EKF Productions
EKF Productions
  • 79
  • 865 852
Granulamatosis with Polyangiitis - short cut
An interview with Juliana a performer and musician about her experience with Granulamatosis with Polyangiitis.
This interview is about 2 hours of hammering out every detail we could think of to explain the story. The idea was to put something out there for anyone in a similar situation to find and feel some visibility or even clear up some confusion. It was so confusing for us for so long, and still is sometimes. If this interview can find its way to just one person at the early stages of the same situation it would have been worth it.
The subject is about vasculitis, or specifically - Granulamatosis with Poliangiitis - AKA “wegener's disease” after the nazi scientist that discovered it. I must admit, Nazis aside, the name was much easier to say and spell back then.
I wanted the final video to be 3 minutes long, after whittling it to 12 minutes I realized I had murdered the soul of the interview. Most people wont watch it because of the run time, but for the audience who is in a similar situation every minute will be important. It also allows the interview to be about more then just GPA and focus on resiliency in dealing with the darkness of the unknown.
มุมมอง: 136

วีดีโอ

Granulamatosis with Polyangiitis
มุมมอง 2.3Kปีที่แล้ว
An interview with Juliana a performer and musician about her experience with Granulamatosis with Polyangiitis. This interview is about 2 hours of hammering out every detail we could think of to explain the story. The idea was to put something out there for anyone in a similar situation to find and feel some visibility or even clear up some confusion. It was so confusing for us for so long, and ...
Ilahi - Nicole Maria
มุมมอง 1542 ปีที่แล้ว
Nicole Maria Dancing to Ilahi by The Toids Filmed by Kent Kessinger Music: Ilahi · The Toids Ruupert Dances in Fins by the album here - music.apple.com/jp/album/ruupert-dances-in-fins/ www.nicolemariadance.com/
A Pünkösdi Rózsa (The Whitsuntide Rose)
มุมมอง 492 ปีที่แล้ว
Song: A Pünkösdi Rózsa (The Whitsuntide Rose) Hungarian folk song Performed by: Lily Storm (vocals) Balder ten Cate (cobza, pan flute) Misha Khalikulov (cello) Dance by: Natalie Nayun Album: Lifelines (Balder ten Cate and Friends, 2021) Listen to the album and download it here: www.baldertencate.com/music
Wedding Portfolio 2020
มุมมอง 1283 ปีที่แล้ว
Wedding Portfolio 2020
2020 Portfolio
มุมมอง 2883 ปีที่แล้ว
2020 Portfolio
Drone Portfolio 2020
มุมมอง 533 ปีที่แล้ว
Drone Portfolio 2020
Daunte Wright and Adam Toledo Protest - Oakland 4/16
มุมมอง 3383 ปีที่แล้ว
I filmed this protest until I was spray painted in the face. This is a shift away from Black Lives Matter. This is Black Bloc tactics from a seemingly young crowd of arguably mostly white people. Oakland California - 4/16 #DaunteWright #AdamToledo #oaklandprotest
Graham, NC Black Lives Matter Protest - Election Day
มุมมอง 5713 ปีที่แล้ว
This was the scene in Graham, NC tonight during the BLM protest. thousands of peaceful protesters showed up and were absolutely respectful and even quiet. They told the white supremacist taunting them that they loved him and that they forgave him as he left. Its not a coincidence that the people throwing white power signs are Trump supporters. I will work on a longer edit later tonight. Really ...
Trump Rally - Fayettville NC November 1 2020
มุมมอง 1773 ปีที่แล้ว
Trump Rally - Fayettville NC November 1 2020
San Francisco as a futuristic dytopian sci-fi thriller starring Nick Nolte
มุมมอง 4703 ปีที่แล้ว
Aerial view of SF at about 12:30 this afternoon. A fireman told me he called it Marsafornia. Sounds classy. I do find momentary quirks like this to be beautiful, but god would it suck if this lasts for more then a few days. Blade Runner #bayareafires #wildfires #2020 #Re
Oakland Protest for Jacob Blake
มุมมอง 2584 ปีที่แล้ว
The most interesting part of this protest was the huge amount of police that showed up to keep an eye what was about 100 protesters. This protest was in solidarity with the march on washington and with Kenosha.
Sugar Pine Fire Troop - CZU Complex wildfire
มุมมอง 7K4 ปีที่แล้ว
my coverage from the wildfires today, with a focus on an inmate fire troop from Sugar Pine. #CZULightningComplex #SantaCruzFire #firefighters #BoulderCreek #CZUAugustLightingComplex A few notable facts from this film Sign up for service and they only have to do 1/3 of their time Sugar Pine - Troop 6 -2 - 9 - Anything else is an imitation $1 an hour for inmate firefighters compared to average 90...
Federal Protest - Oakland July 25th 2020
มุมมอง 7944 ปีที่แล้ว
Federal Protest - Oakland July 25th 2020 - Around 4 minutes there is a turning point where everything becomes quiet and for a moment people reflect and the crowd breaks into two. It shows a real rift between the protesters. Some of them did not like what they were seeing and another part of them wanted to see more. Shortly after, one part of the protest set the Alameda county courthouse on fire...
Juneteenth - Oakland Port Shutdown 6/19/2020
มุมมอง 4294 ปีที่แล้ว
Juneteenth - Oakland Port Shutdown 6/19/2020
Vigil for Erik Salgado 6/8/2020
มุมมอง 2274 ปีที่แล้ว
Vigil for Erik Salgado 6/8/2020
Piedmont Protest
มุมมอง 954 ปีที่แล้ว
Piedmont Protest
Curfew Sit In - Oakland 6/3/2020
มุมมอง 804 ปีที่แล้ว
Curfew Sit In - Oakland 6/3/2020
Oak Tech Protest 6/1/2020
มุมมอง 914 ปีที่แล้ว
Oak Tech Protest 6/1/2020
Mistah FAB Speech Oakland Protest 6/1/2020
มุมมอง 6564 ปีที่แล้ว
Mistah FAB Speech Oakland Protest 6/1/2020
Oakland Tech Protest - Nafisa
มุมมอง 2344 ปีที่แล้ว
Oakland Tech Protest - Nafisa
George Floyd Protest - Oakland, CA, May 29th 2020
มุมมอง 2.9K4 ปีที่แล้ว
George Floyd Protest - Oakland, CA, May 29th 2020
Free Ecuador Drone footage 4K
มุมมอง 1K4 ปีที่แล้ว
Free Ecuador Drone footage 4K
Ecuador by Drone
มุมมอง 664 ปีที่แล้ว
Ecuador by Drone
Guatemala - The New Asylum
มุมมอง 944 ปีที่แล้ว
Guatemala - The New Asylum
Μακπουλε - “Makpoule”
มุมมอง 1.6K5 ปีที่แล้ว
Μακπουλε - “Makpoule”
EKF Productions Reel
มุมมอง 4586 ปีที่แล้ว
EKF Productions Reel
Dance Reel 2017
มุมมอง 456 ปีที่แล้ว
Dance Reel 2017

