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#IBDSuperHeroes
United Kingdom
เข้าร่วมเมื่อ 2 ม.ค. 2016
#IBDSuperHeroes - fighting to cure Crohn’s and Colitis!
Money raised by IBD Super Heroes is solely invested in to finding a cure for Inflammatory Bowel Disease.
We are fundraising on behalf of a charity which invests 100% of their donations to patient centric IBD research. The charity is relatively small so the funds will mean an awful lot to them! We hope you’ll help us by being the big hearts that fight for the little guys!
Please take some time to check out the charity here;
Cure Crohn’s and Colitis
www.curecrohnscolitis.org
You can donate via our JustGiving here:
www.justgiving.com/IBDSuperheroesCureCC
OR
Join our Facebook group here:
groups/IBDSuperHeroes
Money raised by IBD Super Heroes is solely invested in to finding a cure for Inflammatory Bowel Disease.
We are fundraising on behalf of a charity which invests 100% of their donations to patient centric IBD research. The charity is relatively small so the funds will mean an awful lot to them! We hope you’ll help us by being the big hearts that fight for the little guys!
Please take some time to check out the charity here;
Cure Crohn’s and Colitis
www.curecrohnscolitis.org
You can donate via our JustGiving here:
www.justgiving.com/IBDSuperheroesCureCC
OR
Join our Facebook group here:
groups/IBDSuperHeroes
IBDSuperHeroes Inflatable Fundraising (pt 2), Leeds 2024
Final video from the #IBDSuperHeroes weekend of fundraising adventures! You can still sponsor us/donate: www.justgiving.com/page/ibd-superheroes-fundraising 💜
You can also sign up to do your own inflatable fundraising for Bowel Research UK: runforcharity.com/bowel-research-uk/inflatable-events
We went to Leeds and plan to do Leeds again next year, so if anyone fancies joining us to raise funds for #IBDresearch, the more the merrier!! 🥳
You can also sign up to do your own inflatable fundraising for Bowel Research UK: runforcharity.com/bowel-research-uk/inflatable-events
We went to Leeds and plan to do Leeds again next year, so if anyone fancies joining us to raise funds for #IBDresearch, the more the merrier!! 🥳
มุมมอง: 10
วีดีโอ
IBDSuperHeroes Inflatable Fundraising, Leeds 2024
มุมมอง 143 หลายเดือนก่อน
The weather wasn't what we'd hoped for, and neither was our fitness level 🙈 but, WE DID IT! 👏 It's not too late to sponsor our efforts www.justgiving.com/page/ibd-superheroes-fundraising Everything raised by #IBDSuperHeroes funds #IBDResearch via @BowelResearchUK 💜 #CrohnsDisease #UlcerativeColitis #IBD #Crohns #Colitis #InflammatoryBowelDisease
![Graham G Thompson - This is your life [Ep 4]](http://i.ytimg.com/vi/0vR3FBOsMFg/mqdefault.jpg)
Graham G Thompson - This is your life [Ep 4]
มุมมอง 1311 หลายเดือนก่อน
We come to the end of Graham's life story, including his bucket list. BBC Radio video following Graham at the studios and making the song: bbcnewcastle/status/1622460078740619264 Graham's song in full, courtesy of BBC Radio Newcastle: th-cam.com/video/hb1-QtRqBpY/w-d-xo.html Follow Graham's adventures on: Twitter ~ @TommaTheGman TH-cam ~ @grahamthompson1189
![Graham G Thompson - This is your life [Ep 3]](http://i.ytimg.com/vi/7NQMXxlJqf8/mqdefault.jpg)
Graham G Thompson - This is your life [Ep 3]
มุมมอง 711 หลายเดือนก่อน
Problems with his stoma and Crohn’s disease led to Graham wondering whether he just up sticks and move to Spain. Of course, Graham’s health had something to say about it. Nephrotic syndrome and further surgery for his Crohn’s... The collection of conditions kept coming, and Graham added Barrett's oesophagus and bladder issues to his list. Then, there were some concerns about the biopsies from h...
