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MelanomaReAlli
เข้าร่วมเมื่อ 14 ธ.ค. 2011
The Melanoma Research Alliance (MRA) channel provides information on news in the melanoma and cancer research spaces, updates in treatments and therapies in development, and a unique view of the MRA organization. To find out more about MRA and our melanoma research programs, visit our website at www.curemelanoma.org.
Researcher Connection: CAR-T Cell Therapy for Advanced Melanoma
Watch the recording of MRA's Meet Up Series online discussion from Wednesday, December 18, "Researcher Connection: CAR-T Cell Therapy for Advanced Melanoma".
An exciting area of research in melanoma is CAR-T cellular therapy. Cellular Therapy, also called Cell-based therapy, is a type of immunotherapy cancer treatment that involves the use of living cells to treat or prevent diseases. It is a rapidly evolving field in medicine that holds great promise for various conditions, including the treatment of melanoma and other cancers.
This session featured a discussion with Anusha Kalbasi, MD, Associate Professor of Radiation Oncology at Stanford University. Dr. Kalbasi is leading a phase I clinical trial (NCT04119024) studying CAR-T cell therapy for advanced melanoma.
An exciting area of research in melanoma is CAR-T cellular therapy. Cellular Therapy, also called Cell-based therapy, is a type of immunotherapy cancer treatment that involves the use of living cells to treat or prevent diseases. It is a rapidly evolving field in medicine that holds great promise for various conditions, including the treatment of melanoma and other cancers.
This session featured a discussion with Anusha Kalbasi, MD, Associate Professor of Radiation Oncology at Stanford University. Dr. Kalbasi is leading a phase I clinical trial (NCT04119024) studying CAR-T cell therapy for advanced melanoma.
มุมมอง: 33
วีดีโอ
Acral Melanoma Research Update with Dr. Boris Bastian
มุมมอง 2912 ชั่วโมงที่ผ่านมา
MRA's CEO Dr. Marc Hurlbert sits down with Dr. Boris Bastian of the University of California, San Francisco, to discuss the rare melanoma subtypes and recent acral melanoma research updates, led by Dr. Bastian himself.
MRA Meet Up Series: Be Your Biggest Advocate - Navigating a Melanoma Diagnosis
มุมมอง 73หลายเดือนก่อน
MRA's online discussion series, MRA Meet-Ups, regularly connects with the melanoma community to discuss important topics, share insights and experiences, and ask questions! Our very first MRA Meet Up, "Be Your Biggest Advocate: Navigating a Melanoma Diagnosis", held on Wednesday, November 20, was an important and empowering session. This session featured a panel of experts and shared insights o...
MRA Townhall: Melanoma Awareness Month Kickoff
มุมมอง 546 หลายเดือนก่อน
MRA’s CEO Dr. Marc Hurlbert and COO & President Stephanie Kauffman hosted a live virtual town hall to officially kick off Melanoma Awareness Month, where they connected with the community to share the latest about MRA, our recent research investment, emerging research in the melanoma community, and more.
TIL Therapy: A Conversation with Dr. Allison Betof Warner
มุมมอง 6486 หลายเดือนก่อน
You may have heard of AMTAGVI, also known by the generic name lifileucel, a new therapy that recently earned FDA approval to treat patients with advanced melanoma in the second-line setting. AMTAGVI is the first individualized Tumor Infiltrating Lymphocyte (TIL) T cell immunotherapy to earn FDA approval for any cancer. To learn more about the approval, MRA’s Chief Science Officer Dr. Joan Levy ...
MRA Spotlight: Mollie’s Fund & their National Nursing Initiative
มุมมอง 1127 หลายเดือนก่อน
Mollie's Fund (molliesfund.org) is a team of crusaders on a mission to increase awareness of melanoma, provide information and services for skin cancer prevention, and support patients. Their latest efforts include an initiative that empowers nurses across eleven hospitals on Long Island to screen all patients who enter their care for skin cancer, and to discuss prevention and detection with th...
