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Disney Mummy with MS
United Kingdom
เข้าร่วมเมื่อ 11 ม.ค. 2016
disneymummywithms
disneymummywithms/
Full time Mummy who has MS and loves and adores Disney
This is my channel to chat about me, my family, my health , my travels and much more.
disneymummywithms/
Full time Mummy who has MS and loves and adores Disney
This is my channel to chat about me, my family, my health , my travels and much more.
1000 Subscribers!!
Thank you to everyone for helping me get to 1000 subscribers
A mum of two little girls, who has had Relapsing Remitting Multiple Sclerosis (MS) for 12 Years currently on Tysabri Infusions. Who loves and adores anything to do with Disney.
I have a couple of Disneyworld holidays booked and I can't wait to share them with you.
I also am looking forward to vlogging my MS journey with you to show you it is not as scary as it seems.
A mum of two little girls, who has had Relapsing Remitting Multiple Sclerosis (MS) for 12 Years currently on Tysabri Infusions. Who loves and adores anything to do with Disney.
I have a couple of Disneyworld holidays booked and I can't wait to share them with you.
I also am looking forward to vlogging my MS journey with you to show you it is not as scary as it seems.
มุมมอง: 156
วีดีโอ
18 years of us
มุมมอง 2843 หลายเดือนก่อน
To celebrate mine and Chris's 13th Wedding Anniversary and 18 years of us being together, I wanted to share pictures of me and Chris over the 18 years to the song that was played as our first dance at our wedding. A mum of two little girls, who has had Relapsing Remitting Multiple Sclerosis (MS) for 12 Years currently on Tysabri Infusions. Who loves and adores anything to do with Disney. I have...
Florida 2023 - Day 14 part 2 ( The lost footage)
มุมมอง 3313 หลายเดือนก่อน
I have found the lost footage from Day 14 of our 2023 trip We have lunch at the three broomsticks having the fish and chips, butter beer ice cream. Before an evening at Longhorns steakhouse A mum of two little girls, who has had Relapsing Remitting Multiple Sclerosis (MS) for 12 Years currently on Tysabri Infusions. Who loves and adores anything to do with Disney. I have a couple of Disneyworld...
Haven Hopton and Great Yarmouth 2024 - Day 2
มุมมอง 1.9K3 หลายเดือนก่อน
Join me and my family as we head to Great Yarmouth. We go on an adventure down Regent road as we head towards Great Yarmouth seafront and go to Joyland. A mum of two little girls, who has had Relapsing Remitting Multiple Sclerosis (MS) for 12 Years currently on Tysabri Infusions. Who loves and adores anything to do with Disney. I have a couple of Disneyworld holidays booked and I can't wait to ...
Haven Hopton holiday village 2024 - Day 1
มุมมอง 4.6K3 หลายเดือนก่อน
Join us at Haven Hopton holiday village, where we check in and explore our saver caravan, see the swimming pool at Hopton and the clubhouse in rhe evening. A mum of two little girls, who has had Relapsing Remitting Multiple Sclerosis (MS) for 12 Years currently on Tysabri Infusions. Who loves and adores anything to do with Disney. I have a couple of Disneyworld holidays booked and I can't wait ...
Florida 2023
มุมมอง 2714 หลายเดือนก่อน
A mum of two little girls, who has had Relapsing Remitting Multiple Sclerosis (MS) for 12 Years currently on Tysabri Infusions. Who loves and adores anything to do with Disney. I have a couple of Disneyworld holidays booked and I can't wait to share them with you. I also am looking forward to vlogging my MS journey with you to show you it is not as scary as it seems.
Florida 2023 - Day 18 - Travel home day
มุมมอง 2724 หลายเดือนก่อน
A mum of two little girls, who has had Relapsing Remitting Multiple Sclerosis (MS) for 12 Years currently on Tysabri Infusions. Who loves and adores anything to do with Disney. I have a couple of Disneyworld holidays booked and I can't wait to share them with you. I also am looking forward to vlogging my MS journey with you to show you it is not as scary as it seems.
