This channel has been so helpful. My father (54) was diagnosed in 2024. Still very fresh for my brother and i 23, 24. In terms of what’s coming over the horizon. Absolutely devastating disease. This man, if nothing else, has had a massive impact on me and I wish him the most restful passing into the next life and massive respect to him and his strength
ALS is caused by various fungi that can enter the body in several ways. Often times the infection begins in the upper regions of the nasal cavity infecting the olfactory nerve. From there, the infection slowly makes its way into the frontal lobe (motor cortex) which is what causes the disruption to signals to muscles. The parietal lobe is often unaffected because of the central sulcus - a physical structure in the brain that separates the frontal and parietal lobes - that is why most ALS patients have no problem with sensory (feeling); the infection cannot cross into the lobe to affect sensory neurons. Another clear indicator that the disease is caused by fungal pathogens is the increased level of CHIT1 proteins. CHIT1 is a protein released by mammals to fight pathogens with chitin in their cell walls such as fungi. These fungal infections are known as "insidious infections" meaning there is no sign of infection until you have serious symptoms such as muscle weakness. To treat the disease, heavy antifungals are required for long periods. Most doctors are not aware this is now a treatable disease and are still approaching it with conventional wisdom. If you have been diagnosed with ALS or a similar neurodegenerative disease, be sure you do significant research on fungal infections and their treatment. It is important also to note that companies in the US and Europe make billions annually selling equipment to patients with this disease and others like it.
ALS seems to be caused by TDP-43 protein build-up. A couple treatments are in clinical trials. Unfortunate that Kevin passed about ~10 years too early, but hopefully he had a good life and his family and friends remember him fondly.
The lake is likely the reason why you developed als, a neurotoxin called bmaa produced by the blue-green algae seems like one of the risks factors for als, living around a lake increases by 25 times the risk of als....if any family member read this, move if you still live there, research the matter by yourself....
Ive been wondering what's going on with me as I've rapids deteriorated this year since jan, it's Oct 2024. They are now finally going to test me for ALS. At this point, im down from 140 to 108 as i can hardy swallow or chew and my body feels like it's curling in on me. I can barely raise my arms and head feels heavy, used to carry 5 gal water now can hardly lift my purse. I'm 56 and after mri and blood tests still no answers. Everything your dad went thru sounds all too familiar. I need help with almost everything. I'm still hopeful and will not give up. Yes, breathing is now difficult too as it feels like a weight on my chest. Am optimistic yet concerned mostly for m my beautiful daughters whom i wish to be here for as long as possible. It does literally feel as if my whole body is breaking down. I am grateful to come across this and thank you for sharing. Bless you all
Rest in peace Kevin❤️ God bless anyone suffering from ALS and all terminal illnesses. There is great beauty in suffering. Life is full of it,, and in the end we are saved. Much love to anyone reading this, God bless you
I really appreciate that Kevin shared these videos about his life with ALS, I have a friend going through this, and it's giving me an understanding of what may happen if this illness continues. I feel Kevin was courageous to post these videos. And I find myself thanking him for sharing these with me.
God bless you and your family. I heard recently of a breakthrough in Canada by a Dr. Strong. He said that it is possible that we'll see trials within the next 5 years. I need for everyone to put pressure on the government!!! If one is going to pass, what is the harm in at least trying the new "drug" out of Canada. I believe the doctor's name is Michael Strong.
I Hope this guy is in heaven, and out of pain - I'm not sure I have this disease, but of course, hope not.. But he's done so much for me, to prepare just in case....
Very sorry, I am a bear's fan #76 Has ALS.. I'm feeling strange feeling also in my body. So you were the first person I chose to watch. Be cause you looked like a entelegent a man. I think more people have this ALS and don't know it. I'm 66 and worked in the medical field for 30 years. And doctors just tell you what think. I know my body. So I do what they want, then I say didn't work. Mow do what I want. Thank you Cynthia 😊.
No one should have to go through this disease. Nasty, horrible disease. Hopefully some day we will have a cure… how many more people need to suffer? Absolutely heartbreaking. Rest in piece sir,
Thank you for sharing the video . As I now found out, a friend has it. This video has helped me to understand what he is going through. May your dad continue to sleep in peace.
I appreciate your dear dad's thoughtfulness and service as evidenced by his video. I needed to hear as many testimonies of symptoms as possible today. Yesterday I was diagnosed with the worst possible version of ALS: Bulbar onset. According to the general knowledge of this type, I may not be here in 2025 or oerhaps I'll hang on into 2026. This diagnosis is a death sentence.
