AngelmanUK
AngelmanUK
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AngelmanUK/FAST UK Clinical Trail Webinar
This presentation was recently heard during the collaborative AngelmanUK/FAST U.K. webinar on 02 July 2021. It is the latest news about the U.K. Angelman Trial.
Professor Laurent Servais, MD, PhD Professor of Paediatric Neuromuscular Diseases at the University of Oxford, explains in more detail what is involved and why the trial is important.
มุมมอง: 383

วีดีโอ

Laughter in Lockdown (2020) - Angelman UK
มุมมอง 4.2K4 ปีที่แล้ว
Many families are finding the lockdown really tough, but there are also many moments of happiness and laughter - some of which have been caught on camera by our parents and carers. We've created a little montage of these infectious giggly moments to keep everyone smiling through these incredibly challenging times. Watch this, take care and carry on smiling! AngelmanUK is the registered charity ...
Angelman Syndrome in one word - Angelman UK
มุมมอง 6K4 ปีที่แล้ว
AngelmanUK asked families, carers and professionals to give one word to represent Angelman Syndrome. This film is intended for new families who have just received a diagnosis to get an understanding of what life is like living with Angelman Syndrome. Every person with AS had different likes, needs and abilities, and there are ups and downs in every relationship. AngelmanUK is the registered cha...
Understanding Behaviours that Challenge - AngelmanUK
มุมมอง 6K5 ปีที่แล้ว
AngelmanUK asked families what their experience of Challenging Behaviour is and if they could explain what it means to them. Many children and adults with Angelman Syndrome will show some behaviours that are challenging at some point in their lives and the term can be used to describe many different things. Challenging behaviour is a term that can be used to describe physically challenging beha...
What does the transition process include? - AngelmanUK
มุมมอง 2.4K5 ปีที่แล้ว
AngelmanUK asked families what their experience of the transition process was like and what advice they could offer to others. Transition refers to the process of changing from child to adult services and becoming more independent. Many families find this time challenging because they have to swap services and professionals when the child turns 18 and becomes an adult. This changes can be neces...
What are the alternative treatments for Epilepsy? - AngelmanUK
มุมมอง 10K5 ปีที่แล้ว
AngelmanUK asked Professor Bernard Dan, Paediatric Neurologist and Editor-in-Chief of Developmental Medicine and Child Neurology at Mac Keith Press what alternative treatments are available to treat Epilepsy if typical drug remedies can't be used. AngelmanUK is the registered charity for Angelman Syndrome in the UK. The charity provides resources for support, education and research for parents,...
Should we use Cannabis to treat Epilepsy? - AngelmanUK
มุมมอง 11K5 ปีที่แล้ว
AngelmanUK asked two professionals what their views were on using Cannabis to treat Epilepsy. These professionals were; Professor Bernard Dan, Paediatric Neurologist and Editor-in-Chief of Developmental Medicine and Child Neurology at Mac Keith Press and Dr Rebecca Burdine, Associate Professor of Molecular Biology at Princeton University and also mother to Sophie who has Angelman Syndrome. Ange...
What does AngelmanUK mean to you?
มุมมอง 3.2K5 ปีที่แล้ว
Find out what AngelmanUK means to families nationwide by watching this film. We spent the weekend at the AngelmanUK 2018 Conference in August to capture how important the charity is to the hundreds of families that rely upon it everyday. This rare genetic disorder affects families across the world and is often recognised by the person’s very smiley and happy behaviour. The families also struggl...
Changes-AngelmanUK
มุมมอง 2725 ปีที่แล้ว
Introducing the re-branding of ASSERT to AngelmanUK. A short film made by Christyan Fox for the 2018 AngelmanUK Family Conference.
Starting AAC - Communication Part 2 - ASSERT
มุมมอง 13K6 ปีที่แล้ว
Alternative and Augmentative Communication is a very important part of life with Angelman Syndrome. This film, 'Starting AAC', offers an introduction on how to begin using AAC to communicate with somebody that has Angelman Syndrome. It looks into what kind of language should be used and what you might expect to find at the beginning. The professionals in this film offer their knowledge and tips...
My sibling has Angelman Syndrome - ASSERT
มุมมอง 8K6 ปีที่แล้ว
'My sibling has Angelman Syndrome' is a film about young carers. It offers an insight into the emotions and experiences of children with physically & mentally disabled siblings. The film is exclusively narrated by siblings who wanted to share their thoughts on what it’s really like to grow up as a young carer. It highlights the maturity required from these young people as they discuss the diffi...
Epilepsy & Angelman Syndrome - ASSERT
มุมมอง 16K7 ปีที่แล้ว
Epilepsy affects 80% of people with Angelman Syndrome at some point in their lives. This film explains how people may be affected by Epilepsy, how they noticed it, when it occurred and how they treated it. It offers some brief advice on how to spot it and help get it diagnosed, along with describing what the most common types of seizure symptoms are. Naturally, Epilepsy is a very complex subjec...
Communication in Angelman Syndrome - Part 1 - ASSERT
มุมมอง 28K7 ปีที่แล้ว
Communication Part One offers an overview of what it might be like to communicate with somebody that has Angelman Syndrome. It briefly covers the various types of communication methods such as PODD books or Proloquo2go. Families give an insight into their experiences and Professionals advise on what to expect moving forward. The film highlights that individuals communicate in various ways and a...
Behaviour in Angelman Syndrome - ASSERT
มุมมอง 52K7 ปีที่แล้ว
This film gives an insight into what behaviours are commonly seen in people with Angelman Syndrome. You get to hear from family's who have adapted their lives to suit Angelman Syndrome and it's characteristics. Some common behaviours include; determination, excitement, love of food, therefore grabbing food, pulling hair, stubborness, chewing clothes, a short attention span, hugging, and reachin...
Angelman Syndrome - What is it? - ASSERT
มุมมอง 127K7 ปีที่แล้ว
What is Angelman Syndrome? The question everyone wants to know the answer to. This short film gives you an insight into what somebody with Angelman Syndrome is like and how it affects the individuals and their family or carers on a daily basis. This rare genetic disorder affects families across the world and is often recognised by the persons very smiley and happy behaviour. The UK based Angelm...
Rogue One: A Star Wars Story Meets ASSERT
มุมมอง 28K7 ปีที่แล้ว
Rogue One: A Star Wars Story Meets ASSERT
ASSERT INTERVIEWS GODZILLA DIRECTOR - GARETH EDWARDS - PART 5
มุมมอง 58010 ปีที่แล้ว
ASSERT INTERVIEWS GODZILLA DIRECTOR - GARETH EDWARDS - PART 5
ASSERT INTERVIEWS GODZILLA DIRECTOR - GARETH EDWARDS - PART 4
มุมมอง 33910 ปีที่แล้ว
ASSERT INTERVIEWS GODZILLA DIRECTOR - GARETH EDWARDS - PART 4
ASSERT INTERVIEWS GODZILLA DIRECTOR - GARETH EDWARDS - PART 1
มุมมอง 1K10 ปีที่แล้ว
ASSERT INTERVIEWS GODZILLA DIRECTOR - GARETH EDWARDS - PART 1
ASSERT INTERVIEWS GODZILLA DIRECTOR - GARETH EDWARDS - PART 2
มุมมอง 65710 ปีที่แล้ว
ASSERT INTERVIEWS GODZILLA DIRECTOR - GARETH EDWARDS - PART 2
ASSERT INTERVIEWS GODZILLA DIRECTOR - GARETH EDWARDS - PART 3
มุมมอง 51710 ปีที่แล้ว
ASSERT INTERVIEWS GODZILLA DIRECTOR - GARETH EDWARDS - PART 3

