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Thanks.. I will let you know how it goes in my next video.

Thanks Neha! Glad it could help you

Thank you 🙏

Thank you so much 🙏

I'm glad I could help! Thanks a lot for your wishes. I wish you good health and happiness, too. Take care.

Hi Sujata, it's unfortunate to hear that you are facing discrimination even after being from a medical background. Medical practitioners should be the ones who are most aware of these conditions. I'm not sure what kind of disability you have but what I can say is don't lose hope. I know it's hard but we need to fight back. When I lost my eyesight for a month and was still going to the office and work wearing sunglasses, I was at my lowest. I can understand how it is to feel hopeless, but I didn't give up. I stood there and fought each day. I would ask you to do the same. Fatigue is a part of MS, so do take rest when needed. You cannot exhaust myself. Engage yourself in doing things that you enjoy. After my diagnosis, I have developed multiple hobbies. You have to keep yourself motivated. Never give up. Take care.

Thank you ​@@ExploringMS

No issues. Do take care and you can get back to me whenever you feel like getting a support.

It can be confusing in the beginning and there might be lots of questions but have patience .. everything will fall in place with time.

Thanks, and I agree ... sometimes it's very strange when these things happen to you. It feels like it's beyond our imagination!

Thanks. MS is definitely very mysterious. One can never be sure why something is happening and if that something is happening bcoz of MS. It can be frustrating at times... not knowing and that feeling of uncertainty. But I guess we have to live with it... can't complain much 😊

You should visit your neurologist and take his suggestions.. Doctor should be able to guide. Good luck to you

Sorry, I couldn't understand you. What exactly do you want to know?

Thank you for watching my videos! Your support motivates me to keep creating more.

Am unable to walk

When I take bath at that time Legs start shivering today

Take care!

Thank you for your support. Much appreciated 🙏😀

Well said.. That’s exactly how I feel.

Thanks for your suggestion. I'll try to see what II can do about it 😀

Thanks .. Everyone needs it sometimes right even if we are already aware of it?

Thank you for your kind words. Yes, am doing absolutely fine 😀

You're welcome. I hope it helps 😀

All I can suggest to you is to be a member of MSSI Group and apply for disability certificate. I have already shared all the details needed previously. Hope that helps!

No. I didn't have any headache. But yes, I needed someone to hold me get up and lie down while in bed. That too was fine after a week. I mean, after a week I was back to normal, doing my daily stuffs myself. But yes, the procedure was painful or maybe it was mostly in my head. They will numb your spine before inserting the needle so don't worry. Just relax and try to stay cool. All the Best!

@@ExploringMS I'm glad to hear you skipped the headache 🤪 and thank you for your input I really appreciate it. I'll be glad when it's over and I'm back home. My fibromyalgia is giving me some body warnings from the stress of it all So I'm enjoying a nice cup of tea ☕☺️ Have a blessed day hon

@@toryberch I hope your procedure went well... Blessed day to you too 😊

Absolutely! Thanks 🙏

Oh I always bounce back 😀 It might take a while at times but am always back!

Did you apply for Disability Certificate? I have shared all the details with you. It would help if you did that first.

Thanks a ton 😀

Thanks 🙏

I wish I knew! It was just a phase.. am good now 😊

I’m not sure of the Finance but it does have benefits. So apply for it if you haven’t.

Have you applied for the Disability Certificate? If not, then you should do it immediately.

@@ExploringMS not now'

How to do

I have not applied Don't know how to do it

Please guide me how to apply for the multiple SC Disability Card financially I am zero getting problem in vision to

That’s really amazing, it is a true blessing. I too used to get it from Railways as my mom is a retired Railway staff but they no longer support. I have been purchasing Rituximab myself and getting myself hospitalised to get the infusion. Luckily am back in Delhi and AIIMS is free so I just purchase the injection and get it infused for free.

And the worst part is we can't live a manageable life without medicines in MS.... Exercise also is equally important to carry life like you mentioned in your previous videos

That’s the saddest part. I feel so relaxed after my chemo is done knowing I am free for another maybe 9mths.. The moment time comes nearby I get equally anxious. I sometimes wish I could live a free life without stressing about all these things. But again can’t get everything you want right? Have to live with it.

Chemo sounds scary to me at least ..... For now dimethyl fumarate is working well for me and I hope it goes like this in future as well....., but seriously you seem very strong... Hats off to you

@@gauravrawat3974 that’s an oral medication I suppose right? I too had started with Tecfidera which was oral but it didn’t work for me as I got multiple attacks. Hence, doctor moved me to Rituximab. Have taken in alone too when I had nobody to accompany me. It was scary at first but now am used to it.

