วีดีโอ

हम आपकी भावनाओं को समझ सकते हैं क्योंकि हम सभी जीवन के एक ही दौर से गुजर रहे हैं। यह विकलांगता श्रेणी में नहीं आ सकता क्योंकि हर कोई एनएफ से अत्यधिक प्रभावित नहीं होता है। कृपया साहसी बनें और निराश न हों। भगवान आपका भला करे

@ariseforneurofibromatosis दीदी जी बहुत ताने खाये इस बजह से कही काम भी नही मिल रहा बहुत टेन्शन आया हैं क्या करे कसे होगा अपना जीवन आगे यही सोच कर नीद भी नहीं आती🥹

NF ka control nahi hai, aap neurologist doc ko dikhaye shyad woh kuch help kar sake

Kyon ki iski awareness nahi hai , aise kahi tarh k genetic disorder hai, humko sab ki jankari nahi rhti

U can consult with homeopathy doc for more information

Nf k tumor generally inside of body hi hote hai, us tumor k side effects outer body me dikhai dete hai. Aur NF k tumor ki surgery kabhi mat karva na

Mere daddy ko bhi hai

Please do not call this a disease, it's a genetic condition.

Many of us who have this condition are often seen being alone as others don't accept us due to our looks.

Am also brothers

It's a genetic disorder not a disease

पोलियो एक वायरस है और NF एक genetic disorder

डाग के साथ हमने जिना सिखा लेकीन tumor के साथ 😢😢😢

What information you were looking for, which you did not find ?

Koi bhi medicine nahi hai NF k liye

Iska koi treatment nahi hai

Aap homeopathy try kar sakte ho, kitna growth kum hoga woh nai bol sakte

Koi proper medical nahi hai

Abhi tak adults k liye medicine nahi bani hai

Iska koi illaj nahi hai

Karad mai hai hospital krushna charitable nam se me bhi treatment leta hu

@@uttkarsh-b superficially , uper uper se iska illaj ho sakta hai, par internally nahi. Isko jad se nhi nikal sakte.

Bhai mujhe bhi hai jidagi jina bahut muskil hai yaar khud ke sath family walo ko bhi log nam rakhate hai Jiddgi khatam Kara ne ka man hota hai magar meri family samane aati hai 😢

@Tisan_gaming_FF kasi ki batun ko dayn na do chro jo bolta h bolny do

@@MuhammadImran-r1h1q ha Bhai

@@Tysan_gaming_FF ap kdr sy hn

@@MuhammadImran-r1h1q india se hu aur aap

Research chal raha hai

Consult a dermatologist regarding this

Agar tum khud ko dusro ke saath compare karonge, taklif to hogi... behtar yehi hoga, tum jaise ho waise khud ko accept karna. Har sikke ke do pehlu hote hai, waise hi sab log sundar ho yeh zarruri nahi hai.

Hiii

Hiii jo ap ko h bahi mujhe bhi h m yak ladki hu mera name h shalu😢😢😢

@@ArmanKhan-ru5qwmujhe v hay

What help you need?

@@ariseforneurofibromatosis medicine

as of now there are no medicine available for NF

@@ariseforneurofibromatosis 😢😢

why you want to end your life?? Suicide is not a solution to this.... Everyone has some or the other problems or health issues. Than too they still live their life n face all the challenges they come across. Do meditation,, consult a psychologist, take help, find a way where you can divert your mind.

@@ariseforneurofibromatosis not only this I also had neurosurgery and many other problem.i wait for few month and after that attempt suicide I can't be a burden on my parents

I don't know how critical your NF is nor i do know how is atmosphereat home.... But, have you ever thought what would your parents go through after you attem such act?

I have gone through multiple surgeries... and still have few more to go, as you keep getting surgeries done, NF will regrow somewhere else. Unless not required don't go for surgeries try to avoid it. If possible try to work from home, if possible try to keep yourself busy if your health condition permits

@@ariseforneurofibromatosis feeling so depressed

Suicide kisi bhi baat ka hael nahi hai....

Suicide koi hael nahi hai NF ka.... aise kitn saare log hai jinhe NF hai, aur woh kafi hasi khushi reh rahe hai. Kisi ko jyada kisi ko kum taklif hoti hai NF se. NF ko accept kar lo aur normal life jeena seekh lo. Khuda ka shukar karo aapke haat pair salamat hai, aap kaam kar sakte hai, apna guzara kar sakte ho....

will try to add one soon..

Yeh muskil hai, aisa koi illaj nai hai jahan hum isko apne bacchon ko hone se rok sake. Aap pregnancy se pehle kisi gynecologist se mile aur unse baat kare

Nahi

Homephathy me madam

Homeopathy, fibroma k growth ko slow kar deta hai. Woh bhi depend karta hai person to person.

Bohot tention aata hai.kya gunha kr Diya Jo bhagvan ne shiksha di.dusre logoko dekh kr bohot bura lagta hai ki hum aise kyu.😢

@JAY23546 aisa kyon soch te ho, duniya me aisi kafi sari bimari hai jo NF se bhi jyada taklif dayak hai, phir bhi log jee rahe hai. NF ko apne se jeena aasan ho jayega, bure khayal nhi aayega

Yes, can understand your pain. To leave happily is accept yourself and try to be positive. Involve yourself into work or any hobby that makes you happy. That's the best way to meditate n keep yourself away from negative thoughts

Any medicine is available or not