ความคิดเห็น

  • @Sydopath
    @Sydopath 7 หลายเดือนก่อน

    Keto and VNS. This should have taken less than a minute to explain, but was painfully stretched out to 7 minutes.

  • @t-alimichael3363
    @t-alimichael3363 8 หลายเดือนก่อน

    Wish my Medical prof break it down as simple as you little one. The always happy syndrome. Thanks for sharing!

  • @syeedaadilhafiz4961
    @syeedaadilhafiz4961 ปีที่แล้ว

    Angelman syndrome Defect in chromosome 15 UBEA3 gene Matenal deletion Paternal imprinting

  • @renaalison1894
    @renaalison1894 ปีที่แล้ว

    I will not take drugs from regular pharmacies. They almost killed me. Cannabis will never kill me and I plan on smoking it forever ty anyway. Please consider saving ur kids life by not giving then reg seizure meds ty ❤

  • @aishaalisabo3045
    @aishaalisabo3045 ปีที่แล้ว

    He has done a miracle on me with his herbal remedy for epilepsy I will always recommend you dr ogie on TH-cam keep saving life’s doc.,,,,,,,💛

  • @aishaalisabo3045
    @aishaalisabo3045 ปีที่แล้ว

    He has done a miracle on me with his herbal remedy for epilepsy I will always recommend you dr ogie on TH-cam keep saving life’s doc.,,,,,,,💛

  • @Tuner9069
    @Tuner9069 ปีที่แล้ว

    If he's basing his decision to not support cannabis because it's a plant then he needs to go back to medical school. The active ingredient(s) in ALL SYNTHETIC pharmaceuticals are derived from plants (as in they are a synthetic copy of a living ingredient that was found in a plant).