No Patient Left Behind: Melanoma Research Challenges in 2024
มุมมอง 2639 หลายเดือนก่อน
We’re making incredible progress in melanoma research, but it isn’t all smooth sailing. Hear from experts in the field about key challenges - such as treatment resistant disease, rare melanomas, and metastasis of the brain and LMD - facing patients, clinicians, & researchers alike. This expert panel featured Alexander Shoustari, MD (Memorial Sloan Kettering Cancer Center), Janice Mehnert, MD (N...
Breaking Barriers: Demystifying Clinical Trials in Melanoma
มุมมอง 529 หลายเดือนก่อน
This panel, led by Dr. Janice Mehnert (New York University) brought together three patients - Leah Adams, Chris White, and Colleen Wittoesch - who each have personal experience participating in clinical trials and clinical research. The discussion offered valuable first-hand insight into what clinical trials are, how they operate, and possible benefits and risks from this enlightening panel.
Living With Melanoma: A Panel Discussion
มุมมอง 1229 หลายเดือนก่อน
This panel discussion, moderated by Cody Barnett (Melanoma Research Alliance), brought together Trena Brown, Camille Price, Elizabeth McGowan, and James Skelton to discuss and share insight from their own journey with melanoma. Discussion focused on 3 broad areas, including disclosing your diagnosis with friends, family, and others; self advocacy; and survivorship and adapting to the new normal...
Understanding Melanoma Risk: Going Beyond UV
มุมมอง 1059 หลายเดือนก่อน
This talk, by Dr. Eugene Semenov (Massachusetts General Hospital), overviewed available research on factors that increase a person's risk of developing melanoma. It took place during the Melanoma Research Alliance's 2024 Melanoma Exchange Patient Forum held on February 21, 2024.
Scanxiety: Understanding, Managing, & Thriving Beyond the Fear
มุมมอง 589 หลายเดือนก่อน
Learn tips and strategies to mitigate and manage the emotional and psychological impacts of upcoming exams, scans, or other anxiety inducing hurdles that are all too often part of a melanoma journey. This talk, led by mucosal melanoma survivor and clinical psychologist J.B. Ward, took place at the Melanoma Research Alliance's 2024 Melanoma Exchange Patient Forum.
The Melanoma Standard of Care & Emerging Research in 2024
มุมมอง 1.2K9 หลายเดือนก่อน
During this presentation at the 2024 Melanoma Exchange Patient Forum, Dr. Sapna Patel - medical oncologist at MD Anderson Cancer Center - overviewed the melanoma treatment landscape including recent research advances and clinical trial results.
The State of the RARE Registry
มุมมอง 13011 หลายเดือนก่อน
Join MRA and members of the RARE Registry Patient Oversight Committee to hear important updates about the progress and future goals for the registry. MRA began work in 2020 to launch RARE, an interactive registry for patients facing acral or mucosal melanoma. Through RARE, researchers will gain critical insight into the risk factors, treatment histories, and unique experiences of patients facin...
Mindful Holidays: Nurturing Health and Reducing Stress - A Special MRA Webinar
มุมมอง 40ปีที่แล้ว
While the holidays are a time to celebrate with family and friends, the season can quickly go from joyful to stressful for those living with a melanoma diagnosis. MRA’s Stephanie Kauffman will be joined in conversation with Unplug Meditation’s Suze Yalof Schwartz, a leading expert in meditation and mindfulness, in guiding the melanoma community with practical techniques on navigating the holida...
Bimini Bay Outfitters x Melanoma Research Alliance Partnership: Veterans Day Update
มุมมอง 31ปีที่แล้ว
On November 9th, MRA’s Stephanie Kauffman & Bimini Bay’s Christian Parisi went live to discuss the MRAxBBO partnership and some of the innovative work MRA supports focused on Veterans & members of the U.S. Armed Forces.
