Osteosarcoma: MIB Agents Osteosarcoma Alliance
Osteosarcoma: MIB Agents Osteosarcoma Alliance
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osTEAo: Back to School: Cancer + Curriculum
September marks Childhood Cancer Awareness Month and Back-to-School season. Mackenzie, Sloane, and Penelope join osTEAo host Sammy to discuss the challenges and feelings that can accompany going back to school. They share their personal stories about how their diagnoses interrupted their school and extracurricular activities, accessibility issues on campus, and resulting FOMO. Based on their own experiences, they share advice and tips for newly diagnosed AYA patients on managing school during and post-treatment. Listen in to hear these OsteoWarriors discuss how to be the best advocate for yourself and why FOMO is less about being at the club, and more about what comes next.
มุมมอง: 159

วีดีโอ

Penelope - Bows
มุมมอง 1912 ชั่วโมงที่ผ่านมา
Gold Bows Show Your Support For Childhood Cancer Awareness Month *For all the Warriors fighting cancer, get a Bow. *To honor those who have passed from cancer, get a Bow. You'll raise desperately needed awareness and funds. We have to Make It Better; We are the ones we’ve been waiting for. mibagents.org/bows
OutSmarting Osteosarcoma 2025 Overview
มุมมอง 5714 วันที่ผ่านมา
An overview of the MIB Agents 2025 OutSmarting Osteosarcoma research grant application and review process.
Fit for Filing Academic Clinical Trials: An Industry Perspective
มุมมอง 8521 วันที่ผ่านมา
For decades, academic clinical trials consortia have collaborated to optimize outcomes for childhood cancers through evaluating incremental improvements in conventional multi modality treatment regimes. There are now increasing opportunities to partner with industry to test new medicines in academic-sponsored trials, but these collaborative studies rarely contribute to marketing authorizations....
High Intensity Focused Ultrasound (HIFU) For Palliation of Canine Appendicular Osteosarcoma
มุมมอง 24228 วันที่ผ่านมา
Brigitte Brisson, DMV, DVSc, DACVS from the Ontario Veterinary College at the University of Guelph joined us on OsteoBites to introduce Magnetic Resonance guided High Intensity Focused Ultrasound as a treatment modality for osteosarcoma and describe preliminary results in canine patients. High Intensity focused ultrasound (HIFU) is a non-invasive percutaneous thermal ablation technique that all...
osTEAo - Clear Scans…So Now What?
มุมมอง 211หลายเดือนก่อน
This month osTEAo co-hosts Mia and Sammy are joined by OsteoWarrior Kara to tackle the ambivalent mix of emotions from good scan results. Good scans equal good vibes, right? Not necessarily. Mia, Sammy, and Kara get real about their reluctance to celebrate, the complications of sharing good news with their friends and family, and the guilt that can accompany good scan results. Like other long-t...
Clinical Utility of Functional Precision Medicine to Guide Treatments for Osteosarcoma Patients
มุมมอง 102หลายเดือนก่อน
Diana Azzam, PhD joined us on OsteoBites to discuss her lab's work on functional precision medicine for the treatment of pediatric and adult cancers. This presentation describes the foundational principles of functional precision medicine as applied to pediatric cancers and how major technological improvements as well as an explosive broadening of the cancer pharmacopeia has enabled the bridgin...
FACTOR 2024 Highlights
มุมมอง 120หลายเดือนก่อน
Highlights from the MIB Agents FACTOR 2024 conference in Cleveland,OH.
Immune determinants of CAR-T cell expansion in solid tumor patients receiving GD2 CAR-T cell therapy
มุมมอง 118หลายเดือนก่อน
Sabina Kaczanowska’s research focus is to understand the role of the immune system in shaping the microenvironment of metastasis during cancer progression. Specifically, she is investigating how myeloid cells orchestrate the immunosuppressive program in the pre-metastatic niche and how we can apply this knowledge of myeloid biology to design new immunotherapeutic strategies for the treatment of...
A Multi-Institution Study in Combination with Relapsed or Refractory Pediatric Bone and Soft Tissue
มุมมอง 143หลายเดือนก่อน
Dr. Bhuvana Setty will join us on OsteoBites to discuss the role of adapting the immune system in the fight against cancer. She will discuss the ongoing study utilizing natural killer (NK) cells in combination with a chemotherapy backbone for patients with relapsed osteosarcoma and other sarcomas. She will discuss preclinical data supporting the utilization of NK cells in this patient populatio...
osTEAo: The Sibling Situation
มุมมอง 2.6K2 หลายเดือนก่อน