I am so sorry and my thoughts are with you. My significant other is being worked up ALS is a potential fear. They are under 30. I wish there was a cure for this disease.
How many people must be suffering at any one time!Kevin has taught me to be grateful for the present moment. It could happen to anyone- I am so sorry- how can life be so hellish…He handled it like a great man.
ALS has to be one of the worst possible diagnosis you can get. Almost 90 years from Lou Gehrig's death and still no answers, no funding, no cure. And at the same time, they are putting 100s of billions to wars.
Gosh such a strong and healthy man being taken down by this dreadful illness. Unbelievable!!! Sounds like he took excellent care of himself. Absolutely tragic!! Rest In Peace sir!!❤️💔❤️
He contributed enormously as to what this cruel illness does to an otherwise healthy man. The pain comes from the thoughts of his family and the time they wont spent together. He did his best with valor. RIP
This channel has been so helpful. My father (54) was diagnosed in 2024. Still very fresh for my brother and i 23, 24. In terms of what’s coming over the horizon. Absolutely devastating disease. This man, if nothing else, has had a massive impact on me and I wish him the most restful passing into the next life and massive respect to him and his strength
🙏
ALS is caused by various fungi that can enter the body in several ways. Often times the infection begins in the upper regions of the nasal cavity infecting the olfactory nerve. From there, the infection slowly makes its way into the frontal lobe (motor cortex) which is what causes the disruption to signals to muscles. The parietal lobe is often unaffected because of the central sulcus - a physical structure in the brain that separates the frontal and parietal lobes - that is why most ALS patients have no problem with sensory (feeling); the infection cannot cross into the lobe to affect sensory neurons. Another clear indicator that the disease is caused by fungal pathogens is the increased level of CHIT1 proteins. CHIT1 is a protein released by mammals to fight pathogens with chitin in their cell walls such as fungi. These fungal infections are known as "insidious infections" meaning there is no sign of infection until you have serious symptoms such as muscle weakness. To treat the disease, heavy antifungals are required for long periods. Most doctors are not aware this is now a treatable disease and are still approaching it with conventional wisdom. If you have been diagnosed with ALS or a similar neurodegenerative disease, be sure you do significant research on fungal infections and their treatment. It is important also to note that companies in the US and Europe make billions annually selling equipment to patients with this disease and others like it.
ALS seems to be caused by TDP-43 protein build-up. A couple treatments are in clinical trials. Unfortunate that Kevin passed about ~10 years too early, but hopefully he had a good life and his family and friends remember him fondly.
The lake is likely the reason why you developed als, a neurotoxin called bmaa produced by the blue-green algae seems like one of the risks factors for als, living around a lake increases by 25 times the risk of als....if any family member read this, move if you still live there, research the matter by yourself....
God bless your heart ❤
What causes ALS?!
Ive been wondering what's going on with me as I've rapids deteriorated this year since jan, it's Oct 2024. They are now finally going to test me for ALS. At this point, im down from 140 to 108 as i can hardy swallow or chew and my body feels like it's curling in on me. I can barely raise my arms and head feels heavy, used to carry 5 gal water now can hardly lift my purse. I'm 56 and after mri and blood tests still no answers. Everything your dad went thru sounds all too familiar. I need help with almost everything. I'm still hopeful and will not give up. Yes, breathing is now difficult too as it feels like a weight on my chest. Am optimistic yet concerned mostly for m my beautiful daughters whom i wish to be here for as long as possible. It does literally feel as if my whole body is breaking down. I am grateful to come across this and thank you for sharing. Bless you all
Is it Lou GERRIGS DISEASE or is IT PARKINSON DISEASE? LOT OF NERVOUS DISEASE TRY TESTING!
Lou Gehrig's.
i have the same same things but for a year any doctor can't tell me or help me what's wrong with me
Rest in peace Kevin❤️ God bless anyone suffering from ALS and all terminal illnesses. There is great beauty in suffering. Life is full of it,, and in the end we are saved. Much love to anyone reading this, God bless you
11 years later his video is still very relevant and may help people get a faster diagnosis. Probably one of the best articulated ones out there.
I really appreciate that Kevin shared these videos about his life with ALS, I have a friend going through this, and it's giving me an understanding of what may happen if this illness continues. I feel Kevin was courageous to post these videos. And I find myself thanking him for sharing these with me.
