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Casey’s journey as dad, 6.5 years in. (rare disease-CTNNB1 syndrome)

1:29:33

Brook’s journey as dad, 7 years in. (Brain injury at 2 days old)

1:19:45

Andy’s journey as dad with Downsyndrome- 3.5 years in.

1:39:10

Edwin’s Journey as dad (downsyndrome)

1:50:14

Ra’s journey as dad (Autism x2 & ADHD x2)

1:27:19

29- Rob’s journey as dad (autism)

1:27:50

Chris’s journey as dad (Noonan syndrome) 10 years in

Chris is a dad of 3 with Logan who is one of those aged 10. Chris is an amazing ‘dadvocate’ because like me feels that dads in these situations are so quiet and can be forgotten.
We discuss how we both suppressed our grief and trauma which came with understanding what world we now lived in.
He was able to tap into it and realize this, but it took a couple of years.
Childhood leukaemia was another massive hurdle for both him and his wife which brings us on to the topic of ‘shared trauma’ and how it can play out as husband and wife.
This episode is real and raw and how Chris felt and still often feels sometimes.
His empathy is just so powerful and I am sure you will enjoy this episode so much.
Massive thank you to Chris cdrade2384?igshid=MzRlODBiNWFlZA==
Please check out these links about Noonan Syndrome they are very informative and helpful.
drive.google.com/file/d/1oAxxukuzh0Risln0iKOSNICb1wjsHQrg/view
rasopathiesnet.org/wp-content/uploads/2014/01/265_Noonan_Guidelines.pdf
wessland.com/noonansyndrome.htm
Please share it with those who may need to hear two dads talking about their journey with kids with extra needs.

มุมมอง: 26

วีดีโอ

Casey’s journey as dad, 6.5 years in. (rare disease-CTNNB1 syndrome)

1:29:33

Casey’s journey as dad, 6.5 years in. (rare disease-CTNNB1 syndrome)

มุมมอง 41ปีที่แล้ว

Casey Parks shares how it all began with Ford back almost 6 and a half years ago. There were difficulties from day with one Ford, but the doctors seems uninterested. He and his amazing wife Effie Parks, who is a huge rare disease campaigner (effieparks.com/) knew that something was not right with Ford from day 1. Casey talks about how he as dad, husband has dealt with the world he now lives in....

Brook’s journey as dad, 7 years in. (Brain injury at 2 days old)

1:19:45

Brook’s journey as dad, 7 years in. (Brain injury at 2 days old)

มุมมอง 22ปีที่แล้ว

Brook Seal became a dad in his early 20’s which was not long after he lost his own dad. Now at 38, he and his wife sport a family of 5 kids, the most recent is under a month old now. His second youngest is Ziggy who is now 7 suffered a cardiac arrest just 2 days old, which resulted in a serious brain injury. Brook tells me how he got through himself and how he came up with the idea to help the ...

Andy’s journey as dad with Downsyndrome- 3.5 years in.

1:39:10

Andy’s journey as dad with Downsyndrome- 3.5 years in.

มุมมอง 7ปีที่แล้ว

Andy joins me this week from the US. Almost 3.5 years ago Reily became the 3rd member of the family, and 15 mins after her arrival into the world, the doctors were letting Andy and his wife know that she had Down syndrome. Andy is real about he processed that news as he opens up about life. This is real talk about how us dads need to try and maybe open up and just talk to other dads in the wait...

1:50:14

Edwin’s Journey as dad (downsyndrome)

มุมมอง 13ปีที่แล้ว

We are back to the USA this week to hear Edwin share his real journey as dad to Thiago. We talk about how challenging it was, and with how he and his wife found out there was a high possibility their first child would have downsyndrome…. in the carpark outside the hospital. COVID played a big role in the journey and added to the challenges after only just moving to the US from Mexico. Early int...

Ra’s journey as dad (Autism x2 & ADHD x2)

1:27:19

Ra’s journey as dad (Autism x2 & ADHD x2)

มุมมอง 9ปีที่แล้ว

Ra joins us from Melbourne, Australia where you never know what weather you can get on a daily basis, which is often like our lives as dads to kids with special needs. Ra shares his journey with his two boys who have both been diagnosed as autistic with ADHD, the eldest Wyatt 8, and Cole 6. We hear about how the first diagnosis of Wyatt came about and then his brothers and how that looked for R...

