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Incredible that you never gave up❤

🙏❤️

It’s like doctors see how much women can take before we break or worse harm ourselves. I really felt that today. It was the first time my doctor even brought up endo herself. But her exact words were well you want help but the only help is birth control and you don’t want to be on it.

I am sorry for your loss I hope your story can reach other women before they too feel like giving up ❤

This is how I feel today after 20+ years of being dismissed. I had an appointment today for extreme lower back and abdomen pain. And I knew it was going to be the same talk of birth control or iud. I felt like walking out. I should’ve canceled the appointment because I knew exactly how it was going to go and I just cried all the way home. Mind you I have pcos and firoids and had been on birth control for 15 years on and off. Had super bad depression went off never felt better until the last 3 years of having 3 month long periods and 1-2 months off. I literally feel like I’m dying from the inside out. The amount of symptoms I have on and off my period feels like I’ll never live a day without pain. I have no good relationships because people don’t get the pain and draining of bleeding for so long for so many years. I want to give up.

“Did it take me a lot longer than some people? Absolutely” Yeah, but those people weren’t even in the race. You were essentially a pioneer in a criminally understudied field. Thank you for being a part of pushing the research forward! You walked so we could run, and your efforts are why we have more endometriosis research happening today 😊

I WISHD MY GF LADYFRIEND WIFE LOOKS LIKE AMANDA

We all grieving in our own way , therapist don't help , sorry so take it day by day I do after loosing my mom it's been 8 months,

I am latina and I felt that I wasn't being heard by doctors where I live. I had to go out of state in order to be heard by a wonderful doctor. I'm 36 and it started when I was 13.

'Ae! Telling the Drs. That you know your body and have them look at you like you're just talking out the side of your neck!!!😑🤦🏿‍♀️. Tests do come back normal but I KNOW MY BODY!

I’m suffering from ensdonmyosis for few years now, it’s very draining disease to live with, I can feel anyone that’s going through it like me

Have to disagree about there being no such thing as “adeno belly.” How would an enlarged uterus NOT cause swelling and inflammation lol?

Absolutely huge boobies 😮

I was diagnosed with endometriosis in 2018 while having my tube’s tied. Later adenomyosis and enlarged uterus was diagnosed in 2024. I am 45 and dealing with painful cramps became normal and I just would push through the pain of raising kids and doing what needed to be done. Aspirin was my go to often. The marina IUD was put in recently and it’s definitely helped a lot. I am looking forward to the thinner lining to occur of the uterus. Plus I no longer have periods is a bonus. Hopefully this IUD gets me through till I turn 52 and I can except menopause at a normal age. 😊

This spoiled little princess has no clue what pain and suffering feel like. She needs to stop milking this and stop acting like she's a victim of anything.

how can i get in contact with Charlotte? I can't find her blog

A narcissist lies all the time

25 yr marriage, i thought he was the most amazing person. How could i be so blind? When covid came he left me for another wwoman that he never admitted to and he came back I loved him so i went back and now all the red flags are flaging. He gave me a massive std. Done! Still lieing.

Ooh dear me your not a very nice person bad mouthing folk. Nasty.

The Irwins are frauds. Terri is controlling and cut throat. Bindi is useless, coddled, condescending and spoiled. Robert is arrogant and takes himself too seriously.

I have been tested for 14 years and everything is always negative until last week. I was in severe pain (flare-up) and a P.A. from urgent care actually cared enough to speak to a colleague , another P.A. in Rheumatology, and order tests outside of the usual. Those two ladies discovered the issue. Even before the blood test results, they knew it was rheumatologist condition. The other two rheumatologists prior to this blew me off and just did not believe me. If you don’t have a doctor that cares and is thorough, I feel like you are not going to get answers, and it is not right.

Great interview!

I'm so sorry this happened to you and your daughter, my sincire condolences. 😔 This story hits home, I've been suicidal my entire teen years, and one of the reasons was because I was going through horrible gynecologal issues since the age of 13. I had 3 surgeries from 2015 to 2017, and they didn't know what was the problem. I stopped making future plans, I genuinely thought I'd either die from this illness or kill myself because of it all. I would faint from pain, and only opiates were effective for the level of pain I was experiencing. After my last surgery, laparoscopy, they removed the outbreaks of endometriosis in my pelvis and I was much better, I still had pain, but not as unbearable. On the other hand, the mental struggle was still there. Another reason was because for years nobody believed me, before my first surgery when I was looking for help they said it's normal and would basically suggested that I'm overexaggerating. Now, in 2024 I finally got diagnosed properly, earlier I didn't even get a diagnosis, they just said they removed cysts and that's all. I've gone through years not being able to get a proper diagnosis even through I've gone to 20 doctors easy and they would always say that it's normal and that endometriosis is only happening to women near menopause. Endometriosis was suggested by one doctor who was a private practicioner, but I couldn't afford going there, he recommended a private surgery but it was supposed to cost 15000 PLN (btw I live in Poland, in 2016 in Poland a typical monthly salary was about 3000 PLN). We have national free healthcare here, but it's pretty low quality as you can tell from this story, so you can end up dead after a stay if you're not lucky (or at least this is what the situation was like in 2016 in my small town and then in Wrocław, one of the biggest cities of Poland). Anyway, I had to go to a private doctor who has a doctorate in endometriosis to get a diagnosis after 9 years.

