore what is involved in PFD and what is often not considered. He makes a comparison to current trends in...
Ep36. Pelvic Pain Natters - Support is so Important
มุมมอง 783 หลายเดือนก่อน
In this bonus podcast Karl Monahan reflects on the final pilot support group. He talks about why he has set up a global support group for men with pelvic pain. He mentions some of this previous groups and gives feedback from the last pilot. If you wish to be added to the mailing list for the next group please email pelvicpainmatters@gmail.com This exciting new podcast is dedicated solely to mal...
Ep 35 Pelvic Pain Natters - Mental Health, Cipro and Suicide
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Ep 35 Pelvic Pain Natters - Mental Health, Cipro and Suicide
Ep.34. Pelvic Pain Natters, Friday take away - Journaling
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Ep.34. Pelvic Pain Natters, Friday take away - Journaling
Ep 33. Friday Take Away - Joe's recovery
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Ep 33. Friday Take Away - Joe's recovery
Ep 32. Friday take away - How many arrows does your pelvic pain have?
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Ep 32. Friday take away - How many arrows does your pelvic pain have?
Friday Take Away - What went well part 2?
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Friday Take Away - What went well part 2?
Friday Take Away - I am calm, I am relaxed
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Friday Take Away - I am calm, I am relaxed
Friday Take Away - Velcro, Teflon, Glimmers
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Friday Take Away - Velcro, Teflon, Glimmers
Pelvic Pain Natters - Supporting yourself in the early days of diagnosis and beyond pt 1
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Pelvic Pain Natters - Supporting yourself in the early days of diagnosis and beyond pt 1
Friday Take Away - The true superstars
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Friday Take Away - The true superstars
Friday Take Away - I need to be honest with you
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Friday Take Away - I need to be honest with you
Things You Should Know About Getting a Pelvic Pain Diagnosis
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Things You Should Know About Getting a Pelvic Pain Diagnosis
FTA Check yourself before you wreck yourself
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FTA Check yourself before you wreck yourself
Why do we have people smiling when this condition is crippling and causes men to commit suicide.
Thanks for your comments. My name is Karl, I am one of the presenters. This condition is awful, I know this only too well myself having lost a testicle due to a rampant infection. We are not making jokes about the condition, nor are we trying to undermine the seriousness of the condition. But we are trying to educate and raise awareness of the condition. We aim for balance in our presentations, keeping the mood light and digestible for all audiences. Our aim was not to offend.
Happened to me mate, I took two pills of cipro and felt as if I had been drinking non stop for weeks, couldn’t even concentrate, I threw them away and got mad at my doctor… mind you all my tests were clear and no warning was given at the time of prescription, I do hate such doctors who want to destroy us, probably one can’t even sue them…
I am so grateful for your videos Karl, thank you as always. I love the pin idea! You haven’t met me before, but in my darkest times you have helped me more than you will know. Just wanted to share my gratitude
Bless you. Thanks for your wonderful comments and support of the work we do Scott.
Thank you for providing this information very useful.. Absolutely hit the nail on the head in regards to general care doctors, urologist.. I am dealing with one now that has diagnosed me with BPH yet has not done any imaging testing nor rectal exam. first console lasted 5 minutes told me to take Cipro for 28 days after I got done telling him that I had severe anxiety. To come back in six weeks. Come back for the second console talk to him for another 5 minutes. Then proceeds to prescribe me Cialis. After I told him that my urine flow was actually okay. Then ordered a flow test 2 weeks after he prescribed me the Cialis. By the second console is when he said I believe you have BPH. However he did order blood work to check my PSA levels. My PSA levels were normal. 0.6 However my testosterone was a little low. Now he wants me to go on testosterone which in my investigation could aggravate the Bph symptoms if that's truly what's going on.. How he's come to these conclusions I am completely Godsmack.. I was diagnosed with non-bacterial prostatitis about 10 years ago.. I made sure to let him know this information as well.. I know from dealing with other urologists that this one does not seem very proactive.. so now I'm having to seek other opinions which makes it even more frustrating because prior to this coming out of nowhere I told him I was dealing with major anxiety and panic attacks.. I have reached out to you by email this is probably a month and a half ago you did respond promptly and I just wanted to thank you for your response .. ironically I am having lab results done by microgenics so I am awaiting the answers in regards to that.. I'm trying to be diligent as you stated I need to find out what's going on with me... Thanks again.. David D.
