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Did anyone have them in the thoracic area

This video just gave me so much hope. My body shuts down at times from the,Tarlov Cysts. It was so hard to watch in the beginning but im glad I finished it. Gives ne hope that one day I to will be able to do some of the same things again.❤🙏🏾

Me das esperanza 😢

I got into a car accident in the summer and I just did mri and they found a few tarlov cysts in my s2 and s3 and I’m so scared

So happy for you!

I was just diagnosed with a Tarlov cyst and saw this journey you have shared. I noticed that this was almost a decade ago and hope that you will share an update on how you are doing.

Wow, what a story! Glory to God!

Great story, I hope she is still doing well. Thanks TH-cam for the transcript, the dialogue has been obliterated by unnecessary piano.

Hi does spine anesthesia could cause Tarlov Cyst to grow or worsen? Should I avoid Spine Anesthesia?

Does tarlov cyst always have to be operated/removed by surgery?

Sir rabies virus dies how much time in open air

can you please tell us how you doing now

🥺😢🥺 i have also tarlov cysts and i am fucking scared 😭😭😭

Hi, I have just stumbled upon your video and it is the only time I have come across anyone with the same symptoms as I am experiencing in the last 18 months researching!!! I have constant, sever pain in my lower back and legs and this is exactly how I ‘walk’ now, however I can stop the shaking/tremors for short periods of time by bending at the waist....I would love to know if this was your case as well?? My journey has been just awful and I am up to my 8th specialist trying to get an answer to what is happening to me. My MRIs show I have Tarlov Cysts on S2....I am in horrible pain every minute of the day, not able to stand for more than 5 minutes or so before my lower back feels like it will explode, terrible headaches if I move too much and walk exactly like this. No specialist I have seen will even consider the Tarlov Cysts are the cause of my issues, in fact, basically belittle me and make me feel stupid for even raising the question....even though no one can give me an alternative diagnosis. I have had 7 different joint injections up and down my spine and the only thing that has done for me is increase pain levels significantly for weeks at a time. I live in Adelaide, Australia and am at a loss as to where to go or what to try next. I am so very happy that you have found someone to help you and you have your life back....my heart goes out to you for all you have been through xx

I will have to look into then to see what the know about Tarlov Cysts.

How large were your cysts?

Great video but I can't hear her because of the loud music

MRI showed I have two. I have lots of pain. dr. did not tell me that those could cause my pain. 20 yrs. later, still hurting.

Wish we could hear what was being said. Music was way too loud.

Had surgery a few weeks ago. Walking better each day. Now to be rid of pudendal nerve issues I I’d feel back to normal. Praying this issue gets healed and isn’t permanent with me. This video is what gave me hope and courage to see Dr Feigenbaum and fly out to Texas for surgery. So happy to see this beautiful girl recover from all this! Praying i follow her the same way. 🤗❤️🙏

Turn the music down. Couldn’t hear you.

Great recovery, but the music is so loud it's hard to hear!

This scares the crap outta me. I just had an MRI report saying I have a 1cm bilobed perineural cyst (tarlov) and told it is not what is causing my pain, numbness, sciatica etc. I can barely sit more than 15 mins in a certain position and always feel like I am sitting on a pebble or like something in the way where the pain is and then the MRI showed the cyst. Yet I been told nobody in canada operates on these and they are very common and its not what is causing my pain. So instead I'm just being sent to a pain clinic for pain management. Any help or information you can offer would be greatly appreciated. I can no longer work due to the pain and medical employment insurance is about to run out. I am running short on time and answers. Your journey scares me yet has inspired me to reach out, I don't want this to progress into something much worse. I can be reached by email at lljeffrey at yahoo dot ca

So great to see positive outcome

Praise Jesus!! I just saw your video of your journey and must say Thank Jesus, Dr's and you. You are a miracle. Never underestimate the power of god. Keep it up sweety. I'm a former EMT- PARAMEDIC and i no longer work i fell from 5 ft off the ground on a deck. I weighted 135 lbs at the time. It had rained 4 daus straight and the 8 steps up my deck had only be secured to the deck with 2 screws so i made one step one them and the came loose i landed, on top of them on our concrete patio. At the hospital mri's showed. Bilateral pars defect of L-5 and also S-1 with sciatica. Also my spine is extremely thin and i have osteoporosis, and Neuropathy. As well as perifeal nerve damage. They need to operate but I'm still waiting for i have COPD w/emphysema and I'm 53 yrs old. But i keep my faith for i know jesus loves me and he will take care of me in his pwm time. So pleade take care of your self and your body because getting old is a pain in the rear. God bless.

Can I help to me

I had this surgery in September of 2012 with Dr. Feigenbaum. I couldn't get out of bed before the surgery. Afterwards I was able to get out of bed. I babysit my granddaughter every day, which I wouldn't of been able to do without the surgery. It was a life saver. I still have pain, but nothing like it was before.