Video is about two months prior to his death.
So sorry for Dad's loss, I am currently doing research on the disease at Aberdeen University, and your dad's story encouraged me.
Honestly what's the latest on research? It's amazing we have yet to even come close to fully understanding it! Is AI helping?
God bless you and your family. I heard recently of a breakthrough in Canada by a Dr. Strong. He said that it is possible that we'll see trials within the next 5 years. I need for everyone to put pressure on the government!!! If one is going to pass, what is the harm in at least trying the new "drug" out of Canada. I believe the doctor's name is Michael Strong.
I Hope this guy is in heaven, and out of pain - I'm not sure I have this disease, but of course, hope not.. But he's done so much for me, to prepare just in case....
Very sorry, I am a bear's fan #76 Has ALS.. I'm feeling strange feeling also in my body. So you were the first person I chose to watch. Be cause you looked like a entelegent a man. I think more people have this ALS and don't know it. I'm 66 and worked in the medical field for 30 years. And doctors just tell you what think. I know my body. So I do what they want, then I say didn't work. Mow do what I want. Thank you Cynthia 😊.
Ich werde zu Hause gepflegt, mit Beatmung und allem drum und dran. Viel Mut und Kraft allen Betroffenen
No one should have to go through this disease. Nasty, horrible disease. Hopefully some day we will have a cure… how many more people need to suffer? Absolutely heartbreaking. Rest in piece sir,
I have watched all these videos multiple times and it breaks my heart to see him struggle. What a kind and beautiful man he was ❤
It sure seems like a lot of ALS sufferers are athletes or have really put in the work to be in shape. It is an awful disease. Kevin you are missed.
Miss ypu Kevin. Such a heartbreaking disease 💔
Thank you for sharing the video . As I now found out, a friend has it. This video has helped me to understand what he is going through. May your dad continue to sleep in peace.
I appreciate your dear dad's thoughtfulness and service as evidenced by his video. I needed to hear as many testimonies of symptoms as possible today. Yesterday I was diagnosed with the worst possible version of ALS: Bulbar onset. According to the general knowledge of this type, I may not be here in 2025 or oerhaps I'll hang on into 2026. This diagnosis is a death sentence.
I am so sorry and my thoughts are with you. My significant other is being worked up ALS is a potential fear. They are under 30. I wish there was a cure for this disease.
I don't know if I'm at the start of this horrible disease, or not but this video helped bring some understanding - thank you
God Bless 🙏
Kevin Strong!
How many people must be suffering at any one time!Kevin has taught me to be grateful for the present moment. It could happen to anyone- I am so sorry- how can life be so hellish…He handled it like a great man.
Kevin Strong!!! God knew every tear. Kevin's body is not hear, but his spirit is still inspiring!
I know you're long gone but God bless you man, a friend just died after a 7 year fight, it is a terrible disease.
ALS has to be one of the worst possible diagnosis you can get. Almost 90 years from Lou Gehrig's death and still no answers, no funding, no cure. And at the same time, they are putting 100s of billions to wars.
My sincere condolences to your family and friends.
We need a cure as soon as possible.
sorry for your loss , Kevin looked like a really chill nice guy
Gosh such a strong and healthy man being taken down by this dreadful illness. Unbelievable!!! Sounds like he took excellent care of himself. Absolutely tragic!! Rest In Peace sir!!❤️💔❤️
Love this guy and every other iteration of him until he passed. Such courage. And humor.
Hoping u r in a better place now🙏🙏🙏
The fact that this illness leaves your mind intact is really crap, RIP Sir
Mr O'Donnell the fact that you used humour to defend against this terrible illness was awesome RIP Sir
Hi
God bless you, kevin.
Chronically high cortisol is linked to ALS
It happens mostly to active individuals
Chronically high cortisol is linked to ALS
Dang, Just been diagnosed with this. I am glad this information was available. Thanks Kevin. Sad stories.
I will die with dignity if I don't get better.
Just came across this video. Hope you didn't have to suffer too much ❤
What an amazing man. He could still laugh about his scary fall! You must have been an incredible human being! RIP 🙏
What an incredibly brave man! So so sad! Bless you for sharing your experiences so genuinely and openly! RIP! 😔
He contributed enormously as to what this cruel illness does to an otherwise healthy man. The pain comes from the thoughts of his family and the time they wont spent together. He did his best with valor. RIP