Smiles Behind Lupus
Smiles Behind Lupus
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Unexpected Surgery
Unexpected Surgery
มุมมอง: 164

วีดีโอ

Health Update+ Prayers
มุมมอง 97ปีที่แล้ว
Health Update Prayers
Thyroid Nodules + Mediport Access + Neck Procedure
มุมมอง 712 ปีที่แล้ว
Thyroid Nodules Mediport Access Neck Procedure
Mediport Surgery+ Infection+ ER Clot/Stroke
มุมมอง 602 ปีที่แล้ว
Smiles Behind Lupus Mediport surgery that became infected trip to ER rule out Clot and Stroke Website Blog Merch Store smilesbehindlupus.com/blog/ New family channel th-cam.com/users/channel UCAvvf-hTolAlXbeY_xtwpLg Past Videos: How to create a prayer closet | My War Room th-cam.com/video/eIbOOKPONXwb/w-d-xo.html Clean with me Quick Clean With Me th-cam.com/video/G6GnRUgxxsk/w-d-xo.html This vi...
Lupus Update + Surgery
มุมมอง 612 ปีที่แล้ว
Website Blog Merch Store smilesbehindlupus.com/blog/ 7-Day chronic Illness Devotional Would you read the Bible Plan, Finding Hope in Psalms for Living With Chronic Pain and Illness, with me? bible.com/p/53933484/82f0f2542c49cd1a8eac4650e6133cfd New family channel th-cam.com/users/channel UCAvvf-hTolAlXbeY_xtwpLg Past Videos: How to create a prayer closet | My War Room th-cam.com/video/eIbOOKPON...
July 14, 2022
มุมมอง 902 ปีที่แล้ว
Traveling To The Rheumatologist Cold
CT Urogram
มุมมอง 1182 ปีที่แล้ว
Smiles Behind Lupus Website Blog Merch Store smilesbehindlupus.com/blog/ LupaVita discount lupavita.refr.cc/cheryl New family channel th-cam.com/users/channel UCAvvf-hTolAlXbeY_xtwpLg Past Videos: How to create a prayer closet | My War Room th-cam.com/video/eIbOOKPONXwb/w-d-xo.html Clean with me Quick Clean With Me th-cam.com/video/G6GnRUgxxsk/w-d-xo.html This video may contain affiliate links ...
OXYGEN DROPPING
มุมมอง 882 ปีที่แล้ว
#lupus #flare
Health Update C-Diff
มุมมอง 1862 ปีที่แล้ว
Health Update C-Diff
Traveling To Idaho Flaring
มุมมอง 422 ปีที่แล้ว
Traveling To Idaho Flaring
ER Visit
มุมมอง 1032 ปีที่แล้ว
ER Visit
Pulmonary Appointment + CT Results
มุมมอง 572 ปีที่แล้ว
Pulmonary Appointment CT Results
CT Scan+ PFT+ Methotrexate
มุมมอง 592 ปีที่แล้ว
CT Scan PFT Methotrexate
UAB+ Dysautonomia +Overwhelmed
มุมมอง 702 ปีที่แล้ว
UAB Dysautonomia Overwhelmed
Health Update+ Colonoscopy
มุมมอง 632 ปีที่แล้ว
Health Update Colonoscopy
Epidural+Traveled to UAB MS Eval
มุมมอง 832 ปีที่แล้ว
Epidural Traveled to UAB MS Eval
Happy New Year+Lupus Update
มุมมอง 642 ปีที่แล้ว
Happy New Year Lupus Update
Lupus Update + Birthday
มุมมอง 982 ปีที่แล้ว
Lupus Update Birthday
Pancreatitis Flare with Lupus
มุมมอง 1662 ปีที่แล้ว
Pancreatitis Flare with Lupus
Multiple Sclerosis Referral
มุมมอง 672 ปีที่แล้ว
Multiple Sclerosis Referral
Mini Mental Health Beach Vacay
มุมมอง 463 ปีที่แล้ว
Mini Mental Health Beach Vacay
COVID VACCINE| How Did I Do??
มุมมอง 493 ปีที่แล้ว
COVID VACCINE| How Did I Do??
ERCP Pancreas Stent Removal
มุมมอง 4463 ปีที่แล้ว
ERCP Pancreas Stent Removal
Why I left Against Medical Advice
มุมมอง 1203 ปีที่แล้ว
Why I left Against Medical Advice
Hospital update
มุมมอง 723 ปีที่แล้ว
Hospital update
EUS AND ERCP Procedure now Admitted Due to complications
มุมมอง 1253 ปีที่แล้ว
EUS AND ERCP Procedure now Admitted Due to complications
Doctors Appointment x3 Exhausted
มุมมอง 603 ปีที่แล้ว
Doctors Appointment x3 Exhausted
Rheumatology Appointment 5 Hours Away
มุมมอง 623 ปีที่แล้ว
Rheumatology Appointment 5 Hours Away
Lupus Update +Healthcare Disparity +More Test
มุมมอง 563 ปีที่แล้ว
Lupus Update Healthcare Disparity More Test
Day 3 Prednisone Update
มุมมอง 623 ปีที่แล้ว
Day 3 Prednisone Update

