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I think I can kind of relate to that feeling if my memory is correct…maybe not exact but my throat never felt really good. A lump could be an indication of inflammation but not exactly sure obviously

@@LKGJO would it feel like something is slightly pressing on the front of your neck somewhere?

@@LKGJO late term “symptom” is that it’s noisier when swallowing as well like a quiet crackle sound

@@LKGJO the lump feels like it’s only on the left side sometimes I wake up in the morning with the feeling of needing to swallow a ball of mucus that isn’t actually there, and some days when I swallow in the position of lying in bed, there’s a muscle that I could tense that would feel a click back into place no pain on the left

@@LKGJO my symptoms gradually go away as I get hungry. Some things start it up depending what I’m around like dust a little but

Working through an elimination diet really helped me. If you want/can afford it. Check out the guide at Chelsea Celeste nutrition website. That was my exact plan of how I did it. Don’t feel the need if you think you can tackle it solo though!

According to who? Not saying you’re wrong but there seems to be professionals stating both sides

It's cause by allergic reactions so yes you can outgrow it. Bodies werid you can never been allergic to anything wake up at 40 and be allergic to the food you always ate or vice versa

​@LKGJO according to every single doctor. Lol

@@PageandPlant4Life in can go in remission and never have promblem again. Everyone different have heard testimony of ppl going away .. wish mine would lol

@faithfultheology mine went away for like 7 years and recently flared up.. while eating the same foods I have this whole time. Could be environmental. I might try parasite cleansing as a next step

It’s definitely a journey!

Never really felt bloating from EoE but now that I’m introducing more fiber in my diet it’s taking time to adjust. Wanting to heal my gut more

Oh that’s crazy, I never experienced that at all! Hopefully you find a solution that works for you.

If you watch my last update video I talk more in depth. I’m really good now though, not many symptoms at all and still on PPIs every now and then just not daily.

@@LKGJO Can eoe triggers be from other foods other than the 8 allergens?

Oh I would imagine so. Those are just the common ones but people can be allergic to all sorts of foods

@@LKGJO When i remove a certain trigger from my diet, and symptoms still last for a couple of days. Should i wait longer or remove another food trigger from my diet?

I would remove all elimination foods then reintroduce (after I had a healthy baseline with no symptoms) then reintroduce goods one at a time. I would take about 1-2months per reintroduction. You could probably only do 1 month but that’s what I did. Couple days is not long enough I don’t think. Your body needs to adjust and figure out what’s happening whether good or bad

Dang that’s crazy! Hopefully you can heal your immune system again so it goes away

It was after I started fire when I was paid on call but took full effect when I got hired on full time. Who knows though, I honestly think it’s all the junk in the food but again, no idea :/

@@LKGJO check your nose and throat to see if it feels different. that would be a sign that it was smoke. like if you are having more trouble breathing out your nose. it could be inflamed.

Haven’t noticed that before so I doubt it

They all suck haha.

All of mine were great except the very first one. After I had a new specialist I never had that issue really. They’ve been a good experience after that

Well I’ve been told by specialists that it can and you can grow out of it. I had a lot of eosinophil counts, then did the diet and PPIs, and had none sign of EoE. I haven’t had symptoms really in years now. Some say it just goes dormant but I’m thinking if you can really heal your gut then it can go away. There’s many other people who have healed auto immune diseases before

Yeah I tend to add breaks from dairy which is my trigger food and then go back on it. Kinda like a little fast from it once in a while. I’ve been good doing that so far so we will see!

Don't keep eating normal with eoe cause by 40. Your throat will be so scar it won't be worth it

Like I can be around nuts but I can’t eat them my throat closes up so now I’m getting allergy shots now

That sounds rough! I hope it works out for you!

I don’t have any problem with eggs. They are in a different category than dairy. It’s more so the protein found in dairy what I react to. Don’t really have much soy

I hear you, dairy is a no go for me. Try swapping in hemp hearts, flax seed, chia seeds and then different fruit. I haven’t heard of many that can’t have spinach so that sucks! Can you take a green powder?

@LKGJO I'm on a chemical elimination diet too, I have EoE and another disease that eliminates a ton of other foods. I used to be around 230 lbs lean, and nowadays I'm around 190 and find it nearly impossible to put on weight with this diet.

Yeah it’s tough to gain weight without eating a ton of solid foods. I dropped to below 167 being a 215 lean. It was a pretty big change haha.

I think it was a couple months before things started to cool down and I didn’t worry about eating solid food. It was a long time before I got “healed” I was on an elimination diet and scoped for over a year easily. Once I found my trigger food and went on PPIs then it was smoother sailing from there. It takes time but for me at least there was a light at the end. Best of luck and be strict on the elimination. Really read the food labels!

Best of luck! It gets easier when you get a handle on it.

