วีดีโอ

Thank you very informative.

English subtitles would be appreciated!

Alt dette er fint og viktig. 😊 Men som MEpasient er det ekstremt tungt å komme gjennom en så lang video. Er det mulig at man lager en kortere «MEvennlig» versjon med bare det mest sentrale?

Yes, transcranial Doppler ultrasound with every tilt table!

Hi Kristine! Can you give a short summary in English for the Intermationals? I adored the CFS-film about you and Bjørnar. Did you relapse? Are you still on IVIG/SCIG? All best!

Jeg er blevet meget klogere. Pædagogisk oplæg. Denne video skulle kunne være et del af en lærerkonference. Jeg skulle bare ønske at der var undertekster. Tusind tak

Tilfelle noen er interessert, så handler episode 1 og 2 av sesong 5 av Golden Girls om at den ene karakteren får ME. "Sick and tired part 1 og part 2". Disse kom ut i september i 1989.

I'm on the Carnivore diet / Zero Carb - Grat to hear that Peter Rowe recommends a Ketogenic diet. I can say don't make it hard on yourself just go on the Carnivore diet it's so easy.

Excellent presentation and rationale provided by Dr. O'Leary on better care for ME/CFS. This recent biomedical article aligns precisely with what Dr. O'Leary presents: Abstract: Since 1969, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has been classified as a neurological disease in the International Classification of Diseases by the World Health Organization. Although numerous studies over time have uncovered organic abnormalities in patients with ME/CFS, and the majority of researchers to date classify the disease as organic, many physicians still believe that ME/CFS is a psychosomatic illness. In this article, we show how detrimental this belief is to the care and well-being of affected patients and, as a consequence, how important the education of physicians and the public is to stop misdiagnosis, mistreatment, and stigmatization on the grounds of incorrect psychosomatic attributions about the etiology and clinical course of ME/CFS. Source: Manuel Thoma, Laura Froehlich, Daniel B R Hattesohl, Sonja Quante, Leonard A Jason, Carmen Scheibenbogen. Why the Psychosomatic View on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Inconsistent with Current Evidence and Harmful to Patients. Medicina (Kaunas). 2023 Dec 31;60(1):83. PMID: 38256344 DOI: 10.3390/medicina60010083 www(dot)mdpi(dot)com(slash)1648-9144(slash)60(slash)1(slash)83

Tusen takk - dette gjorde godt å lytte til.

Tack för dina goda, inkännande råd, samt en hoppfull summering av året!

Tusen takk for fint foredrag ❤ ..er det lov å dele på Facebook?

Flott foredrag Frøydis og for nydelige illustrasjoner Kornelia. Fint å høre på i førjulstiden ❤️

Kjære seer 🌟 Rett skal være rett: Psykiateren og artikkelforfatteren jeg nevner i foredraget heter Nassir Ghaemi (jeg sier navnet feil). Han er forøvrig en mann (jeg referer feilaktig til Ghaemi som "hun"). Videre sier jeg at "paradigmeskifte står for fall", men det er paradigmet som står for fall. Man blir avkrevet, ikke avkreftet behandling. Sist men ikke minst sier jeg at "jeg savner den gangen kroppen responderte bra på tillit" 🤭 Det gjør den enda! Det er "trening" kroppen ikke responderer positivt på lenger. God jul og god klem fra Frøydis 🎄🎆✨️

Takk

What a beautiful background :)

I try. But I only know English

Thank you for explaing in such a good way. That is the biggest problem..people dont understand what it is. Every time again I have to explain why I am not feeling well. Thats makes me sad. I explain and explain..and then they say: O, like the flue? Or; I am tired too... The illnes is terryble, but misunderstanding is killing...

Hei, takk for dette. Hvor kan man få lysbildene?

Dr Jason has completely distorted the history of Chronic Fatigue Syndrome. It was the 1985 Chronic Epstein-Barr Virus syndrome that was coined for a postviral disease associated with EBV. Dr Paul Cheney of Incline Village reported clusters of illness which not only behaved contagious with a 4-7 day person to person transmission, but were entirely EBV negative. EBV has an incubation period of over a month and is not casually transmissible. But Dr Cheney's Tahoe outbreak appeared in many other respects to be indistinguishable from CEBV syndrome. If you read the Holmes definition, it explains that the EBV component was thrown into doubt by these developments. Dr Jason completely fails to mention that CFS was created for an illness in which EBV had been ruled out.

Føler med henne, hun er ikke alene❤

This guideline has absolutely nothing to do with epidemic myalgic encephalomyelitis. ME/CFS doesnt even exist as a diagnosis.

Utrolig kjipt. Jeg forstår det. Du må aldri gi opp!

long covid is the best thing that has ever happened to me/cfs population. very little people believed us or cared before now. sad to see this had to happen to make the nih act.