![Graham G Thompson - This is your life [Ep 2]](http://i.ytimg.com/vi/9Hv1_LnUq2c/mqdefault.jpg)
Graham G Thompson - This is your life [Ep 2]
มุมมอง 2611 หลายเดือนก่อน
11-year-old Graham had body-brace problems, and what I am certain is a form of torture to straighten and stretch his spine. He continued to add more chronic conditions to his list; Crohn’s disease and Type 1 Diabetes. He was told he would never be well enough to work but set out to prove everyone wrong again. He wanted to go to college, learn to drive, and go to work, just like everyone else. D...
![Graham G Man Thompson - This is your life [Episode 1]](http://i.ytimg.com/vi/HV6V-oFat9c/mqdefault.jpg)
Graham G Man Thompson - This is your life [Episode 1]
มุมมอง 1611 หลายเดือนก่อน
Graham’s life from birth and being born without an anus, to hernia, scoliosis, incontinence, and life with a stoma wrapped in bandages! Can Graham prove the doctors wrong and actually walk?
Fatigue in Inflammatory Bowel Disease (IBD)
มุมมอง 983 ปีที่แล้ว
Fatigue in IBD ~ featuring the #IBDSuperHeroes team; AJ, Annie, Sahara, Stephen, and Roger. We talk about how Inflammatory Bowel Disease related fatigue impacts our lives, in the hope that others can feel seen. Here’s what we talked about: How does fatigue feel for you? Has fatigue impacted your life enough that you’ve had to change or adapt something? How do you deal with fatigue? What’s the w...
B12 deficiency in IBD
มุมมอง 1173 ปีที่แล้ว
Annie and Roger from the #IBDSuperHeroes team both have Crohn's Disease and vitamin B12 deficiency. We had a chat about B12 deficiency in IBD; Why it can happen, the symptoms, diagnosis, and the treatment process! We had a few tech issues, not aided by Roger's quiet mic and Sahara's laptop being tethered to her phone. 🙈 We tried our best, and we hope it's useful!
IBDSuperHeroes #ToiletRollChallenge
มุมมอง 103 ปีที่แล้ว
For your delectation and delight, the #IBDSuperHeroes Saturday morning chat crew decided to take the #toiletrollchallenge 🙈😜 CATCH!!
We wish you a Merry Christmas and a HAPPY NEW YEAR!!
มุมมอง 333 ปีที่แล้ว
10 out of 10 for effort 👍 0 out of 10 for execution 🙈 Merry Christmas everyone!! 🎅🎄🎁☃️
Crohn's and Colitis awareness week 💜 Lloyd’s story
มุมมอง 493 ปีที่แล้ว
Lloyd shares his IBD story for Crohn's and Colitis awareness week. He was initially diagnosed with ulcerative colitis in 2001 but was rediagnosed with Crohn's disease at a later date.
Crohn's and Colitis awareness week 💜 Roger wears an ostomy bag
มุมมอง 623 ปีที่แล้ว
Roger is one of the #IBDSuperHeroes team, and he has Crohn's Disease. He was marked up for a stoma prior to one of his surgeries and has always been interested in learning about life with an ostomy. He knows that due to the unpredictable nature of Inflammatory Bowel Disease, he could find out that he needs one at any time. Unfortunately for Roger, the only bags available to him came from Sahara...
Crohn's and Colitis awareness week 💜 Laura’s story
มุมมอง 223 ปีที่แล้ว
Laura shares her story from before being diagnosed with Crohn's Disease to now.
Exercise at Home - Ninja Warrior UK to Namaste - Session 8
มุมมอง 744 ปีที่แล้ว
We’re really excited to be partnering with Lizzie Smith for this exercise at home program during the COVID-19 pandemic. Lizzie has been a supporter of #IBDSuperHeroes from the very beginning, and has raised lots of funds for our nominated charity, Cure Crohn’s Colitis in the past! She also took part in Ninja Warrior UK, dressed as Lizzie Loo! Lizzie is an NHS Physiotherapist, and is keen to sup...
