ALS United Greater New York
ALS United Greater New York
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Conversations With...Exploring Hard Decisions While Living with ALS, Episode Two.
Welcome to "Conversations With... Exploring Hard Decisions While Living with ALS," presented by ALS United Greater New York with our staff hosts Nancy Brenner and Debbie Schlossberg. This sis part two of our first episode where we discussed the gift of legacy and memory. How might we want to be remembered? What creative steps can we take to ensure that our stories live on?
มุมมอง: 30

วีดีโอ

ALS United GNY 2024 Education & Resource Summit - My ALS Journey
มุมมอง 38หลายเดือนก่อน
Dr. Ajay Sampat is an Associate Clinical Professor of Neurology and Sleep Medicine at the University of California, Davis. He completed his medical school at the University of Chicago Pritzker School of medicine, followed by a neurology residency at Northwestern Memorial Hospital. He will be covering lessons that he has learned as a neurologist-turn-patient over the last two years living with ALS.
ALS United GNY 2024 Education & Resource Summit - Respiratory Therapies
มุมมอง 33หลายเดือนก่อน
Presenter Christine Mason has been a Respiratory Therapist for over 30 years. For the first 10 years after graduating college, she worked as an RT at Bryn Mawr Hospital. Although she worked on every floor of the hospital, Ishe mostly covered the ICU/CCU and the ED. In 2000, I relocated to NY and changed careers entirely. I started working at Wyeth Pharmaceuticals. In September of 2012, she star...
ALS United GNY 2024 Education & Resource Summit Voice Banking and Beyond
มุมมอง 8หลายเดือนก่อน
Presenter Trinity Deibert comes to Bridging Voice with over 15 years of experience with pwALS and AAC. Previously she has provided services to people living with ALS through a community-based home care agency in Portland, Oregon. Trinity has a strong focus on educating other clinicians to provide the best services possible to those with ALS and caregivers of those with ALS.
ALS United GNY 2024 Education & Resource Summit - Equipment Loan/Home Access/Assistive Technology
มุมมอง 15หลายเดือนก่อน
Presenters from the Accessibility Services of ALS United Greater NY
ALS United GNY 2024 Education & Resource Summit - In Home Care
มุมมอง 23หลายเดือนก่อน
Presenter Doug Feltman is the President and Owner of Home Helpers homecare agency in New York City and Bergen County, New Jersey. The agency has operated for 15 years and has been awarded the Best of Home Care, Provider of Choice, and Employer of Choice by Home Care Pulse, an independent survey company. Home Helpers specializes in ALS patient care and dementia care and Doug is a Certified Alzhe...
ALS United GNY 2024 Education & Resource Summit - Recommendations for Hospital Visits
มุมมอง 15หลายเดือนก่อน
Bruce Miller's ALS journey with his wife, Susan, began in early 2020. Her diagnosis was confirmed in November 2021. Shortly after Susan began losing her ability for independent living and performing activities for daily living, his role as her caretaker began. Along with the help of his twin sons, daughters-in-law, and four grandchildren, they navigate the challenges of the ALS journey together.
ALS United GNY 2024 Education & Resource Summit - Nutrition & ALS
มุมมอง 15หลายเดือนก่อน
Danna Raphael is a registered dietitian with 15 years of medical nutrition therapy experience. She has worked with a diverse patient population in a variety of settings, including oncology, critical care, and liver transplant, as well as in general nutrition care. Currently, Danna is an inpatient dietitian at the Hospital for Special Surgery as well as the dietitian on HSS’s ALS clinic team.
ALS United Greater New York - Who We Are and What We Do
มุมมอง 87หลายเดือนก่อน
ALS United Greater New York builds hope and enhances the quality of life while supporting aggressive research to find new treatments and a cure by providing assistance for people with ALS through a robust care services program, coordinating multidisciplinary care through certified clinical care centers, leading the way in global research, and fostering government partnerships. We will relentles...
ALS United GNY 2024 Education & Resource Summit - How and When to Talk About ALS w/ Children
มุมมอง 34หลายเดือนก่อน
Presenter Dr. Kavanaugh is a Professor of Social Work and a Licensed Clinical Social Worker (LCSW), with clinical expertise in Neurology. Dr. Kavanaugh’s clinical care and research focuses on children and youth caregivers’ (young carers), well-being, mental health, and support interventions, in the US and internationally. Her research has informed several books for children and families, and ev...