Military Service and Melanoma Risk: A Conversation with MRA and Army Veteran Andrew Smith
มุมมอง 156ปีที่แล้ว
Military Service and Melanoma Risk: A Conversation with MRA and Army Veteran Andrew Smith
What Veteran's Day Means to MRA - Nico Starink
มุมมอง 21ปีที่แล้ว
What Veteran's Day Means to MRA - Nico Starink
What Veteran's Day Means to MRA - Laurel Farr
มุมมอง 35ปีที่แล้ว
What Veteran's Day Means to MRA - Laurel Farr
What Veteran's Day Means to MRA - Marc Hurlbert
มุมมอง 16ปีที่แล้ว
What Veteran's Day Means to MRA - Marc Hurlbert
What Veteran's Day Means to MRA - Janine Rauscher
มุมมอง 18ปีที่แล้ว
What Veteran's Day Means to MRA - Janine Rauscher
What Veteran's Day Means to MRA - Cody Barnett
มุมมอง 29ปีที่แล้ว
What Veteran's Day Means to MRA - Cody Barnett
What to Expect from a Sentinel Lymph Node Biopsy
มุมมอง 364ปีที่แล้ว
What to Expect from a Sentinel Lymph Node Biopsy
What is a Wide Local Excision Surgery for Melanoma?
มุมมอง 1.4Kปีที่แล้ว
What is a Wide Local Excision Surgery for Melanoma?
The Role of Surgery in Melanoma Treatment
มุมมอง 347ปีที่แล้ว
The Role of Surgery in Melanoma Treatment
The Truth About Placebos in Melanoma Clinical Trials
มุมมอง 32ปีที่แล้ว
The Truth About Placebos in Melanoma Clinical Trials
What is the contact info?
A found a melanoma on my back shortly after seeing this advert. I’m alive now because of it.
Do you know any treatment for this?
Although the information that the presenter gives is educational, I would suggest avoiding such silly anti-intellectual colloquialisms like "coo-coo crazy stuff". Such a statement sounds juvenile.
Wow someone actually mentioned Dr. Foley. Nice
Only 3%....😢
I had radiation for a 27mm mucosal Melanoma lesion behind my right eye in 2006 and it actually spread to my mucosal lining of my left breast in 2019. I don't even want to be checked anymore. I'm so tired of just feeling like I am waiting to hear it again 🤦♀️
Once you showed all the big pharma logos...I am out
You are a great teacher!
I have had cancer removed from my nose and it has came back worse now in the same place that they removed it from my nose and I have Red spots all on My back what should I do
My journey started at Stage 3B, surgery and lymph node removal followed by Ipi 3x before extreme reaction. Scans clear for 3 years, nodule on lung removed - Stage 4. Treated with Pembro. Clear for 3 years until Dec 2023 - numerous lesions on liver and lungs. Being treated with Opduolag. This time I'm feeling most 'mortal'. I am humbled and grateful to be living in a time when so much emphasis is being place on Melanoma. I remain optimistic. Never give up...keep pushing - YOU are you're own advocate.
Have you tried turkey tail mushroom or dandelion root tincture?
I have all the symptoms of mucosal melanoma and I am very scared😣
Go get it looked at there’s always a chance it ain’t
I’m a 25 year USAF veteran. I was a Fighter Aircraft Crew Chief. Been retired since 2018. Was diagnosed with stage 2A melanoma this year. This last Feb the SecDef signed a letter that stated my career field and pilots/aircrew are drastically more at risk for multiple cancers including melanoma. The sad part is that no VA doc or base doc ever saw or recognized the “ugly duckling” on my back. It was the first visit to a VA community care chiropractor that said something. Thank god she did, because it saved my life. At no time during my service was skin cancer screened for or even briefed. My surgical oncologist asked me to please get the base on board with doing skin checks, as she has treated a ton of veterans.
Productions have a good day 😊
TY for this panel info
Thanks for presenting!
EXCELLENT! Thanks for presenting!
EXCELLENT! Thanks for presenting!
EXCELLENT! Thanks for presenting!