In this episode of osTEAo, Mia is joined by Dr. Christopher Kuo, Matt, and Valerie to discuss the often forgotten and overlooked children in an AYA cancer diagnosis - the siblings. Dr. Kuo is a physician-scientist, and pediatric oncologist at Children's Hospital Los Angeles/USC Keck School of Medicine and he has lost two brothers, one to osteosarcoma (Stanley), during his AYA years. He recently...
Genomes, Avatars and AI: The Future of Personalized Medicine
มุมมอง 962 หลายเดือนก่อน
Dr. Olivier Elemento joins us on OsteoBites to dive into his Lab Team’s expansive precision medicine research, which combines Big Data analytics with experimentation to develop entirely new ways to help prevent, diagnose, understand, treat and ultimately cure disease. Dr. Elemento’s talk will uncover the principles and applications of genomic medicine, focus on the importance of tissue architec...
Exploring Novel Immunotherapies for Canine Osteosarcoma
มุมมอง 3623 หลายเดือนก่อน
José Granados Soler, DVM, MSc, PhD and Rachel Allavena, PhD from the University of Queensland School of Veterinary Science join us on OsteoBites to discuss exploring novel immunotherapies for canine osteosarcoma. During this presentation, they delve into a pioneering clinical trial for canine osteosarcoma, share cutting-edge insights and explore how novel immunotherapies could revolutionize tre...
Learn more about MIB Agents
มุมมอง 843 หลายเดือนก่อน
MIB Agents stands for Make It Better Agents Osteosarcoma Alliance. It is a nonprofit organization that aims to create a supportive community for osteosarcoma patients, families, doctors, researchers, and industry. The video talks about the different initiatives that MIB Agents has undertaken to achieve its goals [1, 2, 3, 4]. These initiatives include: Organizing an annual osteosarcoma conferen...
A Guide to the FACTOR 2024 Scientific Panels with Matteo Trucco, MD
มุมมอง 2593 หลายเดือนก่อน
Matteo Trucco, MD joins us on OsteoBites to provide a preview of the FACTOR 2024 scientific panels in layperson terms with a brief overview of vocabulary and terms as a helpful resource for patients and families attending our FACTOR 2024 conference. Dr. Matteo Trucco is a pediatric oncologist caring for children, teens and young adults with sarcomas at Cleveland Clinic Children’s. He also serve...
osTEAo: Long Term Side Effects from Treatment For Osteosarcoma and AYA Cancer
มุมมอง 15K4 หลายเดือนก่อน
osTEAo: Long Term Side Effects from Treatment For Osteosarcoma and AYA Cancer
Creating a translational genomic framework for canine osteosarcoma: updates on the NCI DOG2 project
มุมมอง 2304 หลายเดือนก่อน
Creating a translational genomic framework for canine osteosarcoma: updates on the NCI DOG2 project
Day of Giving Thank You!
มุมมอง 214 หลายเดือนก่อน
Day of Giving Thank You!
Positioning Poly-(ADP)-ribose polymerase inhibitors (PARPi) for the treatment of Osteosarcoma
มุมมอง 1214 หลายเดือนก่อน
Positioning Poly-(ADP)-ribose polymerase inhibitors (PARPi) for the treatment of Osteosarcoma
MIB Day of Giving
มุมมอง 144 หลายเดือนก่อน
MIB Day of Giving
Day of Giving - Luke
มุมมอง 204 หลายเดือนก่อน
Day of Giving - Luke
TGF-beta inhibition as a novel therapeutic option in Osteosarcoma
มุมมอง 4174 หลายเดือนก่อน
TGF-beta inhibition as a novel therapeutic option in Osteosarcoma
MIB Agents Giving Day 2024 May 2nd
มุมมอง 1724 หลายเดือนก่อน
MIB Agents Giving Day 2024 May 2nd
Out on a Limb - Travel Tips for AYA Cancer Patients
มุมมอง 32K5 หลายเดือนก่อน
Out on a Limb - Travel Tips for AYA Cancer Patients
Cabozantinib in Combo with Topotecan-Cyclophosphamide for Patients with Relapsed Osteosarcoma or EWS
มุมมอง 1685 หลายเดือนก่อน
Cabozantinib in Combo with Topotecan-Cyclophosphamide for Patients with Relapsed Osteosarcoma or EWS
Targeting Urea Cycle Dysfunction to Prevent and Treat Osteosarcoma Metastasis
มุมมอง 1065 หลายเดือนก่อน
Targeting Urea Cycle Dysfunction to Prevent and Treat Osteosarcoma Metastasis
osTEAo: Patient Experiences with Lung Surgery for Osteosarcoma
มุมมอง 4646 หลายเดือนก่อน
osTEAo: Patient Experiences with Lung Surgery for Osteosarcoma
Osteosarcoma Explorer: Clinical, Genomic, Protein, and Tissue Imaging Data for Osteosarcoma Research
มุมมอง 1196 หลายเดือนก่อน
Osteosarcoma Explorer: Clinical, Genomic, Protein, and Tissue Imaging Data for Osteosarcoma Research
Patient perspectives on participating in research and clinical trials
มุมมอง 856 หลายเดือนก่อน
Patient perspectives on participating in research and clinical trials
Tissue Engineering Strategies for Elucidating Osteosarcoma Biology and Drug Discovery
มุมมอง 1316 หลายเดือนก่อน
Tissue Engineering Strategies for Elucidating Osteosarcoma Biology and Drug Discovery