  • @glorygowok2217
    @glorygowok2217 ปีที่แล้ว

    It was a blessing meeting you @Dr Ogie you have brought up a huge smile on my face and it's gonna be permanent, because I never thought I would ever be cured of epilepsy, all I can say now is thank you sir God bless you..

  • @glorygowok2217
    @glorygowok2217 ปีที่แล้ว

    It was a blessing meeting you @Dr Ogie you have brought up a huge smile on my face and it's gonna be permanent, because I never thought I would ever be cured of epilepsy, all I can say now is thank you sir God bless you..

  • @pepper419
    @pepper419 ปีที่แล้ว

    You said 'no' but you don't know.

  • @MargauxVanham
    @MargauxVanham ปีที่แล้ว

    My 18 months old just been diagnosed. He is already capable of so many thing we don’t believe in limitation. Watch world! 💙😁

  • @shoaibmulla5613
    @shoaibmulla5613 ปีที่แล้ว

    They made me smile. So cute

  • @churchofinitiationcentre4114
    @churchofinitiationcentre4114 ปีที่แล้ว

    All thanks to #DrObahistoricalherbs on TH-cam who cure me from epilepsy virus to I'm free thank you once again Dr you are the best on TH-cam💚

  • @jamiespecs9855
    @jamiespecs9855 ปีที่แล้ว

    This giy has no clue what he is saying 😂😂

  • @janeuzoamaka6545
    @janeuzoamaka6545 ปีที่แล้ว

    All thanks to DrObahistoricalherbs on TH-cam who cure me from epilepsy virus to I'm free thank you once again Dr you are the best on TH-cam..

  • @janeuzoamaka6545
    @janeuzoamaka6545 ปีที่แล้ว

    #DrObahistoricalherbs

  • @janeuzoamaka6545
    @janeuzoamaka6545 ปีที่แล้ว

    All thanks to DrObahistoricalherbs on TH-cam who cure me from epilepsy virus to I'm free thank you once again Dr you are the best on TH-cam

  • @janeuzoamaka6545
    @janeuzoamaka6545 ปีที่แล้ว

    #DrObahistoricalherbs

  • @osgarcia9463
    @osgarcia9463 ปีที่แล้ว

    because a laugh should never be classified as inappropriate <3

  • @Voidy123
    @Voidy123 ปีที่แล้ว

    How the hell can you compare Illegal stem cell injections to harmless cannabis.... I smell "we want to make money" here.

  • @Voidy123
    @Voidy123 ปีที่แล้ว

    "We need to know more" means, we need to find ways to make money out of people. Take it, it's safe, if a certain strain doesn't work, try another. While they are "researching", people are dying. It's like someone suffocating and you say "we better do tests on the oxygen to make sure it's clean before we allow them to inhale it".

    • @orlinzlatkov1981
      @orlinzlatkov1981 8 หลายเดือนก่อน

      They do not know how levetiracetam (Keppra) acts on the brain but still recommend it as safe and the best drug for treating epilepsy ?? The reasons are two , making money out of people's misfortune and being able to control these same people for Their own benefit.

  • @Voidy123
    @Voidy123 ปีที่แล้ว

    Have this guy ever smoked weed before... instead of saying there are a lot of molecules that have no action whatsoever he should say "that we know of" . Why do something need to be designed by scientists to be good, why not let mother nature gives us the perfectly developed plant that we need... designed drugs even from cannabis= money making, greedy idiots that banned this plant in the first place because big pharma will loose a hell of a lot of money. A lot of doctors went from "How can I make you better" to "What designed drug can I prescribe to keep you coming back for more and paying off my greedy indulgences. Luckily people are waking up to this scam and start to use cannabis as it should be used. Plant it yourself and enjoy your life..stop listening to the same people who was instrumental in banning it in the first place.