ALS United GNY 2024 Education & Resource Summit - ALS Genetics Options Today, Opportunities Tomorrow
มุมมอง 50หลายเดือนก่อน
Presenter Elizabeth Harrington is a certified genetic counselor in the Eleanor and Lou Gehrig ALS Center at Columbia University. In the clinical setting, Ms. Harrington provides education about one’s genetic risk, the implications of genetic testing, and counseling to help understand and cope with that knowledge.
ALS United GNY 2024 Education & Resource Summit - Understanding the FTD in a FTD/ALS Diagnosis
มุมมอง 46หลายเดือนก่อน
Presenter Esther Kane joined The Association for Frontotemporal Degeneration as its Director of Support and Education in November 2020. She brings clinical, educational, and managerial expertise, along with a passion for quality care for those who are living with neurological conditions.
ALS United GNY 2024 Education & Resource Summit - VA Services & Benefits for People with ALS
มุมมอง 44หลายเดือนก่อน
Presenter Swapna Johnson-Kunjukutty is a board-certified Internal Medicine Physician who trained at Cook County Hospital in Chicago. She is wound care certified and is the Spinal Cord Injury Outpatient Director at James J Peters VA Medical Center. She has 14 years of experience in this department working directly with ALS patients and families at home, in the clinic, and as an inpatient.
ALS United GNY 2024 Education & Resource Summit Drug Therapies
มุมมอง 39หลายเดือนก่อน
Erin Manning, MD Assistant attending neurologist, Hospital for Special Surgery
ALS United GNY 2024 Education & Resource Summit - Welcome followed by Perspectives on Caregiving
มุมมอง 37หลายเดือนก่อน
Opening Remarks, Dr. Kevin Glassman, MD, Board Member ALS United Greater New York Perspectives on Caregiving with Laurice Duffy and Nirali Shah
ALS United GNY 2024 Education & Resource Summit - Creating Purposeful Connections: Palliative Care
มุมมอง 20หลายเดือนก่อน
ALS United GNY 2024 Education & Resource Summit - Creating Purposeful Connections: Palliative Care
Conversations With.. Exploring Hard Decisions While Living with ALS
มุมมอง 75หลายเดือนก่อน
Conversations With.. Exploring Hard Decisions While Living with ALS
Her ALS Story - Iron Horse Award, Lou Gehrig Legacy Gala 2023
มุมมอง 5K7 หลายเดือนก่อน
Her ALS Story - Iron Horse Award, Lou Gehrig Legacy Gala 2023
2023 Education & Resource Summit Navigating the ALS Journey - Pharmacological Therapies in ALS
มุมมอง 48ปีที่แล้ว
2023 Education & Resource Summit Navigating the ALS Journey - Pharmacological Therapies in ALS
2023 Education & Resource Summit: Navigating the ALS Journey - NY Estate Planning & Medicaid
มุมมอง 67ปีที่แล้ว
2023 Education & Resource Summit: Navigating the ALS Journey - NY Estate Planning & Medicaid
2023 Education & Resource Summit: Navigating the ALS Journey - Conversation with Michelle Stellato
มุมมอง 39ปีที่แล้ว
2023 Education & Resource Summit: Navigating the ALS Journey - Conversation with Michelle Stellato
2023 Education & Resource Summit: Navigating the ALS Journey - Nutrition and ALS
มุมมอง 35ปีที่แล้ว
2023 Education & Resource Summit: Navigating the ALS Journey - Nutrition and ALS
2023 Education & Resource Summit: Navigating the ALS Journey - Advancement in ALS Research
มุมมอง 79ปีที่แล้ว
2023 Education & Resource Summit: Navigating the ALS Journey - Advancement in ALS Research
2023 Education & Resource Summit Navigating the ALS Journey - Practical Tips for Travel
มุมมอง 24ปีที่แล้ว
2023 Education & Resource Summit Navigating the ALS Journey - Practical Tips for Travel
2023 Education & Resource Summit: Navigating the ALS Journey - Medical Decisions in ALS & Support
มุมมอง 24ปีที่แล้ว
2023 Education & Resource Summit: Navigating the ALS Journey - Medical Decisions in ALS & Support
2023 Education & Resource Summit: Navigating the ALS Journey - Hope Loves Company
มุมมอง 11ปีที่แล้ว
2023 Education & Resource Summit: Navigating the ALS Journey - Hope Loves Company
2023 Education & Resource Summit: Navigating the ALS Journey - Communication Strategies
มุมมอง 15ปีที่แล้ว
2023 Education & Resource Summit: Navigating the ALS Journey - Communication Strategies
2023 Education & Resource Summit:Navigating the ALS Journey - Keeping Your Head Above Water
มุมมอง 15ปีที่แล้ว
2023 Education & Resource Summit:Navigating the ALS Journey - Keeping Your Head Above Water
2023 ALS Education & Resource Summit - Desafios de Cuidar de Nuestros Familiares con ALS
มุมมอง 17ปีที่แล้ว
2023 ALS Education & Resource Summit - Desafios de Cuidar de Nuestros Familiares con ALS
2023 Education & Resource Summit: Navigating the ALS Journey - 30 years of Genetics in ALS
มุมมอง 55ปีที่แล้ว
2023 Education & Resource Summit: Navigating the ALS Journey - 30 years of Genetics in ALS