My problems stopped me riding a bicycle in definitely now life sucks
I am very sorry to hear this. Pelvic pain can be a challenge to say the least, I know this personally and professionally. The medical world of Dr's and Urologists do not currently have the skill set to treat and support patients with this condition which often leaves patients feeling isolated and poorly understood let alone listened to. Finding the right practitioner(s) is really key. Please do look beyond conventional Medicine for the answers
Drs don’t know shit , their script writers
thank you for what you're doing Karl!
It is a pleasure. I aim to do one of these each week
Thank you Karl!!
You're very welcome, thanks for the support.
Thanku.
LOL, until recently I hadn't realized that Mario updated his favorite way to tackle ED and it's a relief! Although what he previously suggested was pretty good, it was a real pain to follow... I just go'ogled the latest by Mario Volpstein, it's so much simpler and potent now!
Great advice. I lock my knees out whilst urination so I’m going to keep them slightly bent now and do slow, deep breathing. Thanks.
Good man. Let me know how you get along. Don't rule out sitting as an option too!
Hi Karl, thank you for helping with this. What is your opinion on using cold dips to treat chronic prostatitis? This seems to be an unexplored area, as I haven't found much information on it. My logic is that chronic prostatitis involves inflammation of the prostate, so cold exposure might be beneficial. What are your thoughts? Thanks
Thanks for your post. I think cold dips can help, I certainly suggest them to many of my patients. Every single case is unique and there may be, or may not be inflammation in the prostate, or indeed the surrounding tissue depending on the case and the influencing factors. I would encourage you to try for your individual circumstances and see the result. I would love to know if it helps. Start off with a few minutes per day. This might be a shallow bath, or a cold tub for full immersion.
@@pelvicpainmatters-beatingp1648 thanks for the reply, I will keep you posted
Thank you ! I never really felt a huge relief after my physical therapy , and if I would use wand too hard it would definitely would make me feel worse for next 5-6 days . I actually stopped using wand as I felt not much benefit from it . Stretching does help but temporary , pain still come back in few hours. All of the things you are saying in this podcast very similar to me . This condition is so complicated…
Thanks for your support and comments. It is very easy to go too hard and hope for quicker results. This can often lead to an increase in sensitivity for a period. This can become exhausting because we are then flaring and waiting for symptoms to calm, flaring and waiting etc. Try being very mindful with the stretches and only stretching to comfort, not into pain. A small amount of discomfort is ok, but any more and it can wind the symptoms back up again. There are many factors to consider the looking to manage this condition. You are doing great if you are aware of triggers, or activities that do increase sensitivity. If we understand this we can reduce their impact
Perhaps I’m a lucky one but my chronic Pelvic Floor pain arrived due to stress at work then completely disappeared when the stress of my deceased wife’s cancer treatment and ultimate death occurred.
@@camlendrim7609 thank you for sharing your story. I am so very sorry to hear what you have been through. My thoughts are with you.
Thank you
You're very welcome. Thank you for your comment and support
Enjoying your video very much this is a awful disease to come down with
Thanks for your support. Please do check out the other sources we have put out there on our You Tube Channels. We also have a monthly support group for men with pelvic pain. You ca find more info here - www.eventbrite.co.uk/e/pelvic-pain-support-group-for-men-june-28th-2024-12pm-bst-tickets-915105313627?aff=oddtdtcreator&_gl=1%2A1ooc5y4%2A_up%2AMQ..%2A_ga%2AMTI1MDI4MzA4Ny4xNzE4MjEzMjI5%2A_ga_TQVES5V6SH%2AMTcxODIxMzIyOC4xLjEuMTcxODIxMzI0Ny4wLjAuMA..