ความคิดเห็น

  • @martinevdstok1932
    @martinevdstok1932 15 วันที่ผ่านมา

    How are you doing now?

  • @bettyjones8677
    @bettyjones8677 หลายเดือนก่อน

    I will start next week. Blessings ❤

  • @nickerik
    @nickerik 3 หลายเดือนก่อน

    OMG! I have an upcoming test. I knew about this test and asked the doctor to do it. I took this test 20 years ago, but it wasn't the standard. At that time, I had chest tightness. It still feels scary.

  • @deborahmccleary8047
    @deborahmccleary8047 5 หลายเดือนก่อน

    I hope you're doing okay.. everything's good.. wishing you nothing but the best 🙏🏽🤎

  • @jenjohnson4321
    @jenjohnson4321 5 หลายเดือนก่อน

    Started benlysta last November 2023.great improvements in my health.i was reluctant to take the injections but iam glad I did.😊😊

  • @honestlyamyfaye1648
    @honestlyamyfaye1648 6 หลายเดือนก่อน

    I would love to share my diagnosis story 😊

  • @sonyawilson1000
    @sonyawilson1000 7 หลายเดือนก่อน

    Perfect example! Reiterate: 1. After injection is complete and you hear the second click, wait for at least 5-7 seconds before pulling it out. I waited only 3 seconds and then pulled the injector out and the medicine sort of pooled (about a few drops) on my thigh, which means I pulled the injector out too soon and the medicine was still going in. 2. I would make SURE that I wait for at least 30 minutes before administering the shot. My shot going in was 🥶 cold as heck right at 30 minutes. 3. Don't get spooked right before your first injection hearing that the shot burns going in. It does burn a bit initially. The burning for me subsided 3 seconds after the start of injection. I do wonder if the shot doesn't burn as much if it were not so cold. 4. I found that NOT pinching my skin and injecting with my stomach or thigh skin flat was most comfortable for me, but I would say that with each individual person this may vary. I would recommend trying it both ways.

  • @choicesnowtv4730
    @choicesnowtv4730 7 หลายเดือนก่อน

    I really enjoyed the replay. Her experience sounds like my experience. I was diagnosed at 52 but definitely had signs and symptoms on and off for years. Peace and Blessings

  • @supac.3336
    @supac.3336 8 หลายเดือนก่อน

    Did the infusion cause your heart problems

  • @cindyjohnson9078
    @cindyjohnson9078 8 หลายเดือนก่อน

    Thank you for sharing your story Janay Townes. Great moderator questions.

  • @LadyTsThingsThatBling
    @LadyTsThingsThatBling 8 หลายเดือนก่อน

    Hi. I have Lupus. This was a great conversation. I Suffering a lot right now. I have discoid and systemic lupus. Doctors suspect I may have blood cancer. Have you heard of that? I’m the only one of 13 children who was diagnosed with Lupus.

  • @StephSteph5
    @StephSteph5 9 หลายเดือนก่อน

    Hi! Its so good to see you!

  • @AJHR77
    @AJHR77 9 หลายเดือนก่อน

    Hi Cheryl & Hosts! Looking forward to these LIVE's!