ความคิดเห็น

  • @jancraig9298
    @jancraig9298 วันที่ผ่านมา

    As a blk woman, unfortunately this disease isn’t very well known in the blk community. A lot of us don’t know that much about this horrible disease. I’m so sorry this beautiful sista, has to go through this. I often wonder, why God would allow such a horrible disease to be placed upon a beautiful soul like samone. I don’t know if this young sista is still alive & fighting . But if she is, I’m praying for you queen 🙏🏽

  • @martasatgo
    @martasatgo 9 วันที่ผ่านมา

    May you have peace and prosperity

  • @stu1094
    @stu1094 10 วันที่ผ่านมา

    beautiful person

  • @NJSMKMMS
    @NJSMKMMS 20 วันที่ผ่านมา

    Terrible disease, great attitudes….

  • @purebride8600
    @purebride8600 หลายเดือนก่อน

    Jesus still heals, only believe 🙏🕊💟 Psalm 103 1Bless the LORD, O my soul: and all that is within me, bless his holy name. 2Bless the LORD, O my soul, and forget not all his benefits: 3Who forgives all your iniquities; who heals all your diseases; 4Who redeems your life from destruction; who crowns you with loving kindness and tender mercies; 5Who satisfies your mouth with good things; so that your youth is renewed like the eagle's.

  • @AbdulMajeed-hr1gp
    @AbdulMajeed-hr1gp หลายเดือนก่อน

    What is price of this voice device

  • @GinaSpector-mz2uq
    @GinaSpector-mz2uq หลายเดือนก่อน

    Terrible Disease. My cousin had this , we were the same age.

  • @cynthiaurtz4921
    @cynthiaurtz4921 หลายเดือนก่อน

    I lost a vibrant, kind, and fun-loving HS friend to ALS. God Bless you all. With Love and Hugs ❤

  • @philipphanf952
    @philipphanf952 หลายเดือนก่อน

    greatiings from germany #ALSohappy

  • @michellemckenzie2146
    @michellemckenzie2146 หลายเดือนก่อน

    Great interview and love this idea!!

  • @GaZonk100
    @GaZonk100 หลายเดือนก่อน

    lovely woman. . .you could easily be my daughter. ..

  • @fernemcallister6774
    @fernemcallister6774 หลายเดือนก่อน

    Ghastly disease. Prayers.

  • @minion7720
    @minion7720 หลายเดือนก่อน

    What a lovely family bless them

  • @larsschaedlich278
    @larsschaedlich278 2 หลายเดือนก่อน

    \

  • @migueljonz3901
    @migueljonz3901 3 หลายเดือนก่อน

    I've smoked most of my life. But started smoking more after the first symptom showed up. After my diagnosis five years ago, I'm still riding my motorcycle. I do get cramps and have weakness in my shoulders and arms, but that's it. I will admit I smoke more CBD's now.

  • @kerickwalters2749
    @kerickwalters2749 3 หลายเดือนก่อน

  • @arferret
    @arferret 4 หลายเดือนก่อน

    We just lost our beautiful friend to bulbar als. Such a cruel illness. We are off to her funeral today. Devastated to have lost a beautiful friend but relieved she is free from the cruel suffering this caused.