Love the message in this video. As a pelvic floor PT I can say from experience, the patients that were highly consistent always recovered the fastest and the most completely. Thanks Karl
Thanks so much for the support and comment. Consistency helps to shape new habits, it truly is key for shifting paradigms in recovery.
In my case i don't understand whether Prostatitis caused me PFD or the other way round. Since i had pelvic dysfunction symptoms after struggling through urinary symptoms for couple of years due to enlarged prostate. And after sometime it continued to grow where i improved on chronic pain. Btw i am 31 years old. All docs whom i consulted are confused about the case.
Thanks for the outline of your case. This is a perfect example as to what we need to consider a bigger picture in patients and see beyond muscles as being the "cause of pelvic pain."
No one exactly knows what the condition is everyone is having their own theories prostatitis, pFD, PN,IC ETC
I completely agree. It causes all kinds of problems not having common language or diagnosis. In France many of my patients are diagnosed with "PNE", this seems to be their common default for these symptoms. I am unpacking some of the theories about what the condition is and encouraging listeners to explore other contributing factors.
Pelvic floor dysfunction (at least from my current experience of it for the last 6 months) can often come many parts of the body. One of the things I’ve seen a lot of positive results is in the form of strength training the surrounding muscles. If you have a weak core and glutes then the pelvic floor has to jump in as a backup to carry you. This doesn’t mean go to the gym and do heavy deadlifts. You have to start slow and building up so you have a starting foundation so you can gradually build up. Before I really went into strengthening I was doing stretches which actually made some of my muscles weaker and caused imbalances in my legs. This isn’t everyone’s case but it’s common enough that muscle imbalances cause the pelvic floor to do more than it needs too.
Love it, thanks so much for your response and engagement. It is so important to look at each case and consider possibilities and opportunities for recovery/change.
This has been my experience as well. I’ve also been dealing with pelvic floor dysfunction for about 6 months now too. Initially I started with just the stretching, yet in a sense it made things worse, especially in my inner thighs and glutes. I started going to the gym and ‘gently & slowly’ started to work the areas outside my core and on into my core. This has helped tremendously. It’s definitely a top down approach, but working out all the areas that interact and support the pelvic core helps a lot.
@@B737Matt Thanks for your comment and sharing your experience. using an integrated and holistic approach to treat the whole body, not just the PF yields the best results I have found.
ALL THESE PELVIC PAIN VIDEOS IVE SEEN JUST INFORMS THE SYMPTOMS THAT WE KNOW, ALSO THAT WE CANT CURE IT. WE KNOW IT ALREADY. THEY NEVER GIVE DETAILS FOR THE EXERCISES. ONLY ADVERTISE TO CONTACT THEM FOR TREATMENT. IF YOU WOULD GET BETTER, IT'S BECAUSE OF HIM. IF NOT THEN CPPS IS NOT CURABLE, YOU DIDN'T KNOW THAT??
Thanks for your comments. You are spot on, there is NO CURE for this condition. A cure suggests one approach that works for every patient and that is not the case. I sincerely wish it was as you and I wouldn't have suffered with this condition. Understanding each case is central to being able to unlock it. There are common factors across the world that help each man - reducing the things that contribute to flare ups. Leading a balanced life with good nutritious food and plenty of rest. Moving, in a safe, gentle way that doesn't provoke sensitivity from over doing it. These are universal trends I have seen over the past 16 years of treating this condition.
