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Your children will carry it...

Woody Guthrie is most famous celebrity family eith Huntington s

88 is long life

Hi Teddy, I loved hearing and seeing you tell your story. Sending lots of love to you and your family.

Hi Teddy, thankyou for sharing your story, you are a very courageous young woman. ❤❤ its not easy at all , glad you have the support from hd Victoria ❤️

But now with Testing it could be better, right?

great

I am so glad that you have not inherited this horrible disease. Your family look lovely! All the best to each of you. cheers

My sister in law and her sister both tested negative ,I was so happy my nephews were safe. Sadly both my sister in law and her sister passed away last Sept. both were in their 50’s .

I know this is sad ..and im sorry..but why keep reproducing?

This disease doesn't skip a generation. If No parent has it you will not get it.

My grandmother had Huntingtons disease. Two of her children had it but thank God my mother did not. Because of this we were all be able to have children without the fear.

Stops with her...takes a very Brave person to make that happen

Thankyou for sharing this important information about HD.. it sounds like a great idea, I do have some questions ? I will write some down to share when I have given it a little more through. ❤

Thankyou all for sharing your story. ❤ As ive hd and jhd in my family, i appreciate how difficult it is for you all. ❤❤❤❤

Great interview, thanks for sharing

Such an awful disease 😔 I'm sorry for those who have it and or have family/friends who've had or have it.

❤

Thank you for sharing your story. My son is 45 and struggles to be understood as his speech is deteriorating, moods swings are normal and anger increases with frustration. My adult grandchildren have not been tested yet but are thinking about doing so. My son can be loving and kind and those are the days I love. The other days are hard ❤

my daughter's dad has HD its so hard watching him

Passionate and amazing man .. thanks Tam 💙💙

Fantastic video. Very informative especially about "brain and body connection". Also was surprised to know how little is given to medical research as apposed to military. Thanks Tony and Tammy 💙

Im sorry that it happened to your family.God bless

😢

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When I was 19 I was in hospital for five days having tests and the lady next to me had Huntingdons. She had been adopted and never knew her family history. She married and had two boys. One came to visit the other refused as was so angry at her for having this disease. How could that possibly be her fault. She said had she known she would never have married. She was lovely, talking was hard for her. She was so comforting to me as I was unwell but didn’t know why. This beautiful soul who was dying from the cruelest disease was helping me deal with my illness.

Such a selfish family. The girls knew they could pass it on and still had kids.

Do the girls have huntingtons?

Bless you all 🙏

I have a question, even though she does not have HD, wouldn’t she still have a recessive gene for it? Meaning it could still show up down the line. Does anybody know?

My father and brother died from Huntington's disease, my sister and myself have it too these stories are helpful in not feeling alone. 😊

There is no cure and no way of slowing it down. Not in my lifetime but i hope they find a cure at some point

It is genetic in my moms side of the family. Im due a test. My moms side of the family are a walking medical disaster. Epilepsy, brain hemorrhages and huntington's disease. How can one family have so much bad luck.

Its about dam time they came up with something to help!! My Dad died with HD at 76 my Brother has is really bad. he is 60 and I am 50 now! Lost my niece at 21 in a home! Lost my Dog from a brain tumor. Lost my little cute Guinea Pig that we used to dress up in a little dolls skirt and walk in the parks! Then recently lost my Mom from a severe sepsis infection that spread through her blood stream. Got divorced after 12 years of an mentally and emotionally abusive mirage. I have HD myself...and Type 2 Diabetes, and Nerve and Muscle pain along with bad Arthritis pain every day I move around like I'm 86 and think like an under educated idiot but seem to be smart at all the wrong things that don't really matter. Good luck with your family, and Bless all of you!!

This is such a hellish and heartbreaking disease. I pray for an effective treatment and someday even a cure.

Bless you and your family. Don’t understand. You are so brave.

