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I didn’t think I needed ABCD during most of my treatment journey and only talked to a mentor one time. But now that I’m out a year or two, I sometimes feel a greater need for this support! Thanks for this reminder of what they can provide! ox

Yes

I have lost everything. I’m stage 4 metastatic

No

I am an Exemestane and have a lot of joint pain. The pain I feel makes it hard to even want to get out and exercise. Any advances in help for those of us suffering in the 5 years since this video was made?

Yup, been told sugar is evil food for cancer! But had heard from my Doc that it's a myth.

Living beyond HER2+BC 5 yrs in remission. Been in constant fear of recurrence due to sugar consumption.

Yes!

yes

Yes

Yes, very surprised.

Yes!

No

Subbed!

Wow! I was Stage II in 2017 then MBC in 2023. Thank you for the inspiration from sharing your story!

One of the guys I was getting chemo with, we both were getting Oxialplatin,used cold gloves for as long as he could stand it as it was being administered.He didn't get the pins and needle thing like I have.

This was great! Scanxiety-waiting for the next shoe to drop. We are Survivors, just living life!

Just beginning this MBC journey & yes, this message gives me hope! TY!

I have had chronic recurrent cellulitis since 2005-6 At least once it turned out to be cutaneous diphtheria

Interesting video. Thanks.

This is a great episode. I have gone to support groups, everyone talks about their story and what they are doing. Its very positive. We dont talk much about the reality of loss and anxiety. Feeling lost trying to fit back in my past normal life. Knowing this is "normal" helps so much. Thank you.

I asked my oncologist for a referral to a physical therapist who had experience with cancer patients because I heard that they could be helpful with CIPN. I was virtually ignored. Mentioned my struggle with neuropathy to my GP and he wanted to prescribe some drug. I inquired about the drug and it turned out to be pain medication which would aggravate my problem with fatigue. To add insult to injury, I no longer feel pain; I could hold a block of ice with my bare hands, now. The problem, rather, is with numbness and tingling. The point being that the drug would worsen my quality of life while adding zero benefit. I flatly declined. I have a degree of aversion to the medical profession and view their treatments with a measure of skepticism. Maybe I ask too many questions. Maybe I'm just stupid.

Appreciate this valuable info on advocating for yourself and loved ones.

This is such valuable information for everyone, thank you for making it so clear and understandable!

Shouldn't early detection come before minimising infection?

Lymph nodes removed in pelvis, unlikely to lead to lymphedema, but the radiation treatment will put me at risk

No damage? If my joints are visibly red, hot and swollen from inflammation, isn't that damage? Loss of estrogen can induce or worsen osteoarthritis or rheumatoid arthritis.

you have powerful hands , thank you for this info 😊

Thank you. Very informative and am reminded to find a good physiotherapist near where I live. I do stretch every day but need a PT to check me out!

I know what she means when she talked about treatment during covid. I was diagnosed and went through testing and surgery at the height of the scare before vaccines were available. 4 year surgery anniversary next week. I missed out on a lot that is normally available to cancer patients. and it was super-scary. Had to go to every appointment etc alone with no support. When my surgeon told me I had to decide (now) between a lumpectomy or mastectomy, I was crying. No sympathy. She just sat there and waited.

Excellent episode and very timely as I’m trying very hard to manage the crazy side effects from Anastrozole. What I’m realizing is that I did all the things asked of me prior to surgery, radiation and the challenges within those segments. Kinda like processing grief, and I’m still processing my Mom’s passing right when I started radiation. You provided excellent points for me to talk to my oncologist. I don’t think I’m going crazy with the brain fog, insomnia, joint pain, etc, but I will ask for help during this phase. Thank you so much!

I may suggest to invest in an exercise bike or treadmill so anyone going thru chemo can workout at home. Take a multiple vitamin pack, I did say pack and keep mvoving.

I really liked this episode. I definitely had worse memory issues, I think its improving, or I have learned ways to help myself. I told my husband, please remind me, help me remember important things. I use the calendar more and notes. As always, it's reassuring to know we are not alone in these struggles. Thank you.

I have lung cancer in 3 limp nodes. Can limp nod be cured

How about in the day of the treatment ?

Thank you so much for this video. I am 4wks post breast, arm and armpit lift following a 115lb weight loss (natural, not surgical). I have developed cording under one arm but my range of motion is still limited in both arms post-op and the cording armpit is still slightly irritated on the incision line. When would be safe to commence cording treatment?

I had single mastectomy and several lymph nodes removed. Was told all the things about not using that arm. However, a year later i had leukemia and stem cell transplant. Msny many blood draws and infusions, my "good arm" was so abused that i said..begged to use the "bad arm" they finally did, it gave relief to the other arm and I've had no problems at all.

Love all of the episodes - but this is where I struggle so I appreciate the information!

*Promo SM* 🌟

Excellent timing as I’m feeling the low estrogen is creating painful pelvic pain. I’ll be seeing my gynecologist next week and in the meantime, you give me hope!

Thanks so much for this information and all your podcasts. I am grateful to be in the Recovery Room family. ❤

Very important conversation. I actually took on the warrior mindset from the git-go, even through the exhaustion and pain 8 months ago when all the biopsies, MRIs and pre-surgery treatments occurred. Grateful surgery was successful in September, and recovery was hard as a nasty staph infection manifested 4 weeks post-surgery. Radiation was manageable until I was burnt to a crisp and ended after 21 rounds. Lo and behold, another staph infection came my way. Once I healed, I felt more “me”, more energy and joy with being active. All that went away after 1 week of Anastrozole. Insomnia and elevated joint pain limited my ability to be active, and here I am. Grateful you came my way, and appreciate your shows, guests and valuable information. I will join your community. For now .. I am healed, I am whole and I am better than before. And so it is 🙏

I have been told to protect the arm from the sun ? Any research on that ?

Wow so informative! Thank you for this invaluable information. Can you do a video on the latest research for Hormonal therapy after breast cancer pls. New subscriber from Canada ❤

Great information could you do a podcast on endocrine therapy. Confused as to why no barefoot on the beach and no hot tubs spas but nothing about swimming. I had a lumpectomy and ancilery lymph node removal 5 of the 20 were cancer positive and now I'm struggling with what side effects to look out for and what I can do. I'm in UK

I am struggling with lymphoma I love your podcasts I am in Aussie thanks for your info

Hey, I wanted to thank you for providing great evidence based information! Here in Poland in one cancer center I was told I can no longer farm, garden or do renovations after lymphnodes removal.. which happens to be my job, so I was obviously very disappointed. But then I did my own research and it turned out to be outdated information! I plan on exercising and slowly getting back to work. I get that compression sleeves are useless.. but what is your opinion about compression bras? I was told I have to wear mine 2 months after single mastectomy (expander put in) but it's damned uncomfortable.

Through most of initial diagnosis and chemo I could not have articulated any other goal other than to just get through it. Taking kids to school, vacations??? are you kidding. I don't think so.

I am healed. I am healthy. I am a child of God. 🩷