Karl ive had this years last so many years ive been pretty symptom free just odd day or so of increase in symptoms. Its been 7 days now ive been very stressed and know this has done it. However how long does a flare up usually last for people as usually for me its a few days.im scared it will never come back down
They can last for a varied period of time, from a few minutes to much longer including over a week. There are a number of factors at play as to why they happen and also continue. Here are some resources to consider. It will pass! - th-cam.com/video/ZmkepGYcjzc/w-d-xo.html
www.pelvicpainmatters.com/flare-up-survival-guide
Can you do a video that PFD patients can share that's just for friends and family to see. There's a lot of videos for patients but sometimes we only have short attention spans for people around us... It's disheartening and can be deflating. Having a video that just gives them facts and a quick understanding would be such an amazing tool for understanding and support. I've started to explain before and by the end I'm flooded and sometimes have tears in my eyes by the end.
Thanks for the feedback and suggestion. I will add this to the pile of future episodes. It can be very challenging for anyone else to rule comprehend what it is we go through with this condition. I am considering setting up a support group for partners, parents and loved ones of pelvic pain patients. Let me know if you wish yours to be added to the list for this.
Your videos are crucial to me at the moment and I'm grateful for the service your offering people suffering through this condition daily.
Thanks for the support Scott. Please do feel free to share these podcasts with anyone you feel may also benefit from the content.
Finally straight talk.
Heat kills bacteria, the prostate is right behind the pubic bone, press a heating pad on the pubic bone and the heat will permeate through the pubic bone, apply for 30 minutes and your prostatitis will be gone.
Mate I just love these videos. They’re so helpful! Been looking forward to this one and it was as helpful as I knew it would be. Thank you!
It is a pleasure. Enjoy!
Promo-SM
Amazing to hear a recovery story ! I can definitely relate to most of the things he was saying , I have had symptoms for about 7 months , first 3-5 month were really awful but symptoms are slowly easing with a self care routine and low dose of amitriptyline. Sometimes I feel pain free , but symptoms are lingering there and here and it’s getting better . Carl thank you for Friday takeaways those videos really showed me how to get better . 🙏
You're most welcome. You are starting see changes in your symptoms. An upcoming podcast will include what to expect in a typical journey to recovery - the pattern of symptom changes we can look forward to. Please do share the content on any other platforms you feel would benefit
does this kind of prostatitis raise your PSA?
Inflammatory prostatitis can raise your PSA. But, it is also important to note that a high PSA by itself is not conclusive. Riding a bike, ejaculating and even a cold can raise your PSA!!!
This hidden illness causes so much anxiety because it is awkward to talk about it. It is easier to talk about your arm hurting or your broken leg. You get so much more sympathy!
Very true. We are aiming at breaking this taboo, Our next webinar delves into this and you may wish to check our global support community where you can meet with other men and chat face to face with them. More details to follow in the coming episodes
Cheers Joe, hope to meet you at the finish line one day
That comparison was straight to the point !!!! “Oh look at this guy I bet he doesn’t have any pain in his penis , or look at him he can have sex any time he wants to” also passing by coffee shop “ oh look at this people they can drink coffee but I can’t “ those examples were so accurate. 👌
Thanks for the comments and support. I know this feeling all too well from when I had my symptoms and I see this daily with my patients... It is so easy to do, but only leads to more suffering and a deeper feeling of disconnectedness : ( Can you be aware and do it less OR, be kind to yourself if you do it??
How can i contact you ? I probably need help
Thank you Carl ! Really supporting podcast ! Would be nice if you could also share with us how usually progress go . I realized I can only get better every month maybe by 5-10% percent with the help of self care . I think a lot of men not aware how slow this progress is , so we end deviating from our plan of self care and start thinking that all the things we are doing are useless. You are best coach 😇.
Thanks so much for your support and kind words. Please do feel free to share the podcasts on any other platforms you feel would benefit from my coaching. Consistency will give you continued recovery. As you improve you will be able to do more and this can really help our sense of progress. A future podcast on what the future holds for those on this journey is a great idea. Thanks for your feedback.
Man, thank you so much for this information. God bless and complete healing on you in Jesus name!!!