Florida 2023 - Day 17 - Last full day in Florida
มุมมอง 2994 หลายเดือนก่อน
Join us for our last full day in Florida, where we head to Universal Studios A mum of two little girls, who has had Relapsing Remitting Multiple Sclerosis (MS) for 12 Years currently on Tysabri Infusions. Who loves and adores anything to do with Disney. I have a couple of Disneyworld holidays booked and I can't wait to share them with you. I also am looking forward to vlogging my MS journey wit...
Florida 2023 - Day 16 - Islands of Adventure and Volcano Bay
มุมมอง 3114 หลายเดือนก่อน
A mum of two little girls, who has had Relapsing Remitting Multiple Sclerosis (MS) for 12 Years currently on Tysabri Infusions. Who loves and adores anything to do with Disney. I have a couple of Disneyworld holidays booked and I can't wait to share them with you. I also am looking forward to vlogging my MS journey with you to show you it is not as scary as it seems.
Florida 2023 - Day 15 - Islands of Adventure and Cowfish
มุมมอง 3394 หลายเดือนก่อน
Join me and my family on day 15 of our Florida Vacation. Where we head to Islands of Adventure to cast some spells with Tilly's magical wand. In the evening we head to cowfish and then have Milkshakes at Cabana Bays malt shop A mum of two little girls, who has had Relapsing Remitting Multiple Sclerosis (MS) for 12 Years currently on Tysabri Infusions. Who loves and adores anything to do with Di...
Florida 2023 - Day 14 - Tilly's 14th Birthday at Universal
มุมมอง 3575 หลายเดือนก่อน
Join us for day 14 of our Florida Vacation, where we spend the day giving Tilly a Harry Potter Themed birthday. Then in the evening we head to Longhorns steak house for the most amazing steak meal ever A mum of two little girls, who has had Relapsing Remitting Multiple Sclerosis (MS) for 12 Years currently on Tysabri Infusions. Who loves and adores anything to do with Disney. I have a couple of...
Florida 2023 - Day 13 - First Day at Universal Studios and Black Angus steak house
มุมมอง 3815 หลายเดือนก่อน
Join us on day 13 of our Florida vacation. Where we head for our first day at Universal Studios. Then a meal in the evening at Black Angus Steak house A mum of two little girls, who has had Relapsing Remitting Multiple Sclerosis (MS) for 12 Years currently on Tysabri Infusions. Who loves and adores anything to do with Disney. I have a couple of Disneyworld holidays booked and I can't wait to sh...
Florida 2023 - Day 12 - Move to Cabana Bay at Universal & Dinner at Toothsome emporium
มุมมอง 3595 หลายเดือนก่อน
Join me and my family on Day 12 of our Florida Vacation, where we move over from Disneys Pop Century Resort and head over Universal's Cabana Bay Resort. We also have breakfast at the Pop Century quick serve, visit the premium outlets on International Drive and then have an evening meal at Toothsome imporium. A mum of two little girls, who has had Relapsing Remitting Multiple Sclerosis (MS) for ...
Florida 2023 - Day 11 - Halloween at Disneyworld!! Magic kingdom and trick or treating
มุมมอง 4165 หลายเดือนก่อน
Join us for day 11 of our Florida holiday. where we spend our last full day at Magic Kingdom and then trick or treat around the Disney hotels on the Skyliner route A mum of two little girls, who has had Relapsing Remitting Multiple Sclerosis (MS) for 12 Years currently on Tysabri Infusions. Who loves and adores anything to do with Disney. I have a couple of Disneyworld holidays booked and I can...
Florida 2023 - Day 9 - Animal Kingdom and Hollywood Studios
มุมมอง 5336 หลายเดือนก่อน
Join us for Day 9 of our Florida Vacation, where we head to Animal Kingdom in the morning before heading to Hollywood Studios to see fantasmic in the evening, Please be aware my MS and legs decided to play up during this day, so we had to hire a wheel chair at Disney to be able to enjoy our evening at Hollywood Studios. A mum of two little girls, who has had Relapsing Remitting Multiple Scleros...