  • @ChelseyGuhde
    @ChelseyGuhde 10 หลายเดือนก่อน

    listen to your body. rest as much as possible

  • @ChelseyGuhde
    @ChelseyGuhde 10 หลายเดือนก่อน

    feel better soon. i wish i could take away your illness and help you feel better. take it easy rest stay hydrated

  • @ChelseyGuhde
    @ChelseyGuhde 10 หลายเดือนก่อน

    i hope you feel better soon

  • @ChelseyGuhde
    @ChelseyGuhde 10 หลายเดือนก่อน

    hopefully you feel better soon ER trips really suck listen to your body try to drink as much water as you can dont force yourself to overdrink just do the best you can. just try to relax keep it off your mind youll get through it i promise

  • @ChelseyGuhde
    @ChelseyGuhde 10 หลายเดือนก่อน

    take cranberry pills or eat dried cranberries that helps

  • @ChelseyGuhde
    @ChelseyGuhde 10 หลายเดือนก่อน

    drink cranberry juice/water stay hydrated ive had utis a few times it will flush it out

  • @ChelseyGuhde
    @ChelseyGuhde 10 หลายเดือนก่อน

    hope you feel better soon Cheryl god bless you go to the ER if you need to

  • @KarenHakey
    @KarenHakey 11 หลายเดือนก่อน

    Thank you! This helped a lot. Just did my first injection.

  • @PrairieB
    @PrairieB ปีที่แล้ว

    Almost to my 4th week injection for Benlysta. I don’t don’t don’t like the autoinjector. I can give an sub q injection relatively painlessly if I’m in control of it. Hoping they’ll switch me to the syringe. But it works for the most part at getting my B cells to chill out and not attack healthy tissue. And it doesn’t make me violently sick like imuran did. So 🎉

  • @n.victoria1
    @n.victoria1 ปีที่แล้ว

    Thank you so much for this video I have lupus & was recently getting infusions & now I’m doing them at home thank you for the visual help & God bless you🩷

    • @smilesbehindlupus4978
      @smilesbehindlupus4978 ปีที่แล้ว

      So glad it was helpful…youtube was were i learned so much about lupus

  • @KMBianca
    @KMBianca ปีที่แล้ว

    Starting next week. Thanks for the video! I’ve tried everything for Lupus. I really hope this helps. Stay strong 🦋

  • @kimberlyevans3909
    @kimberlyevans3909 ปีที่แล้ว

    Thank you for the demarcations of the shot I will be starting mine soon when the pharmacy call's me thanks again This is Kimberly Evans from Reno NV 😊

  • @mannycast2230
    @mannycast2230 ปีที่แล้ว

    Thank you, I will start my injections today. I was told that instructions are self explanatory also to watch videos. Nervous but your video. Helped.

  • @shegrowsingreenville
    @shegrowsingreenville ปีที่แล้ว

    Just injected for the first time. Thank you for this video

  • @Marco402
    @Marco402 ปีที่แล้ว

    Thank you 🙏🏻

  • @Amularessa
    @Amularessa ปีที่แล้ว

    Is it a usual thing to get a port if you have lupus? I'm asking because I'm a hard stick and wondering if this is an option.

    • @smilesbehindlupus4978
      @smilesbehindlupus4978 ปีที่แล้ว

      Hey thanks for watching! Many lupus patients end up with ports my veins went bad after kidney failure and I now struggle with consuming enough fluids I hope that helps

    • @Amularessa
      @Amularessa ปีที่แล้ว

      @@smilesbehindlupus4978 makes perfect sense. I have the same issue with my veins.

  • @JDUzzle-ck1wj
    @JDUzzle-ck1wj ปีที่แล้ว

    Very helpful. Thank you so very much. Bless you co-warrior 💜 QUEEN 👑🦋🙏🏾

  • @remnantfewministriesminist495
    @remnantfewministriesminist495 ปีที่แล้ว

    Thank you so much for your thorough review. Pray you continue to find relief. 🥰

  • @bluelava4282
    @bluelava4282 ปีที่แล้ว

    💐 🌸 To your Family

  • @bluelava4282
    @bluelava4282 ปีที่แล้ว

    Foxy Voice 🎶

  • @bluelava4282
    @bluelava4282 ปีที่แล้ว

    What?

  • @phyllislowe3942
    @phyllislowe3942 ปีที่แล้ว

    Great inspiration.

  • @empresskrystal
    @empresskrystal ปีที่แล้ว

    Thank you so much!!!! I was so anxious and doing it along with you helped so much!!!