ความคิดเห็น

  • @assmabahalddin5694
    @assmabahalddin5694 หลายเดือนก่อน

    Can we use bevacizumab with atezolizumab instead of cabozantinib?

    • @osteosarcomaMIB
      @osteosarcomaMIB หลายเดือนก่อน

      As we do not have scientific expertise, we suggest you inquire with the clinical trial principal investigator, Andy Livingston, MD at MD Anderson Cancer Center. His contact info can be found on the clinical trial page. Best wishes: www.cancer.gov/research/participate/clinical-trials-search/v?id=NCI-2021-06970

  • @carriganmnelson
    @carriganmnelson หลายเดือนก่อน

    😍😍😍

  • @jmedina7877
    @jmedina7877 หลายเดือนก่อน

    This so beautiful 🫶🏼🎗️🌻

  • @eeroala5132
    @eeroala5132 หลายเดือนก่อน

    Good question about collecting T cells preemptively to get better quality.

  • @mark6173
    @mark6173 หลายเดือนก่อน

    Lost my 14-year-old son to bone cancer it's just not fare 💔😭😭

    • @osteosarcomaMIB
      @osteosarcomaMIB หลายเดือนก่อน

      How sorry we are to read this. We have to do better, because of your son and too many kids and young adults who lost their lives to cancer. We have a bereaved parent community and programs with and by people who truly understand. If we can be helpful, please let us know.

  • @ericklawun7768
    @ericklawun7768 หลายเดือนก่อน

    Thx for sharing. Just got my atk leg and this helps

  • @samgregory762
    @samgregory762 2 หลายเดือนก่อน

    Hey Mia! I know someone name Mia she’s also pretty cool!

  • @danielatapia7243
    @danielatapia7243 2 หลายเดือนก่อน

    May there be a treatment soon! enough amputations! I have been surviving osteosarcoma. I am a fighter 💛

  • @MorganJunglin
    @MorganJunglin 2 หลายเดือนก่อน

    Because of me

  • @eeroala5132
    @eeroala5132 2 หลายเดือนก่อน

    Thank you for making these videos. I was wondering why Mirfamurtide was not approved in the United States, thank you for explaining the reason.

    • @osteosarcomaMIB
      @osteosarcomaMIB 2 หลายเดือนก่อน

      As of August 2007, the U.S. Food and Drug Administration (FDA) has not approved mifamurtide, also known as L-MTP-PE or Mepact, for the treatment of non-metastatic osteosarcoma in children and adolescents. The FDA cited concerns about the study design and analysis as the reason for the rejection. However, mifamurtide is available for clinical use in other countries, including Europe, Mexico, South Korea, Switzerland, and Israel.