  • @loraineleuschke4186
    @loraineleuschke4186 4 หลายเดือนก่อน

    May you all be blessed by the love of Our Lord and his unwavering promise to always be present for us, for the asking of it. Peace faith and love for you all💕🥰

  • @anneschrey
    @anneschrey 5 หลายเดือนก่อน

    I always have ALS. I wish you all the best in peace .......

  • @susankamaka745
    @susankamaka745 6 หลายเดือนก่อน

    Thank you for sharing your life with everyone. ☺️. I lost my brother-in-law 2 years ago to this horrific disease. I wish you light, peace and love…

  • @mavischadwick6445
    @mavischadwick6445 7 หลายเดือนก่อน

    All thanks to DR ALAHO OLU on TH-cam Channel who finally cured me and my wife from MS and ALS. He cures HPV, HSV, Lungs Disease, Cancer, HIV and many more.🎉

  • @cinnie2543
    @cinnie2543 8 หลายเดือนก่อน

    Well done. Thank you.

  • @lotwm1
    @lotwm1 9 หลายเดือนก่อน

    i take thc gummies half of one and hemp gummie every 6 hours around the clock and doing great with ALs

  • @theironman1903
    @theironman1903 10 หลายเดือนก่อน

    My mother recently diagnosed with ALS

  • @franklinbishop6272
    @franklinbishop6272 ปีที่แล้ว

    "promosm" 😂

  • @vicmaine05
    @vicmaine05 ปีที่แล้ว

    Rock on Positive Paul!!!

  • @rogerquirantes6574
    @rogerquirantes6574 ปีที่แล้ว

    Stay strong brother nice video.

  • @othienan4141
    @othienan4141 ปีที่แล้ว

    I need help. I want medical care. I'm getting weaker. I can't move me. muscle is lost. feet begin to shrink.

  • @clipsbysunny5773
    @clipsbysunny5773 ปีที่แล้ว

    ALS has touched our family also . This disease is horrible. Prayers for you and your amazing family ❤❤❤❤Samone you are beautiful ❤

  • @benken9601
    @benken9601 ปีที่แล้ว

    Hello everyone am very happy today am cure totally completely forever form ALS with the help of Dr omoye you can also contact him on his TH-cam channel th-cam.com/channels/lshMWAD9EFaKUTbdbtBH7A.html He also cure all kind disease Herpes simple Diabetes medication Penis enlargement product STD infection medication Monkeypox He also cure all kinds of disease such as Herpes simplex 1&2 Diabetes medication Penis enlargement product STD infection medication Monkeypox HIV/AIDS Low sperm can Erectile dysfunction Diabetes Hepatitis Pregnancy product High blood pressure Low sugar level High sugar level Infections Body odor 🙏🏻

  • @benken9601
    @benken9601 ปีที่แล้ว

    Hello everyone am very happy today am cure totally completely forever form ALS disease with the help of Dr omoye you can also contact him on his TH-cam channel th-cam.com/channels/lshMWAD9EFaKUTbdbtBH7A.html He also cure all kind disease Herpes simplex 1&2 Diabetes medication Penis enlargement product STD infection medication Monkeypox He also cure all kinds of disease such as Herpes simplex 1&2 Diabetes medication Penis enlargement product STD infection medication Monkeypox HIV/AIDS Low sperm can Erectile dysfunction Diabetes Hepatitis Pregnancy product High blood pressure Low sugar level High sugar level Infections Body odor ..

  • @davidgonzalez8758
    @davidgonzalez8758 ปีที่แล้ว

    Doctor.loca cure me from ,ALS, I’m free for it now thank you so much you can also contact him on TH-cam channel #DrLocaHerbs

  • @benken9601
    @benken9601 ปีที่แล้ว

    Hello everyone am very happy today am cure totally completely forever form ALS with the help of Dr omoye you can also contact him on his TH-cam channel th-cam.com/channels/lshMWAD9EFaKUTbdbtBH7A.html He also cure all kind disease Herpes simple Diabetes medication Penis enlargement product STD infection medication Monkeypox He also cure all kinds of disease such as Herpes simplex 1&2 Diabetes medication Penis enlargement product STD infection medication Monkeypox HIV/AIDS Low sperm can Erectile dysfunction Diabetes Hepatitis Pregnancy product High blood pressure Low sugar level High sugar level Infection’s Body odor 🙏🏻….