1:27:50

29- Rob’s journey as dad (autism)

มุมมอง 14ปีที่แล้ว

Rob shares his journey as dad but it’s different, like most of dads stories are. He talks openly about his own mental health journey and his self admission into the Mental health hospital a few years ago which was a step he originally wasn’t sure if it would do anything. Well it did, and he talks about it here. Rob shares his experience and how he deals with life as dad and how the gym and medi...

1:51:10

28- Chris’s Journey as dad

มุมมอง 16ปีที่แล้ว

Kicking off as the shows first dad of 2023, is Chris. Twenty seven months in to being dad to Bodhi, Chris shares his road this far. From when they got the pre birth diagnosis of downsyndrome, Chris read a ton of books (along with his wife), and talked to friends and friends of friends about how downsyndrome is. This ultimately allows them to decide to go forward, and not terminate. It’s a decis...

24:00

27- The 2022 wrap up

มุมมอง 12ปีที่แล้ว

Fb link Life-with-Jamie-and-more-109864615101532/ Instagram life_with_jamie_and_more?igshid=YmMyMTA2M2Y= Spotify open.spotify.com/show/5VnyJi1kjGhrdcZikEmtTO?si=BBoxr9BgQkitm6KIwiPioA Main anchor anchor.fm/lifewithjamieandmoreinjapan Amazon music.amazon.co.jp/podcasts/0a66f019-7655-4110-af3e-9d61da713953/life-with-jamie-and-more?ref=dm_sh_1DnyMzByKC1vjJ5Z0hMiOGeJI App...

2:03:18

26- Frankie’s journey as dad.

มุมมอง 201ปีที่แล้ว

Frankie and I have a few things in common. One of these is it took him 11 years to realize he needed to take care of himself mentally and physically. Like so many of us dads, we are so in the zone of being the caregiver/caretaker of our special needs children, that we can’t even see what damage we do to ourselves. Frankie recently arrived at the acceptance phase of Nico’s diagnosis of Dravet Sy...

1:48:31

Episode 25 -Mike’s journey as dad.

มุมมอง 14ปีที่แล้ว

About 6 months ago they got Jacks diagnosis, and all the mile stone talk prior to that, well just went out the window and this made things tough and tricky for Mike. After I reached out to him, he heard me talk about the poem ‘Welcome to Holland’ which has allowed him to see where they are and give some perspective of mental processing of it all. Faith has been a big part of Mikes life and he’s...

1:42:27

Episode 24- Joe’s journey as dad

มุมมอง 28ปีที่แล้ว

met Joe over 20 years ago in London and he remained a true friend and mate over the years, and to hear him talk about challenges he faced and still faces as dad to 7 children by 4 women, it definitely comes with regrets, reflection and ownership of what has happened. We get into a talk about ‘the bubble’ we find ourselves in, it’s a new analogy which I have used which is fun to think about. He ...

Life with Jamie and more -Episode 21- Adam’s Journey.

2:05:39

Life with Jamie and more -Episode 21- Adam’s Journey.

มุมมอง 53ปีที่แล้ว

Adam joins me to tell me about his journey becoming a dad to his child with extra needs. I heard Adam on the podcast ‘Once upon a gene’ open.spotify.com/episode/2WlydzeiQRVsusEuJxYOu2?si=Vw1MN61gQc-1PDGDhCPMYg and I decided I would like to talk with him about his ‘dad story’. Adam and I start chatting away about life in general, and a few real world challenges like trying to be the dad/caregive...

20. Carl -I just want the kids to be liked

1:31:08

20. Carl -I just want the kids to be liked

มุมมอง 23ปีที่แล้ว

Carl and his wife adopted 2 Down syndrome kids a few years ago. Both are just under 10 now. It’s been a real ride and it’s only just getting started. He talks about his frustrations in how he can’t really do much when the kids come back with bruises here and there. With kids who are non verbal, we feel we should or need to do more in this situation. Sometimes we just can’t. He really likes and ...