Exercise at Home - Ninja Warrior UK to Namaste - Session 7
มุมมอง 404 ปีที่แล้ว
Exercise at Home - Ninja Warrior UK to Namaste - Session 7
Exercise at Home - Ninja Warrior UK to Namaste - Session 6
มุมมอง 494 ปีที่แล้ว
Exercise at Home - Ninja Warrior UK to Namaste - Session 6
Exercise at Home - Ninja Warrior UK to Namaste - Session 5
มุมมอง 614 ปีที่แล้ว
Exercise at Home - Ninja Warrior UK to Namaste - Session 5
Exercise at Home - Ninja Warrior UK to Namaste - Session 4
มุมมอง 724 ปีที่แล้ว
Exercise at Home - Ninja Warrior UK to Namaste - Session 4
IBD community bloopers from our World IBD Day challenge!
มุมมอง 64 ปีที่แล้ว
IBD community bloopers from our World IBD Day challenge!
Exercise at Home - Ninja Warrior UK to Namaste - Session 3
มุมมอง 954 ปีที่แล้ว
Exercise at Home - Ninja Warrior UK to Namaste - Session 3
#IBDSuperHeroes World IBD Day Challenge ~ AJ
มุมมอง 384 ปีที่แล้ว
#IBDSuperHeroes World IBD Day Challenge ~ AJ
#IBDSuperHeroes World IBD Day Challenge ~ Charlotte
มุมมอง 254 ปีที่แล้ว
#IBDSuperHeroes World IBD Day Challenge ~ Charlotte
#IBDSuperHeroes World IBD Day Challenge ~ Amy
มุมมอง 754 ปีที่แล้ว
#IBDSuperHeroes World IBD Day Challenge ~ Amy
#IBDSuperHeroes World IBD Day Challenge ~ Lisa
มุมมอง 114 ปีที่แล้ว
#IBDSuperHeroes World IBD Day Challenge ~ Lisa
#IBDSuperHeroes World IBD Day Challenge ~ Stephen
มุมมอง 154 ปีที่แล้ว
#IBDSuperHeroes World IBD Day Challenge ~ Stephen
#IBDSuperHeroes World IBD Day Challenge ~ Sharan
มุมมอง 64 ปีที่แล้ว
#IBDSuperHeroes World IBD Day Challenge ~ Sharan
#IBDSuperHeroes World IBD Day Challenge ~ Hanna
มุมมอง 144 ปีที่แล้ว
#IBDSuperHeroes World IBD Day Challenge ~ Hanna
#IBDSuperHeroes World IBD Day Challenge ~ Lizzie
มุมมอง 74 ปีที่แล้ว
#IBDSuperHeroes World IBD Day Challenge ~ Lizzie
#IBDSuperHeroes World IBD Day Challenge ~ Louise
มุมมอง 104 ปีที่แล้ว
#IBDSuperHeroes World IBD Day Challenge ~ Louise
💜💛
Thanks for posting this! I have struggled with fatigue for ten years, went to my GP and always brushed it off as stress in the workplace. I got so much worse last spring and have hardly been at work since. Thanks to my neurologist who sent me to a specialist I got diagnosed with ulcerative colitis 6 months ago. I had no idea really, but in retrospect all the signs + a massive flare two years back all makes sense now... and I should have given them more attention. Anyway thanks again for making this video, you all describe EXACTLY my days and I am having so much trouble making others understand what we are going through. Especially the part of being in a dream and just tagging along relates! I have a job where I have to do a lot of meetings and project planning - in the end it just didn't work out any longer. I will most likely lose my job due to this, unfortunately. Waiting for the magical cure! And watching movies I have seen many times before as I can "fly away in my head" and still know what is going on on the TV :) Subscribed and I will come back to this video when I need a laugh! Although this is not a funny situation you descriptions made me crack up in laughter and it feels good to have someone to relate to. Final question - I also have cluster headaches, does anyone else have this + IBD?
This is so relatable. I don't have IBD (cancer and heart attack) but get fatigue. Listening makes me feel that it isn't just me! Thank you all. X
💜
nice video bro
Thanks so much for sharing...this is so helpful! Peace & Blessings 🙏🏽
Pleased to hear! :D
I AM FROM INDIA. ..
Woohoo #IBDSuperHeroes 💪
Can't wait to see you're posts!! #IBDSuperHeroes