keep movin'
keep movin'
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My MS Story 🌻 Covid vaccine (Maderna's) side effects -update. Stay Safe!
I have had MS 20+ years. I am disabled to probably an 8 if you use that EDSS Scale. I cannot walk at all, and use a scooter exclusively since 2010. I can stand & pivot to transfer but cannot take a step. However, I had not been able to stand at all other than crouched over to transfer & my right arm/hand were about 80% useless prior to my 1st Lemtrada infusion.
It is my goal to inform other, more disabled MS'rs, possibly with progressive disease, of how this treatment could affect them, good or bad. In my case it's been much more good than bad. Best of luck to all my fellow Lemmies!!
*This is just my experience dealing with my own MS challenges. I hope to bring awareness to what some with Multiple Sclerosis deal with on a daily basis. Keep Movin!!*
Watch my other videos and/or read my blog @ jenzmsjourney.blogspot.com to see where I started, what I've been through & how Lemtrada, my 12th treatment, has affected me so far. I urge all of you to document your own journey whether you share with others or not.
eMail me at keep.movin@hotmail.com if you'd like to pick my brain. I've been living with MS for a long time now. If I can't help I may know someone or something that can.
SUBSCRIBE to be notified when I post a future video!!!
Thanks for watching ❤️
มุมมอง: 303