Thankyou so much for all the information in your work and study on trials and new discoveries. I can relate to this rare mutation situation so closely as my husband has Acral Melanoma which developed on the soul of his foot 4 yrs ago, 2 yrs later spread to lymph nodes in his groin, 9 of which were removed, he had immunotherapy which was ceased after 10 rounds due to kidney failure which was followed by 3 mths on steroids, about 8 mths later it developed in the Hilar lymph node on his lung, this was not able to be removed during surgery as it was a solid tumour and attached to his windpipe, he then had 6 wks of radiation we discovered he has the aggressive NRAS gene, we are now awaiting to have scans to see where he is at the moment. With no further treatment advised he is deciding if it is of any benefit to continue to be registered for a Phase 1 trial at 72 yrs of age with stage 4 lung cancer, or maybe it's best to enjoy the time he has left with his family who all love him so dearly. He is in constant pain and on Tramadol daily and unfortunately now antidepressants. Best wishes to all the people who are going through a similar journey, lets all hope a treatment is found soon that will help prolong the life of these unfortunate people with these rare mutations, cheers, Kerry.
Volume is too low. Can’t hear it
Sarah from the POG channel is a wonderful kind mother of two small children is just days from dying. Once it went to her brain it was seizures and a rapid decline. I truly pray we find a true breakthrough soon. Too many wonderful people are dying.
Sad that Sarah from the POG family is on her final days. I don’t think much progress has been made. Too many dying still.
Thank you so much for this information, particularly for talking about metastatic brain disease my son has been diagnosed with stage four melanoma with lung liver and brain metastases. Could you possibly answer what is the difference between asymptomatic and symptomatic brain, Mets and the prognosis and treatment
So sorry to hear of your son. Please let us know if we can be helpful during this difficult time. Asymptomatic brain metastases refer to the presence of cancerous tumors in the brain that do not cause noticeable symptoms. These metastases are often discovered incidentally during routine imaging tests, such as CT scans or MRI scans, performed for other reasons or as part of cancer staging. Unlike symptomatic brain metastases, individuals with asymptomatic brain metastases do not experience any specific signs or symptoms related to the presence of these tumors in the brain. However, it is important to note that even though they may be asymptomatic, these brain metastases can still have an impact on the individual's overall health and treatment plan. When asymptomatic brain metastases are detected, healthcare professionals will assess various factors, including the primary cancer type, the number and size of the metastases, and the individual's overall health, to determine the most appropriate course of action. Treatment options for asymptomatic brain metastases may include close monitoring with regular imaging, targeted therapy, radiation therapy, or a combination of these approaches. The goal is to prevent or delay the development of symptoms and manage the progression of the disease. Regular follow-up and communication with the healthcare team are crucial to ensure appropriate management and timely intervention if symptoms develop
I have stage 3b melanoma and BRAF so it doesn't look good because I'm on targeted.
Tara I hope you don't mind me commenting to you? My Melanoma was stage 2 when I got the host one removed on my back. So I didn't get any treatment for it. Unfortunately it mastsised ( spelt wrong) to my lymph nodes under my left arm. I went for surgery quickly and my surgeon removed 13 and 9 were positive. I was then 3d. I couldn't get Immunotherapy, for some reason. They gave me 2 types of tablets. I am so,so sorry I can't remember the names of them. I was on and off them because they made me so sick. But they kept tweaking the dose. My last MRI Scan, my Cancer went into remission. Covid has held things up so much. You are supposed to be seen for 3 monthly for 5 year's. This has never happened for me. I know how busy they are. But yes I am so afraid to. Please let me know how you are Tara. Take care. 💗🕊
How are you doing, Tara? My husband has the same diagnosis with a rare BRAF mutation.
I am doing ok. I had to stop the targeted therapy because I had too many side effects from the drugs they were giving me. I've been on immunotherapy for about 5 months now. They had to put a port in my chest because my veins were too small for the nurses to put a line in me. My skin on my face (I have seborrheic dermatitis) from before this happened and it's gone crazy. Very frustrating for me because it's so bad that I have to wear make up all the time even when I don't want to. My oncologist figures it's from the immunotherapy. I go once a month and the day before I get bloodwork done ( 7-10 vials). So far it hasn't spread to my lungs, I just had another CT scan and it's clear. They want to do an MRI on my brain in January. I feel fine but I've been coughing a lot, another side effect. My GP got me on a puffer so will see how that goes. All in all I feel ok. How is your husband doing?@@jjm4341
Ivermectin look it up
I have. Have you taken it yourself?@@gerryschweppe7014
My husband has melignant melanoma at ano rectal, dr is suggesting surgical operation first line treatment but if we choose immunotherapy should be first and than other treatment along with it which one better for him, please suggest us.
