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Sail For Epilepsy
United States
เข้าร่วมเมื่อ 19 ส.ค. 2020
Philip Haydon is a neuroscientist with medically controlled post-traumatic epilepsy. He and the Sail For Epilepsy team are on a mission to sail the ocean's of the world to raise awareness of epilepsy. Sail For Epilepsy's goals are to:
• inspire people with epilepsy
• promote awareness of epilepsy and educate the public
• raise funds to support research for a cure
The voyages are about more than sailing. We will make landfall during the project to engage with local epilepsy communities and interact live with our Virtual Shipmates while we sail. Our hope is that this voyage will inspire people with epilepsy, their families, and their caregivers to ask themselves, are you able to do something to improve your quality of life? Can you take one extra step to do something you haven’t done before, with the necessary guardrails in place?
• inspire people with epilepsy
• promote awareness of epilepsy and educate the public
• raise funds to support research for a cure
The voyages are about more than sailing. We will make landfall during the project to engage with local epilepsy communities and interact live with our Virtual Shipmates while we sail. Our hope is that this voyage will inspire people with epilepsy, their families, and their caregivers to ask themselves, are you able to do something to improve your quality of life? Can you take one extra step to do something you haven’t done before, with the necessary guardrails in place?
Virtual Shipmate: Judi Bruns
During this year's Sail for Hope, we're sailing for Virtual Shipmate Judi Bruns, from Aspen, CO. She has set several goals as part of her One More Step Challenge:
- Continue my Ski Instructing career
- Setting a goal to ski Highland Bowl within a few years
- Get past my self-consciousness about seizures, and help others learn more about epilepsy.
We applaud Judi for these goals and look forward to sharing a future video of her skiing the Bowl!
➥ Visit www.sailforepilepsy.org for more information
🔔 Click to subscribe to our channel: bit.ly/3OGkb3F
🙌 Support our mission: bit.ly/3H37bn7
- Continue my Ski Instructing career
- Setting a goal to ski Highland Bowl within a few years
- Get past my self-consciousness about seizures, and help others learn more about epilepsy.
We applaud Judi for these goals and look forward to sharing a future video of her skiing the Bowl!
➥ Visit www.sailforepilepsy.org for more information
🔔 Click to subscribe to our channel: bit.ly/3OGkb3F
🙌 Support our mission: bit.ly/3H37bn7
มุมมอง: 14
วีดีโอ
Fearless Sails to Victory in Newport Bermuda Race
มุมมอง 1222 หลายเดือนก่อน
On Tuesday June 25th, at 05:43 in the morning, Phil Haydon and co-skipper Alex Kraebel crossed the finish line of the @bermudarace. They sailed Fearless, a Jeanneau Sunfast 3300, for 663 nautical miles from Newport, RI to Bermuda, with a corrected time of 3 days 4 hours 22 minutes and 47 seconds to win their class and the overall double-handed division by a mere 4 minutes and 11 seconds. Learn ...
Virtual Shipmate: Sean McPartland
มุมมอง 172 หลายเดือนก่อน
Congratulations to our Virtual Shipmate Sean McPartland, who recently completed a full circumnavigation of the globe with the @ClipperRTW. We caught up with Sean during his port stop in Seattle, asking him what he'd like to tell others who have epilepsy: "Epilepsy might stop one or two things, but it's not what you can't do, it's what you CAN do. And, you know, you can achieve so many things if...
Moments from the Newport Bermuda Race
มุมมอง 323 หลายเดือนก่อน
Some of the moments that resulted in our first place finish in the double-handed division of this year's @bermudarace ➥ Visit www.sailforepilepsy.org for more information 🔔 Click to subscribe to our channel: bit.ly/3OGkb3F 🙌 Support our mission: bit.ly/3H37bn7
Virtual Shipmate: Remington
มุมมอง 133 หลายเดือนก่อน
Today, Phil is sailing for Virtual Shipmate Remington, from Martinsville, Indiana. His One More Step towards living a fuller life is playing sports and chasing his dream of becoming a real estate agent. We applaud you for these efforts and would live to hear your answers to the questions Phil asks in the video! Thanks for joining us on this journey. ➥ Visit www.sailforepilepsy.org for more info...