วีดีโอ

My MS Story 🌻 I got the Maderna vaccine!! -Covid in the house ;/... Standing some
มุมมอง 793 ปีที่แล้ว
I have had MS 20 years. I am disabled to probably an 8 if you use that EDSS Scale. I cannot walk at all, and use a scooter exclusively since 2010. I can stand & pivot to transfer but cannot take a step. However, I had not been able to stand at all other than crouched over to transfer & my right arm/hand were about 80% useless prior to my 1st Lemtrada infusion. It is my goal to inform other, mor...
My MS Story 🌻 I did it!! I got into & then out of bed on my own... no sideboard, no help
มุมมอง 1523 ปีที่แล้ว
I have had MS 20 years. I am disabled to probably an 8 if you use that EDSS Scale. I cannot walk at all, and use a scooter exclusively since 2010. I can stand & pivot to transfer but cannot take a step. However, I had not been able to stand at all other than crouched over to transfer & my right arm/hand were about 80% useless prior to my 1st Lemtrada infusion. It is my goal to inform other, mor...
My MS Story 🌻 I’m STANDING again!! Progress...
มุมมอง 1263 ปีที่แล้ว
I have had MS 20 years. I am disabled to probably an 8 if you use that EDSS Scale. I cannot walk at all, and use a scooter exclusively since 2010. I can stand & pivot to transfer but cannot take a step. However, I had not been able to stand at all other than crouched over to transfer & my right arm/hand were about 80% useless prior to my 1st Lemtrada infusion. It is my goal to inform other, mor...
My MS Story 🌻 Back In my scooter!
มุมมอง 983 ปีที่แล้ว
My MS Story 🌻 Back In my scooter!
My MS Story 🌻 Covid sucks! See ya Skilled Nursing. Hello Assisted Living
มุมมอง 353 ปีที่แล้ว
I have had MS 20 years. I am disabled to probably an 8 if you use that EDSS Scale. I cannot walk at all, and use a scooter exclusively since 2010. I can stand & pivot to transfer but cannot take a step. However, I had not been able to stand at all other than crouched over to transfer & my right arm/hand were about 80% useless prior to my 1st Lemtrada infusion. It is my goal to inform other, mor...
My MS Story 🌻 Skilled Nursing stay after psych ward -Hemophilia /Lemtrada side effect ?¿
มุมมอง 924 ปีที่แล้ว
I have had MS 20 years. I am disabled to probably an 8 if you use that EDSS Scale. I cannot walk at all, and use a scooter exclusively since 2010. I can stand & pivot to transfer but cannot take a step. However, I had not been able to stand at all other than crouched over to transfer & my right arm/hand were about 80% useless prior to my 1st Lemtrada infusion. It is my goal to inform other, mor...
My MS Story 🌻 Lemtrada -3rd Year Post -thyroid disease ?!
มุมมอง 3966 ปีที่แล้ว
I have had MS 20 years. I am disabled to probably an 8 if you use that EDSS Scale. I cannot walk at all, and use a scooter exclusively since 2010. I can stand & pivot to transfer but cannot take a step. However, I had not been able to stand at all other than crouched over to transfer & my right arm/hand were about 80% useless prior to my 1st Lemtrada infusion. It is my goal to inform other, mor...
My MS Story🌻 Lemtrada -Unbelievable!! 4 weeks Post 2nd Infusion
มุมมอง 1.4K7 ปีที่แล้ว
🚫 DISCLAIMER 🚫 I completely shot this for myself, but had to share with my family, then decided to go ahead & make it public. Please excuse the awful videography & completely ridiculous nature of it... However, the fact is that prior to Lemtrada I was on the verge of being unable to live on my own with my kids. What a difference a year makes! This journey is not an easy one but for me it was a ...
My MS Story🌻 Lemtrada -2nd Infusion Side Effects, Improvements, etc.
มุมมอง 1K8 ปีที่แล้ว
I have had MS 20 years. I am disabled to probably an 8 if you use that EDSS Scale. I cannot walk at all, and use a scooter exclusively since 2010. I can stand & pivot to transfer but cannot take a step. However, I had not been able to stand at all other than crouched over to transfer & my right arm/hand were about 80% useless prior to my 1st Lemtrada infusion. It is my goal to inform other, mor...
My MS Story🌻 Lemtrada -Exactly 8 days post 2nd Lemtrada Infusion
มุมมอง 2338 ปีที่แล้ว
This was taped & sent to family members. Then I thought 'why not just make it public '... It's a crude mess but for me, it's progress & absolutely Lemtrada related!! Some pretty miraculous shit happening over here!!! It started maybe Wed & kids just got home from Greg's after 3 days... they are FREAKING out on me, how differently I am moving around, getting in & out of bed etc... I KNEW somethi...
My MS Story🌻 MS Tip: Moving Uncooperative Legs Around w/ Velcro Leg Straps !!
มุมมอง 2668 ปีที่แล้ว
I have had MS 20 years. I am disabled to probably an 8 if you use that EDSS Scale. I cannot walk at all, and use a scooter exclusively since 2010. I can stand & pivot to transfer but cannot take a step. However, I had not been able to stand at all other than crouched over to transfer & my right arm/hand were about 80% useless prior to my 1st Lemtrada infusion. It is my goal to inform other, mor...
My MS Story🌻 Lemtrada -Progress! 7-1/2mos Post 1st Infusion
มุมมอง 9478 ปีที่แล้ว
I have had MS 20 years. I am disabled to probably an 8 if you use that EDSS Scale. I cannot walk at all, and use a scooter exclusively since 2010. I can stand & pivot to transfer but cannot take a step. However, I had not been able to stand at all other than crouched over to transfer & my right arm/hand were about 80% useless prior to my 1st Lemtrada infusion. It is my goal to inform other, mor...
My MS Story 🌻 Lemtrada -Progress! 7mos Post 1st Infusion
มุมมอง 1.7K8 ปีที่แล้ว
I have had MS 20 years. I am disabled to probably an 8 if you use that EDSS Scale. I cannot walk at all, and use a scooter exclusively since 2010. I can stand & pivot to transfer but cannot take a step. However, I had not been able to stand at all other than crouched over to transfer & my right arm/hand were about 80% useless prior to my 1st Lemtrada infusion. It is my goal to inform other, mor...
My MS Story 🌻 Lemtrada -6-1/2mos Post 1st Infusion Video #2
มุมมอง 1118 ปีที่แล้ว
My MS Story 🌻 Lemtrada -6-1/2mos Post 1st Infusion Video #2
My MS Story 🌻 Lemtrada -6-1/2mos Post 1st Infusion Video #1
มุมมอง 6598 ปีที่แล้ว
I have had MS 20 years. I am disabled to probably an 8 if you use that EDSS Scale. I cannot walk at all, and use a scooter exclusively since 2010. I can stand & pivot to transfer but cannot take a step. However, I had not been able to stand at all other than crouched over to transfer & my right arm/hand were about 80% useless prior to my 1st Lemtrada infusion. It is my goal to inform other, mor...
My MS Story 🌻 Lemtrada - Side Effects 1 Month Post 1st Infusion
มุมมอง 9828 ปีที่แล้ว
My MS Story 🌻 Lemtrada - Side Effects 1 Month Post 1st Infusion
My MS Story 🌻 Lemtrada - 1 Month Post 1st Infusion
มุมมอง 7358 ปีที่แล้ว
My MS Story 🌻 Lemtrada - 1 Month Post 1st Infusion
My MS Story 🌻 Lemtrada -Infusion Week /Day 6 Post 1st Infusion
มุมมอง 4169 ปีที่แล้ว
My MS Story 🌻 Lemtrada -Infusion Week /Day 6 Post 1st Infusion
My MS Story 🌻 -this is me... Jennifer's story: why this channel started
มุมมอง 2179 ปีที่แล้ว
My MS Story 🌻 -this is me... Jennifer's story: why this channel started
My MS Story 🌻 MS Tip: Bed Transfer Using Bed Cane & Leg Lifter
มุมมอง 4.7K9 ปีที่แล้ว
My MS Story 🌻 MS Tip: Bed Transfer Using Bed Cane & Leg Lifter
My MS Story 🌻 MS Tip: My solution for 'claw hand' if you have a hand that wants to curl up
มุมมอง 4.9K9 ปีที่แล้ว
My MS Story 🌻 MS Tip: My solution for 'claw hand' if you have a hand that wants to curl up
My MS Story 🌻 MS Tip: This is how I keep movin! Getting in the car...
มุมมอง 2.5K9 ปีที่แล้ว
My MS Story 🌻 MS Tip: This is how I keep movin! Getting in the car...

