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Neuroendocrine Cancer Awareness Network (NCAN)
United States
เข้าร่วมเมื่อ 31 พ.ค. 2017
Check out presentations from past conferences, informative live streams and fun new content from NCAN!
Be informed and stay #zebrastrong
By watching these videos, you agree not to use these videos as medical advice to treat any medical condition in either yourself or others, including but not limited to patients that you are treating. Consult your own physician for any medical issues that you may be having. This entire disclaimer also applies to any contributors to the videos. Under no circumstances shall any contributors to the videos or any employees, associates, or affiliates of the Neuroendocrine Cancer Awareness Network be responsible for damages arising from use of these Videos.
Be informed and stay #zebrastrong
By watching these videos, you agree not to use these videos as medical advice to treat any medical condition in either yourself or others, including but not limited to patients that you are treating. Consult your own physician for any medical issues that you may be having. This entire disclaimer also applies to any contributors to the videos. Under no circumstances shall any contributors to the videos or any employees, associates, or affiliates of the Neuroendocrine Cancer Awareness Network be responsible for damages arising from use of these Videos.
NETs Get Real - The Truth about PRRT with Dr. Aman Chauhan
This episode of NETs Get Real is brought to you by TerSera Theraputics and ITM Radio Pharma and we speak with Dr. Aman Chauhan from the University of Miami and he shares The Truth About PRRT!
Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!
For more information please go to our website: www.netcancerawareness.org and follow us on social media @netcanceraware
And visit our sponsors:
TerSera Theraputics: tersera.com/
ITM Radiopharma: www.itm-radiopharma.com/home/
Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!
For more information please go to our website: www.netcancerawareness.org and follow us on social media @netcanceraware
And visit our sponsors:
TerSera Theraputics: tersera.com/
ITM Radiopharma: www.itm-radiopharma.com/home/
มุมมอง: 380
วีดีโอ
NCAN NET Patient Conference - Coralville - Clinical Databases to Advance NETs - Michael O'Rorke, PHD
มุมมอง 22หลายเดือนก่อน
This was recorded at NCAN’s NET Patient Conference on April, 13 2024 in Coralville, IA.
NCAN NET Patient Conference - Coralville - Afternoon Question and Answer Session
มุมมอง 42หลายเดือนก่อน
This was recorded at NCAN’s NET Patient Conference on April, 13 2024 in Coralville, IA.
NCAN NET Patient Conference - Coralville - Oncology Approaches for NETS - C. Chandrasekharan, MD
มุมมอง 288หลายเดือนก่อน
This was recorded at NCAN’s NET Patient Conference on April, 13 2024 in Coralville, IA.
NCAN NET Patient Conference - Coralville - Hormonal Basics of NETs - Joseph Dillon, MD
มุมมอง 139หลายเดือนก่อน
This was recorded at NCAN’s NET Patient Conference on April, 13 2024 in Coralville, IA.
NCAN NET Patient Conference - Coralville - PRRT Past, Present, Future & Trials - David Bushnell, MD
มุมมอง 54หลายเดือนก่อน
This was recorded at NCAN’s NET Patient Conference on April, 13 2024 in Coralville, IA.
NCAN NET Patient Conference - Coralville - NET Basics & Top 5 Issues to Discuss - Mary Maluccio, MD
มุมมอง 55หลายเดือนก่อน
This was recorded at NCAN’s NET Patient Conference on April, 13 2024 in Coralville, IA.
NCAN NET Patient Conference - Coralville - Interventional Treatment For Liver Mets - Sarah White, MD
มุมมอง 105หลายเดือนก่อน
This was recorded at NCAN’s NET Patient Conference on April, 13 2024 in Coralville, IA.
NCAN NET Patient Conference - Coralville - How NCAN can help you on your Journey - Maryann Wahmann
มุมมอง 11หลายเดือนก่อน
This was recorded at NCAN’s NET Patient Conference on April, 13 2024 in Coralville, IA.
NCAN NET Patient Conference - Coralville - Morning Question and Answer Session
มุมมอง 35หลายเดือนก่อน
This was recorded at NCAN’s NET Patient Conference on April, 13 2024 in Coralville, IA.
NCAN NET Patient Conference - Miami 2024 - Q&A Session
มุมมอง 127หลายเดือนก่อน
This was recorded at NCAN’s NET Patient Conference on April, 7 2024 in Miami, FL.
NCAN NET Patient Conference - Miami 2024 - Hormonal Basis of NETs - Jaydira Del Rivera, MD
มุมมอง 121หลายเดือนก่อน
This was recorded at NCAN’s NET Patient Conference on April, 7 2024 in Miami, FL.
NCAN NET Patient Conference - Miami 2024 - Demystifying NET Terms -Thor Halfdanarson, MD
มุมมอง 235หลายเดือนก่อน
This was recorded at NCAN’s NET Patient Conference on April, 7 2024 in Miami, FL.
NCAN NET Patient Conference - Miami 2024 - NET Clinical Trials - Aman Chauhan, MD
มุมมอง 93หลายเดือนก่อน
This was recorded at NCAN’s NET Patient Conference on April, 7 2024 in Miami, FL.
