วีดีโอ

Penelope was sweet, feisty and independent. Grateful for the time I was able to spend with her. I will always remember her.

Je moeder is lekker zonder haar en heel erg zappig

L gepakt je moeder

Christina hello. My son has been sick with osteosarcoma since 2018 . Multiple metastases in the lungs and soft tissues of the thigh. Can I ask the doctor a question? Can my son take riluzole?

So proud of y’all! Thank you for sharing this!

Can we use bevacizumab with atezolizumab instead of cabozantinib?

😍😍😍

This so beautiful 🫶🏼🎗️🌻

Good question about collecting T cells preemptively to get better quality.

Lost my 14-year-old son to bone cancer it's just not fare 💔😭😭

Thx for sharing. Just got my atk leg and this helps

Hey Mia! I know someone name Mia she’s also pretty cool!

May there be a treatment soon! enough amputations! I have been surviving osteosarcoma. I am a fighter 💛

Because of me

Thank you for making these videos. I was wondering why Mirfamurtide was not approved in the United States, thank you for explaining the reason.

Great presentation. I am looking forward to the results from this trial and if it can leverage the abscopal effect of cryoablation.

Thank you. You help me so much 🌞

Cryoablation seems to have significant benifit that were not initially apparent. It may be a key to controlling metastasize in the lungs.

I love to interview you on my show Stories with Ori

You’re an amazing strong young lady. Keep it moving

Yall are so amazing - thank you for sharing your experiences!! And thank you MIB Agents for supporting this incredible cause <3

Why do no organizations help kids after treatment?

Cryoablation for lung mets is very intriguing.

Although I am long past the age that I would develop this type of cancer, I cant imagine what it would be like to be young knowing that despite the fact you had a limb amputated to stop it, its likely to return with a vengeance,

Did the cryoablation cause any reduction in lung function? Or any perceived reduction in lung function?

This is awesome! I’m a 39 year survivor. I longed for connections like this back in the day when I was a patient. I’m so proud of all you😎

Please donate HERE: give-usa.keela.co/2024-mib-agents-day-of-giving and SHARE! We need YOUR help to Make It Better!

RIP collin.

Will we ever find a cure for this disease? My son has been gone 5 years now also need a cure for a broken heart 💔

I love you guys.

Thank you! 💛

no problem ALLAH has given you cuteness and beauti

I am 29 chapters into my novel, I don't expect to be famous or have it sell ridiculously or anything like that. But if it did that would be nice, point is all of the money I make from it will be donated to you. 15 years, one month and 21 days of absolute hopelessness and despair. All that time wishing it was me and not her, you people are severely underrated and need more support. It kills more than children, it killed my soul. I wish I could have helped her, it won't bring her back but maybe if i can contribute somehow in the future..... Maybe someone else won't have to live in a nightmare.

thank you so much!

Sending hugs. Devestating disease 💛

Thank you so much for putting this great information out!

God bless her

Is immunotherapy working in osteosarcoma??

Thanks for sharing your story Carey. You are a real inspiration especially for those of us who struggle with a chronic illness or any serious illness for that matter. God bless and take care

Is i take immunotherapy for osteosarcoma metastatic??

Second time i have detected osteosarcoma in lungs should i survive??

Id love if you can fin different perspectives on the decission process, and the different things you have to face with each different decission. I've heard of cases when they choose amputation rather than limb salvage but they dont explain all the things they took into account to make that decission. I had LSS 13 years ago and despite the first year was very rough i had very good results and a very functional leg. Except ive had pain crisis from time to time. Now my prosthesis is becoming quite loosen and i may have to face revision surgery in the near future anf the thought of dealing with all of that again makes me wanna rethink my options. And despite ive had so many good years the fact that these are not permanent surgeries and that ill have to pay to go through all of that once again is really scary. Idont know id just like to listen to more perspectives on that subject.

Wow, she was really great at explaining the immune response. I love the clone trooper analogy!

Thank you Kara. I am picking up my Prosthetic (below the right knee) the day after tomorrow. Wish me LUCK! :-)

We had the same experience when my 17yo was diagnosed. I am still grappling with some of those relationships and trying not to be resentful

This is amazing, thank you guys so much

Same here bro thanks for your inspiration.❤

Thank you for doing this.

SO needed this episode! You two are wonderful, intelligent, extraordinary young women!

My son has osteosarcoma had leg amputated 5 major surjerys please keep up research ect it means so much to us all what a strong lady its crazy 💔💔💔not fair 🎗