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I have head pressure dizziness memory is fine not sure what it is

Sorry Wendy to read your new FTD dementia. You sound great and look great too, I’m sorry you have FTD or ‘Dorothy’. I’ve recently been diagnosed with FTD too, any advice you could share would be good, just a couple of sentences. I think my daughter will need to test for any genes of FTD. You are obviously a strong person, you’re great at communication at present too. Wishing you well and hoping I get through this as best I can, like yourself. ❤❤❤

Im surprised you were disappointed with palliative care. I had only good experiences with them and hospice. I'm a caregiver who specializes inALS, Alzheimer's and Parkinson's. But I know it's different from country to country. I live in US.

I do 1 on 1 with a FTD resident at a nursing home, I to believe she can understand I ask her things and she answers yes, no. I mention how hard she had worked at her job, and she sighs, and makes eyes stating yes. I mention how well she did with her daughter, and how her daughter is a happy successful young lady, well my resident had tears running down her cheeks.

My mom was diagnosed today.

Another first class educational video from the professional team at Frontier. I have the privilege of being one the patients with a movement disorder (CBS) that gets first class care from the professionals at Frontier. Thanks

You took such great care of him, it's heartwarming. Progressive supranuclear palsy is what Linda Ronstadt has been diagnosed with. ❤

Beautiful ♥️

My mom had vascular dementia. We never knew when she had moments of clarity but she stopped talking the last 2 years before she passed.

What a loving and caring husband you are to your wife. May God keep you strong.

no sound!!!

Sit ftd

God Bless you..Take care ..

Penny is a champion. She has really helps me to continue to live well with PPA. Her caring attitude to people living with Dementia is another reason why the Frontier Research Group is such a strong team.

Keep up the great work you do!

Your presentation is not organized and poorly recorded, why even bother to record or post it, not helpful for such an important subject

I am so sorry for your loss and so grateful for you insight and love towards another human being. I do hope this video finds you well and rested and those lovely memories are at the forefront of your mind. I would love to speak with you if you ever have time. Greetings from the UK

Just found this video. My mother in law has dementia but she is very resistant to any help. She lives with us and my world of peace is upside down ..If I don’t prep her food, all she will eat is potatoes,bread and cheese.I tried to reorient her that the person in the den is her son..

Thanks for sharing. I liked the idea of naming the dementia character but that works when the patient is still aware . I wish I can do that with my mother in law. Any update 2024.This disease of the mind is very painful to handle by their love ones. The person you loved is no longer there yet still alive.

RIP George!

My mum has just been diagnosed with this...

6/16/2024 what about sexual deviance

My husband has the same, . He has difficulty swallowing so I purée all his food. We do a lot of porch sitting now.

My wife was diagnosed with this disease in February 2023 although looking back on it she probably had it 6 months before that date. I have been in denial about it since it that only lasts so long. I don’t have anyone to help me. We have no kids. I have no idea how to handle my wife with this disease. I don’t want to put her in a nursing home when it gets worse. I want to take care of her here at home. I’m devastated. We have been married for 34 years. It is a horrible disease and aggressive and progressive. This is going to take the love of my life away from me.

Thank you…

Eyyi Dorothy that's interesting

Beautiful story of strength with grace. Thank you so much for sharing. God bless you all. ❤️🙏🏻

Excellent!!! Thank you so much.

My Mum has FTD. It’s a cruel disease. Wished on no one. Godspeed.🙏🏼🙏🏼

What a great lecture, so clear and helpful. Thank you. Would love to gear more from this very knowledgeable presenter.

My husband suffered a stroke 2 years ago. He has aphasia and very little speach. Extremely frustrating for him. He understands everything said to him but is not always able to respond as he wants. Bless you both . It is a very difficult journey.

SORRY, BUT IT OCCASUONALLY HAPPENS YOUNGER THAN 50. Sadly.

You are an amazing lady, Gina ❤ thank you for sharing your story.

I'm trying to explanations about my aphasia hopefully to help other patients. th-cam.com/video/5MTp1_jLhZo/w-d-xo.html

Dementia is a horrible disease! Of all the ways we journey to the end of life this one is the most devastating. Admiration for all who suffer it or are caregivers to those who have it.

Hi, where can I find the RedCap version of the OBS?

Please take supplements genius mushrooms otc and MCT oil sublingual quality of life

What is the Genetic test for the disease?

I have the same disease. Strength and hope to you and yours

God bless your progress 🙏.

This was a beautiful video🌹🌹🌹

I wisher a prayer for your wife 🙏 including all the people who has Aphasia just like me. May the good Lord bless and guide us. Amen 🙏

My name is Gina, and i lost my father recently from FTD, he was hospitalized for the last two months, in and out, due to breathing complications and then hospital infections and so on. I cared for him the best way i could, since i was the only one that i could, my mother has mobility issues and my sister lives far away. I am still trying to come to terms with his loss. My whole life was caring for him, and now my world feels so empty. I also keep thinking if i have done everything right or if i could have done something better, guilt is hitting me hard sometimes...I also told him that i loved him all the time and i also told him that i know he loves me too, like you did. It is a very cruel disease. My father was 73.

Setting alarms & reminders found good 🤣 but it just won’t happen if they can’t

What a wonderful man. God bless Jill.

Every day spent with a person you love is meaningful, remain strong, you are such a caring person!

Amazing couple, you're an amazing lady Gina x

God bless you both! I say I'm "living" with Cognitive Impairment. That doesn’t define me but neither does it mean I'm in denial. My oldest daughter "lives" with dyslexia but, in no way, does it define her. She teaches people to sing. If she said "I'm dyslexic!" she might not have achieved very much because she would be defined by a label.

Thank you for sharing your story. I understand your frustration. I live in the UK and have been living with Cognitive Impairment since 2014. I see subtle changes in my behaviour, partly because I worked as a House Manager for the elderly, the most recent is a decline in the ability to communicate. I have withdrawn from group situations partly because I can feel overwhelmed but also because I find trying to "explain" something v difficult now. And what are conversations if not "explaining", processing information? There is so much we still need to understand. One thing with Aphasia is that the "person" fully understands their behaviour, unlike many other dementia.

Look up using a PECS BOARD OR SYSTEM. And assistive speech technology