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Very clearly and nicely explained! Thank you

If I lived in Australia, I would have definitely met Ange in-person. ❤😊😇

Mom does not need to go to the gym at all.

Beautiful Mom, May Allah bless you and your family.❤

I don’t have a child myself but i’ve always benn interested in learning about rare diseases

Now my brother is struggle in 5 yeras laforra if know new technology any surgery tell me plzz help thank you very much

What are dos and don'ts for them

Can metformin work for such patients

try Chinese acupuncture, look for alchemists in the USA or spagyrists, they have the strongest medicines, I think you can try an infusion of fly agaric in grape alcohol, join the true Orthodox Church попробуйте китайское иглоукалывание, поискать алхимиков в США или спагиристов у них сильнейшие лекарства, мне кажется можно попробовать настой мухомора на виноградном спирте, присоединитесь к истинной православной церкви

Chelsea, you have the most incredible mother ever! God bless you both, your families, doctors and friends.

Just put her out of her suffering you freak. Allowing her to keep living with the mind of an infant is sickening.

Best Mom. This is tragic. My chihuahua actually had this disease and died 3 years ago from it.

Im praying for healing for you all in Jesus name.

❤😮

Chelsea's mom, you are an amazing person, I wish you and your daughter all the best !

Precious mama and sister

Precious mama and daughter. Wonderful outlook.

Do you think she knows what's happening? This is so sad😢

Maria tes cheuveux sont manifique quand je tai vue pleurer jai evient te prend dans mes bras jai aussi une sœur en bonne santé jai des handicap je suis sourde autiste pyschique anxiété avec paranoia

I saw some years ago there was some study going on with Medicinal Cannabis to treat neurodegeneration, have there been eny investigation if that could help Lafora Disease? Searching here on youtube for Cannabis neurodegeneration got me Cannabis’ Effects on Aging and Neurodegeneration | LiveTalk | Being Patient by Being Patient Alzheimer's

Mom you are my hero. You've said all the things I believe in but you are living it day in and day out. Deepest admiration. Wow. Beautiful.

Beautiful care from mom. My back hurts watching her. That is all so hard on the back. People need more physical help and respite. There is no way mom can do all this without injuring her own body. Many prayers for you and your family. May you be provided with all that you need.

Grandma used to put a pot of water on the stove to keep the throat moist. I put a cap of pine Sol and iodine in after boiling then clean my skin. It help the thyroid. If that port gets bacteria in it, it cannot take nutrients from her skin and bones.

Great job Momma!!! You are her voice

I spent 8 years with a woman whose daughter suffered severe brain damage at birth and was 100% dependent on others... so similar to your daughter's needs. Severe CP, unable to swallow, non-verbal, tube feeding, personal care, constant suctioning.... always being very nearby her 24/7 to clear her airway of the constant phlegm production. Daytime, evenings, overnight, I learned to care for her daughter and saw first-hand the tremendous needs she had, and what an honor it was to meet those needs. The time and effort it required just to take her daughter out for a walk or a drive... and the reward for that never-ending work was a smile, just a simple smile and some vocalization for some moment of happiness she felt. She's still with us at near 30 years of age now, 23 more than the doctors predicted she would live, and that only due to her mother's unending care, the same level of care I saw you provided her along with a bottomless bucket of love. Her mother went on to become an advocate for children with other-abilities, teaching parents where to find the resources available and how to fight for the services they were entitled to. I understand the physical and emotional weight of what you did for your child... what so many other parents and caregivers of children with these needs do for their child day after day, night after night, month after month... and I just wanted to share my admiration for you. My deepest condolences for your loss....

She is so beautiful, bless her

What happens to her when you are no longer there ?

Were is the father? Did he left them ?

Is there early genetic testing for this in utero?

U need a professional TH-cam thumbnail designer and video SEO expert /?

Such love between a Mom and her girl. So beautiful.

God bless you Mariah. Your weight of spirit is palpable. You so obviously have a huge heart, and I pray God sends you and yours much healing and peace.

God bless you Chelsea, Mama and family, friends. I worked at a developementally disabled live in school, and you Mama are an extraordinary caretaker. God bless you's and breakthrough research. Your Chelsea's a beauty.

Chelsea is a beautiful child. You are a beautiful mom. Praying for you all from Ottawa.

Sending hope hugs and prayers to this beautiful family 🙏 🙏 🙏 🙏 🙏 🙏 🙏

🙏 donated and praying

I can definitely see some of those beautiful moments u have with ur daughter. Thank u for showing with us a glimpse in u and ur daughter's world ❤

Did you know it was la fora when you invited her to the Halloween?

God bless you mom!!! We need more moms like you on this earth!!!❤️❤️❤️

🙏❤️

What you do is amazing. I took care of my mom with RA. Do you receive help other than the Massage therapist every other week? You need rest also. Your a wonderful moma I don't know if I would be that strong.

I have taken care of my father when he had cancer, my grandmother when she was dying, My grandfather, and 12 years my sister and I cared for my mother but I have seen an angel at work here on this video. No let me say that I've seen two angels 😇😇 one who needs help and one who gives it. You have a precious daughter and she has a precious mother. ❤❤❤❤❤❤❤❤❤

Where is the father

You are an amazing mom❤

Where is the husband/dad?????

Please may I ask. Were there no signs before she was 14? And is she aware of what has happened to her? And what is going on around her?

Thank you for sharing this story about your beautiful daughter. I was unaware of Lafora Disease. Thank you also for reminding us to find joy in every day..

I’ve never heard of the disease, thank you for educating us.

May God richly bless you both. You are a warrior mama.❤

I’m so sorry, for Chelsea and her family. If you’re anywhere around Missouri, I’d help her. I’m a licensed manicurist, I could massage her legs and feet. I’m 70, so I have time. Bless you all.