Sammie Read
Sammie Read
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Day 96 - Lots of publicity for The CF Trust for CF week, and publicity for Lukes book
My Cf journey through lockdown and isolating. Sammie’s isolation staycation
www.crowdfunder.co.uk/coughing-it-all-up/backers#start
Please donate anything you can every penny counts. #cysticfibrosis #coughingitallup #trikafta
มุมมอง: 122

วีดีโอ

Day 86 - Paper interviews and Radio chats
มุมมอง 1494 ปีที่แล้ว
My cf journey through isolation and Sammies staycation vacation
Day 78 - New CF book in the making can’t wait!!!
มุมมอง 1014 ปีที่แล้ว
My cf isolation staycation link to the crowdfund page is on my Facebook and instagram or message for information #cysticfibrosis #coughingitallup #cftrust
Day 74 - How can it be June?!
มุมมอง 1614 ปีที่แล้ว
My cf isolation staycation vacation #cysticfibrosis #dachaundpuppy
Day 68 - Happy 40th Bec
มุมมอง 1044 ปีที่แล้ว
Isolation staycation with cystic fibrosis #trikafta #cysticfibrosis #royalpapworth #dachsund #labrador
Day 64 - Trikafta explained
มุมมอง 3424 ปีที่แล้ว
My cf journey through lockdown staycation vacation and starting Trikafta #cysticfibrosis #trikaftastarted #wonderdrug
Day 62 - First dose of Trikafta
มุมมอง 1654 ปีที่แล้ว
My cf isolation staycation #cysticfibrosis #trikafta #organdonation
Day 60 - A few Sammie’isms but lots of sweet treats
มุมมอง 934 ปีที่แล้ว
Cf isolation staycation #cysticfibrosis #sammieisms #covid19 #positivelifestyle
Day 57 - Brads back from Salisbury
มุมมอง 864 ปีที่แล้ว
My cf staycation vacation lockdown in isolstation #cysticfibrosis #covid-19 #dachaundpuppy
Day 55 - Amazing news regarding My Cf
มุมมอง 2344 ปีที่แล้ว
My CF staycation vacation with Covid-19 #cysticfibrosis #trikafta
Day 53 - Papworth port flush day
มุมมอง 1014 ปีที่แล้ว
Sammie’s cf staycation vacation covid-19 lockdown
Day 50 - VE Day
มุมมอง 924 ปีที่แล้ว
Sammie’s CF Staycation Vacation
Day 46 - So excited to reveal our surprise
มุมมอง 2684 ปีที่แล้ว
Sammie’s cf isolation staycation vacation. A blonde insight into my crazy life
Day 43 - 6 weeks isolation done 👍🏻
มุมมอง 694 ปีที่แล้ว
Sammie’s cf staycation vacation
Day 41 - Its brrrrr freezing
มุมมอง 804 ปีที่แล้ว
Day 41 - Its brrrrr freezing
Day 39 - I always knew I was a crazy moo now my pjs prove it
มุมมอง 1224 ปีที่แล้ว
Day 39 - I always knew I was a crazy moo now my pjs prove it
Day 36 - Brads completed on his pad and moved in.
มุมมอง 1634 ปีที่แล้ว
Day 36 - Brads completed on his pad and moved in.
Day 34 More Jobs and 21,000 + steps
มุมมอง 954 ปีที่แล้ว
Day 34 More Jobs and 21,000 steps
Day 32! One month down
มุมมอง 1724 ปีที่แล้ว
Day 32! One month down
Day 27 - A few ism’s in 1/2 hour
มุมมอง 1014 ปีที่แล้ว
Day 27 - A few ism’s in 1/2 hour
Day 25 - Did someone say eggs?
มุมมอง 924 ปีที่แล้ว
Day 25 - Did someone say eggs?
Day 22 - I finally got a hug after 3 weeks
มุมมอง 2004 ปีที่แล้ว
Day 22 - I finally got a hug after 3 weeks
Day 18 - Sunshine and sunburn in April
มุมมอง 1304 ปีที่แล้ว
Day 18 - Sunshine and sunburn in April
Day 15 - Another hospital appointment
มุมมอง 1584 ปีที่แล้ว
Day 15 - Another hospital appointment
Day 13 - Anyone know what’s day of the week it is
มุมมอง 1724 ปีที่แล้ว
Day 13 - Anyone know what’s day of the week it is
Day 11 - Sammie’s staycation I have escaped the village
มุมมอง 1554 ปีที่แล้ว
Day 11 - Sammie’s staycation I have escaped the village
Day 8 - Ewan’s big bear hugs within 14 days
มุมมอง 1994 ปีที่แล้ว
Day 8 - Ewan’s big bear hugs within 14 days
So it’s all got real now. Day 6
มุมมอง 2294 ปีที่แล้ว
So it’s all got real now. Day 6