Thank you very much for your wishes 😊😊

@@ExploringMS dạ thalkeu chị nhé 🇱🇷🇱🇷🇱🇷🇻🇳🇻🇳🇻🇳💐💐💐

Ohh and do you have health insurance?

@@ExploringMS Yes, I do !

That’s great! You got the insurance after being diagnosed or had it before the attack? I had it before my diagnosis so I am covered too but just the hospitalisation, not the day care. Not able to change my policy type or increase the coverage amount anymore.

Oh dear.. did you take the steroid treatment? Mine was cured after taking the steroids.

@@ExploringMS Thank you for replying. I visited an ophthalmologist when my vision was blurred by about 20% in the lower part of my eye. He diagnosed retinal damage and performed laser treatment, and I hoped it would help. He asked me to come back after 2 days, but by then, I had lost vision in my right eye. He then used a Zeiss machine to scan my eye, took a picture, and discovered that my optic nerve was swollen. He referred me to a neurologist, who admitted me to his partner hospital on the same day. In the hospital, I was given Solumedrol injections for 5 days. After discharge, I was on steroid medication for 3 months, starting with Omnacortil 60 mg and tapering down to 30 mg by the end. Following that, I received Rituximab 500 mg injections twice, with a 30-day gap in between. Now, I take Rituximab every 6 months, and my last dose was on July 27th. The next one is scheduled for between January 25-30, 2025. Currently, I have about 25% vision in my right eye. I have also had glasses since I was 13 years old, now I am 27… During ON due to MS I was 26… I hope my eye recovers fast… 🙏🏻 Note: Rituximab is to prevent future MS attacks…

I have gone through all of that. Took 6 bottles of Solumedrol and when I couldn’t see at all even after that, they suggest plasmapheresis but I was too scared to do that process so I opted for oral steroid, omnicortel was given. After a month I got my eyesight back. Before that I was couldn’t see at all with right eye, I got blind. Have been on Rituximab since 2018. Condition is stable now, no more relapses. My doctor had mentioned that if steroid doesn’t work, I have to go through Plasmapheresis. In fact two of the treating doctors had mentioned the same. You can check with your doctor too if Plasmapheresis can help. No harm in trying.

@@ExploringMS Yes, he did and cautioned me of the Phasma treatment… I have recently submitted him my latest Brain MRI and he'll update me on the further course of treatment…

@@zionthestarofyoutube9961 Oh ok.. you should do it if it helps you get your eyesight back. I was told of the same by the doctor who diagnosed me in Fortis, Gurgaon and also my treating doctor from AIIMS.

Thanks for sharing. Yoga is definitely the best of what we have I guess. When am not able to go to the gym, I do Yoga at home.

I get it. When I wake up late and have slow mornings, I feel more energetic during the day. Slow is good ..

Anytime Tanvi. You are definitely not alone. I have been living with MS for 9 years now. It's not easy but manageable. Never lose hope and please do follow me for more such content 😊

Thank you so much for sharing your recommendations. It's truly commendable that you've been managing MS for 22 years! You've given me a fresh perspective. I hadn't noticed what worsens my MS and what works for me before. For instance, on days when I push myself too hard at the gym, I feel very tired and sleepy all day. I'll be more mindful moving forward-lesson learned. I've been considering intermittent fasting but haven't implemented it yet. I suppose you eat just two meals a day? That sounds challenging, but I can give it a try. Your suggestions are extremely helpful. Thanks again!

Dr. Rohit Bhatia from AIIMS. He has been my treating doctor since 2015

@@ExploringMS thank you so so much 🙏🏼

@@aluna_m888 Not a problem. Let me know if you want any other information. Always happy to help!

@@ExploringMS I will look to find more info online… the address etc I appreciate your kindness 🙏🏼

@@aluna_m888 sure. All the best.

Seriously? What kind of Supplements did she take? Care to share so that all can benefit from it?

I absolutely understand your concern. That’s the reason all of my recent videos are only in English and I intend to keep it that way going ahead. The older ones which I have already created can’t change it but I have corrected myself. Hope if helps and thanks for watching.

Didn’t your doctor suggest a Steroid treatment? Mine worked after taking steroids.

Are you sure your MS is cured?

🙏🙏

Are you taking one and does it help? I could use more information if possible, please.

Thanks girl