I had 39 in my lower part which doesn’t always indicate EoE which is what I was told. My eosinophil counts were high in the upper part which indicates more EoE because people can have eosinophil counts from GERD or a “leaky” valve to the stomach which then is not EoE. But hey this is just what I’ve been told. My EoE was very gradual, never an overnight thing, so the only way I feel symptoms is if I were to eat tons of dairy for months and months.

Hi how did you battle your eoe and find your diet for it

So true to both!

When I took Whey protein it definitely kept making everything worse. But all these things you mentioned are not great for the gut and stomach acid so they don’t really help your case with EoE. I avoid most of it and don’t drink coffee barely ever, same with alcohol. If I have a protein shake late at night before I go to bed I can get really bad heartburn too.(regardless of the type of protein, even vegan)

Yeah my first scope wasn’t fun but every one after that wasn’t bad. Interesting about the ectopic beats!

My doctor has said you can grow out of it but it’s also person to person so not for everyone obviously. Hope yours goes away!

@LKGJO you don't grow out of it. It is a disease. It has to be changed by the foods you are eating, sometimes. It runs in your cells, and it can be helped, but it takes time. Does not grow away from you. You need to correct it, not the doctor. He can assist you!but that is it your responsibility, you need not be afraid . But you can get.infornation on it now. Just give your symptoms to your doctor, preferably an immunologist, they are better for this type of problem! Good luck

@@LKGJO Thankyou you are very kind.

Never got dilated thankfully! Once I went off dairy and went on PPIs then things went to pretty much normal

Stress is a killing and contributed to so many things so I wouldn’t be surprised!

Never tried that one!

Jorveza gave me terrible side affects

@@fayepitcher1780 my consultant was surprised to hear that I suffered from side effects as he claimed that no one other patient of his complained of having any side effects. This treatment has only been available for three or four years in the UK.

Sucks that PPIs aren't working! I hope you figure things out. Cutting dairy was the worst haha. I absolutely love ice cream and cheese. When you really look, almost everything has dairy in it too :'(

Dairy *IS* everywhere! I cut back as much as I can and it does help, though. I'm not 100% 'cured' but my swallowing issues are 95% better. I can literally go months w/o any issues, though when endoscopy is done, they still see EoE ... @@LKGJO

I remember when I was testing and getting scopes. I had to be SUPER strict on my diet. But now I’ve been off it I don’t have EoE anymore according to my eosinophil counts. Hopefully your scope goes well!

Honestly, just knowing if you have EoE is a way better start than I had. It was many months before I was able to get a scope and confirm anything. I will leave a link to the exact plan I did to get me back to normal. It sucks a bit at the start eliminating everything basically but it gets better once you figure trigger foods out. I did this diet but also took 20mg of PPI at the same time. PPI's really helped me but the diet is #1 out of anything. I'd take PPIs till you have it figured out and no more symptoms. Then you could maybe look at reducing the amount over time but I've been on them for years and still take a really low dose. www.chelcceleste.com/product-page/be-free-from-eoe-ebook-bundle

Interesting, I haven't heard that before. If you don't take PPIs and don't have symptoms of EoE I'd imagine you don't have it anymore but I'm not sure. I definitely don't want to take them long term either as I'd rather not take anything long term that I'm reliant on.

Do not stop taking PPIs, trust me, it’ll come back. If you really want to stop PPI, ask your gastroenterologist first, and get scoped regularly when coming off the PPI.

I actually did that test previously and EoE came back. I might try it again now and see as I don’t have the same symptoms as before so that’s why I’m still taking them for now.

If you stop PPI you will still need to treat the EoE with something else, either an elimination diet (avoiding dairy) or a swallowed steroid. But who knows, maybe yours is completely gone. But I’m just speaking from my experience, I felt better, then I got lazy with my PPI, I was taking it once every 4 days, and then I had another food impaction, and now I’m on PPI morning and night.

Going to looking out for this too so thanks so much for sharing!

Food impactions definitely suck so it's probably a good idea to figure out what's triggering your EoE. It also may be causing more stomach acid which is typically why people get food stuck (in the lower part). If you're really struggling, I would probably stay away from alcohol, spicy foods and whatever the trigger food is too.

Please keep us posted

That's definitely a loaded question because I have no idea what stage you're at and what you're eliminating. Honestly, when I eliminated everything to begin with (when I could finally eat solid food), I was probably eating a lot of rice, chicken/meats and fish, veggies, and oatmeal. I'd also have some soups loaded with nutrients and then lots of smoothies. If you want to know exactly what I ate and did to heal EoE I'll leave this guide here: www.chelcceleste.com/webinar-registration. You can also check out the smoothie video I just posted which shows you what I made all the time. You can add chia seeds, flex seeds, hemp hearts and whatever else you want to it to make it even more loaded with calories and nutrients. Hope this helps!