Florida 2023 - Day 8 - Disney Springs and Pontoon Boat at Magic Kingdom
มุมมอง 5986 หลายเดือนก่อน
Florida 2023 - Day 8 - Disney Springs and Pontoon Boat at Magic Kingdom
Florida 2023 - Day 7 - Magic Kingdom and Pop Century Resort
มุมมอง 4516 หลายเดือนก่อน
Florida 2023 - Day 7 - Magic Kingdom and Pop Century Resort
Florida 2023 - Day 6 - Epcot Food Moana Journey of Water and Disney Springs Homecomin
มุมมอง 5277 หลายเดือนก่อน
Florida 2023 - Day 6 - Epcot Food Moana Journey of Water and Disney Springs Homecomin
Florida 2023 - Day 5 - The day my camera broke!!
มุมมอง 5517 หลายเดือนก่อน
Florida 2023 - Day 5 - The day my camera broke!!
Florida 2023 - Day 10 - Epcot and Riviera Resort
มุมมอง 2747 หลายเดือนก่อน
Florida 2023 - Day 10 - Epcot and Riviera Resort
Florida 2023 - Day 4 - Epcot day at the Food and Wine Festival
มุมมอง 7107 หลายเดือนก่อน
Florida 2023 - Day 4 - Epcot day at the Food and Wine Festival
Florida 2023 - Day 3 - Hollywood Studios and Chili's
มุมมอง 9327 หลายเดือนก่อน
Florida 2023 - Day 3 - Hollywood Studios and Chili's
Florida 2023 - Day 2 - Animal Kingdom and an evening around Pop Century
มุมมอง 7457 หลายเดือนก่อน
Florida 2023 - Day 2 - Animal Kingdom and an evening around Pop Century
Florida 2023 - Day 1 - Trip to Magic Kingdom, Walmart and Hollywood Studios
มุมมอง 1.2K8 หลายเดือนก่อน
Florida 2023 - Day 1 - Trip to Magic Kingdom, Walmart and Hollywood Studios
Florida 2023 - Travel Day - Checking into Pop Century
มุมมอง 4.3K8 หลายเดือนก่อน
Florida 2023 - Travel Day - Checking into Pop Century
Florida 2022 - Day 18/19 - Magic Kingdom and Last day
มุมมอง 261ปีที่แล้ว
Florida 2022 - Day 18/19 - Magic Kingdom and Last day
Florida 2022 - Day 17 - Epcot and Disney Springs
มุมมอง 266ปีที่แล้ว
Florida 2022 - Day 17 - Epcot and Disney Springs
Looks like they didnt make the beds up very well. Becky
Thank you for your informative stories
Hopton is a lovely site. My favourite x
🧡
Ooh just realised you put the same clip in twice LOL [the bit that says its where you had your ears pierced] ! Loved your 2 part vlog though, you're a lovely lady.
Thank you so much
Yeah, "snowflake" disease, different for everybody. With my MS I don't have pain but have tingling and numbness in my feet. I walk like a drunk and have strength issues in my legs. Walk with a cane in public, have a hard time with stairs (need to pull myself up with handrail), stepping up curbs, etc. But try not to use a cane if I can. Try to force myself to walk. I was in college part time this winter, only took 3 classes, 4.0, so don't think I have memory or cognitive issues..... yet! Have fatigue, worsens as day goes on. I worked this weekend, came home went to bed at 9:00 PM slept until 4:00 PM the next day. Have bowel and bladder issues. Mine are similar: I have leakage (bladder) but have trouble going when I think I have to go. Bowel is different: If I feel I need to go soon, I must go! Because there is a point where I cannot hold it. I will maybe have 20 to 30 minutes to start looking for a place to go if I am away from home. I also have speech issue (talk like I'm, drunk), comes on as I get fatigued. I ironically have chronic insomnia too. My vision issues may be unique, not heard anyone else that experiences this. Worn glasses for years, but sometimes still have vision go blurry or double vision that goes away after a few minutes. With glasses on.