NCAN NET Patient Conference - Miami 2024 - Surgical Management for NETs - Tanaz Vaghaiwalla, MD
มุมมอง 158หลายเดือนก่อน
NCAN NET Patient Conference - Miami 2024 - Surgical Management for NETs - Tanaz Vaghaiwalla, MD
NCAN San Diego NET Conference 2-17-24 Afternoon Q&A Panel
มุมมอง 1192 หลายเดือนก่อน
NCAN San Diego NET Conference 2-17-24 Afternoon Q&A Panel
NCAN San Diego NET Conference 2-17-24 Michael Demeure, MD ENDOCRINE SURGERY
มุมมอง 392 หลายเดือนก่อน
NCAN San Diego NET Conference 2-17-24 Michael Demeure, MD ENDOCRINE SURGERY
NCAN San Diego NET Conference 2-17-24 Maryann Wahmann How NCAN Can Help You in Your NET Journey
มุมมอง 222 หลายเดือนก่อน
NCAN San Diego NET Conference 2-17-24 Maryann Wahmann How NCAN Can Help You in Your NET Journey
NCAN San Diego NET Conference 2-17-24 Aman Chauhan, MD The Nuts & Bolts of Being in a Clinical Trial
มุมมอง 462 หลายเดือนก่อน
NCAN San Diego NET Conference 2-17-24 Aman Chauhan, MD The Nuts & Bolts of Being in a Clinical Trial
NCAN San Diego NET Conference 2-17-24 Alexandra Gang, MD Removing the Primary Tumor
มุมมอง 982 หลายเดือนก่อน
NCAN San Diego NET Conference 2-17-24 Alexandra Gang, MD Removing the Primary Tumor
NCAN San Diego NET Conference 2-17-24 Patient Panel The Value of Being a Good Advocate for Yourself
มุมมอง 282 หลายเดือนก่อน
NCAN San Diego NET Conference 2-17-24 Patient Panel The Value of Being a Good Advocate for Yourself
NCAN San Diego NET Conference 2-17-24 Jaydira Del Rivera, MD The Endocrine Oncologist
มุมมอง 792 หลายเดือนก่อน
NCAN San Diego NET Conference 2-17-24 Jaydira Del Rivera, MD The Endocrine Oncologist
NCAN San Diego NET Conference 2-17-24 Jaydira Del Rivero, MD The Importance of Controlling Serotonin
มุมมอง 1072 หลายเดือนก่อน
NCAN San Diego NET Conference 2-17-24 Jaydira Del Rivero, MD The Importance of Controlling Serotonin
NCAN San Diego NET Conference 2-17-24 Morning Q&A With Panel
มุมมอง 362 หลายเดือนก่อน
NCAN San Diego NET Conference 2-17-24 Morning Q&A With Panel
NETs Get Real with NCAN - NET Patient/Author of The Final Victory, Roger Jones!
มุมมอง 1402 หลายเดือนก่อน
NETs Get Real with NCAN - NET Patient/Author of The Final Victory, Roger Jones!
NETs Get Real with NCAN with NET Patient, Alex O'Connor!
มุมมอง 3163 หลายเดือนก่อน
NETs Get Real with NCAN with NET Patient, Alex O'Connor!
NETs Get Real with NCAN with NET Patient, Noura Dakka!
มุมมอง 3594 หลายเดือนก่อน
NETs Get Real with NCAN with NET Patient, Noura Dakka!
NETs Get Real with NET Dr. Michael Demeure!
มุมมอง 1195 หลายเดือนก่อน
NETs Get Real with NET Dr. Michael Demeure!
NETs Get Real with NET Patient Kelly Baughman
มุมมอง 1986 หลายเดือนก่อน
NETs Get Real with NET Patient Kelly Baughman
NETs Get Real with NCAN - NET Patient, Christine DuPerry
มุมมอง 1307 หลายเดือนก่อน
NETs Get Real with NCAN - NET Patient, Christine DuPerry
Muchas gracias por ésta conferencia, a la doctora por su información y la empatía y humanidad que nos transmite, también soy paciente NET hace un año en tratamiento con las inyecciones de somatulina
Agradezco enormemente la intervención y la información de la doctora Jaydira Del Rivero y gracias a Michel de Nets Mexico por el programa de anoche visto en Montilla, Córdoba, Andalucía, España.
Gracias por la conferencia, desde Castellón en España. Soy paciente NET en tratamiento con somatulina desde hace tres años
You explain in detail.. awesome. Why don’t our doctors explain like you do?
You are awesome in your explanation of your speciality. I will contact you as I have lung Neuroendocrine tumors. Surgery Oct. 2nd done. CT in May shows increase in many more.. Thank you..
❤❤❤so helpful thank you
You are an inspiration! I enjoyed your video 😊
May Allah protect you❤
Lovee❤❤
proud 🥺❤️
❤️❤️❤️❤️❤️❤️❤️❤️❤️
SOOOO PROUDDDDD ❤❤❤❤
This is a fairly new treatment, not offered by most hospitals including mine. Do I need a referral from my oncologist? Right now I am getting Folfox chemo.
