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....ive had crohns disease since 2011 from the age of 17....couple of years later my older brother was diagnosed with it.. he went through what you did....it changes you....and im not doing so good now....but its all for the good❤📖🔎⏳🌊🕊💐🌹.

Your pictures are crooked

Finally I found someone with sound advice

My brothers about to have a stoma bag due to a perforated bowel - do you suggest anything for myself and my family to do to help him get through the first initial time during healing etc Thanks for your video it was so helpful for me 😊

It wasn't wrong, you just would need to start drinking wormwood tea.

Do you not use PEG powered softener? You can take it twice a day till you have movement

Once again Thank You! How are you doing now?

Thank you for posting this video! My husband is getting a diverting iliostomy in 2 weeks. It's so helpful to know what to expect and what to eat after sergery.

What do u do for pain after reversal clostomy which medicine u taking.also having pain after passing stool area

This is spot on. I drink loads of fluids normally. 4-6 l per day. A hot pad on my tummy helps too. 6 to 10k steps per day help me feel better. A bag will stay on in the pool or tub. Woofing down food is my big failure.

Excellent video.

Well done ❤️ the stoma community are a wonderful bunch. Much love to you (and anyone else that reads this) 👍🏻 xx

Thank you for sharing this! Hope you are doing well!

Your videos have been so helpful! It would be great to see an update on how you’re getting on now. I’m an IBD sufferer in a bad flare. Trying to mentally prepare myself in case surgery is the next option for me. Your videos have given me hope!

really appreciate these kind of videos my boyfriend might be having an ileostomy due to his crohn's and its really helpful to see what the recovery process is like :)

Honey! You can do it! I have had my ileostomy for 36 years! Go slow….you need to understand what you can and cannot eat…what physical things you can and cannot do…I can help you if you need me…oh, and…sleep on your back not on your sides…let your new abdominal friends play nice. It took me about 6 weeks until I could roll over. All the little things will help you so very much. I can help you if you would like…also, in time, I used pediatric supplies. They are much more discrete than the popular supplies. Convatec is superior to other supplies.

Thanks bud

ulcerative colitis bile malabsorption possible ibs and deification disorder. Life has been impossible for the last few years. cant leave the house for the last two years. just on the waiting list for colon removal and ileostomy. hoping to get some normal life back if i can thanks for your videos

Excellent video and tips thanks

Tom…I wish you all the best. My intestines burst when I was 22. I will be 58 soon. I hope you can have the success that I have. I will strongly recommend you be very careful on your level of physical abdominal activity…your abdominal wall will be very weak and will be compromised easily…I have had 5 peristomal hernias. They don’t know how to fix me. I am not long for this world. Please do everything you can to stay healthy. I wish you all the best, Tom

Thk u!

Thk u so much

Thanks for sharing. I’ve been symptomatic for the past two years over every single day going over 9 times a day. Trying multiple drugs. Got a surgery consultation next week I think my only option seems to be a stoma just hoping it will get my life back

You are gorgeous ❤

What can you eat I'm finding it Very hard

Just remember to chew, chew, chew your food. Make sure no lumps are going down.

Most excellent videos. Really helpful. Thanks very much for sharing your experience. I wish that you'd post more, but I hope that it means you are fully back to an active rich life. I'm 2 weeks post surgery. So your story really lifts me up. I'm much older than you are, but was quite active prior to the illness and surgery. takeCare.

Thank you for this dude, my father is healing ATM this is really helpful xx legend

Hello Tom, thank you for the helpful video. I may be having this surgery sooner than later. Did you continue meds after the surgery? I hate to go through surgery and still have all the immunocompromised concerns. Argh! Thanks for the physio ostomy recommendation. I like to stay active but I’m a lousy athlete 😂

Thank you for sharing. Admire your mindset so much.

Love the videos Tom very helpful, I hope your still recovering well . I have Crohn's and had to have ileostomy surgery 3 weeks ago as the drugs wasn't working on me and I was losing too much weight I'm 6'1 and was 60kg before surgery I lost around 20kg in the last 6 months, I'm home now I still have pains but tobe expected after a 8 hour surgery, when did you start to feel "normal" pain free ? Also it would be really good if you done another video of life 1 year after surgery, a video of things that your done with your stoma 👍🏻

Hi Tom, thanks for this video - excellent to get a first hand honest account of dos and don'ts post surgery. Have my laparoscopic colostomy next week and this advise is invaluable. Just wondering if there were any specific core exercises which you found really helpful? Thanks again!

Im having a subtotal colectomy on monday and im really worried about it all but its my only option now im hoping it all goes well

Hey Tom, very nice to see you well recovered. As a surgeon I think these videos are very helpful and interesting. It'd be nice to contact you to use these videos in a more professional and educational setting. Thanks

Thanks for sharing what was your medical condition?

Just had my surgery 8 weeks ago was living on peanutbutter and toast for 5 months as well I hope you make more videos and your doing well

Thanks for making this, I’m 2 months post surgery and am struggling to get back to activities. I’ll look into your Pilates recommendation. Thanks again!

glad you're back, i had my surgery on the 11th of jan and your vids have definitely helped me a lot because its the experience of someone similar to me. i'm young (21) and although i'm overweight due to prednisolone i would say i'm relatively healthy. i was wondering how was your experience before surgery? i had ulcerative colitis for 4 years and i know you had crohns and i'm aware both conditions are similar but its interesting to hear other people's experiences (if that's ok of course, i understand if you wouldn't want to) because for me the stoma has been absolutely incredible, i can actually go out now and not stress 24/7 about where the nearest toilet is, the recovery isn't easy but simply the fact i can go into town or take my girlfriend for a valentines meal or whatever has changed my life. if anyone is reading this comment unsure about stoma surgery i would say go for it! especially if you're like i was and stuck on a never ending cycle of prednisolone-> trying new medication that doesn't work -> prednisolone

How long were you taking pain medication for post surgery? I'm a few days post surgery and still using a few every day.

Thank you so much! I was just finally diagnosed with Crohn’s and I want to be as careful as I can

Thanks for advice I’m long term Crohns suffer and had ileostomy for long time. I’m still learning what not to have that stir flares 😊

Your videos are super informative! I do not have an ostomy, I have been fortunate in my Crohn’s journey this far, but i feel like there’s so much stigma around stomas that I’ve not gotten a lot of information on what it’s actually like. Your videos make the possibility of an ostomy much less daunting.

What a great video, I have my three year anniversary of my ostomy this week, I wish I had, had these videos when I was looking then. Well done, and a bit jelly about the key, we do not have keys like that in Canada, and yes handicap washrooms are brilliant when you need them!...Cheers.

Im waiting for surgery and this is super helpful. Im a "bit" scared about this procedure, but you have cleared up some things and given me some hope! Thanks mate!

wow good for you man dealing with all that and making a youtube video on top of all that. Your tenacity is impressive

Another great video. Do you have the link to that powerlifting guy's video?

Really awesome you're doing this. I have a friend who might be going through this soon, and he has a lot of questions about this process. Thank you thank you thank you

I got stoma surgery last week and have been feeling very down and hopeless. Finding your channel has been extremely helpful and has given me some life again. Thank you.

Thank you for posting your journey very helpful

Honestly, I hope your bed-mates are doing okay after those weird occurrences