Fabulous webinar. He explained OT in a non-patronising, pleasant manner. Thanks to all for making it possible to be seen on TH-cam. Shame he could not be here in the UK. So many comments he made regarding tests and treatment resonated too well. There are not enough experts over here, and they do not believe in a patient/doctor collaboration. Thank you again. The best I have seen on POTS. The test at home was particularly useful, if the doctor accepts it of course...That is when I eventually see a cardiologist! Eve

Bruk støvsugeren mindre og erstatt heller med en tørrmop der du ikke har teppe. Coop har sitt eget billigmerke som funker helt ok. "X-tra Tørrmopp 30stk" koster bare 49,60 og "Coop Moppesystem" koster 187,90 (15 des 2022). Robotstøvsuger er enda temmelig dyrt for folk med dårlig råd.

❤️ p̾r̾o̾m̾o̾s̾m̾

Tusen tack för att du sätter ord och sprider ett viktigt budskap om ME 💙/ en ME sjuk mamma

💙

Veldig bra video foredrag,kjenner meg igjen i dette.

Af hjertet tak til super dygtige dr. Øystein Fluge og hans kollega dr. Mella for deres enestående forskningsarbejde og engagement i ME. Deres vedholdende forskningsindsats giver os alle håb. Mange taknemmelige hilsener fra Danmark. 🙏🙏🙏❤❤❤

Veldig viktig budskap ❣️

🥰

Tusen takk! Nydelig video.

Tusen takk for mange gode tips 👍

Anyone have cfs only fatigue, weakness, weight loss... Without any pain & brain related symptoms (brain fog , concentration, memory)

Is there any hope for this?

Hjerteskjærende 😥

Fantastisk foredrag.

Thanks for uploading ❤

Okay, I have had CFS for the last 5 years. It was caused by a Tetanus shot that I did not want!! Then in 2018, I had two hep B shots that I did not want, because my doctor at that time I was misdiagnosed. Then in April and May of 2021 I got my two Moderna vaccines which then gave me Myalgic Encephalomyolitis. So, therefore, I have been poisoned by doctors who didn't know better. I have been struggling with MECFS now for quite a while now. I did try getting on SSDI, but that did not work and felt like I was laughed at by the woman from the social security office. So much for that!! I have been recovering from using Dr. Sarah Myhill s book, The Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalomyolitis. I am about 70 percent recovered using her book and another one by Dr. Jacob Teitelbaum, From Fatigued to Fantastic. For the most part, I diagnosed myself and the doctors I have visited were basically no help at all. It's even sad to see that this video is put out by another country, not from the USA. Praise God some one is paying attention. More needs to be done for MECFS here in America. Perhaps we need to buy Dr. Myhill's book for every doctor here in America!!! 🙏🙏🙏🙏 Prayers for all 🙏🙏🙏

Link please!! ❤

Can you put the link in the description?

Jeg synes at stress burde vært mer i fokus. Det er stress som tar knekken på meg. Og ikke minst lyder, som ikke er nevnt en eneste gang her.

DR.OLAV MELLA, MUCHAS GRACIAS. a los 17 años me diagnosticaron con mononucleosis, un dr. Alemán me trató con sulfa, cada 15 días me hacían el control de sangre para ver mis niveles de plaquetas. Durante seis meses con intervalos eran los tratamientos. Puedo decirle qué soy sobreviviente de la mononucleosis. Por si le sirva ésta información.

Ser at det ble tatt opp vannallergi og Mastcellesykdommer. På link under er det en kvinne med Mast cell activation syndrome som tilnærmest er allergisk for alt. 60 Minutes Australia: Allergic to life (2017): th-cam.com/video/NpFJw-iO7Yg/w-d-xo.html

