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Where Are My Pillows: A Health Journey
United States
เข้าร่วมเมื่อ 7 ก.ค. 2020
Kicking the 💩 out of brain inflammation (autoimmune encephalitis). Let's overcome our health challenges together ✨
IMMUNOCOMPROMISED day in the life vlog | getting evusheld for better protection 💉💉🍑
Join me for a day of my life as I get Evusheld! Given my immunocompromised status from medications like Rituxan (rituximab), I was a prime candidate to receive the injections. Very grateful to now have better protection against infection 🙏
For a more extensive discussion of the product and what it was like to receive it, visit my write-up at wherearemypillows.com/?p=2494
WHO AM I:
I'm a writer and autoimmune encephalitis survivor who is getting back on my feet after 3 rounds of chemo (Cytoxan/cyclophosphamide). My immune system has taken me on a wild ride through the land of IVIG, Rituxan (rituximab), plasmapheresis, Solumedrol (methylprednisolone), Actemra (tocilizumab), and Cellcept (mycophenolate mofetil)... Where to next? Remission and beyond! 😬
Stay tuned for more ✨
Social links:
Facebook: wherearemypillows/
Instagram: wherearemypillows
Twitter: wampillows
Blog: wherearemypillows.com/
Please hit the like button and subscribe if you're interested in seeing my progression from present-day slug to high-functioning human :)
th-cam.com/channels/kM266dcY9ay4YVpMALAwdg.html
For a more extensive discussion of the product and what it was like to receive it, visit my write-up at wherearemypillows.com/?p=2494
WHO AM I:
I'm a writer and autoimmune encephalitis survivor who is getting back on my feet after 3 rounds of chemo (Cytoxan/cyclophosphamide). My immune system has taken me on a wild ride through the land of IVIG, Rituxan (rituximab), plasmapheresis, Solumedrol (methylprednisolone), Actemra (tocilizumab), and Cellcept (mycophenolate mofetil)... Where to next? Remission and beyond! 😬
Stay tuned for more ✨
Social links:
Facebook: wherearemypillows/
Instagram: wherearemypillows
Twitter: wampillows
Blog: wherearemypillows.com/
Please hit the like button and subscribe if you're interested in seeing my progression from present-day slug to high-functioning human :)
th-cam.com/channels/kM266dcY9ay4YVpMALAwdg.html
มุมมอง: 343
วีดีโอ
HEALING DIARIES | days in the life of a chemo patient w/ successful appts + avoiding side effects
มุมมอง 1302 ปีที่แล้ว
Join me for a few days in the life of an autoimmune encephalitis patient undergoing chemo #2! ✨ Also watch chemo vlog #1: th-cam.com/video/1c8Mn-j2jU8/w-d-xo.html and find more at my blog: wherearemypillows.com/ BACKSTORY: Autoimmune encephalitis is a poorly misunderstood illness, with very little content out there to show what it's like to endure and recover from it. In my case, I have been de...
LOSING MY HAIR | how it feels to have alopecia as a young adult
มุมมอง 2012 ปีที่แล้ว
Hair loss hits everyone differently. Don't feel bad if you find it extremely upsetting-whatever feelings you have during the process are valid. Alopecia is an odd thing you don't think twice about unless it happens to you. My personal thoughts: it's mostly been an inconvenience, with denial, self-consciousness, distress, and acceptance mixed into it. Subscribe for more content relating to recov...
HEALING DIARIES | this is chemo round #1
มุมมอง 7022 ปีที่แล้ว
Come with me as I get my first Cytoxan (cyclophosphamide) infusion to treat autoimmune encephalitis ✨ Find more at my blog: wherearemypillows.com/ BACKSTORY: Autoimmune encephalitis is a poorly misunderstood illness, with very little content out there to show what it's like to endure and recover from it. In my case, I have been dealing with a gamut of cognitive deficits that started back in 201...
Autoimmune Encephalitis Recovery: How I Sound on Rituximab
มุมมอง 2474 ปีที่แล้ว
Here's my monthly update on how I'm doing while I'm in recovery from autoimmune encephalitis (AE). I'm closing in on 4 months past my last Rituximab treatment, with another one on the way soon! For some less cringe-y, more coherent, more insightful material, please visit my blog at wherearemypillows.com/. For last month's update, visit th-cam.com/video/npjafsd-vVI/w-d-xo.html. BACKSTORY: AE is ...
1 year after hospitalization from autoimmune encephalitis
มุมมอง 3354 ปีที่แล้ว
Wondering what life might look like 1 year after autoimmune encephalitis? Have a listen to the thoughts that come to my mind on the anniversary of my discharge last summer 🏥 . Please note that I made this impromptu recording-in 1 take, with no cuts, "umms" and "ahhs" left in-on purpose. Verbal fluency is something this illness has taken from me; but I hope to be able to look back in time and se...
Autoimmune Encephalitis: The First Video on my Road to Recovery
มุมมอง 3424 ปีที่แล้ว
Welcome to the video kickoff to my journey of documenting my recovery from autoimmune encephalitis (AE)! For some less cringe-y, more coherent, more insightful material, please visit my blog at wherearemypillows.com/. AE is a poorly misunderstood illness, with very little content out there to show what it's like during recovery. In my case, I deal with a wide variety of cognitive deficits that ...
Hi. I am currently dealing with this hell. Doctors are going to try Rituximab on me now. What are the side effects and dosage. Can this medicine cure me?
Can you post a video or a blog about the nature of your symptoms during the acute phase and relapses etc
I hope to cover this in an upcoming video, but in short: my symptoms of encephalitis presented a lot like dementia. My primary issue during the acute phase and relapses was mostly cognitive dysfunction; at my worst, I was also catatonic. For now, you can hear me describe some of this in the following podcast episode: spotifyanchor-web.app.link/e/w28JVqPWmxb
Cool I'm doing this next Friday.
Nice! Hope all goes smoothly for you.
Beautiful winter views 😁
Thank you; nature sure is wonderful!