ความคิดเห็น

  • @SO-te5cl
    @SO-te5cl 2 ปีที่แล้ว

    th-cam.com/video/EHVXJpDBcmU/w-d-xo.html

  • @chronicallypep5
    @chronicallypep5 3 ปีที่แล้ว

    That is a lot of work!! Good for you 💪🏽 best to you!!

    • @keepmovinjen
      @keepmovinjen 3 ปีที่แล้ว

      Thanks Leanna! I'll keep fighting!! Bless you! Take care 🤗

  • @timdonaldson6483
    @timdonaldson6483 3 ปีที่แล้ว

    Thank you for sharing

    • @keepmovinjen
      @keepmovinjen 3 ปีที่แล้ว

      You're very welcome!

  • @timdonaldson6483
    @timdonaldson6483 3 ปีที่แล้ว

    Great job! God Bless you!

    • @keepmovinjen
      @keepmovinjen 3 ปีที่แล้ว

      Thank you & God Bless you too! Thx for watching!

  • @SO-te5cl
    @SO-te5cl 4 ปีที่แล้ว

    Dr. Terry Wahls was dependent on a tilt-recline wheelchair for four years until she reclaimed her health using a diet and lifestyle program she designed specifically to -she now pedals her bike to work each day

  • @SO-te5cl
    @SO-te5cl 4 ปีที่แล้ว

    Dr. Terry Wahls was dependent on a tilt-recline wheelchair for four years until she reclaimed her health using a diet and lifestyle program she designed specifically to -she now pedals her bike to work each day

  • @larryhofer8853
    @larryhofer8853 5 ปีที่แล้ว

    LaWRENCE HOFER HERE i'VE received Lemtrada 2 years ago my last MRI was good nothing new

  • @larryhofer8853
    @larryhofer8853 5 ปีที่แล้ว

    Thanks for answering back ro you want to join me curing our MS naturally??

  • @larryhofer8853
    @larryhofer8853 5 ปีที่แล้ว

    I was diagnosed with MS in 2012 first thing that hit me was vision 1 eye looked a bit to left other one straight ahead I got name of Lady that could help naturally she did I KNEW 2ND Lady that has been working with herbs Gods Meds 4 40 years I ASK her can U cure MS naturally she says not yet she spent 2 months in Indonesia end of 2018 they cooked out herbs for patients like me 1st 4 months she told me we are detoxing and cleaning your body 5th months now she tells me we are in rebuild mode healing the damaged Myelin covering of the nerves I'm very exited she tells me not to spread her name if government find out that somebody is hurting his income for the MS drugs he is selling he'll wipe me out

    • @keepmovinjen
      @keepmovinjen 5 ปีที่แล้ว

      LARRY HOFER good luck to you Larry!!