  • @eeroala5132
    @eeroala5132 3 หลายเดือนก่อน

    Great presentation. I am looking forward to the results from this trial and if it can leverage the abscopal effect of cryoablation.

  • @Amore595
    @Amore595 3 หลายเดือนก่อน

    Thank you. You help me so much 🌞

  • @eeroala5132
    @eeroala5132 3 หลายเดือนก่อน

    Cryoablation seems to have significant benifit that were not initially apparent. It may be a key to controlling metastasize in the lungs.

    • @anngraham3244
      @anngraham3244 3 หลายเดือนก่อน

      Yes - it seems so.

  • @TheAccidentalGangster
    @TheAccidentalGangster 4 หลายเดือนก่อน

    I love to interview you on my show Stories with Ori

  • @TheAccidentalGangster
    @TheAccidentalGangster 4 หลายเดือนก่อน

    You’re an amazing strong young lady. Keep it moving

  • @beccanance7454
    @beccanance7454 4 หลายเดือนก่อน

    Yall are so amazing - thank you for sharing your experiences!! And thank you MIB Agents for supporting this incredible cause <3

    • @osteosarcomaMIB
      @osteosarcomaMIB 4 หลายเดือนก่อน

      Hi @BeccaNance, thank you for your very kind words. Your appreciation and encouragement are so important to us :).

  • @shickman1561
    @shickman1561 4 หลายเดือนก่อน

    Why do no organizations help kids after treatment?

    • @osteosarcomaMIB
      @osteosarcomaMIB 4 หลายเดือนก่อน

      We do indeed help after treatment 💛. Is there someway we can help you?

  • @eeroala5132
    @eeroala5132 4 หลายเดือนก่อน

    Cryoablation for lung mets is very intriguing.

  • @donreinke5863
    @donreinke5863 4 หลายเดือนก่อน

    Although I am long past the age that I would develop this type of cancer, I cant imagine what it would be like to be young knowing that despite the fact you had a limb amputated to stop it, its likely to return with a vengeance,

  • @eeroala5132
    @eeroala5132 4 หลายเดือนก่อน

    Did the cryoablation cause any reduction in lung function? Or any perceived reduction in lung function?

    • @osteosarcomaMIB
      @osteosarcomaMIB 4 หลายเดือนก่อน

      Hi! My interventional radiologist preserves as much healthy tissue as possible, and I feel like I have full lung function. I’ve had over 30 lung ablations and my only noticeable long-term effects are more frequent hiccups and some ab cramping from minimal nerve damage from repeated local anesthesia. - Mia

  • @brianbrooks3908
    @brianbrooks3908 4 หลายเดือนก่อน

    This is awesome! I’m a 39 year survivor. I longed for connections like this back in the day when I was a patient. I’m so proud of all you😎

    • @osteosarcomaMIB
      @osteosarcomaMIB 4 หลายเดือนก่อน

      We wish you did too! Congratulations on being a long-term survivor! You give us all hope!

  • @osteosarcomaMIB
    @osteosarcomaMIB 4 หลายเดือนก่อน

    Please donate HERE: give-usa.keela.co/2024-mib-agents-day-of-giving and SHARE! We need YOUR help to Make It Better!

  • @glennquagmire34
    @glennquagmire34 5 หลายเดือนก่อน

    RIP collin.

  • @mark6173
    @mark6173 6 หลายเดือนก่อน

    Will we ever find a cure for this disease? My son has been gone 5 years now also need a cure for a broken heart 💔

    • @osteosarcomaMIB
      @osteosarcomaMIB 6 หลายเดือนก่อน

      How sorry we are for the loss of your son to this disease. We are working on it with everything we have. We would be honored to have his name on our list of OsteoAngels that we honor and remember regularly and especially on the first Sunday of each month. We also have Healing Hearts for bereaved OsteoParents. You are most welcome.

