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Family Voices of CA
เข้าร่วมเมื่อ 10 ก.พ. 2016
Family Voices of California is a statewide collaborative of locally-based parent run centers working to ensure quality health care for children and youth with special health care needs.
วีดีโอ
COVID-19 Eviction Protections and Fair Housing Rights for People with Disabilities in CA
มุมมอง 5092 ปีที่แล้ว
This webinar will cover the current COVID-19 eviction protections in California, as well as fair housing topics for people with disabilities such as who fair housing laws apply to, what qualifies as a disability, and the process for making reasonable accommodation requests from housing providers. Webinar Presenters: Naomi Sultan and Kate Bridal from Mental Health Advocacy Services, Inc. (Record...
Health Summit 2021 Plenary: What's New on the Horizon for Medi-Cal?
มุมมอง 842 ปีที่แล้ว
Slides: bit.ly/3DCiHla Patricia Moore, Director, Help Me Grow Santa Barbara County Mira Morton, Director of Government Relations, CA Children's Hospital Association Alison Beier, Parent Advocate, Member, Medi-Cal Childrens Health Advisory Panel Autumn Boylan, Assistant Deputy Director for Integrated Systems in Health Care Delivery Systems, Department of Health Care Services Mike Odeh, Director ...
Health Summit 2021 Closing Keynote: Senator Sydney Kamlager
มุมมอง 282 ปีที่แล้ว
Health Summit 2021 Closing Keynote: Senator Sydney Kamlager
Health Summit 2021 Breakout: Dental Care and Access to Care for CYSHCN
มุมมอง 642 ปีที่แล้ว
Slides: bit.ly/30zXBpj Moderator: Patricia Moore, Director, Help Me Grow Santa Barbara County Panelists: Clarissa Kripke, MD, University of California, San Francisco Ben Meisel, MD, Medical Director, CCS San Francisco, CCS San Francisco Karen Raju, Associate Specialist, University of California, San Francisco
Health Summit 2021 Breakout: Promoting Family-Centered Care with Whole Child Model Plans
มุมมอง 902 ปีที่แล้ว
Slides: bit.ly/3Fo10pI Moderator: Allison Gray, Senior Program Officer, Lucile Packard Foundation for Children's Health Panelists: Lianna Chen, Family Advisory Committee Member, Health Plan of San Mateo Caroline Davis, President, Davis Health Strategies LLC Dena Davis, Family Advisory Committee , CenCal Health Janna Espinoza, Family Advisory Committee Chair, Central CA Alliance for Health Ginge...
Health Summit 2021 Opening Keynote & Behavioral Health Plenary
มุมมอง 1142 ปีที่แล้ว
Keynote: Susan Philip, Deputy Director, Health Care Delivery Systems, California Dept. of Health Care Services Plenary: Behavioral Health and Children and Youth with Special Health Care Needs: Challenges and Opportunities Yvette Baptiste, Executive Director, Eastern Los Angeles Family Resource Center Anne Hall, Family Advisory Council Member, Family Voices of CA Jim Kooler, Dr.P.H., California ...