    • @larryhofer8853
      @larryhofer8853 5 ปีที่แล้ว

      @@keepmovinjen Why don't you join me on my NATURAL MS curing journey

  • @anthonywslls9777
    @anthonywslls9777 6 ปีที่แล้ว

    Do you have the link for this glove?

    • @keepmovinjen
      @keepmovinjen 6 ปีที่แล้ว

      Anthony Wslls -Hi Anthony! It was in the 1st comment but here you go... Not sure how to post a link but if you copy & paste it into your address bar that should work :). Good luck!! Dr. Kay's 24/7 Arthritis Compression Gloves www.amazon.com/dp/B00KQ0G896/ref=cm_sw_r_sms_api_dmDuxb61CE6BN

  • @carmelaann278
    @carmelaann278 6 ปีที่แล้ว

    www.msfrontiers.org/. MS site with some helpful information.

  • @georgekafantaris7807
    @georgekafantaris7807 7 ปีที่แล้ว

    lemtrada is for cancer,,they give it because there is nothing else to give out

    • @keepmovinjen
      @keepmovinjen 7 ปีที่แล้ว

      George Kafantaris Lemtrada isn't for cancer as it is not a chemotherapy drug. I'm not sure where that misinformation came from but there are many MS treatment options available.

  • @EmmaWalkeryou2015
    @EmmaWalkeryou2015 7 ปีที่แล้ว

    Thanks for a informative post, here are a few more tips for a treatment for multiple sclerosis Get a lot of rest Exercising, yoga, tai chi, meditation, deep breathing, hypnosis, make use of green juice, chlorella, spirullina, fruit and veg - organic are best sunflower oils, etc. Some things to avoid if you have MS are alcohol, dairy products, eggs, margarine, milk, red meats, commercial salt, sugar, aspartame.

  • @BmoreBusker
    @BmoreBusker 7 ปีที่แล้ว

    Hi, I've noticed you haven't posted in 5 months. Are you doing well?

  • @corinnebrule1311
    @corinnebrule1311 7 ปีที่แล้ว

    So happy.for you...such great news for people with MS. Thanks for telling us!!!

  • @corinnebrule1311
    @corinnebrule1311 7 ปีที่แล้ว

    Thanks for explaining your symptoms because I am trying to decide if I should begin this medication ...very good info.

  • @corinnebrule1311
    @corinnebrule1311 7 ปีที่แล้ว

    Explained well and I kinda know what to expect if I start this treatment ...Thanks for posting.

  • @corinnebrule1311
    @corinnebrule1311 7 ปีที่แล้ว

    Thanks for sharing...very positive...good to know!

  • @corinnebrule1311
    @corinnebrule1311 7 ปีที่แล้ว

    Good info on Lemtrada...thanks.

  • @timdonaldson6483
    @timdonaldson6483 7 ปีที่แล้ว

    I hope you are doing well..I'm 4 months post 1st infusion.. I have not seen any improvement.

  • @jeanettegates3606
    @jeanettegates3606 8 ปีที่แล้ว

    that is fantastic Jennifer you are doing great keep movie that's what I need to do

  • @aneia6353
    @aneia6353 8 ปีที่แล้ว

    Great idea I have claw hand right now and I'm looking for solutions I'm going to give this a try!

    • @jllandryusa
      @jllandryusa 8 ปีที่แล้ว

      Aneia Hi! It really made all the difference in my ability to grasp, let go & most importantly my ability to transfer. I hope it helps you too!! Thx for watching & let me know if it helps :). Good luck!!

  • @georgekafantaris7807
    @georgekafantaris7807 8 ปีที่แล้ว

    GLAD YOU CURED WITH LEMTRADA

    • @keepmovinjen
      @keepmovinjen 8 ปีที่แล้ว

      Thanks George but it's absolutely NOT a cure! It's just the newest treatment & proving to be really effective. :)

  • @keepmovinjen
    @keepmovinjen 8 ปีที่แล้ว

    In case anybody is interested, this is what they are. Not sure how to post a link but if you copy & paste it into your address bar that should work :) Dr. Kay's 24/7 Arthritis Compression Gloves www.amazon.com/dp/B00KQ0G896/ref=cm_sw_r_sms_api_dmDuxb61CE6BN