ความคิดเห็น

  • @peterleid5060
    @peterleid5060 3 ปีที่แล้ว

    Congratulations!! What an encouraging story that Trikafta brings Sammie. A little too late arriving for me, but I guess 13 years ago when I received a bi-lateral lung transplant I received the best available option. Diet wise I found that it's best to cut out almost all carbohydrate and up the fat and protein so my ratio is +/- 75-80% fats, 15-20% protein and up to a maximum of 5% carbohydrate. I never count calories because they are misleading... only calories from carbohydrates can be stored as "extra weight"... fat in the diet cannot be stored as fat and only a small amount of protein will be metabolised to make glucose and perhaps make it to fat storage (unlikely). The anti-rejection medication I must take makes me a diabetic, but my HbA1c is 53... normal on this Hi Fat, extremely low carb lifestyle. I'm a lean 12 Stone. The clinicians at Papworth Hospital are very happy with my overall health and I'm about to enjoy my 64th birthday!! Sounds to me as if you'll get to a good old age too Sammie, with this new group of breakthrough genetic modifier medications. My very best wishes.

  • @Emma-AnneHarmer-Collin70
    @Emma-AnneHarmer-Collin70 4 ปีที่แล้ว

    My mum always believed in hugging trees xx

  • @Emma-AnneHarmer-Collin70
    @Emma-AnneHarmer-Collin70 4 ปีที่แล้ว

    Well done you hun xx

  • @ThePollydoodles
    @ThePollydoodles 4 ปีที่แล้ว

    Hey glad the meds already started working (i have cf too) . did you get the drug on compassionate use? guessing your from uk also? x

    • @sammieread4402
      @sammieread4402 4 ปีที่แล้ว

      ThePollydoodles Hi, yes on compassionate grounds it’s amazing. I’m from the UK how’s your cf? X

    • @ThePollydoodles
      @ThePollydoodles 4 ปีที่แล้ว

      @@sammieread4402 aw im glad !!..its good that it's available for those who really need it :) My Cf is not too bad currently, last blow was 68, but was normally mid 70's-80, but struggled alot after having my baby (now nearly 2 )and my pfts droppped into 50's but got them back up to a more comfortable level at 68.. however i have quite tricky bugs so is hard to improve now as IVs to treat are too harsh on liver etc!! Can't wait fot trikafta to be out properly! How was your lung function before and how are you now? if you've been able to do blows with everything going on!? xx

    • @sammieread4402
      @sammieread4402 4 ปีที่แล้ว

      ThePollydoodles started just below 40 now mid high 50’s within 4 weeks it really is amazing. Fingers crossed it’s available to everyone soon who needs it X stay safe X

  • @Familylawgroup
    @Familylawgroup 4 ปีที่แล้ว

    I was trying to learn about Trifakta and came across this video and learned about the law change in England about organ donation. That is SOOOO awesome. I live in St. Louis, Missouri in the United States. In our country, organ donation laws differ with each state. We can consent when we renew our state ID/ driver's licenses. Is England the first country to have a default answer to BE a donor unless you say NO to being one? In England, can family members override the default consent and can minors consent to being a donor despite parental objection?

  • @samanthamclean245
    @samanthamclean245 4 ปีที่แล้ว

    OMG ❤️❤️❤️❤️

  • @samanthamclean245
    @samanthamclean245 4 ปีที่แล้ว

    🤣🤣

  • @theherstorychannel
    @theherstorychannel 4 ปีที่แล้ว

    Oh Ozzy 🥰 I have to walk Scruffy separate from the other two now cuz he can't keep up anymore. Still loves his walks and all the dogs he gets to meet though! ❤

  • @Emma-AnneHarmer-Collin70
    @Emma-AnneHarmer-Collin70 4 ปีที่แล้ว

    Another great vlog xx

  • @Emma-AnneHarmer-Collin70
    @Emma-AnneHarmer-Collin70 4 ปีที่แล้ว

    Was Brill hun xx

  • @theherstorychannel
    @theherstorychannel 4 ปีที่แล้ว

    Glad you're feeling better lovely! If you ever want a natter just shout me over the fence 🤣💖

  • @samanthamclean245
    @samanthamclean245 4 ปีที่แล้ว

    😘

  • @lorrainekinder4171
    @lorrainekinder4171 4 ปีที่แล้ว

    take care sammie xxx

  • @samanthamclean245
    @samanthamclean245 4 ปีที่แล้ว

    🥰

  • @samanthamclean245
    @samanthamclean245 4 ปีที่แล้ว

    💐

  • @kellyperks5596
    @kellyperks5596 4 ปีที่แล้ว

    Hi Sammie! Well done on the vlog. Watched it with my daughter to give her an insight into someone else's life and how you are isolating. Looking forward to the next one xxx

  • @gaynorriley1628
    @gaynorriley1628 4 ปีที่แล้ว

    Love you Sammie, great first vlog! Can’t wait for the next one. Take care 😘😘😘❤️

  • @samanthamclean245
    @samanthamclean245 4 ปีที่แล้ว

    ❤️