ความคิดเห็น

  • @davidhale9672
    @davidhale9672 6 วันที่ผ่านมา

    The folks talking while Doc played must have had some really important things to say. I was lucky to see him perform a few times. I was entranced.

  • @kevinmccarley7121
    @kevinmccarley7121 หลายเดือนก่อน

    Yes, excellent explanation. I can relate, I'll had GPA for 3+ years (like you, looking back I note 'weird' symptoms that I now wonder might have been the real start....). I am glad you are coping. It's certainly a twisting path, and seems mostly up hill. Best wishes, and thank you for sharing.

  • @Thia2553
    @Thia2553 3 หลายเดือนก่อน

    Does anyone know a member called Trip?

  • @buddhatobe1
    @buddhatobe1 4 หลายเดือนก่อน

    meth-heads, not hippies

  • @Peaceisful
    @Peaceisful 4 หลายเดือนก่อน

    Great job explaining! I have it also. 20 years with the last 5 have been the most intense with doctors, meds and scary experiences. You’re handling this so well. I take it one day at a time. Your explanation of ear, balance and eye was so relatable! I wish you the best! Just know you’re not alone with GPA and I get it! Unique, that is what we are😊

  • @user-ru7mz4qj1l
    @user-ru7mz4qj1l 5 หลายเดือนก่อน

    ❤❤❤❤❤

  • @JustinCarver-yy7yi
    @JustinCarver-yy7yi 8 หลายเดือนก่อน

    Best church service iv ever been to

  • @OdellHarden
    @OdellHarden 11 หลายเดือนก่อน

    Preformative Activism

  • @jerialice
    @jerialice ปีที่แล้ว

    On my set list!