  • @dagozzzz
    @dagozzzz 8 ปีที่แล้ว

    I am looking for something similar, do you have any information on ways of making it

    • @keepmovinjen
      @keepmovinjen 8 ปีที่แล้ว

      I have no idea how you could make one but these are what they are & really inexpensive. Dr. Kay's 24/7 Arthritis Compression Gloves www.amazon.com/dp/B00KQ0G896/ref=cm_sw_r_sms_api_dmDuxb61CE6BN

  • @keepmovinjen
    @keepmovinjen 8 ปีที่แล้ว

    Lemtrada is in fact used for Cancer, or was in the past as Campath. Lemtrada is not used for Cancer nor is it Chemo. I don't understand your comment regarding walking. I do not walk anymore but there are plenty of Lemtrada patients that DO in fact walk after not being able to. It depends on how much damage is permanent & how much can be rebuilt.

  • @georgekafantaris7807
    @georgekafantaris7807 8 ปีที่แล้ว

    IT WILL NOT MAKE YOU WALKING.PROGRESION CONTINUES,

  • @amitbhandari4299
    @amitbhandari4299 8 ปีที่แล้ว

    this is wonderful, thank you!

  • @georgekafantaris7807
    @georgekafantaris7807 8 ปีที่แล้ว

    TELL PEOPLE ,,,,,LEMTRADA IS FOR CANCER.....

  • @DulciHill
    @DulciHill 9 ปีที่แล้ว

    I LOVE this! Thank you!!!

  • @DulciHill
    @DulciHill 9 ปีที่แล้ว

    Hi Jen, I just posted this on MSFrontiers.com . Want to be a contributor? Do you have me email?

    • @keepmovinjen
      @keepmovinjen 9 ปีที่แล้ว

      Hi Dulci! Thanks for viewing & sharing my video, I've seen all your videos! What does a contributor do! I do not have your email.

  • @DulciHill
    @DulciHill 9 ปีที่แล้ว

    You are AWESOME!

  • @betweentwowheels5725
    @betweentwowheels5725 9 ปีที่แล้ว

    Hey I'd like to see a video from you. Give us an update. Hope your doing alright.

    • @keepmovinjen
      @keepmovinjen 9 ปีที่แล้ว

      +Between Two Wheels I hope all is good with you. I miss seeing you! I sent you a personal video a couple of weeks ago via eMail. I look forward to hearing from you again!

    • @keepmovinjen
      @keepmovinjen 8 ปีที่แล้ว

      +Between Two Wheels Hi! Were you able to watch my personal video to you a few months ago? I'm super anxious to hear from you! Just let me know you are ok. ❤️

  • @keepmovinjen
    @keepmovinjen 9 ปีที่แล้ว

    Thank you Prince Ahikpar (sorry if I spelled that wrong). That is what I hope to do, educate & maybe help others. Thanks for watching!

  • @TheAcidsco
    @TheAcidsco 9 ปีที่แล้ว

    that is good of you , keep it up for you are helping pp

  • @betweentwowheels5725
    @betweentwowheels5725 9 ปีที่แล้ว

    This is an awesome video! Thanks for sharing your tips, tricks, triumphs and struggles... Like you say "Keep Movin". I sent you a video. Hope you enjoy it. It's a little long.

  • @betweentwowheels5725
    @betweentwowheels5725 9 ปีที่แล้ว

    I watched your video yesterday. I'm making a video for you today showing you my splints and braces. I also use a compression glove with a little bit of a twist. I have some homemade ideas. I'd rather show you on a video then try to write and explain. I will send you the link. Thanks so much for sharing your videos. Keep it up. Thanks for your support with my videos.

  • @betweentwowheels5725
    @betweentwowheels5725 9 ปีที่แล้ว

    I'm diggin' your McGyver skills! Thanks so much for sharing what most people take for granted. Opening a door, walking into a garage, opening a car door and getting in the car. This is why we get so fatigued so quickly because it take so much energy. Your daughter (I assume) mentioned what her friends would think. Well you're being a perfect example to show and educate young and old the effects of this disease. Keep posting videos, keep laughing and of course "Keep Movin". You're an inspiration! I'm glad I found you. You have inspired me to make a video within the next few days. Thank you thank you, Teresa