Ha yeah, the crazy thing was I spent hours in emergency from it just waiting and they didn't really do anything. Just slowly went down. Could definitely be caused from stomach acid in the lower part of the esophagus causing eosinophils to be present there. That's mainly why people get food stuck in the lower part.

I've been really lucky I have some great doctors and the advice I've heard is that you can outgrow it if you treat it like I did with PPIs and staying away from trigger foods. It seemed to have worked for me but obviously not the case for everyone. I'm still not going to go crazy with dairy in my case but I'll definitely have it on occasion and not feel I can't if I'm out with people.

Yeah I'm on Instagram! I'd love to chat

That's a lot of dilations! Thankfully by doing the elimination diet properly for me helped me figure it all out. It was a long process but worked in the end. Dairy is a crappy thing to not have since it's in everything!

@LKGJO glad your feeling better man so much better for you in the long run if you can do it with diet change alone I really appreciate people who post there videos on TH-cam like this back when I first started getting sick in early 2000s wasn't well know what it was or how to treat it

@@thebeermaker2102 It's crazy the lack of information out there. I felt hopeless when I first found out.

Hey Mark! I really appreciate you response and story. I can't imagine going through life for that long with all the uncertainty. Hopefully you feel good about whatever decision you make on the medication. I appreciate the encouragement as well, it's been fun but also a lot of work starting a business! Take care!

That's a crazy experience! I'm so sorry it was so difficult. Hopefully you find a solution soon and get back to normal.

@LKGJO thank you I'm going in for dilation on the 1st December im pretty anxious about the (am I going to die) part though. Any tips ?

@@ShutUpMeg__ I don't think you're going to die! Haha. I've never actually had a dilation so I'm not too sure. I would imagine they will sedate you though, similar to a scope. I would just remember that people do this all the time so I would just try and think about how things will hopefully be better after the procedure :)

That's no fun my friend! Don't worry about the scope, I looked at it a fun time getting put out, but maybe I'm weird because I like the feeling! Haha. Let me know if you ever had any other questions

Nope I haven't heard of that before. I know they had a steroid puffer for me as well but I never used that

Yeah I eliminated everything, then had a baseline without any symptoms etc. Then as I introduce 1 of the 6 foods, I test again with a scope/biopsy every 2 months then introduce another. I live in Canada so luckily I don't have t pay for them directly. But at the time I discovered all my problems, it took a while to get a specialist because I'm also in Canada.

Dairy was my trigger. I did the 6 food elimination and reintroduced one food every 2 months till I found what was the trigger.

I'm definitely doing so much better. I honestly don't really try to swallow pills at all...I have taken some Advil a few times but that was the biggest pill and didn't have any problems. The PPIs I take are super small so they have never been an issue, even when I was full blown symptoms. As far as liquid diet...I was on liquids before I started firefighting and also throughout all my training and then some...I'd have to really think but I think it was honestly many months on all liquid before I got help and figured to go on the elimination diet.

I'm from Canada so I don't pay for it upfront. If I had to front a big bill, I'd honestly try and do the elimination diet for maybe a bit longer and then really watch for symptoms. On the top of my head, if I was testing dairy, I feel like I'd have more dairy during the testing time and see if I got bad symptoms. Honestly though, now that I've been on PPIs for years and don't have dairy all the time, I can have dairy now and not feel any symptoms but that wasn't the case before. Maybe I can do some research and see if there's a more affordable way other than what I suggested.

is your plan to take PPIs for life? did they ever mention if you had a problem with the stomach valve or something that keeps you getting reflux issues? also, do you ever notice you have chronic stomach bloating? i never get heartburn the way most people think of it with the burning and chest discomfort but what i do get is constant throat clearing and a feeling of my esophagus always being rubbed raw with sandpaper. i notice it sometimes when drinking water, it almost feels like the water is going over an open wound in a particular spot. i hate doing the scopes so ive been trying to monitor my issues mostly with symptoms but i think i have chronic LPR (laryngeal reflux) which is a reflux that you dont always feel happening. im wondering if my esophagus or stomach valve is messed up but the doctors never mentioned anything looked out of place during the scope. i have a hypothesis that the gas and bloating i get is pushing and aerosolizing little bits of acid through the valve and thats what gives me this chronic mild reflux. but i dont know how to stop it because no matter what diet i switch to (even 0 carb keto) i get bloating. @@LKGJO

Definitely not planning on taking PPIs for life. They didn't mention that I specifically have a problem with the valve, more so dairy causing stomach acid. A "leaky valve" can be caused by a few things but more common is overweight people says my doctor. If I had really bad stomach acid, I'd almost feel it in the "air" in my throat. Doesn't happen often at all though. I'm not sure what to tell you, I'd imagine it has to be some diet problem but might have to really focus on healing the gut, which may include adding stuff like inulin and other stuff but also eliminating certain foods.