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I love it. Such good memories.

Looks awesome! Sorry we missed it this year

Love it.

I have psc.

God be with you. We lost our son to this in 2015. He had a tough go of it but never gave up. Don't let it get you down.

Dear Emmet. Hope you are doing well. Is it possible to reach out to you or your parents. I have a young family member most likely has psc/overlapping auto immune hepatitis. Thank you Steven

Lee Linda Perez Margaret Garcia Betty

Hello, my 10 year old daughter was diagnosed with PSC 3 years ago. We contacted a Dr. Davies in Sacramento, CA. and was put on 500mg of Vancomycin Capsules 3 times a day and (1) Visbiome 112.5 Billion Probiotic capsule daily. Within 30 days, all the elevated blood test numbers were back to normal and has been this way to this day with a normal colonoscopy just a few weeks ago. Highly recommend this treatment to anyone that has PSC. My daughter’s doctor also treated a small boy with worse blood test numbers and is now back to normal as well. Please give this treatment plan a try, it really works!

I had a livertransplantation and now I have PSC again. Thanks to that I am barely able to make progress in my career as a Physician. It's a blessing and a curse to be a Physician with this kind of disease.

I got Livertransplantation in July 2020, now the PSC came back and I can do it all over again.

I’m worried I’m starting with this. I had acute severe Colitis last year and was very unwell for 5 months Since then my bloods always come back with high bilirubin. They have told me I have Gilbert’s disease but I’m not too sure as it’s only since being unwell with my Colitis flare that I have had a liver issue with the blood results. Never had high bilirubin in my life until then.

Good information share 👍

I have a TIPS. Procedure was performed in 2007 Mayo Clinic Jacksonville. Not much has been available or follow-up on TIPS. I am one of the longest living patients with TIPS. Just beginning to notice muscle loss. Wayfarin use for 17 years has affected the aortic valve. I do have some biliary issues. Would love to interact with a Mayo Liver Team regarding how remarkable I have gotten along.

Why do you wait until people are diagnosed with severe problems before giving this to people people know they have gallstones they tell their doctor they have gallstones they tell them that they've been passing gallstones and yet the doctors don't believe it because they can't see it on any imaging test but they don't show up on imaging tests unless there are certain type of gallstone and it's not the type that Ursula treats

Urso seems to be the only option besides removing the gallbladder so wouldn't it be worth a try

well done !

I love you, Dr Pratt 😊

God bless y’all!!! 🌼🤍🙏🏼

God bless

This was such a beautiful story about Ian and Jessica. Our family went through this and it was so touching as we know exactly what Jessica went through. As caregivers, our family so identified with Ian. Thank you for sharing your journey and congratulations on your successful result.

God is good all the time,

Yes but god

Love

For those who haven't checked out David's videos - he began in Georgia in mid-January and is currently in southwest Virginia, a couple days' hike beyond Damascus, Va. He's doing great! Keep going, David! 🚶‍♂🚶‍♂🚶‍♂🚶‍♂

Heck yeah!

Your a rockstar! Keep pushing!

Terrible time to need such help. Doctors and nurses ( me included) will not ever nurse again since the way we were treated during Covid. There is no reason the hospital can’t find a living donor. They’re in the money making industry

I loved Jessica and Ian's story. Very well done and inspiring. My husband also had PSC and had a living donor liver transplant in 2019. His brother-in-law was his donor.

It is so heartwarming to see such a beautiful life ahead… I am a 9 month (almost) liver transplant patient from PSC…. tremendous crossed feelings… !!!!

my wife was my living donor and what a wonderful coincidence to see this video on Valentines day. She provided the ultimate selfless gift, a second chance at living. I have been where you've have been and experienced much of the same journey. I wish you the best and a healthy future, we both certainly deserve that and if it's any help, post transplant has provided me a new life and I've been fortunate to not have a bumpy ride post transplant. God bless..

Very well-done film and gives me hope for my own daughter's future with PSC

I am so fond of them. Go Jessica and Ian!!!! Rooting for youse!

Wow. I laughed, I bawled my eyes out...ok I bawled a lot more than I laughed. Thank you so much for sharing your journey, giving us hope and being so dang amazing.

When and where is the conference im close to mayo in jacksonvills fl

HAS ANYONE TAKING URSODOL MEDICATION HAS GAINED WEIGHT

Thank you for having the foresight to start this amazing organization . . . and the determination to work to see it flourish!

wishing the whole psc community a wonderful new year

Happy new years to you and everyone there at PSC partners.

One thing people should know is that one cause of p s c is for patients that have ulcerative colitis and crohn's disease. Also start drinking coffee. It helps keep the disease from getting worse.

I have PSC and I found out by reading my file not by the doctor explaining it to me. I do not know how long I have had it. I am unsure of my future but I am doing what I want with my life until it is my time.

Thank-you for sharing this. My son, 43yrs. old, had his transplant when he was 31. Over the years since he really won't share his feelings with me much. He really suffered with a lot of rejection episodes the first year. He's pulled through all of them thank God. He also has UC. My very best to you and your family as you continue your journey...hugs.

Any update? Hope you are feeling better. I dealt with bile issues with Gallbladder- not fun.

I have PSC

Hi, even though you couldn't attend the conference, it's fantastic to hear you're on the mend. I hope Best regards from Norway, Espen.

Promo>SM 😪

Could you share the ppt with us. Thanks

We will find a cure.. it’s an honor to be apart of this community. In memory of my mother Caroline Banks; PSCer

Keep fighting Emmet.

I can’t wait to see my PSC peeps and meet and make new friends!

Please pray together for all the pscers,for a cure of psc. There are many that can not come