Health Summit 2021 Breakout: Telehealth and Access to Care for CYSHCN
มุมมอง 982 ปีที่แล้ว
Slides: bit.ly/323ZI4O Moderator: Elaine Linn, Project Leadership Manager, Family Voices of California Panelists: Gabriella Barbosa, Managing Director of Policy , The Children's Partnership Nancy Netherland, Parent Advocate, Kids and Caregivers James Marcin, MD, Professor, UC Davis
Health Summit 2021 Breakout: Sexual Orientation and Gender Identity for CYSHCN
มุมมอง 412 ปีที่แล้ว
Slides: bit.ly/3CtasXa Kim Baranek, MPH (she/her), Outreach and Education Specialist, California Children's Services, Alameda County Public Health Dept
Health Summit 2021 Breakout: Partnering with Regional Center Coordinators to Meet Your Child's Needs
มุมมอง 522 ปีที่แล้ว
Slides: bit.ly/3nsjP4W Jennifer Bloom, Associate Director of Client Services, Alta California Regional Center Linda Landry, Volunteer, Family Resource Center Network Los Angeles County/FRCNLAC Amy Westling, Association of Regional Centers Agencies Pamela Kerman, Board of Directors, San Andreas Regional Center
Health Summit 2021 Breakout: Durable Medical Equipment for Children with Special Health Care Needs
มุมมอง 442 ปีที่แล้ว
Slides: bit.ly/3Cu9QQQ Moderator: Laurie Soman, Senior Policy Analyst, Lucile Packard Children's Hospital/Stanford Children's Health Panelists: Alicia Emanuel, National Health Law Program (NHeLP) Janna Espinoza, Family Advisory Committee Chair, Central CA Alliance for Health Anna Leach-Proffer, Disability Rights CA
Medi-Cal Basics And Home and Community-Based Services Waivers For Children
มุมมอง 1.1K3 ปีที่แล้ว
Slides: [English: drive.google.com/file/d/1KEyXnNe5To3s7ESfBf6eA2RXLTsOIea4/view?usp=sharing] [Spanish: drive.google.com/file/d/13UiIzd0nGIfIBioZH_9eMAr1MNOcTjAF/view?usp=sharing] [Chinese: drive.google.com/file/d/1meDEPDj7VeobM5v2d-P6lqHWHns2xq4q/view?usp=sharing] This presentation discusses the importance of Med-Cal coverage for children with special health care needs and disabilities and des...
Self-Determination is here! Updates on Accessing This Alternative to Regional Center Services
มุมมอง 3783 ปีที่แล้ว
Slides: [English: drive.google.com/drive/u/1/folders/1g2yOnlNJJD0PnU9Ow9V-yuqCh5acbJHy] [Spanish: drive.google.com/file/d/1wGnKJ1zw_qb6eMciXnktNXlw8kMfT-sm/view?usp=sharing] [Chinese: drive.google.com/file/d/1vZFiUfPPC47A9F6Ldfz2dJcq2afp5TEH/view?usp=sharing] 25 years in the making, and now this June, the Self-Determination program finally becomes available to all California Regional Center cli...
Fair Housing and Tenancy Rights for People with Disabilities During the Covid-19 Pandemic
มุมมอง 7603 ปีที่แล้ว
Slides: [English: drive.google.com/file/d/1M75kuuie9VVAAhF-9LMeRsalk5xrbZex/view] [Spanish: drive.google.com/file/d/1-iG64Acpcdp_pw9iUNeKixmYt2la2foB/view?usp=sharing] [Chinese: drive.google.com/file/d/1-KOfkc-t7RkAXgEOVp1fdU1tOFVZcOfn/view?usp=sharing] Who is protected by fair housing law? How is "disability" defined under fair housing law? Is COVID-19 a disability? What is considered illegal ...
Demystifying Telehealth: What families of young people with special health care needs need to know
มุมมอง 5963 ปีที่แล้ว
Slides: [English: drive.google.com/file/d/1C7JuuE2IDLl_Cvap3vh4GySXEJxl1n_6/view?usp=sharing] [Spanish: drive.google.com/file/d/1iKQsD_-u84mjSUiYlMsLz25BuDgLhA1e/view?usp=sharing] [Chinese: drive.google.com/file/d/1-KW3cmOq2ULBjDBQ57IjZFiRWulZA496/view?usp=sharing] This webinar will create better awareness and understanding about telehealth, how families can use it, its value for children and y...