Thank you Kelly. Best wishes
Thanks for all you and your family do for us! ❤
So well explained! Thank you!
Great information shared. I had the opportunity to met Alex at the Atlanta, GA Nets Conference in 2022. Great person with a great spirit. You rock. A special thank you for sharing your story. I hope to see you in the near future, ☺
Very informative. Thanks for sharing.
CT scans don’t work, they did not find my metastasized cancer that went to my liver from my illeum
How can I get involved in the support group, Wendy? I am from North Carolina and was just diagnosed this month.
Very informative Doctor should practice public speaking in order to slow down. She is racing Great lecture!
Shari, you gave a wonderful interview on a very difficult subject. I’m sure all who watch it will benefit from it.
Thank you Shari for sharing your story with us. My mother, Claire, is the friend you mentioned in your story. I know you have been a blessing in her life since she’s met you because of this type of cancer. Praise the Lord for your positive attitudes and outlook on life! I truly believe that has been what has helped my mom get through the hard days. Praying for stability each day as you take “one day at a time” living it to the fullest.
Thank you for this video. I am surprised by Shari saying that her prognosis was 2-4 years. On the day my wife passed away, her attending told me that my wife probably had her NET beginning 24 months before her death. From what I read high grade live only a little over half a year after diagnoses. My wife died 8 months after being diagnosed. She was high grade but the only treatment she got was Lanreotide and Affinitor. None of the drugs Shari mentioned were even suggested to my wife. This is eye opening. I wonder if my wife received all the treatment she could have. We only had one doctor, which makes your point. We never questioned her doctor or got a second opinion. I feel (I could be wrong) that doctors were not as aggressive with my wife's disease as the disease was with my wife. The attending who told my and me of her diagnoses told us this was the best cancer to have. He gave us great hope.
I have medium grade net..surgery done in small intestine..taking octride depot for liver metastatic.. how long will I survive
What arre the best brands over the counter pancreatic enzymes and papaya enzymes and what dose per day or per meal?
I am newly diagnose Nets patient ( 3 months in) I attended this conference in Atlanta and It was awesome. I learned so much and gain a new family, Thank each of you for all of your hard work within the Nets community, I no longer feel alone. (Zebra Rocks)☺
After PRRT, the treatment halted the growth of my pancreatic net tumor and the spread to liver and lymph nodes , I think if PRRT was done earlier- I would have a better quality of life. After completing PRRT - I am very fatigued I have to sleep 14 hours per day, I’m in pain (was in pain before as well as my cancer was progressing), I can’t eat much. Although my scans look “good” my quality of life pretty much sucks. I know people can feel a bit better after PRRT but this has not been my experience. I guess I would feel worse if my cancer was still in progression but idk - net is not a walk in the park as some may think. My disease is not low grade though. Thanks for this video. I hope things can improve for me eventually
Dr Del Rivero is a wonderful person and an amazing physician!!!
I had my first tele-visit with Dr. Maluccio Monday of this week. Thankyou Maryann for directing me to her. Without NCAN I’m not sure it would happen. She’s a great connection for me in my recent diagnosis and I look forward to more input along my net journey. Thanks so much!
Thank you so much!
Am really looking forward to meeting her and working through treatment for my own diagnosis. We’re lucky to have someone in our town like Dr. Maluccio.
Very informative. Seeing Dr. Maluccio next week.
Best of luck!
Check out this video from our last conference!
Whaatttt
Professor Prentice, it was a joy to hear you sing. I would love to share your story with our Trojan family and my FB friends. You found a wonderful way to transform your healing process into a "song". You are a blessing to others! Thank you so much for sharing!!! #FightOn
А как на русском послушать?
Any studies on Xermelo on reducing serotonin to help reduce or delay CHD?
Dr. Heidi Conolloy at Mayo for CHD
Thanks so much to all the panelists and Steve is a really fun moderator! This was a great discussion for patients, caregivers, and anyone with any interest in Neuroendocrine tumors and this cancer that really is a full spectrum of disease. Thanks from the bottom of my heart! 🖤🦓🖤🦓🖤🦓🖤🦓🖤
Thank you to our wonderful, experienced panel of NET specialists: Dr. Aman Chouhan from UK, Dr. Jaydira Del Rivero from NIH and Dr. Eric Liu from Rocky Mountain Cancer Center. Special thank you to Mr. Steve Mazan for moderating the program. Please share your thoughts with us.
📌 18 + -S"E'X'--D`A"T"ING-------- Here ➮ XXCLUB.CYOU/JWAIBN 5:06 √™ Lorsqu'une pilule qui donne aux utilisateurs cinq minutes de super pouvoirs inattendus arrive dans les rues de √™ Когда таблетка, дающая пользователям пять минутнеожиданных сверхспособностей, попадает на улицы Нового Орлеана, торговец-подросток и местный полицейскийогда таблетка, дающая пользователям пять минут
What is the hotline number?