The Scientist and the Sailor
มุมมอง 1333 หลายเดือนก่อน
A glimpse into the friendship and respect between Phil and his co-skipper, Joe "Coop" Cooper, for the Bermuda Short-Handed Return Race. Coop is an advisor to Sail For Epilepsy, an experienced sailor, a coach, and recently served in the role of Fleet Communications for the @bermudarace. ➥ Visit www.sailforepilepsy.org for more information 🔔 Click to subscribe to our channel: bit.ly/3OGkb3F 🙌 Sup...
Virtual Shipmate: Heather Crane
มุมมอง 1074 หลายเดือนก่อน
Yesterday Phil was sailing for Virtual Shipmate Heather Crane, who has accepted the One More Step Challenge (www.sailforepilepsy.org/join-one-more-step-challenge/shipmates/), choosing to do something to live a fuller life. She loves to cook but has been nervous about it since developing myoclonus (a sudden involuntary muscle jerk, shake, or spasm). However, she has signed up for a cooking class...
Our Mission for the Newport Bermuda Race
มุมมอง 7374 หลายเดือนก่อน
Phil is entering the Newport Bermuda Race (@bermudarace) not only to compete, but also to engage with a community of people effected by epilepsy. Instead of focusing on ways your disability might hold you back, strive to live the fullest life possible, with any necessary safety measures in place. Our race is dedicated to Virtual Shipmate West Tarricone (2007 - 2024). ➥ Visit www.sailforepilepsy...
Overnight Sail Training
มุมมอง 1654 หลายเดือนก่อน
Last big training day before the @bermudarace! Last weekend Phil and Alex sailed 120 nautical miles to practice sail changes, test all the systems on board and work on their sleep schedules. ➥ Visit www.sailforepilepsy.org for more information 🔔 Click to subscribe to our channel: bit.ly/3OGkb3F 🙌 Support our mission: bit.ly/3H37bn7 @North_Sails @JeanneauOfficiel @JeanneauAmerica @NeboatworksInc...
A Race to the Start Line
มุมมอง 815 หลายเดือนก่อน
Just getting to the start line is a race in itself. Our thanks to the teams at Safe Harbor New England Boatworks (@NeboatworksInc), North Sails (@North_Sails, Harken (@harken), and Kingdom Marine for their efforts this winter and last week to get Fearless launched and ready for the sailing season. We'll be training for the next month in the lead up to the Newport Bermuda Race (@bermudarace), on...
Winter Project: Mast Track Upgrade
มุมมอง 1046 หลายเดือนก่อน
After experiencing an equipment failure that hampered performance during the 2023 Bermuda 1-2, we decided to implement an upgrade to the mast track aboard Fearless. This winter we installed a @harken track and sliders that removes the need for a mast gate (which had covered the slot that our old sliders fed into on the mast). We're about two months away from the start of the @bermudarace and we...
Repacking & Re-arming My Life Vest
มุมมอง 537 หลายเดือนก่อน
A key piece of safety equipment aboard any boat is a life vest. Those we use at Sail For Epilepsy auto-inflate when submerged in water - here's how I recently re-armed it after testing it out. ➥ Visit www.sailforepilepsy.org for more information 🔔 Click to subscribe to our channel: bit.ly/3OGkb3F 🙌 Support our mission: bit.ly/3H37bn7
Join the One More Step Challenge
มุมมอง 21010 หลายเดือนก่อน
Would you like to come aboard with us as we sail the oceans of the world? Join the One More Step Challenge to become a Virtual Shipmate! We’ll add your name to our boat so you can join us as we sail. www.sailforepilepsy.org/join-one-more-step-challenge/ Phil Haydon has not let post-traumatic epilepsy prevent him from living a full life. He is fortunate that his seizures have been controlled fo...