Service Provision and Advocating for Your Rights
มุมมอง 583 ปีที่แล้ว
Service Provision and Advocating for Your Rights
Service Provision and Advocating for Your Rights
มุมมอง 503 ปีที่แล้ว
Service Provision and Advocating for Your Rights
Service Provision and Advocating for Your Rights
มุมมอง 983 ปีที่แล้ว
Service Provision and Advocating for Your Rights
“Choosing peace over choosing to be the perfect parent” Family Mental Health Challenges During COVID
มุมมอง 1963 ปีที่แล้ว
“Choosing peace over choosing to be the perfect parent” Family Mental Health Challenges During COVID
What Is The Whole Child Model In California
มุมมอง 2914 ปีที่แล้ว
What Is The Whole Child Model In California
New Advocacy Strategies for Changing Policies
มุมมอง 2344 ปีที่แล้ว
New Advocacy Strategies for Changing Policies
Self Determination and Person Centered Plans
มุมมอง 7554 ปีที่แล้ว
Self Determination and Person Centered Plans
Fair Housing Protections for Children and Adults with Disabilities
มุมมอง 2.3K4 ปีที่แล้ว
Fair Housing Protections for Children and Adults with Disabilities
Medi-Cal 101 for Children and Youth with Special Needs
มุมมอง 3184 ปีที่แล้ว
Medi-Cal 101 for Children and Youth with Special Needs
Getting Help with Medi-Cal In-Home Nursing
มุมมอง 3005 ปีที่แล้ว
Getting Help with Medi-Cal In-Home Nursing
Department of Managed Health Care: Help Center 101
มุมมอง 3475 ปีที่แล้ว
Department of Managed Health Care: Help Center 101
Current Issues in In-Home Support Services (IHSS), Parent Provider Issues, Assessments, and EVV
มุมมอง 11K5 ปีที่แล้ว
Current Issues in In-Home Support Services (IHSS), Parent Provider Issues, Assessments, and EVV
The Public Charge Rule What it is and How it will affect Children and Families
มุมมอง 1675 ปีที่แล้ว
The Public Charge Rule What it is and How it will affect Children and Families
My Patient Rights - Removing barriers to treatment and care
มุมมอง 1455 ปีที่แล้ว
My Patient Rights - Removing barriers to treatment and care
I see no law in there slides. What thoa and almost everyone of these LAW FUNDED STORY TELLING HOUR share no actual laws in the slides or in there spoken words. Is this presentation funded by a state or local program? Or ia this of your own want and accord? What is the amounted allocted eligible expense cost activity, whatever for this story time adventures in law on line youtube program?
Why Don't these presenter share the actual law then the story of the law?
We need more IHSS to go talk to schools
Why don’t they have a tutorial on 2024 application and how to submit sheets
I don’t understand why this doesn’t get informed in schools
05:14, apparently, not knowing what DMHC is all about is prevalent even in 2023 since the majority of the staff within the department are imbeciles. 06:18, the DMHC staff doesn't even know they "regulate" most Medi-cal plans. 09:11, according to DMHC in a written response to legislation, yes, I said legislation...they don't even know if they have jurisdiction over a MANAGED PLAN THAT IS A PART OF MEDI-CAL!!! Lol! 12:00 and on...LIES!!! They do NOT properly investigate! Additionally, in most of all responses I've seen from DMHC, they simply indicate they were handing the matter BACK OVER to the plan, the plan they didn't know they had jurisdiction over, to remedy the situation and absolutely NO regard to the Keene Knox Act! 13:08 I would ALSO cataorigize continued similar issues as a systemic problem as well! Apparently, this person speaking needs to speak to others in DMHC about this including Mary Wantanbe, the new incompetent Director. Interesting...systemic issues are tracked and THEN reported to the enforcement department of which she "hopes" they'd enforce the law....do pray tell, why is this "hoped" for? 14:55 another lie! I encourage all callers to record calls when calling DMHC on the phone. She's lying because calling does NOT give you the help you need, ESPECIALLY if you're disrespected by staff or you call in and staff aren't equipped to answer and tell you to submit an email instead. 15:05, another lie! Calling DMHC for urgent matters gets you nowhere but told to call during normal business hours and go to the doctor or ER! 15:26, last lie I will deal with before I stop listening to this garbage of lies. DMHC does not "help to resolve" issues with health plans and if for some, most definitely not for everyone. I cannot wait to finalize my brochure educating people of their rights, get a petition done, and go public. As a state employee myself, I could NEVER treat constituents as the DMHC does by any means. The majority of the staff I've dealt with are incompetent, unprofessional, imbeciles, and frauds.
What is your contact information?
How can reach out to you?
Well I am physically challenged. And I'm about to be put out on the street under Section 8 because I had asked to have my roof fixed yeah
Do you have a family voices for the state of Kansas?
Google knows everything if you ask a question ask them first
Finished?
