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I also have tetrology of fallot. I’m 25 and had my pulmonary valve replaced at 14 years old via open heart surgery. I am getting this operation done in less than a month. How did yours go? Any advice?

jamanetwork.com/journals/jama/article-abstract/2796306 This observational 5-year follow-up study included 477 of 536 (89%) surviving patients from the MOMENTUM 3 randomized trial at 2 years and (54.0%) at 5 years. Every patient's situation is different and we are committed to making an informed and shared decision with our patients.

not true i had my lvad for 9 months and had it explanted without a transplant

Do you have one?

TRILUMINATE Pivotal Trial

@@leungchu8958 is the trial still going? Or do you know how someone might enter it? Also, how soon were you back to normal and able to work or do physical things?

@@adamwhitfield5571 Open the web page and click on the location. It will give you all the trial sites (81?) and the criterial for getting in the trial. There should be a site near where you live. I think the trial will close very soon. I stayed one night in the hospital (require by the trial protocol). The day I got home, I feel so much energy within me and wanted to start gardening but was told to take it easy and give time for the entry site punctured vein wound to heal. Lost a few pounds of water from my feet, hands and stomach. Good Luck

Wow thank you for saying that. I'm 38 with tricuspid valve damage and regurgitation. And am starting to feel very fatigued. Working out is getting sooo hard! And starting to feel a pressure. So I'm looking at the options out there. Thank you!

Hello, you can talk to one of our doctors about a second opinion for your situation here: hipaa.jotform.com/uwmed/referrals

I'm a 37yo male with tricuspid valve regurgitation from a damaged valve back in my mid 20s. I work out and try to stay healthy. However I'm now feeling very fatigued, swollen belly so on. I'm watching this and others to see what my options are. Back then the only answer they gave me was heart surgery, I never even heard of a catheter. So wow. Yes VERY interested.

If you would like to discuss your options or receive a second opinion with a cardiologist at the University of Washington Heart Institute, you can ask your current cardiologist/provider to send a referral or you can complete this secure form. hipaa.jotform.com/uwheart/referrals and select "self referral" and "heart valve disease + structural heart" or call 206.598.4300 to schedule an appointment (tele-health appts. available).

I apologize the delay. You can discuss your situation and potential use of the mitraclip or this trial for your tricuspid regurgitation with Dr. Jamie McCabe. Please submit a self-referral here: hipaa.jotform.com/uwmed/referrals (Select Heart Valve Disease / Structural Heart as the subspecialty requested).

Undergoing it in Stuttgart, Germany in two days. I'm super anxious but hearing of people's quick recovery gives me hope.

@@maximilianschmidt1783 Best of luck to you! I had very very little pain and only took pain meds for less than a week. The first two days after surgery I was rather out of it and slept a lot. After that I was already working on slowly walking around the hospital. I did seem to have some periods where I was a little hot. It might have been due to the anesthesia. A small fan might come in handy for you because it really helped me.

@@maximilianschmidt1783 Maximillian, how are you doing after your surgery?