Sail For Epilepsy, Final Training Day 2023
มุมมอง 5211 หลายเดือนก่อน
Phil and co-skipper Alex spend one last day out on the water for the 2023 training season. With their sights set on the Newport Bermuda Race on June 21, 2024, after a series of winter projects, training will begin again in April. ➥ Visit www.sailforepilepsy.org for more information 🔔 Click to subscribe to our channel: bit.ly/3OGkb3F 🙌 Support our mission: bit.ly/3H37bn7 @North_Sails @JeanneauOf...
Sail for Hope 2023: Live Start!
มุมมอง 41ปีที่แล้ว
On September 30, 2023, Phil and Alex started the Sail For Hope race in Newport RI, sailing double-handed aboard Fearless, the Sunfast 3300 that is being used by Sail For Epilepsy. Watch the excitement of a start and active first 30 minutes of a race! ➥ Visit www.sailforepilepsy.org for more information 🔔 Click to subscribe to our channel: bit.ly/3OGkb3F 🙌 Support our mission: bit.ly/3H37bn7
Emotional Strategies While Sailing Offshore
มุมมอง 11ปีที่แล้ว
Emotional Strategies While Sailing Offshore
Atlantic Crossing Adventure: May 15 - June 25, 2022
มุมมอง 862 ปีที่แล้ว
Atlantic Crossing Adventure: May 15 - June 25, 2022
That’s amazing Judi. I stopped skiing when I was 15 out of fear…I hope that one day I can regain some confidence. 😊
Yaaa!! Fantastic!! 🎉
Phil - Nice to meet you and your team at RBYC and big thanks to Joe Cooper for his excellent summary of your program. Congrats on the win and continued good luck. I’ll be following! Andy from SKADI
We'll pass along your well wishes to the guys as they race home!
How did you and followed the dancing bear in the race
It’s my current battle with epilepsy, I get panic attacks all the time just because I’m alone somewhere. Learning to combat it but it’s hard.
Your page means more than you would know.
Thanks for these videos. What life jackets do you guys use?
We like the Spinlock Deckvest Vito, with tether.
very nice!
Very cool. Nice to see that the journey and mission are going well.
Your project is going great! We will be in Seattle in August for a couple of days. Would love to see you guys! Phil
Such an inspirational and heartwarming interview!
And Greg?
Thank you for this. I actually always wanted to know how they do this…especially for long journeys. :) All the best.
A Message from Phil: I am glad that you found it helpful. I have been really surprised how simple the process.
I’m planning a shore party here, 1300, 6 July. Happy sailing until then.
Hi Phil, Thank you for the message from the middle of the Atlantic. I was due to do my Level 2 training later this week but it has been cancelled last minute and reoganised for the end of August. The main training I am doing is more fitness approached. Thank you for thinking I am 31 which I wish I was but I am actually 51. Keep up the good work and may you have fair winds and following Seas. Sean
God Bless all of you and safe travels for epilepsy awareness. 🙏💕🥰🏝
really good to see content like this i just recently got diagnosed with epilepsy as i had a tonic clonic seizure just over a month ago and am on anti seizure meds as of now so, so far so good but my dream job was to be a pilot but it is kind of off the table now with my recent diagnosis but sailing or working on a boat has always been a another dream of mine really hoping i can do something like this in the future.
There are so many similarities.Though I didnt want to be a pilot a a profession I did want to learn to pilot a plane. But, clearly that was out. Then I slowly looked for other dreams. When I was young I used to do white water kayaking. After my head injury I felt that was too dangerous. But I love being on the water. So eventually I decided to learn to sail and got hooked. Keep being positive and you will find something that fits.
@@Fearless-sailing thanks! Looking forward to it