    • @mark6173
      @mark6173 6 หลายเดือนก่อน

      Thank you his name is Zack 🧡

    • @osteosarcomaMIB
      @osteosarcomaMIB 6 หลายเดือนก่อน

      @@mark6173 To add Kyle, would you add him to the link below. We are honored to have him to the list of those OsteoWarriors and Angels whose names are spoken, prayed for, and honored regularly. www.mibagents.org/agents/prayer-agents

    • @mark6173
      @mark6173 6 หลายเดือนก่อน

      @osteosarcomaMIB Sorry, his name is Zack not Kyle

  • @venomvandal5443
    @venomvandal5443 6 หลายเดือนก่อน

    I love you guys.

  • @countmein8448
    @countmein8448 6 หลายเดือนก่อน

    Thank you! 💛

  • @KhaliqDadNoori
    @KhaliqDadNoori 7 หลายเดือนก่อน

    no problem ALLAH has given you cuteness and beauti

  • @solarsage252
    @solarsage252 7 หลายเดือนก่อน

    I am 29 chapters into my novel, I don't expect to be famous or have it sell ridiculously or anything like that. But if it did that would be nice, point is all of the money I make from it will be donated to you. 15 years, one month and 21 days of absolute hopelessness and despair. All that time wishing it was me and not her, you people are severely underrated and need more support. It kills more than children, it killed my soul. I wish I could have helped her, it won't bring her back but maybe if i can contribute somehow in the future..... Maybe someone else won't have to live in a nightmare.

  • @mayafinjadinig7895
    @mayafinjadinig7895 9 หลายเดือนก่อน

    thank you so much!

  • @internalbattle
    @internalbattle 11 หลายเดือนก่อน

    Sending hugs. Devestating disease 💛

  • @alvarocastrocid2186
    @alvarocastrocid2186 11 หลายเดือนก่อน

    Thank you so much for putting this great information out!

    • @osteosarcomaMIB
      @osteosarcomaMIB 11 หลายเดือนก่อน

      Thank you for listening. Be sure and check out the 100+ addition OsteoBites episodes as well as our Young Adult podcast, osTEAo.

  • @JahoSelamaj
    @JahoSelamaj ปีที่แล้ว

    God bless her

  • @jaimintadvi1530
    @jaimintadvi1530 ปีที่แล้ว

    Is immunotherapy working in osteosarcoma??

  • @regularguysmokingfood
    @regularguysmokingfood ปีที่แล้ว

    Thanks for sharing your story Carey. You are a real inspiration especially for those of us who struggle with a chronic illness or any serious illness for that matter. God bless and take care

  • @jaimintadvi1530
    @jaimintadvi1530 ปีที่แล้ว

    Is i take immunotherapy for osteosarcoma metastatic??

  • @jaimintadvi1530
    @jaimintadvi1530 ปีที่แล้ว

    Second time i have detected osteosarcoma in lungs should i survive??

    • @osteosarcomaMIB
      @osteosarcomaMIB ปีที่แล้ว

      Hello - How sorry we are that you have this news. Yes, there is hope, always. Please see our website (MIBagents.org) and look for the page "Stories of Hope." There are many who have faced a relapse and are alive and well. Wishing you all the best.

    • @gordanazakula5669
      @gordanazakula5669 4 หลายเดือนก่อน

      Beautiful girl!!! I would NEVER consent to amputation and chemo. For me, no quality of life!!! Please reply to me.​@osteosarcomaMIB

  • @rodvb1
    @rodvb1 ปีที่แล้ว

    Id love if you can fin different perspectives on the decission process, and the different things you have to face with each different decission. I've heard of cases when they choose amputation rather than limb salvage but they dont explain all the things they took into account to make that decission. I had LSS 13 years ago and despite the first year was very rough i had very good results and a very functional leg. Except ive had pain crisis from time to time. Now my prosthesis is becoming quite loosen and i may have to face revision surgery in the near future anf the thought of dealing with all of that again makes me wanna rethink my options. And despite ive had so many good years the fact that these are not permanent surgeries and that ill have to pay to go through all of that once again is really scary. Idont know id just like to listen to more perspectives on that subject.

    • @osteosarcomaMIB
      @osteosarcomaMIB ปีที่แล้ว

      This is something near and dear to all of us OsteoWarriors. Great suggestion! Will share with the osTEAo hosts for their consideration and discussion of how best to deal with these decisions.