Thank you to all the women who went before us paving the way for awareness, open conversations, and change ❤ Love how she protected her daughter, also.

Hit the nail on the head for me. 😢

This lazy self important whiny princess needs to get a real job.

There are now medical sources that state endometriosis can be diagnosed using pelvic mri scans and/or transvafinal ultrasounds *if* it's stage 4 endo. This also happens to be how I got my diagnosis in December. Keen to hear what her view is on this.

I was recently diagnosed with adenomyosis. The gynecologist told me the definition but didn’t really explain what to expect. I went to the ER earlier this week for stabbing pain in my pelvic area. I was my gynecologist would have told me that the pain comes with the diagnosis. I wouldn’t have wasted my time going to the ER. I even asked the ER doctor twice if it could be related to the adenomyosis and she said no. I get home and research and stabbing knife-life pain is one of the first things that comes up… But just shows the disconnect and lack of education.

'Ae! Very innovative, equitable amd inclusive!

This topic is very worrying once we allow ourselves to think about all the toxins that must be in our cosmetics, household products, candles, clothes etc. The fact that they replace well known toxins with less well known ones that are just as toxic- if not more- makes us feel hopeless 🙁

A billion dollar empire she didn't earn. Loving family and support from around the world. Gets to recover for months while living in a zoo. Still has a loving marriage and beautiful baby. That privileged little princess does not speak for real women in any way.

Thank you so much for this

Please how can I contact you Stacey Bruss

I'd also like to hear a lot more talk about adenomyosis. It isn't being spoken about enough considering how it affects people who live with it.

I agree with her. Our environment and stressful society as well as all of the toxins we're all exposed to and are consuming MUST be contributing to the prevalence of endo and other common issues and auto immune conditions so many of us have these days.

I'm going to be upping my herbal teas to hopefully elleviate my endo symptoms. I also eat ginger and tumeric for anti inflammation almost daily, and have made a couple other diet improvements, so I think herbs are next for me 😊

Great conversation.

I really feel those beginning statements. The guilt is terrible.

Hi from the UK! Thank you for sharing your stories. I’m undiagnosed but have suspected endo. I totally understand what you mean about worrying that it might not be endo and you could be exaggerating, so you wait until it gets really serious 😢

Thank you so much for sharing 💖

I swear it’s painful 😢

The days of missing school😢

You can try barley grass powder juice it can help a lot.

Not my candles!!!

Delays are the problem! I've had it since age 12! I'm Black and STILL NO DIAGNOSIS in my 30s!😢

I have had a hysterectomy to help control symptoms and now I'm trying to also eat right and trying the natural approach I do not have insurance so I'm unable to get the physical therapy thank you so much for your videos

I'm greatful to have found this, I have been diagnosed with andomyosis and I got 2 diagnosis and I am looking to have the hysterectomy, I'm just so done living in pain and I'm young and can't get a surgeon to do the surgery because I'm 37 and can't have children, I also have genetic generalized epilepsy which makes having andomyosis has made my seizures worse than ever. It's been a painful life, I started my cycles at age 9 very young, I tried HRT meds for more than 15 months of bleeding and severe pain, I'm begging for the surgery because I can't handle anymore, nor anymore space inside my body for the swelling and pain. You ladies have helped me not feel so alone, thank you for what you do for advocacy is so important and not talked about often, I had never heard of it before my diagnosis in 2021 and have complained about pain, back, abdomen and legs and severe pain all the time, since my 1st period at age 9.

One counselor helping a Mother from the loss of her young son from an accident finally after several sessions took her to the exact place where the accident happened. He shared , “ She went through the window of acceptance”. She was able to become engaged in her life journey once again. Today is called the “ present” so please enjoy each present.

I have a great dr.. but, i had decided to waller through it without efforts to go back to VA to see Dr's. I have to take bus, which 3 miles can be 3/4s of the day for an hour appointment with no progress. And, the trip costs me the two days of any productivity on top of the trip. I mean, come on, just taking a bath wears me the f out! I wish the best for you ladies! At least you seem to be past the gaslighting from the medical field! Yes, the explanations ! No friends now, stay at home 99.9% of time! You both are superheroes!

I wonder if gets worse as they age, or it wears off.