I guess I might think “birth control”…

Wow great to hear some meds helping 👏👏♥️

My uncle xyz passed away of this ... My cousin his daughter x has this debilitating condition... she was such a powerful intelligent excited lady and now I hear that this Huntington's is getting the better of her and it is so sad to she can hardly walk I have heard .. Sadly its congenital and hereditary and my other cousin the brother z , I hear does not have it... I have not spent much time with them Apart from childhood ...my mam was married to my dad the youngest brother.... And all I was told in childhood was my grandad passed away ...when daddy xyz. was only about 5 years old..... His other brother my uncle abc. he is alive and well....about 3 or 4 years older than my daddy... so me I'm 48 and my brother z is ...43.... my dad the youngest told me don't worry he was tested and he's okay borderline?? What does that mean I asked daddy, and he says live life and don't worry you and your brother will be ok !!! But are we...really I think? maybe my daddy never got tested .. or hes in denial and not telling me the whole facts.. my dad said that he was Borderline I have heard and read that their children have a 50% chance of having it and this was the fact with my cousins sister has it and the brother does not. I'm a retired midwife and I'm only 48... I retired due to pain and depression and supposedly I'm diagnosed with lupus and I say this as I have never been tested yet. Huntington's disease but hopefully.. I'm going to get tested .. So I can plan and prepare my self for this condition ... my middle uncle alive and well has 2 daughters about 40 and about 42 ish.. They seem.okay...and stated they don't want to know .. I also had cataracts..as my father did..we both have had implanted lenses and the cataracts taken out along with the lenses...so I have plastic lenses in my eyes..I was 18 when I first had the operation I had one eye done then the other eye done 30 years ago when the operation was done it was amazing I could see so well but I still need to wear varifocals and protect my eyes from sunshine two of my children have cataracts I have 4 adult children... ... and I don't know yet weather my young granddaughter's have cataracts but I do know a few of them wear glasses and I have 6 granddaughter's from 2 year old up to 11 year old... god bless all of you families and people out there who have lost someone to Huntington's disease god bless all of you take care AMEN ...XXXXXX xxx

My mom had this. I am in the gray area, so I may or may not develop symptoms. Hopefully a cure will come soon!

Wouldn't it be good to put more energy into finding a cure for HD...if PGD is so expensive people in poor countries will still pass on HD.

You just did. Thank you for the hug. Luv yer. Thank you. I can't it breaks my heart. Love to all.

This is what you need to know. I know of a family where the daughter and mother were positive. But the daughter had invitro analysis of her embryos and the positive ones were eliminated. She went on to have twins with the non-positive embryos so the family knew that the disease would not be passed on in the next generation in their family. This is wonderful news. BUT, this process is illegal now in many states and thus not available to many people. Fight for reproductive freedom and allow families and their doctors to make the best decisions.

HD is just horrific, very happy for her that she doesn't have it, but I can't imagine watching my Mom go through it.

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I know a family devastated by this illness. Young married couple had four children. Then the illness was discovered in the husband quite young. He had been adopted and had no medical history. He passed after a horrific experience with it. Then one of the sons as a young man discovered he had it. Then the next son and one of the daughters. One daughter didn’t get it and doesn’t carry the gene. Before one of the sons became symptomatic he had a child. She was raised by the sister and not allowed to be tested until she’s 18. Her mother also passed early for an unknown reason.

As a nurse I have cared for 2 patients with Huntington’s. Broke my heart. We treated symptoms and provide supportive care which is limited except for hands on personal care, feeding, love, socialization, provide safe environment

A friends husband died of Huntingdon so did his parents but hard to watch because when I first met him when he was well

I am so sorry for the loss of your husband, son & your other 6 family members 💔 Bless them all 🤍 You are an incredibly strong woman to have gone through so much. Big hugs to you xx

So very sad. I volunteer at our local hospice, and Huntington’s is the worst disease I see. My heart goes out to all that suffer this horrid disease.