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I’ve thought a lot about this lecture since viewing it. At first I was impressed by the analogy used. But on further reflection I feel this reductionist analogy adopts a somewhat mechanistic view of dystonia, breaking it down into some kind of hierarchical structure from the micro (genetic) to the macro (social, behavioral) levels. While useful, this perspective misses the dynamic, bidirectional interactions that characterize living systems. Life sciences increasingly recognize that health and disease emerge from complex systems’ behavior, where feedback loops, non-linear dynamics, and emergent properties play crucial roles. These aspects are challenging to incorporate into a linear, hierarchical model. Although I understand the time limitations a consequence of this analogy is that there is much critical information on aetiology that is missing here.

keep turning the volume up

Im making a pretty astounding recovery from generalized dystonia and the over plasticity of the brain theory seems to hold a lot of weight. Im at a weird point now where my my mind has learned to very quickly turn off the dystonia as I perceive it and it goes to work work very fast at learning a new way of being that works the way it ought! Its almost as though the same mechanism that caused the severe disease is now being utilized to undo the disease! I have heard of some people making a full recovery and think I will join them soon myself! I think in time we will have solutions for dystonia we can call cures.

Kann es sein ,das es was mit der Zirbeldrüse zu tun hat?

I have cervical dystonia. Botox injections keep my “no, no” tremor and dysphagia at bay.

No Perfect Treatment of cervical dystonia

Yes, I agree nice video and very helpful.

Find a cure please!!

I got dystonia in my early 70's. Have no idea why. So far the only thing that dials it down to nothing is Ativan. Anybody else find this also???

I have been having these dystonia like episodes and sometimes trouble swallowing chewed food like I forget how. I try many times and it doesn't work well I can drink liquid tho. And no doctor has mentioned dystonia in the 10 years I have had these symptoms. One doctor neurologist said I had PTSD induced seizures. This doesn't make sense to me

I got one IV of reglan and I got dystonia. It's getting better now. But it was hell

Every speaker must first be very aware of the audience and their level of knowledge or experience. Any presentation must be geared towards the level of the audience. Was the information helpful, new information, or of value to the audience?

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It ruined my fucking life

These lectures are helpful, but we are struggling to find people who actually have Dystonia to connect with. We have found some Facebook groups helpful, but with the lack of real life video of dystonia symptoms, we decided to make videos ourselves. We open up our lives and share things we would rather keep private because we know many are struggling alone and need encouragement beyond the validation of a doctor (20 years later in my case) and want to help connect others to be a support system.

th-cam.com/video/He4Rji88hPY/w-d-xo.html

What a very helpful person and a lovely person and so kind and caring

Could meditation be an answer? When I close my eyes and breathe deeply I can feel a pressure in my forehead and it really helps sedate me, my spasms seem to go away for a little while.

I have the DYT1 gene (GAG deletion) but have no symptoms except occasional writers cramp and the toes on one foot will sometimes splay apart. I have two brothers - one severe enough to require a wheelchair if he needs to travel more than 50-100+ feet at one time and another about 1/4 that bad. I wish we could be part of studies to help others in the future

I am suffering from cervical dystonia since 10 years from India please help me

BEFORE BOTOX INJECTION: th-cam.com/video/ngxrfDJBBbg/w-d-xo.html AFTER BOTOX INJECTION: th-cam.com/video/kf7liUupEHc/w-d-xo.html Thank God for modern medicine!

Involuntarily legs movement....why ?

I would like the doctor and all reading this comment that I had found my solution for dystonia many years ago and have been helping many others, from all over the world, ever since. www.dystoniahealthadvocate.com.

Thank you for this video. I started exhibiting dystonia tremors in 2016. It started out very subtle, but quickly escalated into full time head tremors. Back then it was a fight to even get an accurate diagnosis. I had one doctor send me to a psychiatrist, who wanted to hear about my childhood traumas. It was lengthy, and emotionally exhausting. I determined to educate myself about dystonia, and build a channel on my treatments, and sharing what helps, what makes it worse. I really appreciate this video because there is still so little information out there. Thanks again!

Come to my channel and see how I deal with this disorder naturally

I have dystonia since I was 8 I am 24 now. I know it varies depending on the type of brain damage weather it could from a pharmaceutical, dental problem, or a brain trauma ect.

Podrían subir estos videos con traducción al espsñol, que ganas de saber qué dice

I really appreciate this clear discussion, especially the part about the role of and effect of emotions. This is the most helpful weaving together of different factors and levels of activity that I have heard. And I also hear in this man‘s way of speaking, a true compassion for the patient.

Good lord, he takes 30 minutes to say what's been known for decades. No answers, no avenues for a cure, pure babble. It's like listening to some explain how to put butter on bread for 30 minutes. F U. Worthless.

Dystonia is a disease caused by treatement with clozapine, a anitpsychotic. Instead of talking about DNA and risks, talk about medicine that cause dystonia. From clozaril.com/wp-content/themes/eyesite/pi/Clozaril-2015A507-10022015-Approved.pdf Class effect: Symptoms of dystonia, prolonged abnormal contractions of muscle groups, may occur in susceptible individuals during the first few days of treatment. Dystonic symptoms include: spasm of the neck muscles, sometimes progressing to tightness of the throat, swallowing difficulty, difficulty breathing, and/or protrusion of the tongue. While these symptoms can occur at low doses, they occur more frequently and with greater severity with high potency and at higher doses of first generation antipsychotic drugs. An elevated risk of acute dystonia is observed in males and younger age groups. Genes and dystonia ? Medicine causing dystonia ...

Google: Dr Lee Korea Dystonia fcst. There's your answer

Distonya is caused by psych meds you ignorant piece of shit

20min and still hasn't said what causes dystonia. Lots of gibberish but no answers.

REALY GREATFUL THANKS TO U .FOR DISCUSE AND TREATMENT OF DYSTONIA.

For those of you living with dystonia or treating people with dystonia, I strongly encourage you to get a copy of the book, Diagnosis Dystonia: Navigating the Journey (www.tomseamancoaching.com or www.diagnosisdystonia.com) It discusses all treatments, both medical and alternative. It also discusses in great detail all of the things we deal from the diagnosis onward (and tools for managing them), such as grief, fear, anxiety, depression, pain and pain management, doctor visits, social issues, relationships, skills for daily living (mental and physical), treatment options, stress and stress management, coping skills, etc. This book has been recognized by the Michael J Fox Foundation.

is there a way for this info to be supplied to a willing PT in the USA? Help!