  • @johnturner5221
    @johnturner5221 ปีที่แล้ว

    I like this original version rather than the Crystal Gayle one. I have written some additional verses mainly because i am going through cancer treatments. I hope I don't offend Doc Watson. I have found some solace in the lyrics!

    • @r.r.7156
      @r.r.7156 10 หลายเดือนก่อน

      🙏

  • @apteryx01
    @apteryx01 ปีที่แล้ว

    The conversations in this video are so depressing! These people seem stuck in hopeless complaining and conflict.

  • @triple_gem_shining
    @triple_gem_shining ปีที่แล้ว

    Bums

  • @donaldbranchflower6306
    @donaldbranchflower6306 ปีที่แล้ว

    I practice this value set. I walk a shaman path. I personally knew several of these people. One is a long ago boyfriend. I walked amidst the fairies, and I had a tribe. I was displaced by gaslighting and unbearable narcissistic abuse. I am still in pain.

    • @james10008
      @james10008 7 หลายเดือนก่อน

      Hey Donald. I'm very sorry about your pain. I was abused, bullied, exploited for years in alternative religions. The damage these people can do are severe. They often lack frameworks, institutional accountability, and cultures which pressure leaders to behave well to members. There's not much support avaliable - its hard to find someone who understands your background, or the context of what you went through. You'll be in my thoughts and prayers too.

  • @Pabloignacioalvarez
    @Pabloignacioalvarez ปีที่แล้ว

    Even he tears up as he sing it I can’t sing it without my voice breaking It’s too good

  • @joego9519
    @joego9519 ปีที่แล้ว

    This documentary was wonderful and we'll balanced, beautiful work.

  • @CD-gh1uf
    @CD-gh1uf ปีที่แล้ว

    Both those musicians have passed away already. It can be a hard life

    • @KentKessinger
      @KentKessinger ปีที่แล้ว

      Holly died?!

    • @KentKessinger
      @KentKessinger ปีที่แล้ว

      That’s terribly sad there. Do you know what’s happening with their child?

  • @coastrange111
    @coastrange111 ปีที่แล้ว

    Never heard anyone sing that song there lol

  • @zwoopsies
    @zwoopsies ปีที่แล้ว

    This suspense is terrible. I hope it will last.

  • @NinjaDildoShow
    @NinjaDildoShow ปีที่แล้ว

    *Is that pretty chick with the big titties still out there? She makes me wanna go!*

  • @Junius
    @Junius ปีที่แล้ว

    You look so mature Juliana!

  • @phyllisbergman7344
    @phyllisbergman7344 ปีที่แล้ว

    Thank you Julianna for this clear and honest explanation of GPA. I learned a lot. I so appreciate you being forthright and vulnerable. I am much impressed. 💟Phyllis ( I am a friend of your parents)

  • @wadesmoke9726
    @wadesmoke9726 ปีที่แล้ว

    The Native way of expressing the sign of the two spirit is the woman's fan used in dances and a man's hatchet or bow ..The arms are crossed left and right..The left hold the woman's fan and the warriors weapon ..It is formed by and X of crossing the both arms across the chest holding the fan and man's weapon..We had our own inipi ceremonies and songs...I would love to meet my gay brothers and sisters called the radical faeries

  • @ChloeLayneXO
    @ChloeLayneXO ปีที่แล้ว

    Intresting. More of these please :)

  • @subtropicalpermaculture
    @subtropicalpermaculture ปีที่แล้ว

    The restoration of balance is upon us. Stay strong Rainbow Warriors of Love and lLight. We have to listen closely now and go where the spirit directs us .

  • @jimsullivan2818
    @jimsullivan2818 ปีที่แล้ว

    Was this in Asheville?

    • @seabrook7039
      @seabrook7039 ปีที่แล้ว

      No. Golden Gate Park, SF

  • @GusBrunson
    @GusBrunson 2 ปีที่แล้ว

    The usual United States bloody policies in the Latin America

  • @johnfalkenstine8377
    @johnfalkenstine8377 2 ปีที่แล้ว

    Lots of muddled stoner stories.