  • @alexsandraalves8705
    @alexsandraalves8705 ปีที่แล้ว

    Infelizmente aqui no Brasil não achei ainda pessoas ou locais que saibam lidar com angelman , tudo que ouço é impossível mais se há melhora já é um possível.

  • @alexsandraalves8705
    @alexsandraalves8705 ปีที่แล้ว

    Meu filho descobri agora ele 4 anos o mais difícil é controle do corpo.

  • @jimmykacious7356
    @jimmykacious7356 ปีที่แล้ว

    The effort of Dr osoria to help was surprising , all thanks to him I am feeling much better now

  • @jimmykacious7356
    @jimmykacious7356 ปีที่แล้ว

    The effort of Dr osoria to help was surprising , all thanks to him I am feeling much better now

  • @lisalamb8130
    @lisalamb8130 2 ปีที่แล้ว

    I have Prader Will syndrome it’s the opposite. It is also on the 15 chromosome. I’m am the daughter of Lisa

  • @Prince77777100
    @Prince77777100 2 ปีที่แล้ว

    Yes, but multiples of doctors have studied cannabis through the hippie generation for decades. The key to cannabis is dosage and a small dosage large amounts of anything large amounts of any drug is however a small dosage prescribed by a doctor I mean a small dosage is very effective and calming your mind it is not considered psychedelic in small doses. It's the amount of cannabis THC and CBD that is to be prescribed. Been in very severe cases such as chemotherapy such as trauma paranoid schizophrenia the doctor can raise the dose according to clinical studies documented clinical studies. The hippies discovered this in the '70s they discovered that high doses they couldn't function I couldn't carry out their responsibilities however about 10% of what was considered a dose they documented was a very pleasant manageable amount with no hallucinogenic side effects whatsoever. So what we're discussing is dosage under a doctor's care and abuse of cannabis is dangerous. However someone in an automobile accident they lost their whole family trauma patient put on a higher dose because they can't cope with reality and it helps them cope with reality again different doses for different circumstances. Under a doctor's care have a determination of those dosages calls for more study. The hippies determined a joint would waste their day however a couple of puffs would help them manage was very manageable and very enjoyable throughout the day so again with anything everything in moderation. Determining the dosage for the circumstances under a doctor's care. You drink too much wine it's not good however a glass of red wine after dinner it's considered good for your heart and your nerves. Again back to dosage back to under a doctors care they're trying to test two large of a dose of THC. And the goal is to make the patient feel better. That '70s generation they would tell each other to smoke responsibly and they would go to college and the marijuana would open up their mind and they would study more in depth even their music and their artistic abilities would they would get deeper and deeper and deeper into study by expanding the mind with marijuana a small dose because of its relaxation levels for a paranoids schizophrenic a trauma patient someone on chemotherapy those relaxation levels even in epilepsy can be very beneficial to someone that has no hope to start with only to suffer. And pharmaceuticals again and again and again have been considered dangerous and the wonderful world of psychiatry. So they use the drug and institutions to expand the mind and to study deeper because of extreme relaxation levels so now we're into dosage and education how to use the drug. Every good psychiatrist gives you a psychology with each drug they put a color on the advertisement for flowers they put the psychology on the pharmaceutical drug the same with cannabis is the drug scary or is the drug beneficial to relaxation. What if we had decided that the cochleaf was not good we wouldn't have Novocaine we wouldn't have all the healthy dental procedures that we have if our scientists and doctors had not furthered the study.

  • @skc1003
    @skc1003 2 ปีที่แล้ว

    People been using cannabis for medications for thousands of years. What side effect?

    • @Voidy123
      @Voidy123 ปีที่แล้ว

      There are only one bad side effect from smoking weed.... you now have less weed.

  • @uchennaogbungwu9075
    @uchennaogbungwu9075 2 ปีที่แล้ว

    Good bless you Dr Ogie for putting all your work and effort in helping me get this your epilepsy herbal medicine, thanks so much doctor my prescription is abundant God bless you the medicine worked perfectly thank you sir

  • @uchennaogbungwu9075
    @uchennaogbungwu9075 2 ปีที่แล้ว

    Good bless you Dr Ogie for putting all your work and effort in helping me get this your epilepsy herbal medicine, thanks so much doctor my prescription is abundant God bless you the medicine worked perfectly thank you sir

  • @sanusibelahuabake4181
    @sanusibelahuabake4181 2 ปีที่แล้ว

    I'm so glad Dr Ogie I met on TH-cam channel I really appreciate you and your work for curing me from epilepsy😊

  • @sanusibelahuabake4181
    @sanusibelahuabake4181 2 ปีที่แล้ว

    I'm so glad Dr Ogie I met on TH-cam channel I really appreciate you and your work for curing me from epilepsy😊

  • @aegiragustsson7473
    @aegiragustsson7473 2 ปีที่แล้ว

    Smoking weed strain witch is high in cbd and low or medium in thc before going to sleep i tell you helps a pation with grand mal epelepsy to get better sleep witch is one of most important thing you need to get maximum result to drug therapy. Also you talk trash about things you have no idea about what you are talking about. You do not have epelepsy but i have had it for 48 years and no drugs work for me. But cannabis do.