Thanks for your support and kind words. Keep on keeping on brother, you can manage and overcome this condition
Karl would love you to elaborate on your journaling format or how you do it. Something I want to do but don’t really know where to start
I will do an episode on journalling in the near future : )
Incurable and not managable
Thank you for your comments and feedback. i am sorry you feel this way. It is a very complex condition and there is no "cure" that fixes all, but it can most definitely be managed and successfully overcome. It is not an easy journey and it can be an immense struggle at times. I know, I have been there!
Awesome Good for you getting much better now I still have this even after. Surgery. May 2020. Trying the. Wave therapy. It’s the new thing But tell you really it only gave me relief for. One or two nights Yes. Caffeine fires my. Pudenaul nerve up so bad And laying down to go to bed that’s when it get. Bad bad Along with caffeine I get up two or three times a night If I get up 2 x a night I think that’s great But it’s not right med. Dr doesn’t know about this. Never.
It can be a very tough condition to manage and overcome, but it is possible. Can you expand on thaw wave therapy you mentioned please.
Not today , but this month I am able to eat my meals on the chair without rushing to finish, able to take time and enjoy. Before I had to rush to stretch after eating because my pelvis was on fire after sitting for 5-10 minutes.
What I find helped alot was getting off all the forums an just living in the present an working out an stretching an slowly noticed most if not all my problems just went away, less tension because I wasn't focusing on my pelvic floor
It can be tough when the forums seem the only place to find answers, but there is no filter to them and everyone posts when they are at their lowest. It is very rare that people comment when they have achieved success/wins. Opening up your focus to other aspects of life beyond just the pelvis is SO important. Please see my velcro, glimmers and teflon podcast - th-cam.com/video/qRmuyIsGmKs/w-d-xo.html
Your video quality is very well. Due to some of the problems mentioned above, your videos are not reaching people properly. So your video views and subscribers are not increasing. No problem I can assist you.
This was so helpful! Thank you Karl!
You're most welcome. DO check out all the other episodes and try and weave the relaxation techniques into your self care programme for ongoing benefits
Thanks for this. Info I have the same. Pain at the tip Pudenaul Nerve.
I got this. Pain After a. Injection For. Low back pain
I am very sorry to hear this, but it can be treated and you can overcome this condition
@@garyjohnson5869
@@pelvicpainmatters-beatingp1648 Thank you. I pray 🙏🙏.
Did you cure that pain ?and if it is true.. how can i start and how long it takes ?
I no longer have any symptoms and I don't have to do any self care to keep the pain away. I had my symptoms 20 years ago. Everyone is different and therefore recovery time varies. The key thing is finding the right clinician to work with who offers support, guidance and ideally a lived experience of the condition so they know what you are going through. You can reach out to me at karl@thepelvicpainclinic.co.uk or visit www.thepelvicpainclinic.co.uk for more details
This was so good, thank you!
You're very welcome. Can you build this into your self care routine?
Do you have any videos with woman? Or people have dealt with burning sit bone pain?
Turp prostate surgery works
Every case is unique and therefore requires an unique approach, for some a TURP can be very beneficial, for others a more conservative approach is more suited.
Brilliant podcast ! This past 30 days I have been free from anxiety . My anxiety level is from 1 to 10 is 1 . Where is before anxiety was there almost everyday and severe . I have been also able to surf almost 3-5 times a week where Is before I could only surf once a week . I see what you are saying about those little wins that we don’t really acknowledge. 🙏best coach I ever found for pelvic pain !
Thank you so much for your kind words and support. I am super proud of what you are achieving now, take time to drink these moments in, journaling on them can supercharge the gratitude of these moments.. Consider this phrase too - "remember when you wanted what you currently have!!"
Thank you Darius I have been reccommended to Karl by my Osteopath and have thought for a while that what the doctors were telling was wrong. Im looking forward to speaking to Karl v soon.
Likewise. Thanks for the support
Ukrainian here listening, too 💫
Hello to the Ukraine!