    • @osteosarcomaMIB
      @osteosarcomaMIB ปีที่แล้ว

      Also, check out OsteoBites where there are several episodes where LSS, Amputation, and Rotationplasty are discussed with both the surgeon and the patient as guest speakers.

  • @kelliaholzworth9815
    @kelliaholzworth9815 ปีที่แล้ว

    Wow, she was really great at explaining the immune response. I love the clone trooper analogy!

  • @jeffreyc.walkeriii8231
    @jeffreyc.walkeriii8231 ปีที่แล้ว

    Thank you Kara. I am picking up my Prosthetic (below the right knee) the day after tomorrow. Wish me LUCK! :-)

    • @osteosarcomaMIB
      @osteosarcomaMIB ปีที่แล้ว

      May good luck be with you - though we suspect you do not need luck, you have already been through what most people believe to be their worst nightmare - and yet, you are smiling, alive, hopeful. Hope all is well with you and your new leg!

  • @patriceg8456
    @patriceg8456 ปีที่แล้ว

    We had the same experience when my 17yo was diagnosed. I am still grappling with some of those relationships and trying not to be resentful

    • @osteosarcomaMIB
      @osteosarcomaMIB ปีที่แล้ว

      @patriceg8456 how sorry we are that you experienced the same pain. Two thoughts for you: 1. Those that "left" were likely not your people to begin with. A painful loss - yes. Are you better off in the long run knowing that they are not meant for you - yes. 2. All above being written - can you remember a time when you did not have the courage, ability, knowledge, empathy, or bandwith, to show up for someone who was suffering that you knew? I know many of us have missed that opportunity to show love when we could have/should have. Give grace, and grace shall be yours. Hoping your 17 yo is well!

  • @elisecroissant
    @elisecroissant ปีที่แล้ว

    This is amazing, thank you guys so much

  • @raghavkumar6074
    @raghavkumar6074 ปีที่แล้ว

    Same here bro thanks for your inspiration.❤

  • @thebasics-c1w
    @thebasics-c1w ปีที่แล้ว

    Thank you for doing this.

  • @anngraham3244
    @anngraham3244 ปีที่แล้ว

    SO needed this episode! You two are wonderful, intelligent, extraordinary young women!

  • @ny5176
    @ny5176 ปีที่แล้ว

    My son has osteosarcoma had leg amputated 5 major surjerys please keep up research ect it means so much to us all what a strong lady its crazy 💔💔💔not fair 🎗

    • @osteosarcomaMIB
      @osteosarcomaMIB ปีที่แล้ว

      Thank you for your kind comment. How sorry we are you are facing the same battle. Please tell us how we can help. We have been there. XO & Hope. Mibagents.org

  • @LadyMagnolia-mx9ns
    @LadyMagnolia-mx9ns ปีที่แล้ว

    Keep your head up girl.

  • @denniscanariomusic
    @denniscanariomusic ปีที่แล้ว

    Livy and I were excited to hear you sing tonight at Localz. Awesome job!

  • @heather8307
    @heather8307 ปีที่แล้ว

    ❤️❤️❤️😭😭😭. What a beautiful soul Cheyenne was. We will all see her again.

    • @osteosarcomaMIB
      @osteosarcomaMIB ปีที่แล้ว

      That she was indeed Heather. And Yes we will. Until then, we Make It Better #BecauseOfChey and all those still suffering greatly from osteosarcoma.

  • @ericagarcia8503
    @ericagarcia8503 ปีที่แล้ว

    You are so beautiful! You are incredible and so strong. My son lost his right arm to this disease but he is still here too. Thank you for sharing your journey with us.

    • @osteosarcomaMIB
      @osteosarcomaMIB ปีที่แล้ว

      @ericagarcia8503 how sorry we are for the loss of your son's arm to this disease. Please tell us how we can be helpful. Does he game? We have a gamer program! See our website at MIBagents.org

  • @ericagarcia8503
    @ericagarcia8503 ปีที่แล้ว

    Hi Beautiful Ally, thank you for sharing this message of hope and understanding. You are incredible! My 11 yr old son is healing from his recent experience with this disease & amputation. We are so grateful for MIB warriors like you. ♥️