Det er en nyoppdaget autoimmun sykdom som fikk sitt navn i 2007 som heter Mast cell activation syndrome (MCAS). Det er veldig få leger som kjenner til denne sykdommen og den knyttes til Long Covid og mange andre sydommer. MCAS kan gi alle symptomer og triggere som er kjent fra ME og det finnes medisiner som kan gjøre mange som har MCAS bedre. Mastceller er en hvit blodcelle som man kan finne i alle organer i kroppen inkludert hjernen. De er en del av immunforsvaret og regulerer også mange funksjoner i kroppen. Mastceller ser ut som ballonger som er fylt opp med rundt 50 forskjellige typer mediators som den kan slippe ut i stort antall i løpet av kort tid. I tillegg kan den produsere over 1000 forskjellige typer mediators som den kan slippe ut over tid som kan gi forsinkede symptomer. Når en person har MCAS er Mastcellene overfølsomme og kontinuerlig slipper ut mediators som gjør deg dårlig. Hvis du i tillegg trigger Mastcellene kan de slippe ut enda mer mediators som gjør deg mye verre. Noen kjente Mediators: Alle typer av Histamin, cytokines, Serotonin, Heparin, Tumor Necrosis Factor (TNF), Tryptase Man kan få MCAS av bakterier, virus, muggsopp, forgiftning av tung metaller eller stress. MCAS kan ha mange triggere som gjør deg dårligere som f.eks.: lys, berøring, lyd, lukt, div matvarer, kjemikalier, Insektstikk, fysisk aktivitet. MCAS har en veldig lang rekke med symptomer som inkluderer alle symptomer kjent fra ME som f.eks.: *Intens angst og depresjon. *Alvorlige smerter som kan lokaliseres til ledd, muskler, sener og/eller bein. *Uvanlige nevrologiske symptomer som muskelrykninger, nummenhet og prikking i forskjellige deler av kroppen, lammelser og pseudoseanfall. *Sår hals Hovne lymfekjertler. *Fordøyelsesbesvær, inkludert diaré, forstoppelse, oppblåsthet, gass og halsbrann, kvalme. *Kronisk svekkende tretthet. *Søvnløshet. *Hodepine, Svimmelhet, Dobbeltsyn, Tinnitus. *Kognitive vansker, inkludert hjernetåke og redusert fokus, hukommelse og konsentrasjon. *Bekkensmerter. *Interstitiell cystitt (smertefull betennelse i blæren). *Kortpustethet Luftsult (en følelse av å ikke kunne ta et dypt pust) *Hudrelaterte symptomer: kløe (pruritus), elveblest (urticaria), hevelse (angioødem) og hud som blir rød (rødhet). *Rask puls (takykardi), lavt blodtrykk (hypotensjon) og besvimelse (synkope). Personer med MCAS har ofte: • Chronic inflammatory response syndrome (CIRS) • Fibromyalgia syndrome (FMS) • Ehlers-Danlos Syndrome (EDS) • Gulf War Illness (GWI) • Interstitial cystitis/bladder pain syndrome (IC/BPS) • Irritable bowel syndrome (IBS) • Multiple chemical sensitivity syndrome (MCSS) • Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) • Post-Lyme syndrome • Postural orthostatic tachycardia syndrome (POTS) • Post-traumatic stress disorder (PTSD) • Kounis syndrome Mer om dette på link under: Recent advances in our understanding of mast cell activation - or should it be mast cell mediator disorders? www.ncbi.nlm.nih.gov/pmc/articles/PMC7003574/ Mast cell activation syndrome (MCAS) kan behandles med: • Mast cell stabilizers,[6] including cromolyn sodium and natural stabilizers such as quercetin[9] • H1-antihistamines,[6] such as cetirizine or ketotifen or fexofenadine or loratadine • H2-antihistamines,[6] such as ranitidine or famotidine • Antileukotrienes,[6] such as montelukast or zileuton as well as natural products (e.g., curcumin or St. John's wort extracts) • Nonsteroidal anti-inflammatory drugs, including aspirin can be very helpful in reducing inflammation in some patients, while others can have dangerous reactions[5]. Det kan ta noen uker før man merker bedring. Hvis man ikke merker bedring kan man prøve en annen medisin i samme familie. Noen vil ikke bli bedre av medisiner. Linker: The Role of MCAS in Long Covid | With World Leading Specialist Dr Lawrence Afrin th-cam.com/video/OaNXiEUrpIc/w-d-xo.html Personer med ME bør ta kontakt med sin lege for å prøve medisiner mot Long Covid som det snakkes om i denne videoen. Dr. Tina Peers from UK Discusses the Management of Long Haul Syndrome (Long Covid): th-cam.com/video/NOkUDh3vHVU/w-d-xo.html Mast Cell Activation Syndrome: An Alert to Psychiatrists: www.psychologytoday.com/us/blog/holistic-psychiatry/201907/mast-cell-activation-syndrome-alert-psychiatrists#:~:text=Many%20patients%20who%20call%20requesting,among%20the%20most%20common%20symptoms Mast cell activation symptoms are prevalent in Long-COVID: www.ncbi.nlm.nih.gov/pmc/articles/PMC8459548/ Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (ADHD): www.ncbi.nlm.nih.gov/pmc/articles/PMC7388140/ Mast Cells and Irritable Bowel Syndrome (IBS): www.ncbi.nlm.nih.gov/pmc/articles/PMC4819856/ Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrome: www.ncbi.nlm.nih.gov/pmc/articles/PMC6687840/ Mast Cell Activation Disorder and Postural Orthostatic Tachycardia Syndrome: A Clinical Association: pubmed.ncbi.nlm.nih.gov/34398691/ The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome pubmed.ncbi.nlm.nih.gov/33980338/ Mast cell activation and autism - PubMed: pubmed.ncbi.nlm.nih.gov/21193035/

Please make a pill for me. Can I get some disability income from the government for this?

Hva syntes dere er bra nok hjelp for en alenemor til lite barn og med M-E. Som i tillegg opplevde traumatiske livskriser hvor tre av sine nærmeste døde?