Also does it have direct access to the beach? Thanks xx
Yes
Hi looking at trying this site normally go caister, does it have a playgroup? Swings etc x
I just stayed at Greenways 72, we loved it!
im so pleased you loved it. I loved staying at Hopton
Does it have a playground? And direct access to the beach?x
@@louisewright2693 it does! Believe there are a few playgrounds
I hope you enjoyed your stay with us from Alan in Lowestoft a cleaner at Hopton Haven 😊
We did! We can't wait to book and come back to Haven again
@disneymummywithms we look forward to seeing again soon
@@alanshelly7068thank you
Hi is there a playground and direct access to the beach?
@louisewright2693 yes there are play ground and you are able to get to the beach
Is there cross road in the arcade? 😊
im afraid I don't know for definite. I asked my girls and they think there was one. Sorry I couldn't be much help
Great video. We're heading there tomorrow.
Thank you. Hope you have a lovely time
I LOVE this song 😊 great video Tara 👍🏻🙂
Thank you. It is my favourite video I have ever created
My heart broke for you. I deal with the same thing. I find its best that nobody touches me when it happens. I forced my arm to straighten once and it really hurt my muscle after the contraction was done. I have MS which makes it happen. I'm not sure if that is what you have. I have to be on several meds for my nerves and 1 muscle relaxer I take regularly.
I've been told these aren't related to the MS, however I have been told since that they are non epileptic seizures. I am on a lot of nerve medication to try and keep everything under control too x
I look forward to each of your vlogs, thank you x
Thanks
No problem
When were you there please?
This was the beginning of November 2023
Great vlog love watching universal vlogs as never been there before
Thanks so much! We love Universal
your eldest is your twin! ❤
Thank you. She is definitely my mini me
Fantastic vlog as always x
thank you
I really love the costumes that they are wearing
Lovely vlog as always. You do amazing as its such a physical demand on the body going through the parks even for fit people. Your girls are so lovely. Tilly is your double. In this vlog you were like twins walking through the emporium. Take care and hope you are keeping well.
Thank you so much! Tilly has always been my mini me and its so sweet to hear other people think so too x
Have you ever looked at cervical cranial instability (CCI) when neurologists can't find anything wrong it's usually that. the atlas c1 and c2 aren't aligned properly and it irritates the vagas nerve.
I am proud to be one of your subscribers! 😊 As a young woman newly diagnosed with MS who always loved going to Disney every year, I really appreciate hearing your experience! By just sharing your adventures I've learned quite a bit about how I can make another Disney trip possible while protecting my health. Thank you for sharing the highs and lows of a Disney vacation with a disability, it is very helpful and inspiring ❤ Cheers from the US! I hope you and your lovely family are doing well!
Thank you so much, that is so kind of you. Sorry to hear about your MS diagnosis. Im always here if you ever want to chat.
Wow 🤩 your 2024 trip , is like a fantasy trip come true !! I cannot wait to see all the wonderful vlogs you will make while on your in LA and Hawaii !! I bet the girls are beyond excited 😆
Thank you. We are all so extremely excited . Chris said he wanted his birthday trip to be special. Then when I was incredibly poorly at the beginning of last year I started looking into it and realised how we could make it happen
Looks like you had fun! We were there last week. Fun but exhausting, I feel like I need a vacation from my vacation lol.
I must admit I do struggle with the parks, which is why we love to chill by the pools during the afternoons. Hope you had a lovely vacation
We absolutely love Pop Century, the skyliner is the icing on the cake!
I’d love to stay at all the Disney hotels at least once. But Pop is definitely one I will always come back to as it’s amazing value for money with having the skyliner
@@disneymummywithms absolutely! My dream hotel would be the poly🥰
Thats my 4th favourite Park as well
I use a heating pad..it really helps.
thank you for the advice. I have found hot water bottles is the best for me.
How long was the flight?
about roughly 9 hours
Love the gastons cinnamon roll
Where did you get the waffles from?
sleepy hollow refreshments near the Christmas shop
Do you have any proper old videos of the layout of the park was like? If you don't mind me asking... They was my childhood memories. It's such a shame they changed it all 😢
im afraid I don't. as I only started filming after they had done it. my husband used to love going there when he was a child so has soo many happy memories from there too. and years ago my grandfather used to run the camp site before it was haven. so it has a lot of happy memories for us.