Immunotherapy plus get into nutrition for helping the body heal
Do surgery and immunotherapy
Niceee! Crush your competition with smzeus!!!
90-95% of melanoma patients recover in 2023. That is a miracle.
He helped save my life back in 2009-2010! I will forever be grateful for Dr Hamid!! I loved hearing more about the future of melanoma! He is such an incredible person. - Katie!
fascinating discussion - thank you for sharing!
Thank you for sharing this inspiring updates!
Oh nooooooo I missed this.
This is great! Thanks!
Pituitary problems 6 months after off treatment, on cortisone. Started with stomach problems thought I had food poisoning really fast . One day fine that night not good. Interesting thing I noticed my allergies are back, had shots for allergies over two years they were gone now back. Happy to be alive so I can live with side effects
Hi! I have story as well. I'm a survivor of skin melanoma on my stomach. I was 23 yrs of age, and I will be 65 yrs this August. I would love to reach out to people going thru this scary time in their life. Back then we didn't even know what melanoma was. I don't think I ever saw an oncologist after diagnosis, just a surgeon. My dermatologist new immediately what it was. I asked those same questions.."Why me" and "How did this happen, I'm so young". I had a good portion of my stomach cut, considering the mole was super tiny. I go every 6 - 12 months to have my skin checked. And yes I too have run into some dermatologists that aren't thorough at all, so I advocate, for a different dermatologist. Please contact me. That "what if fear" still haunts me to this day. Deborah
Very informative panel with "real life" experiences, approaches, suggestions highlighted. Excellent Q&A concerning how to get voice of the patients to cancer reseachers and health providers.
⁹k
I'm Dr Ehighaloa, i cure all stds, sti ,hpv and many more I also specialized on any spiritual problems
😻THANK YOU 🇦🇺
Praying for all of you...
My experience.....Exposure to Contaminated Drinking Water (possibly Arsenic) in the US Army: Also, See the countries of India, Bangladesh and many African countries! Twenty yrs after US military service I developed spots on my feet and hands. Unfortunately, I have spent the last 28 years trying to get doctors to take these spots seriously. Many have implied that the spots are "common" among dark complexioned people. As I researched this topic and discovered the contaminated drinking water angle (Arsenicosis) I had both VA doctors and a private dermatologist blow it off as being of no consequences Just this year, I have submitted a VA disability claims which includes a wide array of skin conditions. Suddenly now with more-and-more military veterans developing cancer the VA is supposedly investigating trying to determine the cause of it all. Is there any mystery that we have been exposed to dangerous Chemicals of all sorts? And, whether it's the US military or country with high populations of people of color (brown and black). ....WHY ISN'T MORE BEING SAID ABOUT CONTAMINATED DRINKING WATER?? Now comes the bad news........a few days go I began to notice that I now have dark longitudinal bands which are now developing on a thumb, as well as, a big toe. Although, they haven't turned black yet to seems they could easily do so.
I like to smack my lips also. It makes me feel important.
Thank you very much
Very helpful-thanks.
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These kind of videos are very helpful for understanding the basics .Please do more videos like this
Thanks for the video.
My husband was recently diagnosed with stage 3c melanoma. Immunotherapy is the plan for the next year. Thank you for giving us hope.
Trump's puppet. Would a real doctor accept the position of Surgeon General in a willfully ignorant Trump Administration - he (she) would have to deny both science and modern medical treatment to be an acceptable choice. Despicable. Geriatric and morbidly obese, Trump is at great risk of infection with Coronavirus if he continues to attend campaign rallies and have personal contact with his cult followers who think handwashing and other precautions are not necessary as the virus is not real; the Italian government is apparently unaware of the hoax!
We gonna be Aright. Peace to my Asiatic Indigenous Moorish American Leader. The Restoring of the Land……. Love 2 All