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I moved to Brivaracetam and much better and now moving to lacosamide and they say at hospital I will feel so much better again. I would say do not go down Keppra although seems to be default in hospital.

Doesn’t seem to work for my patient.

I had what they call "Keppra Rage" when I started taking it. I was adamant I was the saviour of the world and that I would take my own life if no one listened to me. Of course, my family were terrified of my sudden changes, but my mother has experience in this field and advised my neurologist to stop taking it. After I recovered, it severely affected my trust in medication. Six years and four medicines later, I've been diagnosed with the drug-resistant type, but I still take medication, and I continue to worry if anything I say, think, or do is me or the medicine.

Glad to see this video. Thanks

I'm glad you made this video.

im on keppra (1500 mg) and when u first started i got so angry so quick but now im at the point where im about to be off of it maybe the end of the year, thanks for sharing !

When I was on Keppra I was really angry

To anyone who has really bad side effects, try out B6. It cures most of the side effects of the drug and helps to boost the mood into good

I think I am becoming everything you are saying. Not able to remember, getting dizzy, stupid, not able to talk. But I can say my feet were numb and they are a little better.

I'm experiencing the inability to remember names, words, concentrate, etc at 300mg. Now that I've had my VNS device for 3 months, I want to start decreasing

Damn i really don't want to try rns implant now

Keppra has been awful for me I can't wait to get off this medication. I wish I stayed on dival proate (depakote) I talked slow but, I felt normal. I'm always angry, dizzy and sleepy on keppra

Keppra worked for me for 5 years then i had a break through seizure 😭 i had extreme rage, mood swings, anxiety, depression, weird brain tingles, ruined my labido.. Tappering down my dose of keppra and added my old medication valproic acid 🤞🏼 i get seizure free years ahead. 💪🏼💜

Good for you! Stay blessed!

Will go up to 2x 200 after having tried a bunch. Last one cenobamate (ontozry) still gave me seizures. Used to be able to drive a car for 20 years until a year ago partial focal seizures came back. Thanks for your insight.

it gave me anger problems ... it was hard to get off of , withdrawals were serious .... and let me tell you brother as a former heroin addict the withdrawals felt the same

I hope you are doing okay with your epilepsy. My brother was an alcoholic for a long time. He did not want any help to stop drinking. He was binge drinking and did not get his alcohol as much one day. I found him having a seizure at his house. Since then, he has had another episode where he had to go to the hospital. He is on the Phenobarbital and Keppra. He stays so sleepy. I want him to get adjusted to the medicine, but I don't want the seizures coming back. He is 62 years old. It really worries me. He was doing better, but then he had this last bunch of seizures. That really made it worse. When they were weaning him off the Phenobarbital, it made him have more seizures. I don't think he will be able to stop taking Phenobarbital. I just hope he can get back to talking to us with more sense. Sometimes he can make sense. Then, he can say stuff way out there. You seem to be doing pretty good. I wish everyone with these seizures could get well. My brother is not walking so much now. I hope that he can get better. I enjoy hearing about your medicine and how you are doing with the seizures and medicine.

Why did you need to be on the medication for so long? Were other treatments like radiosurgery or brain surgery not an option for curing your seizures?

I love you Harry. Love, Will

I have epilepsy mine is luckily controlled but I was worried today bc one of my triggers is pain

I’m new to this medicine and seizures in general, I’m prescribed the 20mg . I have a question , do you take a breath through your nose with it or tilt head back? I’ve used mine once but not sure I did it correctly. Any help or feed back is greatly appreciated thank you!

Love ya harry

What side effects did you have when you come off?

Thank you for sharing your experience….Takes a brave person to do that. I wish you the best of luck and or divine intervention on your recovery and future health longevity. Great Video…. Nicely Done ✅

Congratulations. Im happy for you brother. How were you able to get off ?

So, I'm considering this and am curious about a couple things. Do you get to look at and keep the data that the "wand" records and transfers? What about the settings of it that your doctor tweaks. I'm kinda worried that if I stay with one doctor until after getting it, but then change to another after a while... can I keep all the previous data for myself or have some way to give it to a new doctor?

I had my death planned out on Keppra , horrible for me. I am on its sister now called Briviact. Less side effects. Thinking of changing to Lamictal due to cost

What alternative did they give you? Taking this for me is like flipping a coin.. makes me feel strong negative emotions. Worth it overall for sure but still man. Damn. Just give me my Goddamn clonazepam you fake doctors. I'm tired of having to take garbage. I don't care if clonazepam is addictive. If I need I need it. That's all there is to it. Sometimes people need shit

New on this and huge side effects. Weakness all over dizzy tired

I just had my first ever seizure on a live stream on TH-cam

Long walks help resolve keto flu

I have 4 days without sleep its horrible

Aw, that's awesome that your pup detects your seizures! I don't think my cats care either way, lol!

I hate it so much

Currently, I take 750mg( 2 times daily). They have done tests and don't know where these seizures are coming from. Since I've been on keppra, I've had slight side effects but NOT NONE. It's the main reason I choose not to drive :/ .

So brave to share this vulnerability. Hope this brain taser and the bickering team get their shit together for you.

been on it for 16 years and got diagnosed with bipolar in 2020, pretty sure i don’t have bipolar but am experiencing extreme side effects. i’m hoping to get off of it and switch to medical marijuana soon.

ive had refractory epilepsy my whole life and I'm finally trying epidiolex at 22 I'm both nervous and excited

I was on it for a month or so… I couldnt eat on it and i got down to about 120lbs as an adult male. I also lost all of my sex drive, i was single during that time but even during that time i noticed “i havent jacked off in weeks”😂 i didn’t until i got onto a new drug and like i said it was about a month and a half later.

I got off 5000mg of keppra im 2015 My god keppra is the devil

Thanks man ive been wonderful if it works ❤

When i first got diagnosed with epilepsy I was told I couldn't take this. fast forward 3 years: I take keppra and vimpat and gabepentin. they work for me but not seizure free. I have 2 different kinds of emergency meds: nayzilam spray and clonazepam. I have tried trileptal, zonegran, and clobazam which were all unsuccessful. I really want to suggest epidiolex again and i am afraid they are going to shut it down again. Any suggestions of what i should say?! Im so tired of living off of 15+ pills daily. I have a follow up appointment next week.

Are you still on seizure meds. How frequent do you have them now. Did RNS stop your seizures?

I've been on kepra for 7 months. The side effects are worse than my absent seizures that I experienced

I'm trying to get off the keppra also. I didn't have a seizure disorder before and it's been years now. I'm just over it.

I had Epilepsy when I was a Kid and had a Tumor surgically removed. 23 years Seizure free.

I take keppra for my seizures for 4 years now and I’m on 1250mg because my seizures have being out of control for 3 years of low doses and this year i haven’t had a seizure for a while and now I’m working on to see a OT to do a assessment driving again to start driving because my neurologist is happy with the outcome of my medication working so well

Are you taking anything else now? I’m six months on keppra and I’m about over this. Memory sucks. Feel dizzy and my mind is foggy.

Look into low dose naltrexone and amantadine for more ‘experimental’ add-on treatments for refractory epilepsy

I’ve been on it for 11 years without hardly knowing the side affects and my seizures came back after a few years on and off.. eventually I got put on some others which worked wonders so I decided to reduce the keppra due to my own research now I’m a bit more alert and having less meltdowns