I don't know how I came upon this but I'm glad I did! I'm so happy to see you recovered, I pray you are still doing well. I've been disabled 16 years, a car accident, so my story is different but alike in some ways. Like you, I try so hard to stay positive and I know I always will ( or I'd like to think I will anyway, lol). I admire you for staying so strong and upbeat through everything you went through. I know there is not a chance I will ever walk again but it brought me so much happiness (and many tears) to watch this and see you regain your ability to live life walking again! I wish you the best of luck! God Bless!!

last year I had a MRI done on my lower back. it found a tarlov cyst in the sacrum. I have a disk that is obliterated. 3 more that have degenerative disk diese. and bone spurs. no doctor want to touch my back at all. I am 45 I have had to endure pain since I was 13. there are times I fall down. because I get shooting pains in my legs that cause me to fall. I can hope one day I can be pain free.

last year I had a MRI done on my lower back. it found a tarlov cyst in the sacrum. I have a disk that is obliterated. 3 more that have degenerative disk diese. and bone spurs. no doctor want to touch my back at all. I am 45 I have had to endure pain since I was 13. there are times I fall down. because I get shooting pains in my legs that cause me to fall. I can hope one day I can be pain free.

Wow, so inspirational!! Having gone through several life threatening health issues over the last few years myself, I see life totally differently, there's a reason I'm still here. I had a stroke in 2014 I was 35, and in December I had a heart attack at 36!! But like you....I've never stopped smiling. Must be something in our name!! Lol. So glad to see you're life and health back on track. KEEP SMILING! X 👩🏼

Thanks for sharing..Wishing you well ! This gives me Hope and knowing Tarlov are causing my weakness,pain and tremors.Also show people who does not understand ,what it is like to live life.

Dr. Feigenbaum did his miracle surgery on my brother several years ago. I truly believe he saved his life. Thank you Dr. Feigenbaum!!!!!!

Oh wow. I have a large Tarlov cyst on my sacrum that's eroded the bone. Is the recovery this difficult for everyone? I'm scared.

Katherin Gibbs was in my math class!!! crazy stumbling upon this. Your awesome dude and so happy to see you recover. Mr. johnson!!!

You are an inspiration to me. I've been living with this for years; undiagnosed for so long. Hoping to have surgery performed by Dr. Feigenbaum some day! You were in the hands of a miracle worker. Bless....

May god continue to bless you and keep you from harmsway!!!

Aloha little sistah! ;-) I'm SO glad to see you are well! I've been disabled for 15 years. I was told the large tarlov cyst (takes up entire sacral canal) wasn't the cause of my pain and lack of mobility, but because of my sporting accident's failed back surgery... yet here I am 15 years later (I am now bedridden). Noone wants to even consider the tarlov cyst as a culprit. I was also told that if they removed it, that it would just grow back. Is this possible with yours? I m SO tired of pain meds! I want my life back.

Thanks Stacy, that's what I'm doing... Getting all the MRI's & notes to send. But I am very curious to know how large yours were when discovered? How long was it when your tremors started? I'm trying to understand more & prepare ourselves. My daughters is rather large & she is really tiny, barely 5' & 100 lbs. she's starting to have more & more problems & bad days. Since you are young as well & was hoping you may be able to share with me how it all started & & what other things you have had to deal with? I am sure this is difficult to talk about & I'm so sorry you are going through this. Im reaching out to you because you are so young, like my daughter & I believe you could help us, understand, prepare, etc. I look forward to hearing from you & will pray for you & a successful surgery. Do you have a date yet for that? I believe things happen for a reason & I want to thank you from the bottom of my heart for responding & sharing. You can private email me also at letsbetoxicfree@gmail.com Hugs, Ann

My 14 year old daughter has a very large Tarlov Cyst in her Sacrum. Her tailbone is backwards, she has delt with stomach & pelvic pain for many years, she can't sit, can't walk or stand for long, sometimes hardly make it the bathroom, foot problems & pain, arm & shoulder pain & numbness and her back pain is increasing to where she can't sleep. We go have several doctors who are trying to help & send her to a neurosurgeon or neurologist but Not One will see us or even speak to me about her. They say it's not causing her symptoms & or it's non operable so there is no reason to see or talk to us! I can't believe this! And the other docs know it's bad but don't know who can help. She is very active but it's starting to affect her daily life more & more. You are the first young person I have hear of or seen with the TC and I thank you so much for sharing your story! I'm single mom & trying everything I can to help her. I'm so worried of the potential damage this can do & her future. I was wondering if you may be willing to share with me a little more about you, how you found yours, symptoms, doctors, etc.? I have been researching the dr who did your surgery & so far he seems wonderful! I'm so disgusted with how so many doctors are blowing this off & leaving patients to deal with this. Sorry for the Long comment... I hope you are still feeling well & are TC free! Annie

Wow you give me hope thank you I have tarlov cysts disease in my spine and pelvis eroding my sacrum bone and nerves in my spine.

What were your beginning symptons?id your tremors subside after surgery? Was it the tarlov cysts giving you the tremors and weakness? Wow what an improvement:)