Great vlog do you like staying at the Pop hotel , have been looking at staying their
thank you. I absolutely love it there. its perfect for the skyliner and the food court serves amazing food, plus its such a great value for money
hi , i have this and i want to know too and asked a few , its when im super stressed so i wonder if cortisol, (im like the child in exorcist ) ,,, how u doing ?
I have found mine is more when I am struggling with pain or I have an infection. I have learnt what is best for me and try my hardest to avoid any triggers
Hope you have been able to get some relief since posting this video. I have a long history of similar spasms. Wish I had answers for you. I was first diagnosed with MS, then it was discovered that I have spinal compression. Neither seems to really explain the severity of the spasms. A combination of baclofin, daiazepam, and tizanidine seem to keep it under control most of the time. Of course all can be sedating. I have to try to balance what to take and when. When things are at their worst there is nothing to do but take tizanidine and sleep until my body relaxes.
thank you, I must admit, I have learnt to live with these and understand them a lot better now. hope your ok
When you have insomnia and discomfort try some magnesium carbonate called Calm.
no I haven't, but will look into it. thank you
Hello, Im your new subscriber. What was your diagnosis in your ms? Where i can message you for privacy
Hi, What causing your heart rate while doing nothing, by stand up or walking?
It turns out I have POTs which is why my heart increases while standing
I’ve been in terrible pain for 30 years with this MS. I was only diagnosed 2 1/2 years ago so it’s been a rough journey. You are brave. Your plea has touched me. I wish I could give you some tips. It can go right into the bones. I hope you find relief. They are full of useless pills, gadgets and declare themselves knowledgeable. They know nothing as you are the one in it. I will have a think….
I've had a lot of what could be MS symptoms over the years, but there have been recent events that are more concerning and the neurologist had no clue. For a period of a few days my legs felt like they were a foot or two in front of my body and it made me feel like I needed to lean forward so I wouldn't fall backward which ironically made me feel like I was going to fall forward. Another scary event was when I got total paralysis and lack of sensation in my leg while lying in bed. It lasted a couple of minutes and I was finally able to kick it with my other leg and it was like the switch flipped back on. I've had lots of numbness, etc. over the years and that was definitely not what this was. The MRI on my brain and spine were done without contrast so I hope they didn't miss lesions. My wife asked me if I maybe had MS and I kind of felt like that could be ruled out because of the MRI, but it makes me wonder how much of it can go under the radar. Thanks for helping in my search for answers.
Would u suggest getting the chicken and donuts when we got to homecomin
Hi I have just come across ur smear video well done you for doing that I was just wondering did you get them results and was I still hpv positive ect sorry o know it was a while ago lol x
yes I did, I have also had another swear test since this video and both results came back clear from HPV. Hope that helps. x
@@disneymummywithms thanks so much for the reply glad all is welll x
Also the Market Chips are the best!
we adore the market chips, also the ones on Norwich market are just as good too
You cannot beat the snail ride! I love Yarmouth and Hopton. I'm off to Hopton on Friday
hope you have an amazing time and fingers crossed the weather will be nice for your trip
amazing xxx
thank you x
@@disneymummywithms But how is your MS pain and symptoms? I just watched a post from 4 years ago. I’m in the middle of being diagnosed and trying to find answers and pain is so bad, as you described in that video from 4 years ago. I can’t even walk anymore. Not for long at all. So many issues. Glad to see you are better. What did you do for improvement?
I love watching your videos xxxx
that sprinkles cupcake was amazing .
Cardiologist told me its autonomic system dysfunction of multiple sclerosis
really? I have since found out I have POTs and the tysbri might have been what triggered the new condition
Hospital blames everything on anxiety it's crazy
Can relate..Having same issue due to ms
@yaneshpuddoo3131 hospital emergency room told me its anxiety
@@DoorDashers791 please don't let them fob you off, they tried to do the same with me. but now I know what is wrong I know how to deal with the symptoms
How are you
I am a lot better now, I ended up have to go to London to find out what was causing it, now I know what it is I know how to manage the new condition alongside my Tysabri treatment
@disneymummywithms4031 which medication do you take for pots