  • @kencormier3015
    @kencormier3015 2 ปีที่แล้ว

    I stayed at the one in New Mexico for a few weeks. There was a great bonfire drumming night with someone passing out LSD. Way back in 1998. Turned out to be a really fantastic night. Full of stars and drumming and dancing naked for many hours, and some good sex too. Thanks Rob for the doses. Good stuff. Also...RIP.

  • @nodnoc
    @nodnoc 2 ปีที่แล้ว

    I never knew Rainbow Gatherings attracted so many gutter punks

  • @charmcrackermusic4250
    @charmcrackermusic4250 2 ปีที่แล้ว

    Your always going to have trouble makers that blow it for everyone I’m sure there are people who are cleaning up for others when really people should be cleaning up for themselves.

  • @cabooseabs6864
    @cabooseabs6864 2 ปีที่แล้ว

    Its like these people are trying to figure out what everyone else figured out thousands of years ago.

  • @johnholland723
    @johnholland723 2 ปีที่แล้ว

    Doc is a treasure for eternity.

  • @johnholland723
    @johnholland723 2 ปีที่แล้ว

    Did he say “I can do without those spoons?”

  • @satanoleksy3120
    @satanoleksy3120 2 ปีที่แล้ว

    YOU FILMED THE WORST OF THE FAERIES

  • @satanoleksy3120
    @satanoleksy3120 2 ปีที่แล้ว

    NO ONE NEEDS A SOCIAL WORKER lOUIS bOOMER HATES YOU

  • @satanoleksy3120
    @satanoleksy3120 2 ปีที่แล้ว

    YOUR NOT MY FRIENDS

  • @satanoleksy3120
    @satanoleksy3120 2 ปีที่แล้ว

    Zuni is an asshole because of the Monk Hitirus eho is a ig selfish stupis ass, and Shit Mtn Sanctuary was a dud

  • @yo274
    @yo274 2 ปีที่แล้ว

    I would love to live here.

  • @blackbearranch601
    @blackbearranch601 2 ปีที่แล้ว

    Booooo

  • @janeajaya
    @janeajaya 2 ปีที่แล้ว

    Good people living real lives

  • @no_oneuknow8106
    @no_oneuknow8106 2 ปีที่แล้ว

    I’m in hard times right now. I fell into a music wormhole and found this. The tune, the tone, the feel, the lyrics. Man it’s perfect. Thank you music gods for the song.

  • @dabprod
    @dabprod 2 ปีที่แล้ว

    She says we play music, so we're welcome in most any camp. Wel, I'd say that's an understatement. Their great. They should head for New Orleans and play on the streets in the quarters. Loved it.

  • @o-REDBEARD-o
    @o-REDBEARD-o 2 ปีที่แล้ว

    stay tf out of Colorado bums.

    • @jamesdickson8956
      @jamesdickson8956 ปีที่แล้ว

      The kingdom of heaven has come near to you. I rebuke you for that comment. Be better.

  • @o-REDBEARD-o
    @o-REDBEARD-o 2 ปีที่แล้ว

    10:29 yea.. stay the fuck out of Colorado deadbeats.

  • @stoplookingformyname3721
    @stoplookingformyname3721 2 ปีที่แล้ว

    dirty hippies

  • @JDR0357
    @JDR0357 2 ปีที่แล้ว

    Communism is cancer.

  • @Shizzmonger
    @Shizzmonger 2 ปีที่แล้ว

    that was a great watch thank you

  • @kikearevalo8024
    @kikearevalo8024 2 ปีที่แล้ว

    BLOOD WARS FINANCED BY WASHINGTON AND MOSCOW ...In the late 80s My Grandfather and I were at the barbershop in Chicago and there was a volume of Time Magazine with Gorvachev and Reagan on the front page my Grandfather picked it up looked at it for 2 seconds and Said: Let's Keep Killing People.

  • @christinacascadilla4473
    @christinacascadilla4473 2 ปีที่แล้ว

    I’m not sure that people who swear this much are truly happy.

  • @nathandundore7817
    @nathandundore7817 2 ปีที่แล้ว

    I love you folks. Jesus is God. He is the only God. We must worship him. There is no other hope.