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Hi Ari

"May the force be with you"🙌💖😘

great

I too had thyroid cancer, at age 25..."the good kind"...and ha e not been the same since. Fast forward 20 years and now I have abnormal tilt table results and my lab work shows elevated norepinephrine and others. My primary care doc thinks EDS is likely (but not diagnosed) as well as Sjogrens (but not diagnosed). No focus where I am in WA (hard to believe they have all gone to cash only) so I am being sent to California. I feel so alone in all of this. I am also being sent for evaluation of a possible CSF Leak...the hits just keep coming.

I can smell the disappointment through my screen. Gtfo and find a real job.

Deus me livre 😮😮

It happens because healthcare is broken. No just in America but everywhere.

Hi, just stumbled onto your channel. I’m glad I did. I’m sorry you’re struggling. Advocating for yourself should not be so frustrating but I know that it is. 😢

I know I'm not anyone from the medical system, but as someone who can relate to your experience in some ways, I just wanted to say that I see you and hear you. Thank you for saying the things that need to be said, and may you encounter the people that you need to see you and hear you most in a timely manner. Take care 🫂

I feel guilty I haven’t came to your streams for this exact reason, but I’ve been pretty sick

Thank Allah i dont have thee extreme condition with blood pressure and heart rate, mine normally go up when standing up or when i climb a stair, usually it gets normal within 2 to 4 minutes, but i have migranes, indigestion, chest pain for over an year now, and 2 months back i was having trouble breathing when walking, also had fatigue and loss of apatite. also 2 weeks ago was having trouble swallowing saliva, saw an ent doctor, he did a barium swallow x ray and said there is no issue. I have symptoms of heart faliure, throat, and lungs cancer. Last year saw a cardiologist and he did blood and treadmill test and everything was fine, he told me clearly he has no idea why its happening. He gave me Ciplar La 40mg. This medicine works, it controls tachycardia by 60 to 70 percent.

I have this too and am untreated. It usually is brought on by viral illness. Then will decrease in severity after a few months. I just got COVID and am dealing with severe symptoms. I have constant panic attacks, SOB, can’t sleep (sleep apnea now, I think), blurry/grainy vision, etc.

😍 beautiful

Compression calf sleeves and saline infusions can help. The Alpha-2 agonists (Clonidine or Guanfacine) specifically target hyperadrenergic POTS by signaling the body to not dump so much norepinephrine and adrenaline into circulation. They've been wonderful for me. I have hypermobile Ehlers Danlos syndrome. I also have digestive motility issues, which have been eliminated by Mestinon (Pyridostigmine) - plus this medication can help a bit at mitigating POTS symptoms.

Nice video really helpt alot!

As an introvert I hate my phone going off, it's permanently on silent, people hate me for not getting back to them quick enough, which bothers me but i also find things like that draining, glad to hear I'm not the only one!

🤗

My bp as of yet only spikes sometimes but spikes drastically. It can last minutes hours or days, but in between bp low 80s/60s so idl what can help me. I think a bp medicaton will make me bottom out. Its hard to live like this i can not evem go 5 min away from my house as a passenger in a car without spiking hypertensive 😢

Dr Dianna Driscoll has a great video she made years ago on this exact diagnosis. Highly recommend for anyone with this condition.

You’ve met someone that has it, I have it

Because no one cares. People live their lives as long as they’re not affected, chronically ill people are ok as long as we are out of sight out of mind. On the flip side people will ask how you are just as a checkmark. Again I’m well aware you can’t expect others to be like I am and I can’t expect them to care. But it sucks nonetheless.

Hi❤

Were these symptoms all the time or just occasionally?

Thank you for your videos. It is so hard to find information on HyperPOTS (and even harder to find a good doctor). I’ve been struggling for years.

Thanks for sharing and I’m so sorry for what you’re going through. I am going through some stuff at the moment and can relate to a lot of what you talked about ❤

I get that. Dec is difficult for me as well. Lost my folks in the 90's, estranged from my sister and my friends are in BC. It's just me.

i don't do anything for holidays because of celiac so being online is a new thing. i hope you like it and that it helps you enjoy this time of year.

This is always very interesting to listen to. Thank you for sharing your journey. Wishing you the very best for the future. <3

I thought Healthcare might be higher on the list

Bloody lunatics

Get a life !

Are you mentally ill?

❤

Congratulations...epic🤘😈😈😈🖤

Hope it went well!!!

Oh I remembered exactly how mine began too 😅

❤❤ you’re awesome

Wishing you the very best!!!

Sorry missed this, covid got the better of me ❤❤❤

Very good 😊

lookin forward to seein you soon. lots of love & support always

We have had a conversation or two...you can always reach out and chat! Be curious to hear an update on your project. Also, what you're going through is brutal. I consider myself lucky and I admire your strength! It's very commendable! #f*ukcancer

i help with cat pics =^.^=

thank you for talking about your experiences, fiona. big hugs.

I've been really feeling the appointment burnout this year-not only with my own appointments, but with others. All of us have some of the same chronic conditions that you do. I'm now trying very hard to strategize in hopes to prevent or at least lessen the effects. Hoping for all the best with your new doctor if that hasn't come to pass yet, and hope you get to do some makeup or video games before and after to hopefully cope with any possible re-traumatizing. Thanks for sharing, and take care 🫂

I also have fibromyalgia and I do exactly the same with my words. Also, I’m being diagnosed at the moment and you sound like me 🤗

🤗

Awesome as always

Sorry had to drop early