  • @abiodunyusuff5272
    @abiodunyusuff5272 2 ปีที่แล้ว

    I acknowledge the day I met with you Dr Ogie, thank you for your unending support in helping out with your herbal supplements, I will say you have help save a whole community thanks for your wisdom, it helps🌹🌹🌹

  • @abiodunyusuff5272
    @abiodunyusuff5272 2 ปีที่แล้ว

    I acknowledge the day I met with you Dr Ogie, thank you for your unending support in helping out with your herbal supplements, I will say you have help save a whole community thanks for your wisdom, it helps🌹🌹🌹

  • @abiodunyusuff5272
    @abiodunyusuff5272 2 ปีที่แล้ว

    I acknowledge the day I met with you Dr Ogie, thank you for your unending support in helping out with your herbal supplements, I will say you have help save a whole community thanks for your wisdom, it helps🌹🌹

  • @abiodunyusuff5272
    @abiodunyusuff5272 2 ปีที่แล้ว

    I acknowledge the day I met with you Dr Ogie, thank you for your unending support in helping out with your herbal supplements, I will say you have help save a whole community thanks for your wisdom, it helps🌹🌹

  • @middlemuse
    @middlemuse 2 ปีที่แล้ว

    I’m an SLP, and this is the best explanation of introducing AAC I’ve seen.

    • @morganlester6440
      @morganlester6440 2 ปีที่แล้ว

      I'm also an SLP and I was thinking the same thing

  • @reema9169
    @reema9169 2 ปีที่แล้ว

    God bless you and your family ♥️♥️♥️♥️

  • @shelleyrightmyer6421
    @shelleyrightmyer6421 2 ปีที่แล้ว

    ilove you somuch miss ❤

  • @iniobong5571
    @iniobong5571 2 ปีที่แล้ว

    Let me take out a moment in my busy life to send a thank you note to a very amazing doctor who is full of love and commitment,Dr ogie is truly a blessing to the world thanks for curing my epilepsy...

  • @iniobong5571
    @iniobong5571 2 ปีที่แล้ว

    Let me take out a moment in my busy life to send a thank you note to a very amazing doctor who is full of love and commitment,Dr ogie is truly a blessing to the world thanks for curing my epilepsy...

  • @ms2507
    @ms2507 2 ปีที่แล้ว

    God bless✨💛✨ you

  • @uzokaijeoma544
    @uzokaijeoma544 2 ปีที่แล้ว

    Let get to know more about getting cured with herbs I was completely cured with help of Dr Ogie on TH-cam his herbal medicine is the best I will forever be grateful doc✋

  • @uzokaijeoma544
    @uzokaijeoma544 2 ปีที่แล้ว

    Let get to know more about getting cured with herbs I was completely cured with help of Dr Ogie on TH-cam his herbal medicine is the best I will forever be grateful doc✋

  • @cyclomethiconelk
    @cyclomethiconelk 2 ปีที่แล้ว

    8 years daily smoking I had my first sezuire, 1 a month after birth in my sleep. On kepra since and continue to smoke daily no seizures. I don't belive the herb helps against I was 35 when it happened.

  • @kittykitkat4968
    @kittykitkat4968 2 ปีที่แล้ว

    They are full of smile, how amazing

  • @abdullahishaibu9573
    @abdullahishaibu9573 2 ปีที่แล้ว

    My pain and sorrow is gone thank you Dr Ogie on TH-cam for being reponsible through the nature herbal medicine you gave to me thanks dr Ogie I'm free from epilepsy❤️❤️

  • @abdullahishaibu9573
    @abdullahishaibu9573 2 ปีที่แล้ว

    My pain and sorrow is gone thank you Dr Ogie on TH-cam for being reponsible through the nature herbal medicine you gave to me thanks dr Ogie I'm free from epilepsy❤️❤️