  • @jassewall2170
    @jassewall2170 ปีที่แล้ว

    A big thanks to you #DrLocaHerbs Just confirm am completely free from .ALS.🇺🇸❤ with the help of his wonderful herbal medicine, may God continue to bless you and your wonderful herbal medicine thanks so much doctor_loca. anyone looking for any herbal medicine should kindly contact WhatsApp place your order for his lovely herbal medicine 👇#DrLocaHerbs

  • @holliethomson6147
    @holliethomson6147 ปีที่แล้ว

    Beautiful strong family xxx ❤❤❤

  • @giselemartin7370
    @giselemartin7370 ปีที่แล้ว

    Courage Desi❤️❤️❤️

  • @shannelbrooks1728
    @shannelbrooks1728 ปีที่แล้ว

    I recommend #Dr_aza to anyone out here On TH-cam his herbal medicine works perfectly well and It Eliminate the ALS disease just the way he prescribe it. Trust #Dr_aza Care Giver.,

  • @rolandbruce6853
    @rolandbruce6853 ปีที่แล้ว

    It feels good to know that there are cures and remedy for many terrible diseases such as : HERPES, ALS, HPV, MS etc? Am grateful that I finally got rid of my ALS after suffering for over two years by Doctor Elemomodu on TH-cam..

  • @sergiowilliam5552
    @sergiowilliam5552 ปีที่แล้ว

    God bless Dr Elemomodu on TH-cam channel for curing my Amyotrophic Lateral Sclerosis (ALS) with his herbal medicine

  • @sergiowilliam5552
    @sergiowilliam5552 ปีที่แล้ว

    God bless Dr Elemomodu on TH-cam channel for curing my Amyotrophic Lateral Sclerosis (ALS) with his herbal medicine

  • @sujatagarud3162
    @sujatagarud3162 ปีที่แล้ว

    Is this lady affected by ALS ? Instead of just challenges, give with open heart.

  • @MsAchampion
    @MsAchampion ปีที่แล้ว

    Her smile is everything 😍 ❤️ I see Samone's beauty and how she was and her family is wonderful ❤️

  • @rolandbruce6853
    @rolandbruce6853 2 ปีที่แล้ว

    It feels good to know that there are cures and remedy for many terrible diseases such as : HERPES, ALS, HPV, etc? Am grateful that I finally got rid of my ALS after suffering for over two years by Doctor Elemomodu on TH-cam..

  • @rolandbruce6853
    @rolandbruce6853 2 ปีที่แล้ว

    It feels good to know that there are cures and remedy for many terrible diseases such as : HERPES, ALS, HPV, etc? Am grateful that I finally got rid of my ALS after suffering for over two years by Doctor Elemomodu on TH-cam.

  • @rolandbruce6853
    @rolandbruce6853 2 ปีที่แล้ว

    It feels good to know that there are cures and remedy for many terrible diseases such as : HERPES, ALS, HPV, etc? Am grateful that I finally got rid of my ALS after suffering for over two years by Doctor Elemomodu on TH-cam.

  • @wendyqallab6906
    @wendyqallab6906 2 ปีที่แล้ว

    Iam repeating myself but I really hate ALS.

  • @annabellelopez3993
    @annabellelopez3993 2 ปีที่แล้ว

    I thank God Almighty who directed Dr Alaho Olu on TH-cam to me, he cured my Dad from (ALS)….

  • @tranredmann2958
    @tranredmann2958 2 ปีที่แล้ว

    I was once an ALS patient, but now I have finally got rid of it with the help of Dr Alaho Olu on TH-cam herbal medicine you can also get yourself cured with the help of this same man

  • @tranredmann2958
    @tranredmann2958 2 ปีที่แล้ว

    I was once an ALS patient, but now I have finally got rid of it with the help of Dr Alaho Olu on TH-cam herbal medicine you can also get yourself cured with the help of this same man

  • @tranredmann2958
    @tranredmann2958 2 ปีที่แล้ว

    I was once an ALS patient, but now I have finally got rid of it with the help of Dr Alaho Olu on TH-cam herbal medicine you can also get yourself cured with the help of this same man