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Noah Griffith
เข้าร่วมเมื่อ 21 พ.ค. 2020
Rare is Us – Episode 6
I sat down with Kyle Bryant and Sean Baumstark, hosts of the Two Disabled Dudes podcast and fellow fighters of FA, to talk about the goal of living life with FA. In hopes of getting the most out of life, the Dudes have embarked on many adventures on their recumbent bikes and are preparing for their newest journey - conquering the tallest paved road in the world starting at the end of June.
มุมมอง: 46
วีดีโอ
Rare Is Us- Episode 5
มุมมอง 5210 หลายเดือนก่อน
Scott Osleeb's quest to climb Mount Aconcagua in Argentina is a story of a man trying to pass on the love of true friendship. After the encouragement of a friend helped him endure the dark days of his fight with Leukemia, Osleeb returned the favor by climbing the tallest mountain outside of Asia to gather awareness for Friedreichs Ataxia, a rare neuromuscular disease that devastated his friend'...
Rare is Us- Episode 4
มุมมอง 36ปีที่แล้ว
FA patient and FARA ambassador Sydni Dupre joins in to discuss an article I wrote on disability etiquette for the Auburn Plainsman. ... As always, I encourage you to hit the thumbs up and subscribe to my website at Knowinnoah.blog to stay up to date on my latest content.
Rare is Us Episode 3- Careers & FA pt. 1
มุมมอง 36ปีที่แล้ว
Two University of Florida Ph. D. students join to talk about studying genetics while battling FA.
Rare Is Us- Episode 2: Sports R Us
มุมมอง 60ปีที่แล้ว
Noah Griffith is joined by “Sports FAm,” a group chat that he is in where he and 4 other guys with FA talk ball. On this episode, the group discusses how their FA diagnosis has changed their interaction with sports and physical activities in general.
Rare Is Us Podcast Episode 1
มุมมอง 117ปีที่แล้ว
On the first ever episode of Rare is Us, host Noah Griffith is joined by 4 guests who live with Freidreichs ataxia to answer questions about living with a rare disease and talk about why Rare Disease Day is significant to them.
Awesome video! Thank you Noah for sharing Scott’s story!
Thank you so much for your support Brendan!
Correction*: Scott didn’t have frost bite, but he was at risk for it before turning back at 21,000’.