I will use Weedborn CBD products this time :)
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I need help
Where and how to file an Ada claim
What if tenants residing in housing prior to the tenant needing an accommodation are allergic to certain/specific animal
If the Low-income/Fixed income Tenant using a wheelchair has lived in rental property for 17 years, and just ncurred 8% Rent Increase, requests 30 year old carpeting to be replaced with hard flooring (LVT-- not Hard Wood) for easier mobility, is Tenant or Landlord responsible for costs? Rent has also been increased Thank You.
If the Tenant using a wheelchair has lived in rental property for 17 years, and requests 30 year old carpeting to be replaced with hard flooring (LTV) for easier mobility, is Tenant or Landlord responsible for costs? Thank You.
How to prove discriminatory practices. That's a good one
Couldn't agree more with you Alison, about the IHSS program and how tremendous it is, in our lives! And thank you for being our voice, im so happy I stumbled upon this video! Actually thanks to all of you, im glad I watched this. 😊
I live in a senior HUD apartment complex. It's a well kept community in upstate South Carolina. Unfortunately, most people are anti vaccine. I'm being pressure by management to have them enter my apartment for non-emergency inspections. I have underlying health issues and have self isolated myself until it is safe. I feel Covid-19 and it's variants are getting much better in other areas of the U.S., but not here. At this time, I don't feel it's safe for these non-emergency inspections. If something was in need of repair I would allow them access. They keep harrassing me. Is there anything I can do. It's really causing extreme anxiety and stress.
I wish they gave me this information before I filled out the applications. Now that my child has been approved, I see that they didn’t give him all the service hours he needed. Now I have to apply for a hearing. Is there a handout for all these slides?
Do we click complete after each video or at the end of the complete video
Do we click complete after each video
Yeah it would be great if next time the mic wasn't on your mouth because the sound quality is very distracting
Thank you for understanding
how do i verify completion of viewing this orientation video
My favorite part starts at minute 46. Talking about the time that teleheath can save you when your medically complex child needs a lot of specialist appointments.
I was born with epilepsy and cerebral palsy. I have a twin brother, i was born first. My brother was born with no problems. I take phenytoin for my epilepsy, as a child I was on phenabarbatone, then at 14 i was put on Epilim 500mg. Which caused me to gain lots of weight. I went to live in Canada for a few years where I was taken off eperlim & switched to phenytoin. Which I still take today. As a child I had grand mal seizures, which doctors said I would grow out of. Which I did, but I now have petit mal. It' feels weird when I have it, i can hear all that's going on around me, but ppl and any noise, sound much louder, plus it feels like I'm floating on water. Before the seizure I get the smell like burnt toast. I can have a seizure at any time, night or day. Unpredictable. I feel a little confused when I come round, which lasts for a couple of minutes, then I'm back with you again. Usually a cup of tea helps me recover. I read a lot of blogs where people who shared their testimonies kept mentioning Anti-seizure Herbal medication. I searched for a website I just followed the email address of Doctor Patrick that was shared on these testimonies; I got lucky when I got a reply from Dr. Patrick. I followed his instruction, used Herbal Medicine in less than 2 months, I was already cure because of the changes I was seeing. Within a period of 5 months, I was cured totally forever. I went back to my neurologist, I was checked up and marked epilepsy free. If you need his help you can Contact this herbal doctor via his email herbalmedicalhome@gmail.com and WhatsApp connection is +2348102558553 for help.
I want to go to time sheets
The video title is exactly what I have been going thru. I spend a ton of time researching everything, but... We still have not received any services, close to one year. It's very difficult when the service coordinators will not communicate in writing, or will not clarify if they are not providing a service because it's not legally available, or if they don't 'think' you need it, and will not discuss it and become defensive and dismissive. When they refuse to redo the IPP document from an invalid IPP meeting, and it takes over two months just to get a copy, and the contents are inappropriate and not how the documentation (IPP manual, Lanterman Act docs...) describe the purpose and content of the IPP, and so on. Or when they do a horrible job (because a provider because abusive with me) of providing one particular service and it drags on for months and then fails, and then they say that they actually don't provide that service. I am aware of the issues with their caseloads and budget issues and so on, however, that does not account for what has been going on. I hope to get things on a positive note and eventually start obtaining services, so that I can write a more positive comment.
wonderful information!!