  • @Tippy150
    @Tippy150 ปีที่แล้ว

    God bless you ❣️ You really helped me through my 1st 💉

  • @dianam.vergel3084
    @dianam.vergel3084 ปีที่แล้ว

    I am getting my infussions pretty soon I got approved for 1 year of treatment and I just can with the fatigue and coldness is killing me. What where your symptoms before treatment and how was the progress 🙏🏻🙏🏻🙏🏻

  • @nicolehaynes8533
    @nicolehaynes8533 ปีที่แล้ว

    I just received mine, thanks in advance

  • @dianam.vergel3084
    @dianam.vergel3084 ปีที่แล้ว

    Hello, how are u doing with benlysta? You are a warrior!!!! 💜💜💜💜

  • @Renee850
    @Renee850 2 ปีที่แล้ว

    I’m starting my first injection today. I was on the infusion for a year.

    • @smilesbehindlupus4978
      @smilesbehindlupus4978 2 ปีที่แล้ว

      I Hope it went well …I’ve been on the infusion twice and twice with injections. thanks for watching

  • @nancycarlos5695
    @nancycarlos5695 2 ปีที่แล้ว

    Once again i want to appreciate Dr.Auchi for helping me with his herbal medicine to cure my Lupus disease completely, i really suffer from this disease for the past 5year, Right now I'm Lupus negative after using the herbal medicine Dr.Auchi sent to me. I gave all thanks to God for leading me to Dr.Auchi who was able to cure me completely from Lupus disease, Dr.Auchi you are the best traditional herbal doctor in the world God bless you sir Dr.Auchi on TH-cam channel… th-cam.com/channels/6tA16t1IlKx1bY93lc2rcg.html ❤️❤️

  • @ritalewis2790
    @ritalewis2790 2 ปีที่แล้ว

    Just hold on things will get better stay encouraged I’m in so much pain right now but I try not to stay focused on the pain just when I encouraged you my pain is lifting a little

  • @FlyafterFiftywithDrDee
    @FlyafterFiftywithDrDee 2 ปีที่แล้ว

    I understand your frustration. Praying for you sis. 🙏🏾

    • @lisaeaster4665
      @lisaeaster4665 ปีที่แล้ว

      Thanks to Dr.Auchi on TH-cam channel for helping me with his herb 🌿 to cure my Sle Lupus disease 🦠 ,now I am completely cured from Sle Lupus disease. Doctor you are the best I have ever met, he is really great herbalist doctor, he has cure for another disease and infection with virus in the body, His herbal medication is 100% guaranteed without side effects in the body, visit his TH-cam channel #drauchi 💜

  • @alfsiedner151
    @alfsiedner151 2 ปีที่แล้ว

    𝙥𝙧𝙤𝙢𝙤𝙨𝙢

  • @oliviatilley203
    @oliviatilley203 2 ปีที่แล้ว

    Thanks for sharing! I’m about to start benlysta injections and I’m pretty nervous, but this video helped ease my nerves. 💜

  • @Indian_singing_3752
    @Indian_singing_3752 2 ปีที่แล้ว

    Mam can I talk to u because I have same situation

  • @ritalewis2790
    @ritalewis2790 2 ปีที่แล้ว

    I’m praying for you hope everything goes well with you keep me updated please

  • @AJHR77
    @AJHR77 2 ปีที่แล้ว

    Hi there,I've been curious how your health is. Sounds like we are all going through it. I have the same issues with the ER and learned new nurses start in ER makes sense. I got my port 11 months ago best decision I ever made. Nurse messed up the first one and I had to go back in that incision for a second one. I'm praying for you,we chronic illness warriors can't catch a break. I have problems holding my arms straight up like just heavy-do you experience that? 🙏

  • @ritalewis2790
    @ritalewis2790 2 ปีที่แล้ว

    Hello this Rita just wanted to give you a update on my first Round of infusion was Oct4th it wasn’t so bad but afterwards I was really tired and drain I go back Nov 1st I still hurt but I know it has to take it’s course but so far so good ❤❤❤

    • @smilesbehindlupus4978
      @smilesbehindlupus4978 2 ปีที่แล้ว

      Hey Rita! I am glad your first infusion went well. I pray it starts to give you relief soon...it just takes a minute

    • @ritalewis2790
      @ritalewis2790 2 ปีที่แล้ว

      @@smilesbehindlupus4978 thanks for reaching back out to me I really wish they could find a Cure for Lupus